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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Changing Lives While Living With Chronic Illness

Thursday 4 January 2018

 

From US news outlet The Valley Advocate:

 

Erica Verrillo
Erica Verrillo
 

Changing Lives While Living With Chronic Illness

By Chris Goudreau
January 2, 2018
Copyright © 2017 The Valley Advocate

Erica Verrillo of Whatley has written more than half a dozen books and launched a non-profit national organization, all while being partially bedridden for the past three decades.

Verillo has Myalgic Encephalomyelitis (M.E.), a chronic and fluctuating neurological disease characterized by extreme exhaustion, muscle weakness, sensitivity to pain, confusion, forgetfulness, a weak immune system, and a lack of concentration.

In 1998, Verillo co-authored a health book called, Chronic Fatigue Syndrome: A Treatment Guide, which was the only book available as a guide for people suffering from M.E. Using the knowledge she’s gained from writing the book and the more expansive second edition published in 2013, she founded the American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society this past year.

“People with M.E., we don’t have a national organization … There’s plenty of organizations that represent people who have different diseases. We don’t have one. The purpose of the organization is to provide direct aid to patients — how they can find doctors, how they can find treatments that are effective, helping them with disability forms,” she said.

There are more than 3,400 research abstracts on the site, which is available for patients as well as physicians and researchers, she said.

Verillo said she became sick with a mild form M.E. in 1992, which went undiagnosed.

“What they don’t tell you is that with the mild case, you can have a relapse,” she said. “A relapse can produce a severe case and that’s exactly what happened with me.”

 

Full article…

 


 

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