December |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Chair's Christmas Challenge For ME/CFS Australia
A fundraiser from ME/CFS Australia's Geoffrey Hallmann on MyCause. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Fibromyalgia Relief From The Hummingbird
US Fibromyalgia sufferer Cindy Leyland tries a device called the Hummingbird that claims to provide Fibromyalgia symptom relief. |
• |
Petition: Remove "Afflicted" Docuseries From Netflix Now
A petition created by Benjamin HsuBorger. |
• |
Asda Saves Christmas For Mum Sent Sausage And Chips - But She Won't Shop There Again
A UK mum with ME/CFS who was sent sausage and chips instead of Christmas dinner said she "will never shop at Asda again" - even after their bid to save the day. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
17 Women With Chronic Illnesses Share How They Finally Got Diagnosed
An article featuring stories from women with chronic illnesses about their searches for a diagnosis. |
• |
The 2018 Fibromyalgia Year In Review: The Good News And The Bad News – From This Year's Headlines
An article by US Fibromyalgia advocate Ginevra Liptan, MD. |
• |
A Holiday Message For ME/CFS Sufferers And Caregivers
An article by US ME/CFS advocate Llewellyn King. |
• |
A Systematic Review Of Enteric Dysbiosis In Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
Research published in the journal Systematic Reviews. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Merry Christmas
All of us here at ME/CFS Australia (SA) Inc wish you a very merry Christmas! |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Chair's Christmas Challenge For ME/CFS Australia
A fundraiser from ME/CFS Australia's Geoffrey Hallmann on MyCause. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Validity And Reliability Of The Fibromyalgia Rapid Screening Tool Among Individuals With Chronic Daily Headache: A Clinic-Based Study
Research published in the medical journal Pain Medicine. |
• |
Petition: Remove "Afflicted" Docuseries From Netflix Now
A petition created by Benjamin HsuBorger. |
• |
Consultation On The ME/CFS Advisory Committee Report To The NHMRC Chief Executive Officer
The National Health and Medical Research Council (NHMRC) ME/CFS Advisory Committee is releasing the draft ME/CFS Advisory Committee Report to the NHMRC Chief Executive Officer for public consultation. |
• |
Cinderella Pays Magical Visit To Brave Elspeth's Bedside
A lifelong British pantomime fan enjoyed a magical visit from Cinderella herself, after a debilitating condition meant she couldn't see the show. |
• |
First Two Businesses Now Open At Otto 79
Following an extensive renovation to the building, the first two businesses located inside "Otto 79" in Lititz, Pennsylvania, are now open for business. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
Chronic Fatigue Syndrome: New Evidence Of Biological Causes
An article by Alice Russell and Carmine Pariante about new research from King's College London showing biological causes of ME/CFS. |
• |
Holiday Advocacy Victory: 42 Members Of Congress Sign On To Support People With ME/CFS
Thanks to another strong turnout from the ME/CFS advocacy community, 14 Senators and 28 Congressional Representatives joined together to sign a bipartisan letter to the US Department of Health and Human Services in support of people with ME/CFS. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Clues To Chronic Fatigue Syndrome In Overactive Immune Response
New research from King's College London finds that an exaggerated immune response can trigger long-lasting fatigue, potentially explaining how Chronic Fatigue Syndrome begins. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Hope For ME Patients As Immune System Study Challenges Stigma That Chronic Fatigue Is 'All In The Mind'
A test to identify people at risk of debilitating Chronic Fatigue Syndrome, also known as Myalgic Encephalopathy, and minimise its impact has seen a breakthrough, scientists have said. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Hidden Mould Affecting Canberrans On The Rise
Health experts are warning of a growing number of patients suffering from symptoms such as chronic fatigue, cramps and joint pain brought on by mould. |
• |
We Were Women Comforted By Shared Pain
An article by US Fibromyalgia sufferer Tabitha McDuffee. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Not The Christmas Bonus I Wanted
An article by US Fibromyalgia sufferer Christine Lynch. |
• |
Petition: Remove "Afflicted" Docuseries From Netflix Now
A petition created by Benjamin HsuBorger. |
• |
A Compromised Paraventricular Nucleus Within A Dysfunctional Hypothalamus: A Novel Neuroinflammatory Paradigm For ME/CFS
Research from the International Journal of Immunopathology and Pharmacology. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
