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ME/CFS Australia Ltd
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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Why become a member?

Australian Greens Election Promises For ME/CFS

Monday 1 April 2019

 

From the Australian Greens MP Jordan Steele-John:

 

The Greens
 

MISSING NO MORE: IMPROVING THE LIVES OF AUSTRALIANS WITH ME AND CFS

THE GREENS PLAN WILL COMMIT TO:

• $15 million funding for biomedical research
• A national ME and CFS Summit
• More funding for patient advocacy organisations
• Better access to the NDIS

Myalgic Encephalomyelitis and Chronic Fatigue Syndrome are complex, multi-system, biological conditions affecting between 100,000 and 250,000 Australians.

Around 25% are so unwell that they are unable to leave home or bed, moreover, there is an estimated 5% remission rate.

ME affects mostly women and girls. Between 70 – 85% of people with ME are female. It is a highly misunderstood and underrepresented area of medicine and this has had significant implications for patients.

The Greens understand and hear the frustrations of the ME and CFS community who have been of ignored, dismissed and ridiculed for too long.

Patients and family members are routinely disadvantaged by social welfare and medical care systems which fundamentally do not understand the nature and effects of the conditions.

There is an urgent need for dedicated funding to biomedical research, and increased awareness by the medical profession and social welfare providers so that patients can get the support they need.

 

Full article (PDF)…

 


 

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