December |
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What 'Downsizing' Got Right (And Wrong) About Pain
An article about the movie Downsizing. |
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A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience
An article about controversies in the world of ME/CFS research and therapies. |
• |
Study Suggests Screening Patients With Fibromyalgia Syndrome For ADHD
A recent study found patients with Fibromyalgia have a higher rate of co-occurring adult Attention-Deficit/Hyperactivity Disorder. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Ipswich's Broomhill Lido Celebrated In Photo Exhibition
A profile of UK budding photographer and ME/CFS sufferer Deborah Norwood. |
• |
Lancaster Woman's Life 'Back To Normal' After Struggle With Debilitating Condition
A profile of UK ME/CFS sufferer Jen Turner who claims to have had success with the Perrin Technique. |
• |
They Told Me My Illness Was All In My Head. Was It Because I'm A Woman?
An article by US ME/CFS sufferer Jennifer Brea. |
• |
Amazing: See How A Disabled Grandmother Can Now Play Football With Her Grandchildren
A profile of UK Fibromyalgia sufferer Deb Carey. |
• |
Woman With Fibromyalgia Sues Carlsbad Police Department For Excessive Use Of Force
A US woman with Fibromyalgia says a police officer from a southern New Mexico police department got unnecessarily rough with her, then made fun of her. |
• |
This West Belfast Mum Is Barely Recognisable After Body Transformation
A profile of Irish Fibromyalgia sufferer Louise McGonnell. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Woman Battling Chronic Fatigue Syndrome 'Owes It All' To Doctor Who Changed Her Life
A profile of UK ME/CFS sufferer Rita Williams who claims to have been helped by the Perrin Technique. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Merry Christmas
All of us here at ME/CFS Australia (SA) Inc wish you a very merry Christmas! |
• |
Test For Chronic Fatigue Syndrome In Sight
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
'We Must Keep Believing Science Will Catch Up With ME. There Is Real Hope'
An article by John McDaid, whose brother, Paul, is an ME/CFS sufferer. |
• |
Discovery Forum 2017 Videos
Videos from the Solve ME/CFS Initiative's Discovery Forum 2017 featuring US ME/CFS researchers Dr Vicky Whittemore and Dr Maureen Hanson. |
• |
'Invisible Disease' Of Fibromyalgia – Campaigner Fighting For A Change In The Law
A UK woman is taking her fight to get Fibromyalgia recognised as a disability in UK law to Parliament. |
• |
Tokyo Fibromyalgia Patient Looks For Successor To Spread Awareness
A profile of Japanese Fibromyalgia sufferer Michiko Asano. |
• |
Cannabis Oil Sparks Astonishing Recovery Of Teen Who Missed Eight Years Of School Due To Chronic Fatigue
A profile of UK teenage ME/CFS sufferer Tom Bethell whose use of cannabis oil has proved remarkably helpful. |
• |
CDC Recognition Of Chronic Fatigue Syndrome Paves The Way For A Cure
After decades of categorizing chronic fatigue as a psychological disorder, major health organizations are seeing it in a new light. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Sneak Peek: One Woman's Unshakeable Exhaustion
US ME/CFS sufferer Jennifer Brea appeared on The Dr. Oz Show to talk about the disease and her documentary Unrest. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Couple To Be Booted Out Hobbit-Style Mud Home They Built To Help Combat Allergies
UK woman Kate Burrows says she suffers from Multiple Chemical Sensitivity and her house built of earth, tree trunks and straw helps stop her symptoms coming back. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
"I Was Ready To Give Up On My Life With ME ... But Perrin Treatment Miraculously Changed Everything"
A profile of UK ME/CFS sufferer Jade Benson who claims to have been helped by the Perrin Technique. |
• |
Carrying A Load Of Debt And Pain, And Determined To Get Stronger
A profile of US ME/CFS and Fibromyalgia sufferer Kristian Hidalgo. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
As The Holidays Approach, Pace Yourself
An article by Robin Dix for Fibromyalgia News Today. |
• |
PBS To Air Winter Park Filmmaker's 'Unrest'
Unrest, the ME/CFS documentary by filmmaker and sufferer Jennifer Brea will air on the US's PBS television network in January 2018. |
• |
Investigation Of Mast Cell Toll-Like Receptor 3 In ME/CFS
Research published in PubMed. |
• |
PG Goodfellows: She Enriches Her 'Angels' – And Vice Versa – But Help Is Needed
A profile of US Fibromyalgia sufferer Tracey Copeland. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Blackpool Hotelier Singing For M.E. In Name Of Love
A UK hotelier sang his heart out in the hope of supporting research into a debilitating condition that struck down his once healthy partner. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Inkersall Sisters Speak Out On Living With Fibromyalgia
Three sisters from the UK have told radio station Peak FM of their struggle in coping with Fibromyalgia. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Unrest Screening Sponsors
We would like to pay a special thanks to the nine South Australian sponsors who so very generously supported our recent event, the Adelaide premiere of the award-winning documentary, Unrest, on 9 November 2017. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Unrest Documentary On Oscars Shortlist
The ME/CFS documentary Unrest has been placed on the shortlist for the Documentary Feature category in the 90th Academy Awards®. |
• |
My Fibromyalgia Christmas Wish List
US Fibromyalgia sufferer Robin Dix shares a list of things that people with Fibromyalgia would appreciate being given for Christmas. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Open Medicine Foundation Commits $1.2M To Fund ME/CFS Research
The Open Medicine Foundation in the US announced today that it has committed $1.2 million to fund the first year of operations at the newly established ME/CFS Collaborative Research Center at Stanford University. |
• |
Duterte Nominates Miriam Santiago For Highest Civil Service Award
Philippino President Rodrigo Duterte has nominated the late Senator Miriam Defensor Santiago for the Quezon Service Cross, the highest award the republic accords its civil servants. |
• |
People With Illnesses Talk About The Symptom They Shouldn't Have Ignored
VICE UK's Ruth Faj spoke to four people diagnosed with serious illnesses, including one with ME/CFS. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Deadline Looming For Woman Searching For A Safe Home
A video from Canadian news station Toronto CityNews. |
• |
Beyond Tired: NSU Specialist On Why She's Looking For A Cure For Chronic Fatigue
An interview with US ME/CFS researcher Dr Nancy Klimas. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Not Everyone With A Disability Wants A Cure – Nor Should We Expect Them To
An article by Australian ME/CFS sufferer Naomi Chainey. |
• |
"My Body Shut Down" - Woman Reveals Her Heartbreaking Battle With Chronic Fatigue Syndrome
A profile of UK ME/CFS sufferer Linda Jones. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Reader's View: More Awareness Needed Of Ailment
A letter to the editor of US newspaper the Duluth News Tribune. |
• |
A Problem Coffee Cannot Fix; Boston Community Comes Together For ME/CFS
A profile of Linda Tannenbaum, president of the Open Medicine Foundation. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
November |
• |
New Comic Tells The Story Of Fibromyalgia
A series of comics from the University of Dundee that are designed to inform the public about common but poorly understood conditions will launch with the first edition focusing on Fibromyalgia. |
• |
JENNIE: MECFS Chronic Fatigue Syndrome
A video from US news broadcaster WJBF News Channel 6's Jennie program. |
• |
Billy's Petition To Get Condition Recognised
A former UK criminology student will be taking a petition to parliament in the hope that the Fibromyalgia he suffers from will be recognised. |
• |
About ME: Shining A Light On A Debilitating Disease Many Believe Doesn't Exist
An article in The Irish Times about the ME/CFS documentary Unrest by filmmaker and ME/CFS sufferer Jennifer Brea. |
• |
This Life With Gracie: What Is Chronic Fatigue Syndrome?
