ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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You Don't Look Sick: 'People Say ME Isn't Real But Trust Me – I Deal With It Everyday'Monday 29 April 2019
From UK news outlet Metro.co.uk:
You Don’t Look Sick: ‘People say ME isn’t real but trust me – I deal with it everyday’ Over 13.9 million people living in the UK are disabled, but many people live with conditions that you can’t always see. They struggle with symptoms every day but when you see them in the street, you would have no idea that anything is wrong. You Don’t Look Sick is our weekly series about living with invisible illnesses and disabilities. Each week, we speak to someone with a hidden condition to explore what it’s like to face judgement because they look ‘healthy’ to the outside world. Jenny McGibbon, 24, from Stirlingshire has Myalgic Encephalomyelytis (ME), also known as Chronic Fatigue Syndrome (CFS). She is one of over 250,000 people in the UK living with the condition, which is caused by a dysfunction of the neurological, immune and endocrine systems as well as the metabolism. It causes a range of symptoms, including extreme tiredness that gets worse with just a little bit of exertion. Although her symptoms mean she struggles to leave the house, Jenny admits she feels uncomfortable using disabled facilities because of how she looks.
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)