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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
By appointment

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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'We Must Keep Believing Science Will Catch Up With ME. There Is Real Hope'

Saturday 23 December 2017

 

From News Letter:

 

Paul McDaid and partner Ciara
Paul McDaid with his partner, Ciara.
 

‘We must keep believing science will catch up with ME. There is real hope’

By John McDaid
Thursday 21 December 2017
© 2017 Johnston Publishing Ltd. All rights reserved.

I think that we have not cared for people with M.E. to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that.

This was the unprecedented public apology issued by Bjørn Guldvog of the Norwegian government in 2011 to sufferers of ME, also known as Chronic Fatigue Syndrome.

Tragically, in most other countries sufferers of this invisible and devastating illness remain cast adrift. In some cases, they are told that they are depressed or that their doctor “doesn’t believe in ME.”

My family heard that firsthand. With no known cause, treatment or cure, ME has been described as the last major disease we know almost nothing about.

I knew nothing about ME in 2012 when my younger brother got sick. Paul was a healthy, happy 33 year old, but that summer he came down with a chest infection which he couldn’t shake off.

 

Full article…

 


 

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