A profile of US ME/CFS sufferer Liz Burlingame. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Next Exciting Step Towards Increased Research Funding For ME/CFS From The NHMRC
Australia's National Health and Medical Research Council has announced its first ever ME/CFS Advisory Committee. |
• |
New Recognition For Chronic Fatigue
An article from The New York Times. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Life After Diagnosis Can Be Isolating For Those Battling Multiple Chemical Sensitivity
A profile of US Multiple Chemical Sensitivity sufferer Fred Neumann. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Former Basketball Star Donald Watts' Life With Chronic Fatigue Syndrome
An interview with former US basketballer and ME/CFS sufferer Donald Watts. |
• |
A Film Directed From Bed Tells The Story Of A Woman With Chronic Fatigue Syndrome
An article about Unrest, a documentary by filmmaker and ME/CFS sufferer Jennifer Brea. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Exhausted Top Cop Takes Six Weeks Off To Recover 'Both Physically And Mentally'
Victoria Police Chief Commissioner Graham Ashton is taking sick leave, saying he is run down physically and mentally. |
• |
Young Woman Trapped At Home In Constant Pain Stripped Of Benefits In Time For Christmas
Faye Dempsey, a UK Fibromyalgia sufferer in such constant agony that she said she could barely leave her home, has been stripped of her benefits. |
• |
Mitochondrial Modifying Nutrients In Treating Chronic Fatigue Syndrome: A 16-Week Open-Label Pilot Study
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Injectafer Iron Replacement Therapy Safely Improves Fibromyalgia Symptoms, Phase 2 Study Finds
The administration of Injectafer, an iron replacement therapy, was shown to safely help manage Fibromyalgia symptoms when compared to a placebo in patients with iron deficiency, according to data from a Phase 2 clinical trial. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Representation Of Disability In Science Fiction Versus Real Life
An article that asks the question, "Does the idealism of sci-fi have a place for representing disability?". |
• |
Lyrica Found To Be Effective In Reducing Neuropathic Pain In Fibromyalgia Patients, Study Shows
Physicians may consider prescribing Lyrica (pregabalin) for Fibromyalgia patients who have a primary complaint of neuropathic pain, new research shows. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Personalized Health Conference Cultivates International, Interdisciplinary Collaborations
Stanford University's medical school recently held a Personalized Health Conference. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
A Movie David Goes Against A Goliath Of A Disease
A review of the ME/CFS documentary Unrest. |
• |
How To Scratch That Gaming Itch On A Budget
A review of the ME/CFS game Robin. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Society AGM Reminder
A reminder that the society's Annual General Meeting is today (Saturday 18 November 2017). |
• |
Massachusetts Researchers Make Major Discovery About IBS, Fibromyalgia
Researchers at Massachusetts General Hospital have made a groundbreaking discovery that could ease symptoms for millions of people suffering from conditions such as Chronic Fatigue, Fibromyalgia, and Irritable Bowel Syndrome. |
• |
From Theater To Science: A 'Medical Detective' Describes His Journey
The White House Chronicle's Llewellyn King interviews ME/CFS researcher Dr W Ian Lipkin. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Discovery Forum 2017: An Interview With Dr Ian Lipkin
An interview on YouTube with Dr Ian Lipkin, director of the Center for Infection & Immunity at Columbia University and the director of the new NIH-funded Center for Solutions for ME/CFS. |
• |
350km Walk By Father With ME
A profile of Irish ME/CFS and Fibromyalgia sufferer Conor Cahill who has walked more than 350 km of the "Camino de Santiago" pilgrimage in aid of charity. |
• |
It's Well Past Time For 'Unrest', A Game-Changing New Doco About ME/CFS
A review of ME/CFS sufferer Jennifer Brea's documentary Unrest. |
• |
ME Could Be Diagnosed And Treated Faster Thanks To Technique That Helped Girl Too Exhausted To Speak
New research suggests a quick technique can provide an accurate diagnosis of ME/CFS by simply assessing patients for five physical symptoms. |
• |
Chronic Fatigue Syndrome: One Woman's Debilitating Experience with ME
A profile of UK ME/CFS sufferer Hannah Price. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Chronic Fatigue Syndrome Is NOT All In The Mind - But Caused By Changes In Brain Chemistry, A Study Finds
Chronic Fatigue Syndrome is not a psychological disorder as previously thought, researchers claim after finding evidence that the condition is caused by changes in brain chemistry. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Brett's Bid To Raise Awareness Of Fibromyalgia
A profile of UK Fibromyalgia sufferer Brett Robertson. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Studies And Surveys Implicate Potential Iatrogenic Harm Of CBT And GET For ME/CFS Patients
Studies and patient surveys in several countries indicate that Cognitive Behaviour Therapy often has no effect at all and that Graded exercise Therapy has detrimental effects in a large subgroup of ME/CFS patients. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
What It's Like To Travel Again After 14 Years Of Being Housebound
An article by Welsh ME/CFS/Fibromyalgia and Multiple Chemical Sensitivity sufferer Juliette Llewellyn. |
• |
Brain Chemistry Study Shows Chronic Fatigue Syndrome, Gulf War Illness As Unique Disorders
Researchers at Georgetown University Medical Center have found distinct molecular signatures in two brain disorders long thought to be psychological in origin, Chronic Fatigue Syndrome and Gulf War Illness. |
• |
New Insights Into Adolescent Chronic Fatigue
New research from the Murdoch Children's Research Institute could provide some clarity around the controversy surrounding the diagnosis and treatment of Chronic Fatigue Syndrome in adolescents. |
• |
I Made A Film From My Bed To Show My Illness Is Real
A profile of US filmmaker and ME/CFS sufferer Jennifer Brea. |
• |
Demystifying Chronic Fatigue Syndrome
A profile of US ME/CFS researcher Jose Montoya, MD. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
People With Chronic Fatigue Syndrome ARE Exhausted, Claim Researchers: Sufferers Have 'Less Energy In Their Cells'
Blood cells in Chronic Fatigue Syndrome patients are drained of energy, researchers at Newcastle University in the UK have discovered. |
• |
Jackie Ellis And Son Riley Claim Snooker Success
UK snooker player Jackie Ellis overcame ME/CFS and Fibromyalgia to finish runner-up in the two-day Eden Masters Seniors (40+) event on the World Ladies Billiards and Snooker circuit. |
• |
People With Chronic Fatigue Syndrome Are Exhausted At A Cellular Level, Study Shows
New research has found immune cells taken from the blood of volunteers diagnosed with ME/CFS show clear signs of low energy production. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Unlocking The Secrets Of The Microbiome
Studies have suggested a role of the gut microbiota in the risk of developing neuropsychiatric illnesses like schizophrenia, obsessive-compulsive disorder, attention deficit hyperactivity disorder, autism and even chronic fatigue syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Blood Cells In Chronic Fatigue Syndrome Are Drained Of Energy
A PhD student at Newcastle University in the UK has published a paper demonstrating that white blood cells in people with ME/CFS are as listless as the people themselves often feel. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Few Fibromyalgia Patients Adhere To Treatment Regimens, Study Reveals
Adherence to treatment is very poor among Fibromyalgia patients, according to a study conducted in a real-life setting that was published in The Journal of Rheumatology. |
• |
'Camp Classic' The Ozone Hotel Wins Praise From Stephen Fry
The Ozone Hotel is a book written by British author RK Williams who was diagnosed with ME/CFS in 2006. |
• |
Two Simple Tests Can ID Fibromyalgia In Pain Patients
Two simple tests can indicate a probable diagnosis of Fibromyalgia in patients with chronic pain, according to a study published online October 23 in the Journal of Evaluation in Clinical Practice. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
SAHMRI Researchers In Hunt To Find Cure For Chronic Fatigue Syndrome
Adelaide researchers are hoping to unlock the mystery of a debilitating illness that has no officially approved medical treatment but affects tens of thousands of Australians each year – and many more globally. |
• |
Artists Donate Work For Fibromyalgia Silent Auction
A silent auction in the UK where bespoke artwork will go under the hammer to help raise awareness and money for Fibromyalgia research. |
• |
Phlebotomist Sidelined By Fibromyalgia Owed Disability Benefits - 9th Circuit
A US federal appeals court has awarded disability benefits to a former phlebotomist who suffers from fibromyalgia, reversing an administrative law judge’s ruling that failed to follow agency guidance on the disease. |
• |
Society Constitution
The Society’s Constitution has been updated. |
October |
• |
Benefits Of Medical Cannabis Extend To Many Areas
The benefits of medical cannabis extend to many areas, and now threaten the manufacturers of opioids, benzodiazepines and alcohol. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Opioid Crisis Hurts Chesterfield Mom Battling Chronic Disorder
A US mother struggling with Fibromyalgia blamed the national fight against the opioid epidemic for causing much of her pain. |
• |
Farming Family Devastated By Quad Bike Theft From Holywell
A Welsh woman who suffers from Fibromyalgia expressed her devastation after a vital piece of farming equipment was stolen. |
• |
Smoker Wins Art Award Worth £10,000
UK artist Sam Bailey has won the HIX Award with his painting Smoker 3, and the runner-up prize went to Ella Husbands for Embodied Distortion, an artwork that connects the viewer with the artist’s personal experience of sensory distortion brought about by the early stages of Chronic Fatigue Syndrome. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
New Jersey Medical Marijuana: Panel OKs 5 New Conditions
Thanks to a recent decision from New Jersey's Medicinal Marijuana Review Panell has given final approval to five new qualifying medical conditions. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
What Is Brain Fog? 6 Signs That Your Forgetfulness May Actually Be A Medical Condition, According To Experts
In up to three percent of adults chronic brain fog can be a sign of Chronic Fatigue Syndrome. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
Interview With Jennifer Brea
Jennifer Brea, director of the new movie Unrest, talks about her personal documentary and her struggle with Chronic Fatigue Syndrome. |
• |
Heartfelt Fundraiser For 17-Year-Old With Condition That Scores Higher On The Pain Index Than Cancer Or Childbirth
A profile of UK Chronic Regional Pain Syndrome and ME/CFS sufferer Jessica Gray. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Thousands Share Their Invisible Disabilities On Twitter
Using the hashtag #InvisiblyDisabledLooksLike, Twitter users across the world with hidden disabilities have been sharing pictures and stories to challenge society's perceptions. |
• |
Lady Gaga Helps Shine Spotlight On Devastating Fibromyalgia
Lady Gaga's tweet on September 12 announcing that she suffers from Fibromyalgia and its chronic pain heightened attention to what once was deemed a women's hysterical and made-up chronicle of woes. |
• |
Cannabis For Fibromyalgia May Be More Effective Than Anything On The Market
An article about the use of cannabis for treating the symptoms of Fibromyalgia. |
• |
Could This Documentary Change The Way We Perceive Chronic Fatigue Syndrome?