9 Rounds Of Electroshock Therapy. 6 Years Lost. All Because Her Doctors Got It Horribly Wrong.
A profile of US ME/CFS sufferer Courtney. |
• |
The Link Between Idiopathic Intracranial Hypertension, Fibromyalgia, And CFS: Exploration Of A Shared Pathophysiology
Research published in the Journal of Pain Research. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Walk A Mile In My Shoes: Trying On CWTCH's Chronic Illness Symptom Suit
Reporter David Lynch tries on a "disability suit" to experience chronic illness. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Metabolic Fingerprinting For Diagnosis Of Fibromyalgia And Other Rheumatologic Disorders
Research published in the Journal of Biological Chemistry. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Prospective Biomarkers From Plasma Metabolomics Of ME/CFS Implicate Redox Imbalance In Disease Symptomatology
Research published in the medical journal Metabolites. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
New Australian Research Network Holding Scientific Workshop On ME
Five Australian universities have joined together, along with the CFS Discovery Clinic, to form the ME/CFS Discovery Research Network or MDRN to collaborate and foster biomedical research into Myalgic Encephalomyelitis. |
• |
Petition: Remove "Afflicted" Docuseries From Netflix Now
A petition created by Benjamin HsuBorger. |
• |
'Invisible' Disabilities Campaign Calls On Community To 'Think Outside The Chair'
Living in an Australian society that understands and accepts all forms of disability is no longer a pipedream for New South Wales woman Marni Walkerden. |
• |
Could Disease Labelling Have Positive Effects?
Research entitled "Could disease labelling have positive effects? An experimental study exploring the effect of the Chronic Fatigue Syndrome label on intended social support". |
• |
Meet The Scientists: Prof Sonya Marshall-Gradisnik
A profile of Australian ME/CFS researcher Prof Sonya Marshall-Gradisnik. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
IAFME Submits Trans-National Consensus Document To WHO
The International Alliance for Myalgic Encephalomyelitis (IAFME) has produced a trans-national consensus document covering ME. |
• |
Australian MP Adam Bandt Talks About ME/CFS In Parliament
Australian MP Adam Bandt formally tabled in Parliament a petition signed by close to 1,400 people around Australia who are living with ME/CFS. |
• |
Could Poor Microcirculation Be Causing Chronic Fatigue Syndrome (ME/CFS)?
Could the microvascular system – the small capillaries and the red blood cells that run through them – hold the key to energy problems in ME/CFS and perhaps Fibromyalgia. |
• |
Rituximab Serum Concentrations And Anti-Rituximab Antibodies During B-Cell Depletion Therapy For ME/CFS
Research published in Clinical Therapeutics. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
OMF-Funded Red Blood Cell Deformability Study Abstract
The Open Medicine Foundation reports that red blood cells are less deformable in ME/CFS patients compared to healthy controls. |
• |
First Medical Cannabis Prescription Made After Change To UK Law
A former university lecturer is believed to be the first patient in the UK to be prescribed cannabis by a doctor, following the legalisation of the drug for medical use. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Duterte To Confer Highest Civil Service Award On Miriam Defensor Santiago
The late Philippino senator Miriam Defensor Santiago is set to be bestowed by President Rodrigo Duterte with the Quezon Service Cross. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Student, Staff Strive To Make Laundry A Healthier Practice At CMU
A profile of Central Michigan University student and Multiple Chemical Sensitivity sufferer Samuel Connors. |
• |
Petition: Remove "Afflicted" Docuseries From Netflix Now
A petition created by Benjamin HsuBorger. |
November |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
Generous $2m Donation To Bolster Efforts Of Griffith CFS Researchers
The opening address at an international conference on Chronic Fatigue Syndrome marked the announcement of two funded professorships for Griffith University researchers worth more than $2 million. |
• |
GcMAF: Unlicensed HIV Drug 'Nearly Killed Patient'
Up to 75% of patients in the UK who reported taking GcMAF, an unlicensed drug marketed as a cure for autism, HIV and cancer, suffered side effects, a court heard. |
• |
The Triumph Of Eminence-Based Medicine
An article by Brian Hughes about the controversy surrounding the PACE Trial. |
• |
10 Things I'd Like My Readers To Know About Me, By Vikki Patis
A profile of UK author and Fibromyalgia sufferer Vikki Patis. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Lena Dunham Wants To Be The "Face of Fibromyalgia"
A profile US actor and Fibromyalgia sufferer Lena Dunham. |
• |
Experts Weigh In: Are Essential Oils Safe?
