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'We're Not Believed,' Says Mum Who Suffers With Rare Disease And Autism

Wednesday 6 September 2017


From UK news outlet the Crawley and Horley Observer:


Jane Green
Jane Green.
(Picture: Steve Robards)

‘We’re not believed,’ says mum who suffers with rare disease and autism

By Jennifer Logan
6 September 2017
© 2017 Johnston Publishing Ltd. All rights reserved.

A mum who suffers with Ehlers-Danlos syndrome (EDS) and autism is trying to raise awareness of the conditions to stop people from being misdiagnosed.

Jane Green, 55, who lives in Copthorne, did not get her EDS diagnosis until she was 52 and discovered she had autism a year later.


Jane was told she was hypermobile. She was also diagnosed with chronic fatigue syndrome (CFS) and fibromyalgia and had to give up work in 2015.


Full article…



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