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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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'My Son Hasn't Left The House In A Year'

Thursday 18 October 2018

 

From SBS:

 

Jen Temm with son Luke
Jen Temm with son Luke
 

'My son hasn't left the house in a year'

By Jen Temm
Source: SBS Insight
17 October 2018
Copyright © 2018 SBS

Every parent knows the stress and fear of caring for an ill child. But what happens when that illness lasts for years?

For our family it’s been five years, with no end in sight.

I think parenting is much the same, whatever your situation. You want your child to be happy and fulfilled, you help manage their health, you support them in every way. It’s just a bit more intense for us: the consequences of getting it wrong can be catastrophic.

Five years ago when Luke was 10 years old, he fell ill with myalgic encephalomyelitis, also known as chronic fatigue syndrome. It started with persistent, flu-like symptoms but gradually became more severe: just being upright now can send his heart racing and his blood pressure plummeting. He hasn’t left his home for nearly a year and is often bedbound for weeks at a time.

 

Full article…

 


 

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