_
Society Logo
ME/CFS Australia Ltd
Please click here to donate ME/CFS Australia (SA) Inc
 
 
Facebook
 
ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Become a Member
DOCX Application Form (PDF, 156KB)
Why become a member?

It Seems Impossible That People Don't Believe Having ME Is A Serious Illness

Saturday 11 August 2018

 

From the UK edition of the Huffington Post:

 

Skye Wheeler
Skye Wheeler
 

It Seems Impossible That People Don't Believe Having ME Is A Serious Illness

I’m just a person with a body that won’t function

By Skye Wheeler, M.E. sufferer
August 8, 2018
© 2018 Oath Inc. All rights reserved.

Myalgic Encephalomyelitis, chronic fatigue syndrome, CFS/ME. These are just a few terms to describe one of the most destructive illnesses known to man. Manifesting as unrelenting fatigue and profound pain, ME/CFS is destroying the lives of 250,000 people in the UK. One in four are so severely affected that they are rendered house-bound or bed-bound with some even reliant on tube feeding. Sufferers are often confined to their beds, unable to walk and need help even to shower.

ME is a long-term illness with a wide range of symptoms. The most common symptom is extreme tiredness. But this definition doesn’t even touch the surface. My life has been ripped to pieces and then burnt down into nothing. My life was planned out. My life had so much potential but now as I write this, I haven’t moved for hours, I am in extreme pain all over my body, I lay in the dark because of light sensitivity and wait for someone to return home to take me to the toilet. My bed is my world. My bed is my support. It has seen me through endless days of torturous pain, fatigue and inner turmoil.

“But isn’t everyone tired?” This fatigue is like no other. There is nothing I would give more than to transfer my symptoms to another person for just an hour. The fatigue we feel is like a thousand bricks being tied to your body. You can’t muster up the energy to put one foot in front of the other. You can’t get dressed without a blackness descending over your eyes. You can’t carry a conversation let alone even speak. The only thing you can do is lie and exist.

Painful muscles, nerves, joints and bones. “Oh but everyone gets a bit stiff and achy”. We experience searing pain that feels like a hot knife being cut through your skin, a sledge hammer crashing down on your legs, smashing all bones to pieces. And guess what the best part is... it never goes away. Every second, minutes and days. I take over 25 different medicines a day. It’s funny because it’s almost become so normal to me now, wharfing down more than a handful of tablets. When I actually stop and realise what I’m doing it seems insane, at the age of 20, to have the body of a 90-year-old. How have I got to this point?!

 

Full article…

 


 

blog comments powered by Disqus
Previous Previous Page