ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
MP Carol Monaghan Leads Campaign For New ME Treatment
Tuesday 26 June 2018
MP Carol Monaghan leads campaign for new ME treatment
Chronic fatigue syndrome, or ME, is incorrectly treated, lacks sufficient funding and is poorly understood by many in the medical profession - according to an MP who has been campaigning in Parliament to change attitudes.
During an emotional Westminster Hall debate [see below], Scottish National Party MP Carol Monaghan argued that graded exercise therapy (GET) - offered most commonly on the NHS - is often damaging and in need of serious revision.
But researchers behind a trial of the therapy say it is a safe method of treatment.
Guidelines on how the illness should be treated in England are currently being updated.
In the debate, Ms Monaghan said: "Characterised as 'yuppie flu', and misunderstood by doctors and politicians alike, we need properly-funded biomedical research into the causes and treatment of those with ME.
"Less than £1 is spent annually on each ME patient in the UK."
GET involves patients doing increasing amounts of exercise, over weeks and months, depending on their individual needs to aid their recovery.
But MPs cited stories from constituents suffering with ME who say that GET has made their illness worse.
Ellie Bunce, 21, was diagnosed with ME in 2016 and it has forced her to put her sporting ambitions on hold.
blog comments powered by Disqus