An article in UK newspaper The Telegraph about the history of ME/CFS and Unrest, a documentary by filmmaker and ME/CFS sufferer Jennifer Brea. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
This Mysterious Condition Affects Millions More Than MS - But You Probably Don't Know It
A new documentary, Unrest, aims to shine a light on a condition that has been ignored for too long. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
'Doctors Call It Bull**** Disease - But I Can't Get Out Of Bed'
A profile of UK entertainer and ME/CFS/Fibromyalgia sufferer Faye Dempsey. |
• |
Unrest Review – Bracingly Inventive And Moving
A review of Unrest, a documentary by filmmaker and ME/CFS sufferer Jennifer Brea. |
• |
Chronic Fatigue Syndrome Symptoms Confirmed
Sleep problems reported by young people with Chronic Fatigue Syndrome have been confirmed by electronic monitoring, opening the way for more accurate diagnosis of the condition. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Judge Finds Care Home Worker Was Unfairly Dismissed
A judge found an employee at a UK care home was unfairly dismissed and ordered employers to pay compensation. |
• |
Hair Dresser Opens Scent-Free Salon
A profile of Canadian hairdresser and Multiple Chemical Sensitivity sufferer Bonnie Frostad. |
• |
Fibromyalgia And Gastroesophageal Reflux Disease Are Linked, New Study Shows
Fibromyalgia and gastroesophageal reflux disease have a bidirectional association, a new population-based study in Taiwan shows. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
Irish Singer Bláithín Carney On Fighting Illness And Beating Ed Sheeran To The Top Of The Charts
A profile of Irish singer-songwriter and Fibromyalgia sufferer Bláithín Carney. |
• |
Scientists Develop Cannabis Pain Patches For Fibromyalgia
A press release from Cannabis Science has announced that they have developed two new cannabis-based medications for patients suffering from Fibromyalgia and diabetic neuropathy nerve pain. |
• |
Unrest Review – Powerful Documentary About Chronic Fatigue Syndrome
A review of Unrest, a documentary by filmmaker and ME/CFS sufferer Jennifer Brea. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Society Seminar Report: The Invest In ME Conference (London June 2017) By Dr Ros Vallings
A report by Bronwyn Caldwell of the Society's August 26 seminar which featured New Zealand ME/CFS specialist Dr Rosamund Vallings. |
• |
UK Man Diagnosed With Chronic Fatigue Syndrome Battling To Keep Radio Station Going
A man who was recently diagnosed with a life-limiting illness is battling to keep his local radio station open for as long as possible. |
• |
Chronic Fatigue Syndrome: A Disease Hidden In Plain Sight
A video of the White House Chronicle show, hosted by Llewellyn King. |
• |
Carrie Ann Inaba's Chronic Fatigue Kills Her Sex Life
A profile of US entertainer and ME/CFS sufferer Carrie Ann Inaba. |
• |
The Painful Truth About Living With Fibromyalgia
A profile of Irish Fibromyalgia sufferer Eileen Howard. |
• |
Fibromyalgia Patients Have Decreased Brain Connectivity In Some Regions, Study Reports
Using specialized magnetic resonance imaging technology, a study from Taiwan found that patients with Fibromyalgia have decreased brain connectivity in specific regions, including the insula and the default mode network. |
• |
Caiti Baker Reveals The Health Battle Which Stalled Her Career Ahead Of Dally M Awards Gig With Briggs
A profile of Australian hip-pop artist and ME/CFS sufferer Caiti Baker. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Her Illnesses Kept Her Bed-Ridden For Years – Now It's Her Mission To Raise Awareness
A profile of US ME/CFS sufferer Emily Steffensmeier. |
• |
Burlesque Performance Set To Raise Money For Chronic Condition
A UK burlesque performer and a lingerie designer have teamed up to raise money for the Andover Fibromyalgia and ME Community Group. |
• |
Grey And White Matter Differences In Chronic Fatigue Syndrome
A study entitled "Grey and white matter differences in Chronic Fatigue Syndrome - A voxel-based morphometry study". |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
FDA Approves Extended-Release Lyrica
The US Food and Drug Administration has approved a new extended-release version of Lyrica for the treatment of neuropathic pain. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
My Story: 'Constant Pain Does Not Deter Me'
A profile of Kenyan Fibromyalgia sufferer Benedettah Wangui Mwangi. |
• |
UK Man Endures Body Wax To Raise Awareness Of Fibromyalgia
An Otley man has undergone a full body wax for charity. |
• |
Inflection Point: How To Be Taken Seriously When You Have a Mystery Illness - Jennifer Brea, Unrest
A US radio interview with ME/CFS sufferer and documentary filmmaker Jennifer Brea. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
'A Slow Death': What It's Like Living With Chronic Fatigue Syndrome
A profile of Australian ME/CFS sufferer Andrew Bretherton. |
• |
Living With Chronic Fatigue
An Australian radio interview with ME/CFS sufferer and documentary filmmaker Jennifer Brea. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Devon Mud Hut Couple "Allergic To Modern Life" Fight Eviction
A UK couple who moved to Devon due to an "allergy to modern life" have almost hit the 50,000 signature mark on a petition set up to prevent them being kicked off their land. |
• |
UK Woman Battled Lyme Disease For 16 Years Before Being Diagnosed
A profile of UK Lyme Disease sufferer Rhiannon Willow. |
• |
Medical Marijuana Cuts Use Of Prescription Drugs: Study
The first peer-reviewed scientific study of medical marijuana patients in Illinois to be published has shown that participants in the statewide program reduce their use of other conventional pharmaceuticals, such as opiates. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
'Unrest' Doc About Chronic Fatigue Making Sure Homebound Audience Has Virtual Access
Unrest, a movie about Chronic Fatigue Syndrome (known as ME), is using an unconventional distribution method to make sure that it is seen by one of its target audiences: homebound sufferers of the disease. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Review: 'Gaga: Five Foot Two' (2017)
A review of a documentary about US entertainer Lady Gaga, in which she discusses having Fibromyalgia. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Unrest Adelaide Premiere
Following its international debut at the Sundance Film Festival, the award-winning documentary Unrest is coming to Adelaide. |
• |
New Zealand Performer Overcomes Disease To Follow Dream
A profile of New Zealand actor Chelsea Sheehan-Gaiger. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Truth About Cannabis Fibromyalgia Pain Patch
An announcement by US company Cannabis Science Inc about their product Cannabis Patch. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
Jackson Lab To Lead Chronic Fatigue Research With $10.5M Grant
Jackson Laboratory in the US has won a five-year, $10.5 million grant from the National Institutes of Health to coordinate research on the diagnosis of Chronic Fatigue Syndrome with other researchers at UConn and in Utah and North Carolina. |
• |
Asteron Life Renews Sponsorship Of Anneke Jenkins
A profile of New Zealand triathlete and former ME/CFS sufferer Anneke Jenkins. |
• |
Millions Of Women Suffer From A Disease That Virtually Sucks The Life Out Of Them – But Doctors Still Don't Take It Seriously
An article published in Cosmopolitan, featuring Jennifer Brea and her ME/CFS documentary Unrest. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Chronic Fatigue Syndrome Is Finally Looking Close To Having A Test And Treatment
The good news for ME/CFS sufferers is that a number of promising drug trials are underway. |
• |
Lady Gaga Says She Is 'Getting Stronger Every Day' And Looks Forward To Hitting The Stage Soon
Weeks after breaking the news that she has been suffering from Fibromyalgia, singer Lady Gaga has assured fans that she is "getting stronger everyday.". |
• |
Banker Set For Payout Worth Millions After Judge Ruled He Did Not Fake Illness
UK banker and ME/CFS sufferer Charles Miley had been condemned as a lead-swinger by insurance giants Friends Life who put private detectives on his tail. |
• |
$2.1m Investment Is UK's 'Biggest Ever Investment Into Physical Causes Of ME/CFS'
The CureME team at The London School of Hygiene & Tropical Medicine is delighted to announce the award of $2.1m (£1.57m) of grant funding from the United States National Institutes of Health. |
• |
Judge Upholds Conditions For Medical Exam For Co-Plaintiff In Dutch Creek Road Lawsuit
A US federal judge earlier this month issued a ruling upholding previously set conditions for an independent medical exam of a Dutch Creek Road woman suing the Athens County Engineer in Ohio. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
For People With Chronic Fatigue Syndrome, More Exercise Isn't Better
Health organizations are emphasizing that ME/CFS is a serious long-term illness, not a psychological disorder, and that standard forms of exercise do not help. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Costs The UK Economy £3.3 Billion A Year
A press release from The Optimum Health Clinic Foundation. |
• |
'Dancing With The Stars' Debbie Gibson Has Lyme Disease, Which Turns Dance Floor Into Minefield
A profile of US entertainer and Lyme Disease sufferer Debbie Gibson. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Filmmaker Opens Up About Illness That Doctors Told Her Was 'All In Her Head'
A video of Jennifer Brea live on Megyn Kelly TODAY. |
• |
Me, Lady Gaga, And The Medical Establishment That Failed Us Both
An article by US Fibromyalgia sufferer Leah Vincent. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
September |
• |
How Millions Of Patients With A Crippling, Misunderstood Disease Were Misled By Bad Science
An article by Julie Rehmeyer about the PACE Trial. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
'Doctors Told Me I Was Crazy And It Was In My Head ... But There's Days When I Can't Get Out Of My Bed'
A profile of Irish model and Fibromyalgia sufferer Lisa McCabe. |
• |
'Through The Shadowlands' Available In Audio
Through the Shadowlands, a book by Julie Rehmeyer, is now available in audio. |
• |
Lady Gaga Shines A Light On Fibromyalgia
The singer's discussion of the painful ailment in the documentary, Gaga: Five Foot Two, raises awareness of the misunderstood disease. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Essex Singer Karen Hughes Set Up Music Groups To Combat Illness And Hasn't Looked Back
A profile of UK ME/CFS sufferer Karen Hughes and her work with amateur choir Sing Out Loud. |
• |
Parents Should Have Been Warned About Unprofessional Providers In Esther Crawley's SMILE Trial
An article by James C Coyne about the Lightning Process and the SMILE trial. |
• |
Fibromyalgia Is A Painful Condition, Of Which Little Is Understood
An article in The Sydney Morning Herald by Fibromyalgia sufferer Jonathan Lyon. |
• |
Why Did It Take The CDC So Long To Reverse Course On Debunked Treatments For Chronic Fatigue Syndrome?
