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How To Assess Internet Cures Without Falling For Dangerous Pseudoscience

Wednesday 14 June 2017

 

From Slate magazine:

 

Sand
Listen, but be skeptical when wading into
the online health underworld.
(Photo illustration by Slate.)
(Photos by Anna_Gavrylova/Thinkstock, iStock/Thinkstock.)
 

How to Assess Internet Cures Without Falling for Dangerous Pseudoscience

A community on Facebook practically cured my horrendous illness. Here’s how you can navigate the scary waters to potentially find real solutions, too.

By Julie Rehmeyer
June 12, 2017
Slate is published by The Slate Group, a Graham Holdings Company.
All contents © 2017 The Slate Group LLC. All rights reserved.

Five years ago, against practically anyone’s better judgment, I knowingly abandoned any semblance of medical evidence to follow the bizarre-sounding health advice of strangers on the internet. The treatment was extreme, expensive, and potentially dangerous.

If that sounds like a terrible idea to you, imagine how it must have felt to a science journalist like me, trained to value evidence above all. A decade ago, I never would have believed I’d do such a lunatic thing.

But I was desperately, desperately ill. My chronic fatigue syndrome had gotten so bad that I often couldn’t turn over in bed. On days when I felt well enough to shop for groceries, my legs would sometimes begin dragging as I walked down the aisle—within a few steps, I might suddenly be unable to move them at all, as stuck as a mouse in a glue trap. Top specialists had run out of treatments for me, and research on my illness was at a near-standstill. It was a hard thing to internalize, but I finally started to accept that science wasn’t going to help me anytime soon.

 

Full article…

 


 

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