ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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My Label And Me: I'm Not Tired And Lazy, I Have METhursday 21 February 2019
From UK news outlet Metro.co.uk:
My Label and Me: I’m not tired and lazy, I have ME ‘Ah, you’re just a bit tired,’ says my friend. ‘Just have another beer, you’ll be fine’. Yep, I am tired but probably not as they, or you, know and understand it. I can’t rest and get my energy back like you can and, as much as I’d like to, I can’t just ‘have another beer’ to help. That’s because I have ME, often referred to as chronic fatigue syndrome (CFS). Put simply, it’s a neurological condition that throws out of sync many of my body’s functions, most commonly the nervous and immune systems. The result is an intolerance to exertion and a number of unpleasant symptoms. I was first labelled as just ‘tired’ (minus the beer bit) at the age of 10. I was ‘worn out’, ‘depressed’ or simply told that I ‘just didn’t like school’. And yes, these diagnoses all came from doctors. It took around nine months to find an accurate diagnosis, by which point I’d gone from being a national tennis player to a wheelchair. Sadly, this period of uncertainty and misdiagnosis is all too common. As a child, these labels left me feeling like an alien, questioning what was wrong, and knowing that people didn’t believe in how I felt.
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
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South Australia 5092
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