An article by ME/CFS journalists Julie Rehmayer and David Tuller. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Lady Gaga's Fibromyalgia: 'It Was Hard To Be Near Someone Who Was In Pain Like That'
Irish people living with Fibromyalgia know only too well what Lady Gaga is going through, writes Rachel Lynch. |
• |
Mutiny By ME Sufferers Forces A Climbdown On Exercise Treatment
A patient revolt in collaboration with MPs and academics has led to a major review of the UK's NHS guidelines on the treatment of ME/CFS. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
New Medical Device Successfully Treating Fibromyalgia Pain In The EU
An article from medical company AVACEN about one of their products which claims to alleviate Fibromyalgia pain. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Lady Gaga's New Netflix Documentary Is A Rallying Cry To Those Who Suffer From Chronic Pain
An article from Vogue about the recent announcenent by Lady Gaga of her battle with Fibromyalgia. |
• |
Jennifer Brea Documented Her Chronic Fatigue Syndrome On An iPhone So Doctors Would Believe Other Women
An interview with Jennifer Brea about her ME/CFS documentary Unrest. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
Review: 'Unrest,' A Personal Account Of Chronic Fatigue Syndrome
The New York Times review of Unrest, a documentary by ME/CFS sufferer Jennifer Brea. |
• |
Controversial Lightning Process 'Helps Children With Chronic Fatigue Syndrome'
A controversial treatment for Chronic Fatigue Syndrome called the Lightning Process can help children get better, a trial has shown, much to the surprise of the doctor who put it to the test. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Dr Sarah Myhill On Natural Health Worldwide
A video by UK ME/CFS researcher and advocate Dr Sarah Myhill. |
• |
NICE To Begin Review Of Its Guidance On The Diagnosis And Treatment Of CFS/ME
The National Institute for Health and Care Excellence (NICE) is to begin a review of its 2010 guideline on the diagnosis and management of ME/CFS following a recent public consultation with patient and professional groups. |
• |
There's Still One Invisible Illness That People Aren't Talking About
A profile of musician and ME/CFS sufferer Alice Ella. |
• |
Do You Have Chronic Fatigue Syndrome?
A profile of psychology professor and ME/CFS sufferer Leonard Jason. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Embargo Broken: Bristol University Professor To Discuss Trial Of Quack Chronic Fatigue Syndrome Treatment
An article by ME/CFS researcher James C Coyne. |
• |
A Dutch Fatigue Researcher Trying To Trivialize The Criticism
A commentary on the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Living With The Leopard By Maggie Allder
A review of Living With The Leopard, a book by author and ME/CFS sufferer maggie Allder. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Lisa Living Life To The Full In Face Of Hidden Illness
A profile of Irish fashion designer and Fibromyalgia sufferer Lisa McCabe. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Unrest (2017) Review
A review of Jennifer Brea's ME/CFS documentary Unrest. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Lady Gaga Reveals Chronic Illness, With Fibromyalgia Featuring In Her New Documentary
A profile of US entertainer and Fibromyalgia sufferer Lady Gaga. |
• |
UK Mum-Of-Two Spent 14 Years Partially Bedridden After Lyme Disease Misdiagnosis
A profile of UK Lyme Disease sufferer Lisa Vallo. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
How I've Learned To Live In Constant Pain
A profile of UK Fibromyalgia sufferer Alison Morton. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Sian's First Tattoo Aged 40 Was A 'Spur Of The Moment Thing'
A profile of Australian ME/CFS sufferer Sian Price. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
UK Volunteers Needed To Help New Research Into ME
The Sussex ME Society is helping to recruit people to take part in research into ME/CFS. |
• |
UK Woman Talks Of 'Constant Struggle' With Illnesses
A profile of UK ME/CFS and Fibromyalgia sufferer Alison Ballott. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
'The Most Common Disease You've Never Seen': How One Woman Turned Her Illness Into A Life-Changing Film
A profile of filmmaker and ME/CFS sufferer Jennifer Brea, whose film Unrest is receiving acclaim for its portrayal of life with ME/CFS. |
• |
Chronic Fatigue Syndrome Symptoms Blocked By IM Lidocaine
An interview with Roland Staud, MD, about his research on the use of intramuscular lidocaine for ME/CFS. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
Why Patients Should Not Enroll In A Clinical Trial Of Video Gaming Treatment For Chronic Fatigue Syndrome
An article by James C Coyne expressing his concerns about a clinical trial of active video gaming for adults with ME/CFS. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Dr Martin Rhisiart 'Killed Himself After ME Diagnosis'
A university professor who acted as an economics adviser for the UK government killed himself after being diagnosed with ME, an inquest in Cardiff has heard. |
• |
One In Three Patients Develop Fibromyalgia After A Surgical Mesh Implant, Warns Patient Support Group
Sling The Mesh support group ran a poll which revealed that 54 out of 187 people developed diagnosed Fibromyalgia following a polypropylene plastic implant – 29 per cent. |
• |
'We're Not Believed,' Says Mum Who Suffers With Rare Disease And Autism
A profile of UK ME/CFS sufferer Jane Green. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
When Promoting Cognitive Behavior Therapy For Fibromyalgia Is Quackery
A probing of a story about Fibromyalgia popping up on James C Coyne's Facebook feed revealed misleading claims and dips into quackery. |
• |
Chronic Fatigue Alleviation With Acupuncture
Shenzhen Hospital of Chinese Medicine researchers have determined that acupuncture is safe and effective for the alleviation of Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Psychological Interventions Do Not Reduce Pain, Despite Claims Of Proponents
A provocative review finds a "lack of strong supporting empirical evidence for the effectiveness of psychological treatments for pain management." |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Tick Bite Put A Fitness Instructor In A Wheelchair
A profile of Scottish Lyme disease sufferer Lorraine Murray. |
August |
• |
What Is ME/CFS: A Guide For The Perplexed Friend Or Family Member
A video by Yulia Greyman. |
• |
When Others Abhor The Scent You Adore
An article about Multiple Chemical Sensitivity in Australia. |
• |
Solve ME/CFS Initiative Bulletin: Tom Camenzind
A bulletin from the Solve ME/CFS Initiative. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Breaking The Mold: A Doctor's Illness Journey Changes Her Practice
A profile of US doctor and ME/CFS sufferer Cynthia Li. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Sundance Prize-Winning Doc 'Unrest' Gets UK Release
Unrest, the feature documentary about ME/CFS which premiered at this year’s Sundance Film Festival, will get a UK release in October. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
At Symposium, Researchers And Patients Examine Molecular Basis Of Chronic Fatigue Syndrome
Early in August 2017, several hundred researchers, doctors, patients and caregivers joined forces for the Open Medicine Foundation’s Community Symposium on the Molecular Basis of ME/CFS chaired by Davis at Stanford Medicine, with another 2,700 worldwide joining online. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Society Seminar Reminder
A reminder that the society's next seminar is today (Saturday 26 August 2017). |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
'I Woke Up One Day And I Couldn't Walk'
A profile of ME/CFS sufferer Rebecca Veksler. |
• |
Society Seminar Reminder
A reminder that the society's next seminar will be held this Saturday (26 August 2017). |
• |
Chronic Fatigue Syndrome Symptoms Blocked By IM Lidocaine
An interview with Roland Staud, MD, about his research involving intramusuclar lidcoaine injections to relieve symptoms of ME/CFS. |
• |
Author Shares Chronic Fatigue Journey To Help Others
From CFS with Love is a self-help book with a variety of techniques to aid relief for people diagnosed with a variety of chronic fatigue disorders. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Dumfries Biker Suzy Says Curvy Riders Gave Her Hope
A profile of Scottish ME/CFS/Fibromyalgia sufferer Susan Dunn. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
A Disease That Cries Out For Research As Many Suffer Silently
An article by US political journalist and ME/CFS advocate Llewellyn King. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Century-Old Vaccine Gives New Hope To Fibromyalgia Community
A vaccince for for an infectious lung condition could be used for Fibromyalgia. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
A Pocket Guide To Chronic Fatigue Syndrome
An interview with New Zealand ME/CFS specialist Dr Rosamund Vallings about her new book, The Pocket Guide To Chronic Fatigue Syndrome/ME. |
• |
M.E. Meant This Blog Took Me Several Months To Write
An article by ME/CFS sufferer Isabel Walter about her life with ME/CFS. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Young Leader On The Road To Recovery And Helping Others
A profile of New Zealand ME/CFS sufferer Leah Baken. |
• |
Heart And Soul Went Into Latest Adult-Only Novel From Former Grimsby Boxer
A profile of UK author and ME/CFS sufferer Michael Nilsen. |
• |
Forbidden Love, Reincarnation And Spitfires Help Author Sherrie Lowe Cope With ME
A profile of UK author and ME/CFS sufferer Cheryl Warrilow, who writes under the pen name of Sherrie Lowe. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
FITNET's Internet-Based CBT Is Ineffective And May Impede Natural Recovery In Adolescents With ME/CFS. A Review
A study published in the journal Behavioral Sciences. |
• |
Inspirational Author Kristi Patrice Carter Releases Illustrated Children's Book "Chronic Illness Can't Beat My Superhero Mommy"
Self-help author Kristi Patrice Carter has announced the release of Chronic Illness Can't Beat My Superhero Mommy, a picture book for children explaining life with Fibromyalgia. |
• |
Chronic Fatigue Syndrome Is NOT Just In The Mind‚ Say Scientists
ME/CFS sufferers have much higher levels of a range of cytokines in their blood‚ according to new research. |
• |
A Plea From A Fallen Doctor On Chronic Fatigue Syndrome (ME/CFS)
An open letter from a doctor with ME/CFS. |
• |
Why Are Doctors And Patients Still At War Over ME?
