ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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UK Christians With ME Celebrate Debate On Condition Reaching ParliamentFriday 1 February 2019
From UK Christian news outlet Premier:
Christians with ME celebrate debate on condition reaching parliament Christian activists with Myalgic encephalomyelitis (ME) are praying a debate in parliament on Thursday about the treatment and funding of patients with the condition will bring about positive change. The long-term illness leaves 75 per cent of those affected unable to work and 25 per cent housebound or bedridden. Tanya Marlow - a Christian with ME, told Premier many people do not understand what it's like living with it. "ME varies in severity but one thing that is core to everyone is that it's like having a very low battery in your system that keeps on crashing very quickly and is not recharged properly," she explained. "At the very severe end, it is absolute hell and it means even light and sound [is] interpreted by the body as pain. "You can't move, you can't speak, you can't feed yourself and it is a life of darkness and pain for years and years."
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)