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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

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ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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FITNET's Internet-Based CBT Is Ineffective And May Impede Natural Recovery In Adolescents With ME/CFS. A Review

Thursday 17 August 2017

 

From the journal Behavioral Sciences:

 

Behavioral Sciences
 

FITNET’s Internet-Based Cognitive Behavioural Therapy Is Ineffective and May Impede Natural Recovery in Adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. A Review

Simin Ghatineh1 and Mark Vink2,*

1Biochemist, London TW11, UK
2Family Physician, Soerabaja Research Center, 1096 HH Amsterdam, The Netherlands

*Correspondence:
Received: 6 April 2017 / Accepted: 2 August 2017 / Published: 11 August 2017

Abstract: The Dutch Fatigue In Teenagers on the interNET (FITNET) study claimed that after 6 months, internet based cognitive behaviour therapy in adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), led to a 63% recovery rate compared to 8% after usual care, and that this was maintained at long term follow up (LTFU).

Our reanalysis shows that their post-hoc definition of recovery included the severely ill, the unblinded trial had no adequate control group and it used lax selection criteria as well as outcomes assessed via questionnaires rather than objective outcomes, further contributing to exaggerated recovery figures.

Their decision not to publish the actometer results might suggest that these did not back their recovery claims.

Despite these bias creating methodological faults, the trial still found no significant difference in recovery rates (“~60%”) at LTFU, the trial’s primary goal.

This is similar to or worse than the documented 54–94% spontaneous recovery rates within 3–4 years, suggesting that both FITNET and usual care (consisting of cognitive behaviour and graded exercise therapies) are ineffective and might even impede natural recovery in adolescents with ME/CFS. This has implications for the upcoming costly NHS FITNET trial which is a blueprint of the Dutch study, exposing it to similar biases.

 

Full article…

 


 

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