An article about the current state of disunity over ME/CFS. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Robin: ME/CFS Video Game
Robin is a short slice-of-life game that was made to give some visibility to an invisible illness: Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Pop Artist Donates Elvis Portrait To Chester Fibromyalgia Charity
Organisers of a UK charity art exhibition were delighted to receive a portrait of Elvis Presley by renowned pop artist Simon Dixon. |
• |
Stanford: Scientist Searches For Answer To His Son's Devastating Condition
A profile of Stanford scientist Ron Davis and his son Whitney, a severe ME/CFS sufferer. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Chronic Fatigue Syndrome In Canada 'Even Worse Than We Thought': Survey
A new survey suggests Chronic Fatigue Syndrome may be far more prevalent in Canada than previously thought, and more widespread than many more well-known conditions. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Is Chronic Fatigue Syndrome Real? Life-Threatening Condition Can Leave Sufferers Bed Bound
An article by Lauren Clark in the Daily Express about ME/CFS in the UK. |
• |
Scottish Dancer Inspired To Create Show About Soldiers' Experiences In The Army After Fighting Back From Her Own Battle
A profile of Rosie Kay, whose life experiences inform her new dance performance at the Edinburgh Fringe. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Mistaken Conclusions About Systemic Exercise Intolerance Disease Being Comparable To Research Case Definitions Of CFS: A Rebuttal To Chu Et Al.
An article by Leonard A. Jason, Madison Sunnquist, Kristen Gleason & Pamela Fox, published in the journal Fatigue: Biomedicine, Health & Behavior. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Jennifer Brea Wants To Shine A Light On An Often Misdiagnosed Disease
An Australian radio interview with ME/CFS sufferer and documentary filmmaker Jennifer Brea. |
• |
Doctors Call For Greater Access To Medical Cannabis
An article about the current state of medical cannabis use in Malta. |
• |
Melbourne International Film Festival Review: Unrest
A review of the ME/CFS documentary Unrest. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Unrest: An Intimate Look At A Hidden Disease
A radio interview with ME/CFS sufferer Jennifer Brea, maker of the documentary Unrest, and her husband Omar Wasow. |
• |
East Auckland Physician's Quest To Demystify Debilitating Illness
A profile of New Zealand physician and ME/CFS specialist Dr Rosamund Vallings, who will be publishing a book entitled The Pocket Guide to Chronic Fatigue Syndrome/ME. |
• |
New Study Gives Hope To Victims Of Chronic Fatigue Syndrome
Research published in the journal Proceedings of the National Academy of Sciences gives the first solid clues to what lies behind ME/CFS: a person's own immune system. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Scientists In Furious Row Over ME Study
A furious row has erupted between scientists after a medical journal dedicated its entire August edition to ripping apart a "deeply flawed" £5m UK taxpayer-funded study investigating treatments for Chronic Fatigue Syndrome. |
• |
We've Found Even More Proof That Chronic Fatigue Syndrome Is A Real Disease
Scientists have tracked down a number of biomarkers which correlate with ME/CFS. |
• |
Journal Of Health Psychology: Special Issue On The PACE Trail
The Journal of Health Psychology has devoted a special issue that focuses on the debate surrounding the PACE Trial. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Dad's Record Bid At Wigan 10k For His Son
A profile of UK resident Nigel Brookwell, who will be running in a marathon for his son Harry, who has ME/CFS. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
July |
• |
The PACE Trial: The Making Of A Medical Scandal
A special issue of the Journal of Health Psychology on the PACE Trial is to be published and freely available online on Monday 31 July 2017. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
How I Fought Chronic Fatigue Syndrome Through Art
A UK artist diagnosed with Chronic Fatigue Syndrome says painting helps her cope. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Boston Researcher Investigating Possible Fibromyalgia Vaccine
A researcher at Massachusetts General Hospital hopes to start work on a potential vaccine that could be a game changer for these patients. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
'Unrest' Gained Great Reviews About Being Screened At The Sundance Film Festival
"Unrest" was so critically acclaimed that it will be arriving in theaters later in 2017. |
• |
Chronic Pain Sufferers Continue To Fight Stigma To Get Relief And Diagnosis
An article about the prevalence of chronic pain in Australia. |
• |
Unrest Documentary Coming To Australia
The ME/CFS documentary Unrest will be shown at the Melbourne International Film Festival in August 2017. |
• |
Danielle Lloyd's Mum Jackie In Tears On UK TV Show As She Opens Up About Fibromyalgia
UK Fibromyalgia sufferer Jackie Lloyd had to be supported by pregnant daughter (and UK celebrity) Danielle Lloyd as she was left in tears after revealing her debilitating illness on ITV chat show Lorraine. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
I Didn't Want A Child Until I Got A Chronic Illness – Now I Might Never Be Able To Have One
An article by Jamison Hill, published in The Washington Post. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Invisible: Interview With Filmmaker Nick Demos
An interview with filmmaker Nick Demos about his Fibromyalgia documentary Invisible. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Fibromyalgia Patients Exhibit Changes In Cerebral Blood Flow, Study Says
Fibromyalgia patients may have different cerebral blood flow parameters compared with the general population, according to a recent study. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Another Potential Fibromyalgia Drug Bites The Dust
The Fibromyalgia community suffered yet another disappointment earlier this month when drugmaker Daiichi Sankyo announced mirogabalin, a potential new treatment, failed to meet its pain-reducing goals in clinical trials. |
• |
Patients Find Freedom From Fibromyalgia Pain With Cannabis
A profile of Fibromyalgia sufferer Vicki, who is finding symptom relief with the use of cannabis. |
• |
Living With Chronic Fatigue Syndrome
A profile of UK ME/CFS sufferer Zoe Power. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Asthma Is More Difficult To Control In Patients With Fibromyalgia, Study Shows
A study published in Current Medical Research and Opinion. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Woman Who Uses Opioids For Chronic Pain Says Negative Attention Hurts Legitimate Patients
A profile of US Fibromyalgia sufferer and opioid user Anna. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Greens Senator Scott Ludlam Resigns
Australian ME/CFS patients have lost a committed, articulate and caring advocate in Parliament this week, as Greens senator Scott Ludlam has had to resign. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
They May Look Like A Typical Couple, But Severe Fibromyalgia Cripples Shulamis Daily
A profile of Orthodox Jew and Fibromyalgia sufferer Shulamit M. |
• |
GREGORY: Eric McClure Suffers From Epstein-Barr Virus, But He Battles On
A profile of US stock car racing driver Eric McClure. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Mill Bay Fun Day To Raise Funds For ME Charity
The Mill Bay on the Isle of Wight is holding a fun day to raise awareness and money for Myalgic Encephalomyelitis on Saturday 22nd July. |
• |
CDC Removes CBT And GET As Recommended Treatments For ME/CFS
The US Centers for Disease Control and Prevention (CDC) has updated its website information for ME/CFS, improving diagnostic criteria and removing previous recommended treatments – Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET). |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
A Memoir Of Chronic Fatigue Illustrates The Failures Of Medical Research
A review of Through the Shadowlands, a new book by US ME/CFS sufferer Julie Rehmeyer. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Even "Minor" Infections Can Cause Chronic Fatigue Syndrome
An article by Cort Johnson about the pathogen giardia. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Seumas Sets Sights On More Success
A profile of Scottish athlete and ME/CFS sufferer Seumas MacKay. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Beth French Abandons Ocean's Seven Record Challenge
A profile of UK ME/CFS sufferer Beth French. |
• |
A Wheely Good Fundraiser
The Society’s Constitution has been updated. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
'Life Felt Like Hell Everyday' - Martine McCutcheon On Her Battle With Lyme Disease
A profile of UK actress and ME/CFS and Lyme Disease sufferer Martine McCutcheon. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Payout For Former Soldier Afflicted By Life-Changing Disease After Army Medics 'Treated Him With Paracetamol'
An experienced soldier from the UK struck down with ME/CFS has been awarded compensation by the Ministry of Defence after army medics attempted to treat him with paracetamol. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Medial Prefrontal Cortex Deficits Correlate With Unrefreshing Sleep In Patients With Chronic Fatigue Syndrome
A study that examined brain structure variations associated with sleep quality in patients with CFS. |
• |
Fibromyalgia Is Common In People With Jaw And Neck Muscle Conditions, Study Shows
A large percentage of patients with craniomandibular and craniocervical disorders – musculoskeletal conditions that affect the jaw and the neck – also have Fibromyalgia, according to a study by researchers at the University of Heidelberg in Germany. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
June |
• |
South Florida Native Says Chemical Sensitivity Forced Him To Leave State
A profile of Multiple Chemical Sensitivity sufferer Alan Bell, who is the author of the book Poisoned: How a Crime-Busting Prosecutor Turned His Medical Mystery into a Crusade for Environmental Victims. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Poor Sexual Health Among Women With Fibromyalgia Needs More Attention, Researchers Say
A study published in the Journal of Advanced Nursing. |
• |
World's Fastest Human Supports Walk
Sprinter Usain Bolt has shown his support for a UK charity helping people with ME. |
• |
Carers Of Children With ME In The UK 'Accused Of Fabrication'
A "significant number" of those caring for children with ME in the UK have been accused of fabricating their child's illness, a survey has found. |
• |
Muscle Injections With Lidocaine Improve Resting Fatigue And Pain In Patients With Chronic Fatigue Syndrome
A study published in the Journal of Pain Research. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
One Year After Nomoreloss' Death, Wife, Phoenix Suffering From Chronic Illness
A profile of Nigerian Fibromyalgia sufferer Adeola "Phoenix" Osinuga. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
No Increased Risk Of Chronic Fatigue Syndrome After HPV Vaccination
A new major study from the Norwegian Institute of Public Health shows that girls receiving one or more doses of HPV vaccine have no greater risk of ME/CFS than unvaccinated girls. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
First Cannabinoid-Based Transdermal Patch For Chronic Pain Is Ready For Release
The first batch of the Chronic Pain CBIS Transdermal Patch will soon be released, offering a cannabinoid-based alternative to people around the globe who self-medicate for fibromyalgia and other chronic pain conditions, Cannabis Science has announced. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Society Seminar Reminder
A reminder that the Society's next seminar will be held today (Saturday 24 June 2017). |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Writing, Living, Laughing: How One Woman Lives Her Best Life With Fibromyalgia In Ghana
A profile of K, a Fibromyalgia sufferer in Ghana. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Student Spotlight: NMB Student Diagnosed With Fibromyalgia Defies Tough Odds
A profile of US Fibromyalgia sufferer Madelyn Babson. |
• |
Society Seminar Reminder
A reminder that the society's next seminar will be held this Saturday, 24 June 2017. |
• |
David Tuller's Campaign – Update
An update from science journalist David Tuller about his Crowdrise funding campaign. |
• |
Norwegian National Advisory Unit On CFS/ME
A National Advisory Unit on CFS/ME has been created in Norway. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Dangerous Unproven Treatments For 'Chronic Lyme Disease' Are On The Rise
An increasing number of Americans with medically ambiguous symptoms are being misdiagnosed with "chronic Lyme disease" and prescribed dangerous and often expensive treatments that do not work, according to a new report. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
One Of Our Strongest Allies Needs Our Help! Please Read!
