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Her Illnesses Kept Her Bed-Ridden For Years – Now It's Her Mission To Raise Awareness

Tuesday 17 October 2017


From US newspaper the Centre Daily Times:


Emily Steffensmeier with her mother Renee
Emily Steffensmeier laughs with her mom, Renee, as they
use blue icing to top cupcakes on Oct. 7 in their State
College home. Steffensmeier has Dysautonomia and
chronic fatigue syndrome and is organizing a walk
to raise awareness and money for research.
(Photo: Abby Drey

Her illnesses kept her bed-ridden for years. Now it’s her mission to raise awareness.

By Megan Fleming
For the CDT
October 13, 2017
© Copyright 2017

Emily Steffensmeier, of State College, has spent the majority of her adult life battling unrelenting fatigue, unrefreshing sleep, major brain fog and difficulty focusing, malaise and muscle aches. Those are just a few of her symptoms.

Steffensmeier, 42, is among some 70 million people worldwide living with various forms of chronic fatigue syndrome or Dysautonomia, a malfunctioning autonomic nervous system.

For 15 years, she said, she spent many of her waking hours bed-ridden and homebound. But in 2004, after having met with more than 100 doctors to try to find help, Steffensmeier consulted with Dr. Peter Rowe, director of Johns Hopkins Children’s Center’s chronic fatigue in Baltimore.

She said that with medication, he has helped her lead a fuller life, despite her illnesses.


Full article…



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