An article about the potential dangers posed by essential oils. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
'I Was In Denial And Ashamed By My CFS'
An article by Australian ME/CFS sufferer Simon Del Favero. |
• |
The Time I Bought A $2,000 Coffee Mug
US ME/CFS sufferer Jamison Hill bought a coffee mug for $2,000 to aid ME/CFS awareness. |
• |
Jenni, 19, Fought Back From Chronic Fatigue Illness Which Left Her Unable To Get Out Of Bed
A profile of UK ME/CFS sufferer Jenni Mawson. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
UK Woman With ME Whose Disability Benefits Were Cut Told She Is Too Poor To Adopt A Child With Her Partner
A profile of UK ME/CFS and Fibromyalgia sufferer Samantha Bond. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Society Seminar Reminder
Please join us today (Saturday 24 November) for our last seminar for 2018. |
• |
Petition: Remove "Afflicted" Docuseries From Netflix Now
A petition created by Benjamin HsuBorger. |
• |
Society Seminar Reminder
Please join us this Saturday 24 November for our last seminar for 2018. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
Surf Champion Tyler Wright Reveals Struggle With Chronic Fatigue
Reigning world surfing champion Tyler Wright has revealed the severity of a battle with chronic fatigue after withdrawing from the season-ending event in Hawaii. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Society Seminar Reminder
Please join us this Saturday 24 November for our last seminar for 2018. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
How The Opioid Epidemic Is Affecting People With Fibromyalgia In The US
People in the US who rely on opioids for managing pain, such as Fibromyalgia sufferers, are being affected by a crackdown on opioid prescriptions. |
• |
US Fibromyalgia Sufferer Brings Ltd Lawsuit Against Life Insurance Co. Of North America
US Fibromyalgia sufferer Marisa Finnerty has filed a long-term denied disability lawsuit against the Life Insurance Company of North America. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
'Invisible' Disabilities: Car Park Confrontation Prompts Call For Greater Recognition
Fed up with judgemental looks, comments and confrontations, a young South Australian woman living with a debilitating disease is calling for more recognition of 'invisible' disabilities. |
• |
Canadian Woman Raises Awareness Of Debilitating Disease
A profile of Canadian ME/CFS sufferer Hilary Robertson. |
• |
Brain Abnormalities In ME/CFS: Evaluation By Diffusional Kurtosis Imaging And Neurite Orientation Dispersion And Density Imaging
Research published in the American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society. |
• |
Petition: Remove "Afflicted" Docuseries From Netflix Now
A petition created by Benjamin HsuBorger. |
• |
UK Teen With ME/CFS Took Her Life On Christmas Eve After Break-Up With Boyfriend
Bethan Charles had struggled with mental health and physical conditions including Chronic Fatigue Syndrome. |
• |
University Of Minnesota ME/CFS Medical Education Event
A video presentation from the University of Minnesota. |
• |
CFS/ME International Conference For 2018
Griffith University's National Centre for Neuroimmunology and Emerging Diseases will be hosting a conference on ME/CFS research. |
• |
Employment Opportunities For People With Lived Experience Of Disabilities
A document from Scope Global / Disability Inclusion Project. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
Study Examines Link Between Immune Dysfunction And Metabolism In ME
A research paper entitled "CD24 Expression and B Cell Maturation Shows a Novel Link with Energy Metabolism: Potential Implications for Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". |
• |
'WE CAN’T SURVIVE' – Disabled Welsh Mum Says Universal Credit Is Driving Her To Food Banks 'After Losing Hundreds Of Pounds A Month'
A profile of Welsh Fibromyalgia, Depression, and PTSD sufferer Debbie Clark. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
TODAY 2018: How Chronic Fatigue Syndrome Leaves Sufferers House-Bound
Australian television program TODAY's Agenda gets to the bottom of what Chronic Fatigue Syndrome actually is. |
• |
Mould Avoiders: The Aussies Going To Excessive Lengths To Deal With Continual Sickness
A profile of Australian Multiple Chemical Sensitivity and ME/CFS sufferers. |
• |
Second Annual Community Symposium On The Molecular Basis Of ME/CFS