A report on the Personalized Medicine World Conference 2017 at Duke University in the US. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Stereotyping Still Prevents ME From Being Taken Seriously
The media coverage for the Millions Missing protest to raise awareness of ME in Scotland is to be welcomed and will hopefully lead to a much-needed conversation around this often misunderstood condition. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
"City of Ghosts," "Unrest" Take Sheffield Doc/Fest Awards
Unrest, documentary by US ME/CFS sufferer Jennifer Brea, was one of two documentaries to win top prizes at the annual Sheffield Doc/Fest Awards in the UK. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Bright-Light Treatment Shows Promise For Fibromyalgia
Morning bright-light treatment may be an effective adjunctive treatment for Fibromyalgia, improving function and easing pain sensitivity, perhaps by shifting sleep patterns in a way that appears to help Fibromyalgia, results of a pilot study suggest. |
• |
How To Assess Internet Cures Without Falling For Dangerous Pseudoscience
An article by science journalist and ME/CFS sufferer Julie Rehmeyer. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
Both Gluten-Free And Low-Calorie Diets Ease Gastrointestinal Ills In Fibromyalgia, Study Finds
Two diets – one gluten-free and the other a low-calorie plan called the hypocaloric diet – have been shown to alleviate the discomfort experienced by Fibromyalgia patients. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Takes Center Stage On First Afternoon Of Personalized Medicine World Conference
A report on the Personalized Medicine World Conference 2017 at Duke University in the US. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Chronic Pain Speech By The President Of Malta
The opening speech by Marie-Louise Coleiro Preca, the President of Malta, at the European Union Civic Prize on Chronic Pain, organised by the Active Citizenship Network. |
• |
Severe Forms Of Fibromyalgia Prove Costly To Healthcare System In Germany, Study Finds
The average cost of hospital care in Germany for patients with fibromyalgia with acute episodes of pain was reported in a new study to be 3,725.84 euros (roughly $4,163 in US dollars), a high cost to the healthcare system. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
XMRV And Public Health: Its Association With ME/CFS Appears Unreliable
A research paper entitled "XMRV and Public Health: The Retroviral Genome Is Not a Suitable Template for Diagnostic PCR, and Its Association with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Appears Unreliable". |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
The Hidden Challenges Of Invisible Disabilities
Millions of people in the UK work with disabilities they rarely talk about, but greater awareness can help both employers and employees, writes Jessica Holland. |
• |
Society Constitution
The Society’s Constitution has been updated. |
• |
I Changed Career In My Fifties... And Was Struck Down By ME
A profile of UK musician and ME/CFS sufferer Jude Adams. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Florida Woman Gives Chronic Fatigue Patients Hope
A profile of US ME/CFS sufferer Mia Isabel Anderson. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Research Participants Wanted To Develop A Creative Resource About Living With ME/CFS And Fibromyalgia
South Australian PhD candidate Gipsy Hosking is looking for Adelaide-based people, aged 18-30, who are currently living with ME/CFS and/or Fibromyalgia, to help her with research. |
• |
Petition: Stop The Closure Of Welfare Rights Centre SA
A petition to keep South Australia's Welfare Right Centre SA open. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
John Takes On UK Cycle Marathon For Fibromyalgia
John Stammers from Stanford-le-Hope in the UK will cycle in the Thurrock Cycle Marathon on 4th June to support Fibromyalgia Action UK because his mother lives with Fibromyalgia. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Irish Author Shares Her Story On Health Battle
A profile of Irish author and Fibromyalgia sufferer Brigid Gallagher. |
May |
• |
Senator Scott Ludlam On Research Investment In ME/CFS
A video of Australian Greens Senator Scott Ludlam discussing research investment in ME/CFS. |
• |
Crowd-Funding Campaign To Support David Tuller's ME/CFS Work (On The PACE Trial, etc.)
US Journalist David Tuller is calling on people to support him financially in his work on exposing flaws in the PACE Trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Action For M.E. Launches Pharmacy Resource
UK organisation Action for M.E. has launched an M.E. information resource for community pharmacy teams across the UK, M.E./CFS: a guide for pharmacy teams. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Leeds Chronic Fatigue Sufferer: 'No One Really Knows What Causes My Illness'
A profile of UK ME/CFS sufferer Hattie Hodgson-Crome. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Lawsuit At Columbia University Roils Prominent Chronic Fatigue Syndrome Research Lab
A sex discrimination lawsuit filed last week has exposed a nasty fight roiling one of the most prominent, and well-funded, US labs studying ME/CFS. |
• |
Hendon Primary Says #SockItToME
A report on Crazy Sock Day at Hendon Primary School. |
• |
Massachusetts Governor Charlie Baker Issues Proclamation For ME Awareness
On May 9, 2017, at the State House in Boston, the state's first Proclamation for ME Awareness Day, May 12, 2017, was presented to people with the disease. |
• |
I Became Chief Executive Of A UK M.E. Charity - And Then My Son Was Diagnosed With M.E. Too
A profile of Sonya Chowdhury. |
• |
SMCI Collaborates In The Publication Of New ME/CFS Pediatric Primer With Dr Peter Rowe
A new primer focusing on the pediatrics aspect of ME/CFS was recently accepted for publication in the journal Frontiers in Pediatrics. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
'My Body Doesn't Recover': Chronic Fatigue Sufferer Calls For Greater Research
A profile of Canberran ME/CFS sufferer Sash Nimmo. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
California Passes A Resolution For ME/CFS
California has become the sixth US state to pass a resolution for ME/CFS. |
• |
Concordia College Students Help Out At Badge Day Again This Year
A report of the Society's Badge Day, held on Friday 12 May 2017. |
• |
Pilot Study Reports Beneficial Effects Of Ambroxol For Fibromyalgia Pain
Results from a pilot clinical study published in the journal Clinical Rheumatology showed that ambroxol may help manage pain in Fibromyalgia patients. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
ME Support Call After Scottish Sufferer's Benefits Stopped
A profile of Scottish ME/CFS sufferer Sally Crowe. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Healthy Controls Needed For ME/CFS Study In Melbourne
CFS Discovery is calling for healthy controls to participate in a study investigating the biomarker potential of activin family proteins for CFS/ME diagnosis. |
• |
Fibromyalgia More Common In People With Certain Diseases, Study Finds
An analysis of data from more than 3.5 million people showed that Fibromyalgia is more common in patients with certain diseases such as type 2 diabetes and Behçet syndrome than in the general population overall. |
• |
Data Doesn't Support Vitamin/Mineral Deficiency Link, Study Says
Data pooled from 27 studies of vitamin and mineral deficiencies in Fibromyalgia and ME/CFS patients showed no evidence for a link to these diseases, a recent study reports. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
International ME/CFS Awareness Day Isn't What it Used to Be…
Health Rising's Cort Johnson reports on International ME/CFS Awareness Day activities. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Chronic Fatigue Traced To Mitochondria
A radio segment about the role mitochondria may play in ME/CFS. |
• |
New Zealand Study Seeks Volunteers With ME/CFS For Exercise Study
Massey University’s School of Sport and Exercise in New Zealand will be conducting a study into exercise in ME/CFS sufferers. |
• |
To Survive Chronic Illness, I Needed Permission To Grieve For Myself
A profile of Australian ME/CFS sufferer Naomi Chainey. |
• |
Living With 'Invisible' Illness Of Chronic Fatigue Syndrome
A profile of Australian ME/CFS sufferer Hannah Williamson. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
May 12: International ME/CFS Awareness Day
Today is International ME/CFS Awareness Day. |
• |
ME/CFS Australia Ltd. – Relaunched!
