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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

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PO Box 322,
Modbury,
South Australia 5092

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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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My Label And Me: I'm Not Tired And Lazy, I Have ME

Thursday 21 February 2019

 

From UK news outlet Metro.co.uk:

 

James Wilson
James Wilson
 

My Label and Me: I’m not tired and lazy, I have ME

By James Wilson, Blogger
Thursday 14 February 2019
© 2019 Associated Newspapers Limited.

‘Ah, you’re just a bit tired,’ says my friend. ‘Just have another beer, you’ll be fine’.

Yep, I am tired but probably not as they, or you, know and understand it.

I can’t rest and get my energy back like you can and, as much as I’d like to, I can’t just ‘have another beer’ to help.

That’s because I have ME, often referred to as chronic fatigue syndrome (CFS). Put simply, it’s a neurological condition that throws out of sync many of my body’s functions, most commonly the nervous and immune systems.

The result is an intolerance to exertion and a number of unpleasant symptoms. I was first labelled as just ‘tired’ (minus the beer bit) at the age of 10.

I was ‘worn out’, ‘depressed’ or simply told that I ‘just didn’t like school’. And yes, these diagnoses all came from doctors.

It took around nine months to find an accurate diagnosis, by which point I’d gone from being a national tennis player to a wheelchair. Sadly, this period of uncertainty and misdiagnosis is all too common. As a child, these labels left me feeling like an alien, questioning what was wrong, and knowing that people didn’t believe in how I felt.

 

Full article…

 

 


 

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