A collection of videos from the symposium, sponsored by the Open Medicine Foundation. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
2019 ME/CFS International Research Symposium
Emerge is proud to host an international research symposium on ME/CFS supported by funding from the Australian Government Department of Health. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Shining A Light On Chronic Fatigue Syndrome, A Little Understood Disease Among Doctors
An article by US ME/CFS sufferer Jennie Spotila. |
• |
14 Celebrities Who Have Opened Up About Battling Lyme Disease
A profile of 14 US celebrities with Lyme Disease. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
5 Dilemmas Faced By The Chronically Ill As They Age
An article by psychologist Toni Bernhard JD. |
• |
Solve ME/CFS Initiative And #MEAction Lead 10 Organizations In Request For ME/CFS Legislation
The Solve ME/CFS Initiative, #MEAction, and eight other ME/CFS organizations sent a letter to the US House of Representatives requesting that they create legislation for ME/CFS. |
• |
CFS/ME International Conference For 2018
Griffith University's National Centre for Neuroimmunology and Emerging Diseases will be hosting a conference on ME/CFS research. |
• |
Employment Opportunities For People With Lived Experience Of Disabilities
A document from Scope Global / Disability Inclusion Project. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
Trial By Error: An Australian Exchange With Professor Sharpe
Correspondence between Professor Michael Sharpe and the Australian ME/CFS community. |
• |
UK Man's Angry YouTube Rant About 'Broken Door Lazy Council Won't Fix'
UK ME/CFS sufferer Alan Ganly has branded his two-year stay at his flat in Pearson Park as a 'nightmare'. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Medicinal Cannabis Now Legal On Prescription In The UK
Consultants in the UK will be able to prescribe medicinal cannabis after a campaign by mother Charlotte Caldwell prompted a change in the law. |
• |
Portsmouth Woman Writes Song To Say Thanks To Charity For Assistance Dog That Changed Her Life
UK ME/CFS sufferer Rahcel Rawlings has written a song about her assistance dog. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
What Questions To Ask A Doctor About Fibromyalgia Or Getting Diagnosed
A video by Australian Fibromyalgia sufferer Jessica Stephens Young. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
New Study Shows Brain Inflammation In Fibromyalgia Patients For The First Time
A new study has found "visible" evidence of brain inflammation in people with Fibromyalgia. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
What Role Should The Public Play In Science? - Science Weekly Podcast
The Guardian's Ian Sample speaks to Prof Michael Sharpe from the University of Oxford and to Dr Kim Goldsmith from King’s College London. |
• |
Do Vaccines Cause Fibromyalgia Or Chronic Fatigue Syndrome (CFS)?
Research published in The Clinician’s Vaccine Safety Resource Guide. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
The Loves Of My Life: Arlene McIntyre
A profile of Irish interior designer Arlene McIntyre. |
October |
• |
Grandma With Severe Chronic Fatigue Syndrome Misses Daughter's Wedding And Grandchildren's Childhoods
A profile of UK grandmother and ME/CFS sufferer Nancy Collins. |
• |
Lollipop Man John Leaves Lasting Legacy At Paisley School
US medical researcher Dr Liz Worthey has received a $45,000 grant to study the causes of Chronic Fatigue Syndrome. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
HudsonAlpha Scientist Receives $45,000 Grant To Study Causes Of Chronic Fatigue Syndrome
US medical researcher Dr Liz Worthey has received a $45,000 grant to study the causes of Chronic Fatigue Syndrome. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
VIDEO: Dr. Eran Segal Gives An Update On His Ramsay 2017 ME/CFS Project
Dr Eran Segal is lead investigator of a project exploring the gut microbiota-immune system interaction in ME/CFS. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
'Cured By Chopin'
The First United Methodist Church of Milton in Florida will hold a classical piano concert, “Cured by Chopin”, featuring pianist and ME/CFS sufferer Robert Holtzclaw. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
ME And Chronic Fatigue: 'Some Doctors Don't Believe You're Sick'
A 22-year-old Welsh woman who suffers from ME/CFS says some doctors do not believe the disease exists and patients struggle to get the care and support they need. |