After a period of hiatus, ME/CFS Australia Ltd. is proud to announce that we are back and ready to work for those with the condition throughout Australia. |
• |
Active Tasmanian Parks And Wildlife Ranger Struck Down By Chronic Fatigue Syndrome
A profile of Tasmanian ME/CFS sufferer Jen Calder. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Purple Is More Than Just A Color For A Tewksbury Family
A profile of US Fibromyalgia sufferer Kiley Reitano. |
• |
"I'd Love To Be Able To Say 'I Have ME' And Have People Nod In Sympathy"
A profile of Irish ME sufferer Anne Brennan. |
• |
"I'm In Constant Pain, 24 Hours A Day": Aussie Says She Has Controversial Condition
A profile of Tasmanian Chloe Cox-Haines, who claims to suffer from Lyme Disease. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
NIH Launches Study Seeking Answers On Chronic Fatigue Syndrome
A profile of Scottish ME/CFS sufferer Emma Shorter. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Display Of Shoes In Tynwald To Mark ME Awareness Day
To mark ME Awareness Day, the Isle of Man's ME support group is joining a campaign all over the world with an event in the Tynwald building. |
• |
Interview With Norman Hanley, Founder Of Men With Fibromyalgia - Part 1
Melissa Swanson interviews Norman Hanley, founder of "Men With Fibromyalgia". |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
New Study Could Radically Change Fibromyalgia Treatment As We Know It
New research from Dr Jarred Younger at the University of Alabama at Birmingham in the US. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
PLOS ONE Expression Of Concern
A response from the journal PLOS ONE about the publication of the PACE trial. |
• |
Unrest Wins Prize At Nashville Film Festival
The ME/CFS documentary Unrest has won the Grand Jury Prize for Best Documentary Feature at the 2017 Nashville Film Festival. |
• |
NIH Study Aims To Unravel The Illness Known As 'Chronic Fatigue Syndrome'
A profile of US ME/CFS sufferer Brian Vastag who is part of a National Institutes of Health study of the disease. |
• |
Petition For Illness To Be Recognised As Disability In UK
A UK woman who suffers from Fibromyalgia is campaigning to see the disease recognised as a disability in UK law. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
NIH Launches Study Seeking Answers On Chronic Fatigue Syndrome
A scientific study of one of medicine’s most vexing mysteries, Chronic Fatigue Syndrome, launched recently, and it includes a patient whose emotional plea helped trigger the initiative. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
April |
• |
8 April 2017 Seminar Report
A report of the 8 April 2017 seminar by Society member Deborah Marlin. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Unrest Director Documents Debilitating Life With Chronic Fatigue Syndrome
A radio interview with US ME/CFS sufferer Jennifer Brea about her documentary movie Unrest. |
• |
Gut Bacteria In ME/CFS May Influence Disease Severity
A new study in the journal Microbiome from Drs Ian Lipkin and Mady Hornig at Columbia University Center for Infection and Immunity finds abnormal levels of certain types of bacteria in the gut microbiome of ME/CFS patients. |
• |
Fibromyalgia Patients Sleep Less And Worse Than Healthy People, Study Says
People with Fibromyalgia have more difficulty falling asleep and sleep worse and less compared to the general population, according to the results of a new review. |
• |
'Bubble Girl' Amelia Hill Enjoys Brief Ray Of Sunshine
A profile of South Australian ME/CFS/MCS sufferer Amelia Hill. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Bedfest
BedFest is a virtual concert on 6 May 2017 to showcase the experience of living with ME/CFS as expressed through song, spoken word, poetry or silent expression in the form of a short video clip or photo. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Medicinal Cannabis Prescription Now Allowed By SA Doctors
Doctors will be able to prescribe the medicinal use of cannabis, but only as a short-term treatment, in South Australia from this week. |
• |
'It Robs You Of Your Very Being': Life With The Invisible Illness
A profile of UK Fibromyalgia sufferer Jo Allen. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Award-Winning Vancouver Singer Performs Opera, Musical Theatre And More For Charity
This May, an award-winning Canadian soprano will sing to support ME/CFS awareness. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
ME/CFS Genes Study
Nova Southeastern University's Institute of Neuro Immune Medicine is currently recruiting ME/CFS patients and healthy controls for a web-based study to create a one-of-a-kind genetic database for individuals with ME/CFS. |
• |
A Content Analysis Of ME/CFS In The News From 1987 To 2013
A study that analyzed the content of American newspaper articles from 1987 to 2013, in order to understand how the public digests information related to ME/CFS. |
• |
Stu Aiming To Inspire Other ME Sufferers
A profile of UK ME/CFS sufferer Stu Laurie. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Cannes '17: Scottish Student Film Wild Horses To Compete
According to a report on suntimes.com, cannabinoids present in medical marijuana help to ease pain, as well as increase appetite and relieve the feeling of nausea. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Medical Marijuana Could Be An Effective Weapon Against Fibromyalgia Pain
According to a report on suntimes.com, cannabinoids present in medical marijuana help to ease pain, as well as increase appetite and relieve the feeling of nausea. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
First Light-Activated Analgesic May Change How Pain Disorders Are Treated, Study Suggests
Scientists at the Institute of Neurosciences of the University of Barcelona helped develop the first light-activated drug, called JP-NP-26, for the treatment of pain. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Fragrance Is A Hidden Hazard
A lecture by Professor Anne Steinemann, Chair of Sustainable Cities, School of Engineering, University of Melbourne. |
• |
Petition: ICD Review
A petition by ME Action to ensure that The World Health Orgnization's International Classification of Disease correctly categorises ME/CFS. |
• |
CNS Findings In Chronic Fatigue Syndrome And A Neuropathological Case Report
Research published in the Journal of Investigative Medicine. |
• |
Phoebe's Global Challenge Has A Vital Message For Everyone
A profile of UK ME/CFS sufferer Phoebe Howlett. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
Proof That A Gluten-Free Diet For Fibromyalgia Really Works
A study published in Rheumatology International reveals that Fibromyalgia patients who have not been diagnosed with celiac disease may still benefit from going on a gluten-free diet. |
• |
Fab Pop-Up Shop At Kimbers' Farm Shop
An article about UK woman Sarah Goodman, who is using her range of dog products to raise awareness of ME/CFS. |
• |
Society Seminar Reminder
A reminder that the society's next seminar will be held today (8 April 2017). |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
University Of Toronto Study Offers Hope To Sufferers Of Chronic Fatigue Syndrome
A new University Of Toronto study may lead to help for sufferers of ME/CFS who face debilitating fatigue that can't be cured by rest. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Society Seminar Reminder
A reminder that the society's next seminar will be held this Saturday (8 April 2017). |
• |
Scientists Discover Biological Evidence Of "Atypical" Chronic Fatigue Syndrome
Scientists at the Center for Infection and Immunity at Columbia University’s Mailman School of Public Health are the first to report immune signatures differentiating two subgroups of ME/CFS: "classical" and "atypical". |
• |
Dealing With Chronic Fatigue And Pain
A New Zealand radio interview with US ME/CFS specialist Dr Charles Lapp. |
• |
Review: Unrest
A review of ME/CFS documentary Unrest by ME/CFS sufferer Jennifer Brea. |
• |
Biological Underpinnings Of Chronic Fatigue Syndrome Begin To Emerge
A profile of US CFS specialist Ronald Davis and his latest research developments. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Musician With ME Produces EP From Her Bed
A profile of US musician and ME/CFS sufferer Kaeley Pruitt-Hamm. |
• |
The Shift: Top Science Journal Asserts Shift In Attitude Towards ME/CFS Has Occurred
An article by Cort Johnson for Simmaron Research. |
• |
Do Graded Activity Therapies Cause Harm In Chronic Fatigue Syndrome?
A discussion of Grade Exercise Therapy in ME/CFS by Tom Kindlon. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
March |
• |
ME/CFS Australia (SA) Inc Co-Signs International Open Letter
ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial. |
• |
PACE Trial Commentaries In The Journal Of Health Psychology Made Open Access
It has been agreed by the publisher of The Journal of Health Psychology that all of the commentaries on the PACE trial will be made Open Access at no charge to the authors. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Carte Blanche: Missing Millions
South African current affairs TV program Carte Blanche looks into ME/CFS. |
• |
Wollongong Artist Determined To Exhibit At World Of Wearable (WOW) Art Awards Show In New Zealand
A profile of Australian artist and ME/CFS sufferer Lucy Kennedy, who is entering her work in the World Of Wearable (WOW) Art Awards Show in New Zealand. |
• |
ACT ME/Chronic Fatigue Syndrome Society May Cut Programs After SHOUT Shuts
An article from The Canberra Times. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
UK Debate Petition
A petition to debate in UK Parliament the absence of an effective policy for the treatment of ME/CFS. |
• |
World Expert In Chronic Fatigue To Share Research Findings In New Zealand
Dr Charles Lapp, an international expert in ME/CFS and Fibromyalgia will visit New Zealand to talk about how the debilitation conditions can be managed. |
• |
How A Study About Chronic Fatigue Syndrome Was Doctored, Adding To Pain And Stigma
An article about the unmasking of data manipulation at the root of the PACE trial. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
An Open Letter To Psychological Medicine, Again!
