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ME/CFS SOUTH AUSTRALIA INC

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Award-Winning Soprano Raises Her Voice For Invisible Illnesses

Friday 26 April 2019

 

From Broadway World Vancouver:

 

Jacqueline Ko
Jacqueline Ko
 

Award-Winning Soprano Raises Her Voice For Invisible Illnesses

By BWW News Desk
April 24, 2019
© 2019 Wisdom Digital Media.

This May, an award-winning Vancouver singer will raise her voice for chronic neuroimmune diseases. On Saturday, May 18th, soprano Jacqueline Ko will present The Impossible Dream: A Triumphant New Benefit and Awareness Show at St. Helen's Anglican Church. Proceeds will support the ME|FM Society of BC, and the event celebrates the May 12th International Awareness Day for Myalgic Encephalomyelitis (ME) - sometimes controversially referred to as Chronic Fatigue Syndrome - and Fibromyalgia (FM).

Ko has suffered from ME since age six, and produced her first Benefit and Awareness show in 2009 at age seventeen. "I started producing Awareness shows because with an invisible illness like ME, the symptoms are only half the struggle," says Ko. "It's a whole other battle dealing with widespread misconceptions and lack of medical support. ME and FM affect over a million Canadians, yet there's barely any research funding. Most medical schools don't teach ME at all, and they think 9 out of 10 people don't even get diagnosed. These illnesses aren't just invisible because many of us look 'healthy' when we're out in public, but because we often go unidentified by doctors and ignored by policy-makers."

The consequences of this invisibility are severe. Statistics Canada reports that patients with ME and FM have the greatest unmet healthcare needs of any patient population in Canada. With 3 out of 4 ME sufferers unable to work, even part time, they also have the highest poverty levels. Ko has dedicated herself to speaking out about the struggle through her performances, even though each show causes her months of health damage. At age twenty she co-founded the critically acclaimed arts company Opera Mariposa, which is run almost entirely by individuals with disabilities, and since then she has helped them raise nearly $70,000 for ME & FM charities through her annual benefit shows.

 

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