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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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M.E. Meant This Blog Took Me Several Months To Write

Saturday 19 August 2017

 

From The Huffington Post UK:

 

Woman at a window
(BYEBYETOKYO VIA GETTY IMAGES)
 

M.E. Meant This Blog Took Me Several Months To Write

By Isabel Walter
14/08/2017
©2017 Oath Inc. All rights reserved.

On holiday in the Peak District in June 2007, three months after being diagnosed with ME, I sat down one afternoon with a pile of postcards and discovered I could no longer write. The words were clear in my head, but the pen in my hand made only meaningless scribbles, empty scrawls. The connection between them had been severed. It was many terrifying hours before it returned.

This episode was my first real experience of the cognitive dysfunction that’s a core symptom of ME. ME (also known as chronic fatigue syndrome, or CFS) is a neurological disease affecting 250,000 people in the UK, that impairs both body and brain. It’s a 360 disability. Since 2007, my health has deteriorated – by 2009 I was using a wheelchair, and in 2013 became bed-bound – and as my physical functioning has declined, so too has my cognitive capacity. I have problems with memory, attention, concentration, comprehension and language. I can’t listen to the radio, watch TV or use a computer, can’t hold a conversation for more than a few minutes or read more than a couple of sentences. If you know me, you need to know I’ll forget your birthday, or your married name, or that this time of year is difficult for you because it’s when you lost your father, not because I don’t care, but because my illness makes me someone I’m not. While I was still well enough to go outside, I couldn’t work out money in shops, or judge speed and distance to safely cross a road. These days I can’t coordinate a knife and fork; my husband has to cut up my food.

 

Full article…

 


 

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