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Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Summary

Saturday 28 January 2017


From the Solve CFS Initiative:


CFSAC meeting

Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Summary

January 27, 2017
Copyright © 2017 The Solve ME/CFS Initiative

On January 12 and 13 [2017], the Federal Chronic Fatigue Syndrome Advisory Committee (CFSAC) met in Washington DC for one of its biannual meetings. CFSAC works to provide advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

This meeting included a final presentation from outgoing Assistant Secretary for Health Karen DeSalvo, who will be departing due to the change in administration.

Overall, this CFSAC meeting continued the dismal record of forward movement regarding our disease, despite the efforts of individuals serving on CFSAC. [Solve CFS Initiative president] Carol Head is committed to pushing for a number of process changes that may impact the underlying causes of dysfunction in the committee, and both she and SMCI are committed to making progress on ME/CFS both within and outside of CFSAC. To accomplish these goals, our organization will get in touch with each of CFSAC’s ex-officio members (government agency staff) individually to follow up on issues raised both in the meeting and by Carol Head’s presentation.


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