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ME/CFS AUSTRALIA (SA) INC

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There Was A Political Tremor This Week Over One Of The World's Most Neglected Diseases

Saturday 9 June 2018

 

From The Canary:

 

Millions Missing placard
 

There was a political tremor this week over one of the world’s most neglected diseases

By Steve Topple
June 8th, 2018
© Canary Media Limited 2015-18. All rights reserved.

There was a sudden flurry of political activity during the past week over one of the most under-researched and stigmatised diseases going: myalgic encephalomyelitis/chronic fatigue syndrome, commonly referred to as ME/CFS or ME.

A debilitating disease

ME is a chronic systemic neuroimmune disease. It affects an estimated 17 million people worldwide and around 250,000 people in the UK. But the disease has been fraught with controversy. Not least because for decades (and often still to this day), the medical profession has not properly recognised it. So campaign groups like #MEAction are trying to raise awareness of the disease. And it now seems their message, and that of the ME community as a whole, is dripping through to our politicians.

ME in parliament

On Tuesday 5 June, SNP MP Carol Monaghan brought an early day motion, one she’d previously raised, to the House of Commons backbench business committee. Monaghan was hoping to secure a full parliamentary debate into ME. And she partly did; managing to get a three-hour Westminster Hall debate on 21 June. Monaghan said in her evidence to the committee:

"The big issue for people living with ME is that there has been a dearth of funding into biomedical research. The major funding so far was for a very controversial piece of research called the PACE trial. It considered ME to be a psychological condition, not a pathological one… [ME] is very poorly funded, and most of that funding actually comes from ME charities."

 

Full article…

 


 

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