• |
Judge Dismisses Suit Involving Dutch Creek Road Work
A US District Court judge dismissed a lawsuit earlier this month that a Dutch Creek Road couple had filed claiming that potential roadwork on the road poses a mortal threat to Cindi Madej due to a chemical-sensitivity medical condition she suffers from. |
• |
The Heartwarming Story Of How Ex-Soldier And Homeless Dog Ended Up Rescuing Each Other
Welsh Fibromyalgia sufferer John Riddler trained up Coz as his assistance dog to carry out the every day tasks he struggles to do. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
Just Another Week In Real-World Science: De Venter Et Al. (2017)
Statistician Nick Brown analyses a paper attempting to link ME/CFS with childhood trauma. |
• |
Pass The Snuff And Loosen The Corsets – They're Back To Researching Hysteria
A poster for a study being undertaken by Professor Andrew Lloyd's Fatigue Clinic at the University of New South Wales asks the question "Are women with CFS ovary-reacting?". |
• |
The Development Of The DePaul Symptom Questionnaire: Original, Expanded, Brief And Pediatric Versions
This article chronicles the development of the DePaul Symptom Questionnaire to assess symptoms of the major ME/CFS case definitions. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
7 Things You Shouldn't Say To Someone With A Chronic Or Invisible Illness
An article by Lupus sufferer Caitlin Flynn. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Diagnosis And Management Of Myalgic Encephalomyelitis And Chronic Fatigue Syndrome
A profile of Australian Jen Temm and her ME/CFS sufferer son Luke. |
• |
Mother Speaks About The Difficulties Of Raising A Teenage Son With Chronic Fatigue Syndrome
A profile of Australian Jen Temm and her ME/CFS sufferer son Luke. |
• |
COMPLICATED Avril Lavigne Felt 'Like She Was Dying' And Spent Two Years In Bed As She Battled Lyme Disease
A profile of Canadian singer and Lyme Disease sufferer Avril Lavigne. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
A 16-Year-Old Girl With Fibromyalgia Got A 'Halloween'-Themed Birthday Surprise After All But Two Friends Canceled On Her Party
A 16-year-old girl with Fibromyalgia got a "Halloween"-themed birthday surprise from the film's producer Jason Blum after all but two friends canceled on her Michael Myers-themed party. |
• |
Paediatric ME/CFS
A profile of ME/CFS researcher Dr Robert Phair. |
• |
HealthRising: The Metabolic Trap Shines During The Symposium On The Molecular Basis Of ME/CFS At Stanford
A profile of ME/CFS researcher Dr Robert Phair. |
• |
A New Immunotherapy Paradigm: It's Not Just For Cancer Anymore
A profile of Dr Bruce Gillis, CEO of EpicGenetics, who is heading research into immunotherapy for Fibromyalgia. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
BRETT LIDBURY - Finding ME/CFS Biomarkers Using Big Data & Collaboration
Australian ME/CFS advocate Gusto Cohen interviews Associate Professor Brett Lidbury to discuss his role in using massive data sets and working with multiple labs to draw insights into ME/CFS. |
• |
Chronic Pain Patients Rally, Say They Are Being Punished By New Opioid Guidelines
US chronic pain patients held a rally because they say they are being punished by recent CDC guidelines that discourage doctors from writing prescriptions for pain medication. |
• |
Katie Boulter Hoping To Inspire Others After Battling Chronic Fatigue To Reach Top 100 Of WTA Rankings
UK tennis star Katie Boulter hopes to inspire young people with debilitating conditions to "achieve their dreams" after battling Chronic Fatigue Syndrome to make the world top 100. |
• |
Glasgow Artist Giving Insight Into Chronic Illness Suffered By Lady Gaga
A profile of Scottish Fibromyalgia sufferer Amy Rosa. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
Exclusive: Science Journal To Withdraw Chronic Fatigue Review Amid Patient Activist Complaints
A respected science journal is to withdraw a much-cited review of evidence on an illness known as Chronic Fatigue Syndrome amid fierce criticism and pressure from activists and patients. |
• |
'My Son Hasn't Left The House In A Year'
A profile of Australian Jen Temm and her ME/CFS sufferer son Luke. |
• |
'I'm 33 And Have Been Living In Aged Care For Eight Years'
A profile of Australian ME/CFS sufferer Ketra Wooding. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
