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ME/CFS AUSTRALIA (SA) INC

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Chronic Pain Has Made It Hard To Do The Thing I Love Most, But Not Impossible

Friday 8 June 2018

 

From The Daily Dot:

 

Woman
 

Chronic pain has made it hard to do the thing I love most, but not impossible

Lisa Ruiz
June 7, 2018
© The Daily Dot, all rights reserved.

I’m a reader. I usually read around 50 books a year when left to my own devices, not counting news articles, blog posts, and internet nonsense. I read for any and every reason: to learn about growing vegetables from seed, to disappear into a hilarious version of 1920s Britain, to wrestle with philosophies of existence and meaning.

Last summer, though, I relapsed into chronic illness and I only read two books in the six remaining months of 2017. I have a few different health conditions that result in pain: fibromyalgia, chronic migraine, and myalgic encephalomyelitis (also known as chronic fatigue syndrome), but sometimes major depressive disorder shows up to give it that little extra “oomph.” Going into specific symptoms would make this post unreasonably long, so I’ll sum it up by saying: I hurt everywhere. It’s the worst in the muscles and joints I use the most, like my hands, neck, and shoulders. Light makes my eyes ache and ramps up my migraine. I don’t have a lot of energy and I often have to stop daily life activities when pain becomes unbearable.

This, of course, has a profound effect on my reading. Holding a book or device for an extended period is usually impossible. I fear bright light and have taken to hissing at it like a decidedly unsexy vampire. Even repetitive motion like turning pages can be too painful. Over time, though, I’ve trialed and errored my way into a reading habit that works with my body.

 

Full article…

 


 

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