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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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'We're Not Believed,' Says Mum Who Suffers With Rare Disease And Autism

Wednesday 6 September 2017

 

From UK news outlet the Crawley and Horley Observer:

 

Jane Green
Jane Green.
(Picture: Steve Robards)
 

‘We’re not believed,’ says mum who suffers with rare disease and autism

By Jennifer Logan
6 September 2017
© 2017 Johnston Publishing Ltd. All rights reserved.

A mum who suffers with Ehlers-Danlos syndrome (EDS) and autism is trying to raise awareness of the conditions to stop people from being misdiagnosed.

Jane Green, 55, who lives in Copthorne, did not get her EDS diagnosis until she was 52 and discovered she had autism a year later.

...

Jane was told she was hypermobile. She was also diagnosed with chronic fatigue syndrome (CFS) and fibromyalgia and had to give up work in 2015.

 

Full article…

 


 

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