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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

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PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

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ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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UK Christians With ME Celebrate Debate On Condition Reaching Parliament

Friday 1 February 2019

 

From UK Christian news outlet Premier:

 

UK Parliament
 

Christians with ME celebrate debate on condition reaching parliament

By Eno Adeogun
January 24, 2019
© Premier 2014-2019.

Christian activists with Myalgic encephalomyelitis (ME) are praying a debate in parliament on Thursday about the treatment and funding of patients with the condition will bring about positive change.

The long-term illness leaves 75 per cent of those affected unable to work and 25 per cent housebound or bedridden.

Tanya Marlow - a Christian with ME, told Premier many people do not understand what it's like living with it.

"ME varies in severity but one thing that is core to everyone is that it's like having a very low battery in your system that keeps on crashing very quickly and is not recharged properly," she explained.

"At the very severe end, it is absolute hell and it means even light and sound [is] interpreted by the body as pain.

"You can't move, you can't speak, you can't feed yourself and it is a life of darkness and pain for years and years."

 

Full article…

 


 

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