Society Logo
ME/CFS Australia Ltd
Please click here to donate ME/CFS Australia (SA) Inc
 
 
Facebook
 
ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Become a Member
PDF Application Form (PDF, 242KB)
Why become a member?

Massachusetts Governor Charlie Baker Issues Proclamation For ME Awareness

Thursday 25 May 2017

 

From US newspaper Danvers Wicked Local:

 

Massachusetts Governor Charlie Baker et al
Danvers resident Elizabeth Potter, vice president of the
Massachusetts CFIDS/ME & FM Association, is holding
the governor's proclamation for ME Awareness Day with
Rep. Ted Speliotis, D-Danvers.
Pictured, from left: Robert Price, ME/CFS advocate;
Rivka Solomon, patient and ME/CFS advocate;
Dr. Michael van Elzakker, ME/CFS researcher MGH and
Harvard Medical School; Leah Williams, parent of
two children with ME/CFS and treasurer of
Massachusetts CFIDS/ME & FM Association; and
Charmian Proskauer, president of the
Massachusetts CFIDS/ME & FM Association.
[Courtesy Photo]
 

Gov. Baker issues proclamation for ME awareness

Posted May 23, 2017
© GateHouse Media, LLC. All rights reserved • GateHouse News

On May 9, at the State House in Boston, with Lt. Gov. Karyn Polito and Sen. Stan Rosenberg, D-Hampshire attending, the state’s first Proclamation for ME Awareness Day, May 12, 2017, was presented to people with the severe neuro-immune disease ME — myalgic encephalomyelitis. The proclamation was issued by Gov. Charlie Baker upon the request of the Massachusetts CFIDS/ME & FM Association.

ME, also known as chronic fatigue syndrome or ME/CFS — a name eschewed by patients and disease experts — is a devastating disease with no diagnostic test, no FDA-approved treatment and no cure. ME/CFS disables 28,000 Massachusetts residents, up to 2.5 million Americans and 17-20 million individuals worldwide. There are an estimated 112 Danvers residents afflicted with ME/CFS, yet it gets little attention and barely any federal research funding, leaving patients severely debilitated for life and with little hope for improvement. Securing state proclamations is a grassroots effort by people with ME to raise awareness about the lack of health equality for ME patients, many of whom have spent decades homebound and bedridden with little or no assistance. Some patients are so weak they cannot feed themselves. To date, state proclamations or resolutions for ME have only been secured in Alabama, Georgia, Illinois and now Massachusetts.

 

Full article…

 


 

blog comments powered by Disqus
Previous Previous Page