ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
For The Provider: Working With Patients With ME/CFS And Their Caregivers
Thursday 29 March 2018
Here's a new resource for taking to medical appointments, with many thanks to Dr Lynn Fuentes and the #MEAction Caregivers' Support Group:
For the Provider: Working with Patients with ME/CFS and their Caregivers
Download this document (PDF)
Many patients with ME/CFS, particularly those who are most severely ill, may not have the energy to adequately describe their symptoms and needs or engage in needed discussions about care and treatment. The full extent of symptoms is not obvious in a short meeting, but it is important to be aware that you may need to communicate with a caretaker or note taker to ensure that all necessary information has been communicated to you and that instructions you offer are understood and recorded.
Some Useful Facts About ME/CFS Patients
For all of these reasons, it is important to have a caregiver, or at the very least a note taker, at any appointment.
Be aware that the caregiver may need to do a lot of the talking. This does not represent an attempt to take over from the patient; it is a practical way to convey information that the patient needs to have communicated when he or she is not able to effectively do it themselves.
Some Ways To Help:
Thank you for all you do!
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