ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
PO Box 28,
South Australia 5007
North Terrace House,
19 North Terrace,
Hackney, SA, 5069
1300 128 339
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
What You Should – And Should Not – Say To Someone With Fibromyalgia
Tuesday 3 January 2017
What You Should — and Should Not — Say to Someone With Fibromyalgia
Before I was diagnosed with fibromyalgia, I would have been at a loss about what to say to someone with a chronic illness. It’s not because I didn’t care, I really just didn’t know. I think the same may be true of those in our lives who appear to be insensitive or rude in their remarks. They just don’t know.
I want to help those people learn to say “this,” but not to say “that.”
You could say … It must be so hard to be housebound most days. I can’t imagine what it would be like to not do all the things I want to do, like visiting and shopping. Don’t say … It must be nice to stay in your jammies all day and just lay around watching Netflix. I wish I could do that. (They might for a week or so, but I’m sure they wouldn’t want the pain and fatigue to go along with it.)
You could say … I would love to bring you a meal. Can I pick up anything for you on my way over? I’d be happy to pick up some groceries or stop at the pharmacy for you. But don’t say … It must be nice having people do your errands and cook for you. I wish I had a maid or servant. How lazy can you be?
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