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MP Carol Monaghan Leads Campaign For New ME Treatment

Tuesday 26 June 2018

 

From the BBC:

 

Ellie Bunce
ME sufferer Ellie Bunce was diagnosed
when she was a student.
 

MP Carol Monaghan leads campaign for new ME treatment

By Laurel Ives
BBC Health
25 June 2018
Copyright © 2018 BBC.

Chronic fatigue syndrome, or ME, is incorrectly treated, lacks sufficient funding and is poorly understood by many in the medical profession - according to an MP who has been campaigning in Parliament to change attitudes.

During an emotional Westminster Hall debate [see below], Scottish National Party MP Carol Monaghan argued that graded exercise therapy (GET) - offered most commonly on the NHS - is often damaging and in need of serious revision.

But researchers behind a trial of the therapy say it is a safe method of treatment.

Guidelines on how the illness should be treated in England are currently being updated.

In the debate, Ms Monaghan said: "Characterised as 'yuppie flu', and misunderstood by doctors and politicians alike, we need properly-funded biomedical research into the causes and treatment of those with ME.

"Less than £1 is spent annually on each ME patient in the UK."

GET involves patients doing increasing amounts of exercise, over weeks and months, depending on their individual needs to aid their recovery.

But MPs cited stories from constituents suffering with ME who say that GET has made their illness worse.

Ellie Bunce, 21, was diagnosed with ME in 2016 and it has forced her to put her sporting ambitions on hold.

 

Full article…

 

The full Westminster Hall debate:

 

 


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