'Insight' On Chronic Fatigue Syndrome: Andrew's Experience
A profile of Australian ME/CFS sufferer Andrew Bretherton, who appears on SBS program Insight's episode about ME/CFS. |
• |
A Tricky Condition
For teenagers in their senior high school years, the impact of ME/CFS can be significant and extremely debilitating, says parenting columnist Ian Munro. |
• |
Get To Know Scotch Plains School Candidate: Tonya Williams
A profile of US small-business owner and ME/CFS advocate Tonya Williams. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Eliminating Gender Bias Lowers Estimated Fibromyalgia Prevalence In Women, Study Reports
According to a new study, when gender bias is eliminated the proportion of women with Fibromyalgia is lowered to 60% from the generally accepted view of 90%. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
MY STORY: Pain Is My Constant Companion
A profile of Kenyan Fibromyalgia sufferer Karambu Muthaura. |
• |
Linley Frame To Keep Swimmers Afloat When Racing Is Over
A profile of Australian retired Olympic swimmer Linley Frame. |
• |
Bluesman With A Passion For Sharing His Talent
A profile of Australian musician and ME/CFS sufferer Peter Gelling. |
• |
Rowe's Research Runners Returns, This Time With New Features Including Live Music
The 2nd annual Rowe's Research Runners One Mile Walk/Run/Roll at the Pennsylvania Military Museum on October 20 is a charity run designed to raise money for Chronic Fatigue Syndrome, Dysautonomia and related illnesses. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
5 Things You Should Know About Dysautonomia If You Have Fibromyalgia
An article by Celeste Cooper about Dysautonomia and Fibromyalgia. |
• |
Brain Inflammation Imaged For First Time In Fibromyalgia Patients, Study Reports
Combining two imaging techniques has allowed researchers, for the first time, to visualize widespread inflammation, specifically mediated via glial cells, in the brains of Fibromyalgia patients. |
• |
Netflix Is Televising Prejudice Against The Chronically Ill
An article by Julie Rehmeyer about the Netflix documentary series Afflicted. |
• |
'I Was Sleeping For 16 Hours Straight And Still Exhausted'
A profile of Australian model Tegan Martin. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
Brain On Fire: Widespread Neuroinflammation Found In Chronic Fatigue Syndrome (ME/CFS)
An article by Cort Johnson of Health Rising. |
• |
ME Association Summary Report of the 2018 CMRC Research Conference | 08 October 2018
A report of the 5th annual CFS/ME Research Collaborative (CMRC) conference was held in Bristol on the 19th and 20th of September 2018. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
MCS: The Illness Crippling Australians, Dismissed By Doctors
A segment on SBS Viceland's The Feed about Multiple Chemical Sensitivity in Australia. |
• |
SMCI President Carol Head On The Complexities Of Studying, Funding, Treating ME/CFS
An interview with Solve ME/CFS Initiative president Carol Head. |
• |
Watch Belle & Sebastian's Stuart Murdoch Talk Chronic Fatigue Syndrome On CNN
Scottish musician and ME/CFS sufferer Stuart Murdoch featured in an interview on CNN's Turning Points With Dr. Sanjay Gupta. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Lena Dunham Has Fibromyalgia
US actor Lena Dunham revealed on Instagram that she has Fibromyalgia. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
CMRC2018 Conference: First Films Now Available
On 19 and 20 September, the UK CFS/M.E. Research Collaborative (CMRC) welcomed people living with M.E., scientists, clinicians and industry experts to its fifth annual science conference in Bristol, and films of conference presentations are now available. |
• |
School Functioning In Adolescents With Chronic Fatigue Syndrome
Research suggests that adolescents with CFS are at increased risk for poor school functioning across a range of indicators which extend beyond school absenteeism. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Woman Who Only Went To The Toilet ONCE A Week Was So Bloated By Mystery Illness That People Thought She Was Pregnant
A profile of UK couple Kayleigh and Robert Henning. |
• |
Brain Scans Suggest Pain Of Fibromyalgia Isn't Imaginary
People with Fibromyalgia have widespread inflammation in their brains, new research reveals. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
Chronic Viral Infections In ME/CFS
