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ME/CFS AUSTRALIA (SA) INC

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Norwegian National Advisory Unit On CFS/ME

Wednesday 21 June 2017

 

From the European Journal of Pediatric Neurology:

 

Flag of Norway
 

Norwegian National Advisory Unit on CFS/ME

I.B. Helland, E.B. Strand
Department of Clinical Neurosciences for Children, Oslo University Hospital, Rikshospitalet, Norway
DOI: http://dx.doi.org/10.1016/j.ejpn.2017.04.1072
June 2017 Volume 21, Supplement 1, Page e202
© Elsevier Inc.

Objective
Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a chronic, complex, multi-faceted condition characterized by extreme fatigue and other symptoms that are not improved by rest. The etiology and pathogenesis remain unknown; there are no laboratory diagnostic tests; and so far there are no known cures. The condition results in severe impairment in daily functioning. CFS/ME is poorly accepted and poorly understood, and the diagnosis is controversial. Knowledge about the condition is scarce, and many patients have experienced misbelief.

Methods
Making the diagnosis is essential for providing appropriate care. The Ministry of Health and Care Services decided to establish a National Advisory Unit on CFS/ME in 2011, and the Advisory Unit was established at Oslo University Hospital (OUS) in 2012. It is based in the Division of Paediatric and Adolescent Medicine. The National Advisory Unit has representatives from the multidisciplinary medical clinic for adults with suspected CFS/ME and from the multidisciplinary team at the Department of Clinical Neurosciences for Children, OUS.

Results
The National Advisory Unit has the following responsibilities within its field: i) To build and disseminate competence; ii) To monitor and communicate treatment outcomes; iii) To participate in research and the establishment of research networks; iv) To contribute to relevant teaching; v) To ensure the provision of guidance and the dissemination of knowledge and competence to the health services, other service providers and clients; vi) To implement measures to ensure equal access to national services; vii) To contribute to the implementation of national guidelines and evidence-based practice. The National Advisory Unit on CFS/ME has aided The Ministry of Health and Care Services in making National Guidelines for diagnoses and management of CFS/ME.

Conclusion:
By establishing a National Advisory Unit on CFS/ME, the diagnosis CFS/ME has been established and knowledge about the disease has increased.

 

Full article…

 


 

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