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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

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ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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Mission Accomplished! (????) Feds Terminate The Federal Advisory Committee On Chronic Fatigue Syndrome (ME/CFS)

Wednesday 12 September 2018

 

From Health Rising:

 

Good bye
Without an explanation or warning the DHHS
abruptly terminated CFSAC: the federal
advisory ommittee for ME/CFS.
 

Mission Accomplished! (????) Feds Terminate the Federal Advisory Committee on Chronic Fatigue Syndrome (ME/CFS)

By Cort Johnson
September 9, 2018

"An important voice has been silenced" – Dr. Lucinda Bateman

Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC – a panel of ME/CFS experts brought together to advise the federal government on ME/CFS – was abruptly over. No explanation given. See ya! Bye-bye!

The Chair of the Committee, Faith Newton, told Jennie Spotila that the notice came out of the blue: “I had no idea that this [charter expiration] was even a possibility or under consideration.” Unbeknownst to the members and the ME/CFS community, the destruction of the panel had been in the works for months.

 

Full article…

 


 

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