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ME/CFS AUSTRALIA (SA) INC

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A Problem Coffee Cannot Fix; Boston Community Comes Together For ME/CFS

Friday 1 December 2017

 

From Boston University's BU News Service:

 

Newton-Wellesly Hospital
Newton-Wellesly Hospital in Dec. 2008.
(Photo by Meggiepc9 /wikimedia commons)
 

A Problem Coffee Cannot Fix; Boston Community Comes Together for ME/CFS

By Sarah Wells
BU News Service
November 29, 2017

“Imagine you had the worst flu ever, but it never went away,” said Linda Tannenbaum, a clinical laboratory scientist, to a crowd gathered at Newton-Wellesley hospital earlier this month for a research update. She was describing myalgic encephalomyelitis/chronic fatigue syndrome, more commonly referred to as just “chronic fatigue syndrome.”

Despite its mild-sounding name, chronic fatigue syndrome is more than feeling tired. In addition to feeling unrested after sleep, many with chronic fatigue syndrome also experience widespread joint and muscle pain, intense headaches, nausea, dizziness or lightheadedness, and loss in shortterm memory and concentration.

Chronic fatigue syndrome is not well known. While it affects up to 2.5 million people in the United States according to Centers for Disease Control and Prevention (CDC), advocates say many physicians haven’t even heard of the disease, let alone beneficial treatments. There are no diagnostic tests or bio-markers to identify when a person is suffering from the disease according to the CDC, and the FDA has not approved any treatments or cures.

For Tannenbaum, president of the Open Medicine Foundation, addressing the crowd at Newton-Wellesley was personal, she said. After her young daughter came down with chronic fatigue syndrome in 2012, she and her husband created the Open Medicine Foundation, an organization to support research and awareness for chronic fatigue.

 

Full article…

 


 

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