Research published in the Journal of Translational Medicine. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Crusading GP Inspired By A Child's Plight
A profile of UK GP James Irving Spurr, a doctor who spent most of his life advocating for ME/CFS sufferers. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
September |
• |
Chronic Fatigue Syndrome - The 'Missing People' Enigma
An article in The Sydney Morning Herald about Australians with ME/CFS. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Sick, But Not Sick Enough: Surviving On Newstart With A Chronic Illness Is Hell
An article by Stacey Thompson about her difficulties in securing assistance from Australia's NDIS, Centrelink, and Newstart. |
• |
Fibromyalgia, Migraines & The Science Of Clinical Endocannabinoid Deficiency
A theoretical syndrome, clinical endocannabinoid deficiency, could provide new insight into painful conditions suffered by millions. |
• |
Macquarie University Studies Hypochondria In Chronic Fatigue Syndrome, MCS And Fibromyalgia
Macquarie University are recruiting people with Chronic Fatigue Syndrome, Fibromyalgia, gastrointestinal disorders and Multiple Chemical Ssensitivity for a study measuring somatic symptoms, hypochondria, anxiety and depression, catastophising and co-morbid diseases. |
• |
Entertainment Book
Buying an Entertainment Book for yourself or as a gift for others is one way of supporting your Society. |
• |
Research Teams Find Widespread Inflammation In The Brains Of Fibromyalgia Patients
A study by Massachusetts General Hospital researchers - collaborating with a team at the Karolinska Institutet in Sweden - has documented for the first time widespread inflammation in the brains of patients with Fibromyalgia. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
Therapies For Fibromyalgia May Be On The Horizon
Researchers at Karolinska Institutet, Sweden, and Harvard University, USA, have made a groundbreaking step towards finding new therapies for Fibromyalgia. |
• |
Under The Microscope
A profile of US Multiple Chemical Sensitivity suffer Dr Lisa Nagy, who participated in the controversial Netflix docuseries Afflicted. |
• |
Disabled BMX Lover Back In Saddle After Local Charity Support
A young man from the UK who battles with "a number of invisible disabilities" is riding high after local charities helped him get back on the saddle. |
• |
One Writer Tells Us Everything To Know About Living With Fibromyalgia
An interview with author and Fibromyalgia sufferer Claire Allan. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Actress Amy Carlson Accepts Muhammad Ali Humanitarian Award, Honors Friend Lost To ME/CFS
US actress and ME/CFS activist Amy Carlson was honored at the Muhammad Ali Humanitarian Awards for her long history of activism. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Gary's Summiting Mount Kilimanjaro
UK climber Gary Swart will be climbing Mount Kilimanjaro to raise funds for ME/CFS research. |
• |
Hartlepool Venue To Launch CD Telling Incurable Condition To 'Rock Off'
A charity CD that will boost support for people with an incurable illness will be launched in Hartlepool. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Lavigne Keeps 'Head Above Water' With Lyme Disease
A profile of Canadian musician and Lyme Disease sufferer Avril Lavigne. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
Buying an Entertainment Book for yourself or as a gift for others is one way of supporting your Society. |
• |
An Open Letter Accuses Netflix's 'Afflicted' Of Abandoning Ethics And Science
Maya Dusenbery has joined with others in publishing an open letter calling for Netflix to remove their documentary series Afflicted. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
Australian MP Adam Bandt Talks About ME/CFS In Parliament
Australian Member of Parliament Adam Bandt has mentioned ME/CFS in Parliament. |
• |
Reunited... Lost Pet Rufus Back In ME Sufferer Hannah's Arms
Irish ME/CFS sufferer Hannah Mulholland has said she is overjoyed after her missing health companion dog of 12 years was found alive. |
• |
Open Letter Asks Netflix To Immediately Remove 'Afflicted' From Streaming
A group of artists, writers, physicians and scientists have signed an open letter to Netflix denouncing its recent documentary “Afflicted” for its portrayal of chronic illness, and asking Netflix executives to immediately remove the series from its platform. |
• |
65km Trek For Fibromyalgia
