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Massachusetts Governor Charlie Baker Issues Proclamation For ME Awareness

Thursday 25 May 2017


From US newspaper Danvers Wicked Local:


Massachusetts Governor Charlie Baker et al
Danvers resident Elizabeth Potter, vice president of the
Massachusetts CFIDS/ME & FM Association, is holding
the governor's proclamation for ME Awareness Day with
Rep. Ted Speliotis, D-Danvers.
Pictured, from left: Robert Price, ME/CFS advocate;
Rivka Solomon, patient and ME/CFS advocate;
Dr. Michael van Elzakker, ME/CFS researcher MGH and
Harvard Medical School; Leah Williams, parent of
two children with ME/CFS and treasurer of
Massachusetts CFIDS/ME & FM Association; and
Charmian Proskauer, president of the
Massachusetts CFIDS/ME & FM Association.
[Courtesy Photo]

Gov. Baker issues proclamation for ME awareness

Posted May 23, 2017
© GateHouse Media, LLC. All rights reserved • GateHouse News

On May 9, at the State House in Boston, with Lt. Gov. Karyn Polito and Sen. Stan Rosenberg, D-Hampshire attending, the state’s first Proclamation for ME Awareness Day, May 12, 2017, was presented to people with the severe neuro-immune disease ME — myalgic encephalomyelitis. The proclamation was issued by Gov. Charlie Baker upon the request of the Massachusetts CFIDS/ME & FM Association.

ME, also known as chronic fatigue syndrome or ME/CFS — a name eschewed by patients and disease experts — is a devastating disease with no diagnostic test, no FDA-approved treatment and no cure. ME/CFS disables 28,000 Massachusetts residents, up to 2.5 million Americans and 17-20 million individuals worldwide. There are an estimated 112 Danvers residents afflicted with ME/CFS, yet it gets little attention and barely any federal research funding, leaving patients severely debilitated for life and with little hope for improvement. Securing state proclamations is a grassroots effort by people with ME to raise awareness about the lack of health equality for ME patients, many of whom have spent decades homebound and bedridden with little or no assistance. Some patients are so weak they cannot feed themselves. To date, state proclamations or resolutions for ME have only been secured in Alabama, Georgia, Illinois and now Massachusetts.


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