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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
By appointment

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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My Daily Routine Living With . . . Chronic Fatigue Syndrome

Tuesday 12 June 2018

 

From The Irish Times:

 

Carmel Breen
Carmel Breen, before her illness,
supports Munster at a rugby match.
 

My daily routine living with . . . chronic fatigue syndrome

Your fatigue is of a physical, mental and emotional nature from which there is no refuge. You are shackled by this unyielding demon.

By Carmel Breen
Friday May 11, 2018
© 2018 The Irish Times

Imagine: you slip gently into the Land of Nod as a high-drive, progressive, active, healthy person only to awaken to an unexpected, uninvited invader. Under the cloak of darkness, it has stealthily and rapidly colonised your world, rendering you a useless, frustrated spectator in the brutish annihilation of your hopes, dreams, aspirations and ambitions. Your liberty and life as you knew and planned it, robbed and taken from you against your will. Just imagine!

Welcome to an insight into the life of someone waking up every morning to wage war on the invisible yet omnipotent tyrant otherwise known as chronic fatigue syndrome. You get sick, you don’t get better, as the days bleed into weeks, the weeks seep into months and the months normalise into years, you continue to disimprove.

Let me first articulate the insulting inadequacies of the name itself. It evokes a fluffy suggestion of nothing more than some sliding scale ranging from tiredness to exhaustion. It could be deducted from the name that a bit of sleep would cure all. However, even excess hours of sleeping fail to result in a refreshed awakening or even a sniff of a cure. A name has never failed a medical condition more degradingly.

 

Full article…

 


 

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