Society Logo
ME/CFS Australia Ltd
Please click here to donate ME/CFS Australia (SA) Inc

Registered Charity 3104


Mailing address:

PO Box 322,
South Australia 5092

1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Become a Member
DOCX Application Form (PDF, 156KB)
Why become a member?

Reader's View: More Awareness Needed Of Ailment

Saturday 2 December 2017


From US newspaper the Duluth News Tribune:


Duluth News Tribune

Reader's View: More awareness needed of ailment

By Lianne Beyerl
November 30, 2017

I appreciated that the News Tribune published the Nov. 28 "Local View" column, "Why won't Minnesotans help me — or 'M.E.'?," which was about an ailment called myalgic encephalomyelitis. Our 23-year-old son has been homebound with myalgic encephalomyelitis/chronic fatigue syndrome for the past year. Nothing is making him better.

The more I learn, the more dismayed I am by the decades of indifference by the National Institutes of Health, which funds the research for this epidemic on par with hay fever. The last time I checked, hay fever did not make 25 percent of its victims homebound or bedbound.

In Minnesota alone, there are an estimated 17,000 to 42,000 people living with myalgic encephalomyelitis, making our annual economic cost between $288 million and $406 million.

"Time for Unrest" is the name of a global effort which aims to increase awareness, education, research, and funding around myalgic encephalomyelitis. The campaign includes community screenings of a film on myalgic encephalomyelitis called "Unrest," with the hope of engaging doctors, students, scientists, policymakers, and leaders in biotech and pharma around the world. In the U.S., the film will air on PBS's "Independent Lens" on Jan. 8.

In support of the Time For Unrest campaign, there will be a free community screening of the film on Saturday, Dec. 9, at Landmark Edina Cinema in suburban Minneapolis. Details can be found on Eventbrite; search for "Unrest Special Screening."

Lianne Beyerl

Edina, Minn.


Full article…



blog comments powered by Disqus

Previous Previous Page