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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

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Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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I Became Chief Executive Of A UK M.E. Charity - And Then My Son Was Diagnosed With M.E. Too

Wednesday 24 May 2017

 

From The Huffington Post:

 

Sonya Chowdhury
Sonya Chowdhury
 

I Became Chief Executive Of A UK M.E. Charity - And Then My Son Was Diagnosed With M.E. Too

By Sonya Chowdhury
Chief Executive of UK charity Action for M.E., working with children, families and adults affected by the neurological condition M.E.
22/05/2017
© 2017 AOL (UK) Limited its affiliates and licensors.

It really didn’t occur to me that it could happen to me. A year into my new role as charity Chief Executive, I had been contacted for information and support by so many parents of children living with the chronic, neurological illness, M.E. And then I became one of those parents myself.

Our youngest son, Danny, had just reached his 11th birthday when he became ill with a chest infection. Despite visits to the GP and all the usual treatments, he never got better. Danny couldn’t get out of bed and for several weeks, laid there with the light off. Despite sleeping so much, he was always exhausted, in pain and couldn’t tolerate noise: the sound of my laugh made him hurt. Any activity seemed to knock him out and make his extreme exhaustion worse for several days. Even getting to the bathroom seemed impossible.

We eventually had a diagnosis of M.E., an illness also frustratingly known as chronic fatigue syndrome, or CFS. I am so fed up of having to explain to people that Danny is not just tired; if only that were the case. We have lost friends, good friends, when we ran out of patience with explaining that Danny was off school so much, not because he had friendship issues or didn’t like his classes, but because he had an illness that seemed to be eating him up from the inside, despite it not really being visible on the outside.

 

Full article…

 


 

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