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ME/CFS AUSTRALIA (SA) INC

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'I Can Barely Walk And I'm Bed-Bound 23 Hours A Day - M.E. Nearly Killed Me'

Thursday 23 August 2018

 

From UK newspaper the Mirror:

 

Jessica Taylor Bearman
Jessica Taylor Bearman went to hospital and didn't leave for four years.
 

‘I can barely walk and I’m bed-bound 23 hours a day - M.E. nearly killed me’

By Jessica Taylor Bearman, as told to Lara Kilner
19 August 2018
© 2018 MGN Limited

I was a healthy child, but everything changed when I was 14 and caught a virus. The weeks went by and I didnt get better. Id lie with my head on the desk in lessons, unable to move from the exhaustion. I was sleeping a lot, I had pain in the back of my legs and Id feel sensitive to everything.

The first time I knew something was really wrong was when I couldnt get up the stairs at school. I had to stop three times and Id drop something so I could pretend I had a reason to pause. I tried to carry on, thinking, Itll go away. I didnt want to be ill, I wanted to live like a normal teenager.

Id even try to hide it from my parents Id say I was upstairs doing homework when really Id be asleep but it got to a point where I couldnt disguise how bad things were.

The doctor just prescribed painkillers and I was told to fight it. But gradually my world began to shut down. I had to stop going to school, and as the days went on I became more and more isolated. At first Id sit on the sofa with the curtains open, then the curtains were shut, then Id have to wear dark glasses as well. Then I couldnt go downstairs any more, I was in my bedroom, unable to get out.

I went from being incredibly active to having nothing in six months. It was terrifying. And I still didnt have a clue what was wrong with me.

I was finally referred to a paediatrician who diagnosed me with Chronic Fatigue Syndrome, and a month later I saw a physiotherapist who called an ambulance she was so shocked at the sight of me. Id had virus upon virus, including a throat infection that had killed my appetite so I was malnourished.

I went to hospital, and little did I know Id be there for the next four years. My body just went, I cant do this any more. I stopped being able to speak, move, eat, or talk. It was a state of semi coma, existing but not really alive. The endless days passed by with me lying there in a broken body, not thinking or listening, my brain gone. It carried on that way for two years.

 

Full article…

 


 

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