Australian Fibromyalgia suffer Erin Hext will be hiking Tasmania's Overland Trail to raise finds for Fibromyalgia research. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Netflix Users Demand Service Remove Chronic Illness Series 'Afflicted'
More than 7,400 people have signed a petition calling for Netflix to take down Afflicted, a controversial documentary series about people with chronic illnesses released in August. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
Buying an Entertainment Book for yourself or as a gift for others is one way of supporting your Society. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
NIH Launches New Working Group Dedicated To ME/CFS
The US National Institutes of Health recently formed The ME/CFS Working Group of the NINDS (National Institute of Neurological Disorders and Stroke) Advisory Council. |
• |
'I Couldn't Hold A Pen' Mum Reveals Fibromyalgia Battle – Same Illness As Kirsty Young
A profile of UK Fibromyalgia sufferer Claire Allan. |
• |
Lady Gaga Opens Up In Vogue Interview About Struggling With Fibromyalgia And PTSD
In her cover interview for the October 2018 issue of Vogue, Lady Gaga has opened up further about her health and about the misconceptions that inevitably follow diagnoses of Fibromyalgia and other chronic illnesses. |
• |
How Netflix's 'Afflicted' Failed The Chronic Illness Community
According to participants in the US docuseries, producers promised compassion but delivered exploitation instead. |
• |
65km Trek For Fibromyalgia
Australian Fibromyalgia suffer Erin Hext will be hiking Tasmania's Overland Trail to raise finds for Fibromyalgia research. |
• |
Mission Accomplished! (????) Feds Terminate The Federal Advisory Committee On Chronic Fatigue Syndrome (ME/CFS)
An article by US ME/CFS sufferer and advocate Cort Johnson. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Guidelines For ME/CFS Outdated And Dangerous
A statement from Felicity Nelson published in Medical Republic. |
• |
Tireless Work On Chronic Fatigue Syndrome
A profile of Icatha College ME/CFS researcher Professor Betsy Keller. |
• |
Rest In Power, CFSAC
An article by Jennie Spotila about the demise of the US Chronic Fatigue Syndrome Advisory Committee. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Action Alert: Federal ME/CFS Advisory Committee Eliminated
An urgent message from the Solve ME/CFS Initiative. |
• |
Entertainment Book
Buying an Entertainment Book for yourself or as a gift for others is one way of supporting your Society. |
• |
Chronic Illness Manifesto Survey
A survey from the UK's Chronic Illness Inclusion Project. |
• |
How Much Can People With ME Stand?
Australian researchers have literally measured how long people with ME/CFS can stand up. |
• |
We Know Pain That Radio 4's Kirsty Is Facing With Fibromyalgia
Profiles of two Irish Fibromyalgia sufferers in addition to BBC Radio 4 radio presenter Kirsty Young. |
• |
Fibromyalgia Patients Show Poorer-Than-Usual 'Selective Learning' Of Pain Triggers In Study
Patients with Fibromyalgia show a poorer ability for "selective learning" of pain triggers, which may contribute to their widespread pain, a study reports. |
• |
Donate A Dress For A Good Cause
A collection of dresses forms part of the "Feel like a Princess" campaign in South Africa. |
• |
South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Society Constitution
The society's constitution has been updated. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
"The Great Chronic Fatigue Syndrome Community Gene Study" Breaks New Ground
An article by US ME/CFS sufferer and advocate Cort Johnson. |
• |
Fibromyalgia Research – Healthy Volunteers Wanted
Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Fibromyalgia: 'Like Red Hot Lava Radiating Through My Body'
A video from the BBC about living with Fibromyalgia. |
• |
Chronic Fatigue Care
A new CDC website aims to improve the diagnosis and care of patients with ME/CFS by providing clinicians with better information. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
'My Robot Makes Me Feel Like I Haven't Been Forgotten'
A profile of UK teenage ME/CFS sufferer Zoe Johnson. |
• |
My Doctor Told Me I Was 'Just Tired' – 13 Years Later And ME Has Taken Over My Life
A profile of UK ME/CFS sufferer Sally Doherty. |
• |
Entertainment Book
Buying an Entertainment Book for yourself or as a gift for others is one way of supporting your Society. |
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)