An article on Virology Blog. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Yet More Research Shows Chronic Fatigue Syndrome Is Real. When Will Health Services Catch Up?
An article by Australian ME/CFS sufferer Naomi Chainey. |
• |
UK Woman To Take On London Marathon Despite Illness
A UK woman is determined to get through the London Marathon in April despite having Chronic Fatigue Syndrome. |
• |
Cognitive Neuroscientists Use Systems Level Approach To Search For Cause Of CFS
A press release from DePaul University in the US. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Getting It Wrong On Chronic Fatigue Syndrome
An article published in The New York Times. |
• |
Finance Chief 'Faked Chronic Fatigue To Claim £2.4Million From Insurance Company'
A UK financier who claimed chronic fatigue left him unable to get out of bed is battling accusations that he faked his symptoms to claim millions of pounds in insurance payouts. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
ME/CFS Equals SEID
A research paper that examined how subjects fit SEID criteria and existing ME/CFS case definitions early in their illness. |
• |
This Cannabis Patch Is Changing Lives When It Comes To Pain Relief
A profile of Cannabis Science, a US company that has developed cannabis pain patches for the relief of pain in conditions such as Fibromyalgia. |
• |
Living Well With Pain Consumer Symposium
Painaustralia and The University of Adelaide will host a unique forum for people to hear from leading pain specialists - the Living Well With Pain Consumer Symposium, on Sunday 9 April 2017. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
SXSW Film: "Unrest" Examines Pain-Riddled Life With Chronic Fatigue
An article about US ME/CFS sufferer Jennifer Brea's documentary film Unrest. |
• |
Researchers Working To Provide Relief For Sufferers Of Chronic Fatigue
Researchers are now helping those tired of chronic fatigue syndrome. |
• |
Entertainment Book
The Society has Entertainment Books for sale. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Review Of 'The Case Against Fragrance' By Kate Grenville
A review by Committee member Deborah Marlin of The Case Against Fragrance by Kate Grenville. |
• |
For Chronically Ill People Like Me, The ACA Repeal Is Life Or Death
An article by US severe ME/CFS sufferer Jamison Hill. |
• |
Fibromyalgia Patients Make Their Case For Medical Marijuana
An article from Maltese website Lovin Malta. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Neural Signature For Fibromyalgia
Researchers recently found a neural signature that can identify fibromyalgia with incredible accuracy. |
• |
UK Woman Appealing For Help In Adopting Nervous Dog That Has Been Waiting For Home For Years
UK ME/CFS sufferer Xanthe Anderson is trying to adopt a dog that has been waiting for a home for more than four years. |
• |
Kate Grenville Interview: Why Perfumes Are Making You Sick
An interview with Kate Grenville, author of The Case Against Fragrance. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Australian Government Seeking Expert Advice On ME And CFS Research Grants
Senator Scott Ludlam asked about the progress of proposals to research ME and CFS at a budget estimates hearing in Parliament House, Canberra. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Sick Cornish Mum Too Sick To Work Asks For Help To Raise Funds To Make Her Son's 'Dream Come True'
Cornish ME/CFS and Fibromyalgia sufferer Joanne Bawden has put out a plea for people to help raise funds in a race against time to help make her son's 'dream come true'. |
• |
NVCBR Researchers Close In On A Diagnostic Test For ME/CFS Patients
Scientists at Nevada Center for Biomedical Research have taken the first step in developing a clinical assay for diagnosing ME/CFS patients through the creation of an antibody immune signature. |
February |
• |
List Of Medical Marijuana Use May Expand In New Jersey
A video from US (New Jersey) TV program SNJ Today. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Plaudits For New South African TV News Documentary On ME/CFS
A video from South African current affairs TV program Carte Blanche. |
• |
When It's An Effort To Just Get Out Of Bed
A profile of Irish Fibromyalgia sufferer Catherine Keaney. |
• |
Neural Consequences Of Post-Exertion Malaise In ME/CFS
Research published in Brain, Behavior, and Immunity. |
• |
Stanford Team Announces Update On ME/CFS Research
A research team at Stanford University has given an update on some of the breakthroughs its team has made in understanding the metabolic cycles that are not working properly in people with ME/CFS that might be at the heart of the disease. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Four New Ailments Being Added To Connecticut Medical Marijuana Program
Proposals to add fibromyalgia, muscular dystrophy, shingles and rheumatoid arthritis to the list of painful ailments that qualify for Connecticut's medical marijuana program were recently endorsed by a state agency. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
One Of The Biggest Myths About Chronic Fatigue Syndrome Just Got Debunked
Australian researchers have shown for the first time that CFS is linked to a faulty cell receptor in immune cells. |
• |
Death Eater From Harry Potter Films Moves To Eastbourne
A profile of British actor Jon Campling, whose wife, Ali, has ME/CFS. |
• |
Gold Coast Researchers Make Chronic Fatigue Syndrome Breakthrough
In a world first, Gold Coast researchers have made an important breakthrough in understanding the cause of Chronic Fatigue Syndrome. |
• |
Halstead Resident Bids To Start Support Group After Feeling 'Alone' During Battle With Fibromyalgia
A UK woman with Fibromyalgia is hoping to kick-start a support group after feeling "alone" during her battle with the disease. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Relief At Last? The Next Generation Of Opioid Drugs, Fibromyalgia And Chronic Pain
An article by Cort Johnson of Health Rising. |
• |
Ampligen Petition
A petition from UK organisation ME Action. |
• |
The Invisible Disease: Fibromyalgia Sufferers Speak Out
A profile of West Australian Fibromyalgia sufferer Michelle Greenwood. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Student Seeking Feedback From ME/CFS Patients
Brooke Denmark, a US student working on her Masters in Social Work, is asking ME/CFS sufferers to fill in a questionnaire about life with the disease. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Thousands Could Have Lyme Disease Without Knowing
A UK campaign to raise awareness of Lyme disease has found that thousands of people could be living with the condition, having been diagnosed with something else. |
• |
Gross And Fine Motor Function In Fibromyalgia And Chronic Fatigue Syndrome
A research paper published in Dove Medical Press. |
• |
Metabolic Switch May Bring On Chronic Fatigue Syndrome
Evidence is mounting that Chronic Fatigue Syndrome is caused by the body swapping to less efficient ways of generating energy. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Some 270 Norwegian Students Drop School For Chronic Fatigue Syndrome
In the last academic year, there were about 270 primary and secondary students in Norway who did not participate in education due to ME/CFS. |
• |
People Say 'Oh, I Think I Had That Last Week' – Lisa Battles Illness And Stigma
A profile of UK ME/CFS sufferer Lisa Whight and her support group Chronic Fatiguers Unite. |
• |
UniSA Pacing Study Recruitment
South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'. |
• |
Medicinal Cannabis Still Too Costly For Christchurch Woman
The high cost of medicinal cannabis means the drug will remain out of reach for a New Zealand woman with Fibromyalgia, despite the Government making it more accessible. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Illness With Pain 'Like Being Hit By A Bus' Forces Cafe Owner To Leave Business Behind
A profile of UK Fibromyalgia sufferer Joanne Cartwright. |
• |
AM Tells Fibromyalgia To Rock Off In A Bid To Raise Funds For Treatment
A caring husband in the UK is saying "rock off" to Fibromyalgia in a bid to raise funds for treatment for all local sufferers. |
• |
How To Be Disabled, According To Stock Photography
An article about what the photo service Shutterstock considers "disabled" to be. |
• |
Interview With Jennifer Brea
Filmmaker and ME/CFS sufferer Jennifer Brea talks about her new documentary, Unrest. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Interview With Ron Davis
Scientific Advisory Board Director Ronald Davis, PhD, answers questions on new technology and strategies for "fast-tracking" ME/CFS research. |
• |
Chronic Fatigue Syndrome (ME/CFS) Even Worse In Japan Than US
An analysis of an article entitled "Ministry of Health Survey Reveals Harsh Reality of ME/CFS Patients in Japan" by Japan ME Association president Mieko Shinohara. |
• |
How Gut Bacteria Is Helping To Unpack Chronic Fatigue Syndrome
Researchers at Melbourne University have been studying the metabolites (AKA products of metabolism) and gut microbiota in the faeces, blood and urine of those with ME/CFS. |
• |
Scottish Drummer Hit By Crippling Pain To Share Story Of Recovery To Help Others Battling Conditions
A profile of Scottish drummer Mairi Newberry. |
• |
NikkiJo Tyrrell's Life Has Been 'On Hold' Since She Got Lyme Disease And ME/CFS
A profile of New Zealand Lyme Disease and ME/CFS sufferer NikkiJo Tyrrell. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Unrest Documentary To Air On US TV
The PBS network has acquired US broadcast rights to the ME/CFS documentary film Unrest for its Emmy Award-winning series Independent Lens. |
• |
Raising Awareness Of Fibromyalgia
UK motor sport driver Adam Higgins is trying to raise funds to increase awareness of Fibromyalgia. |
• |
I'm Not Faking Being Sick; I'm Actually Faking Being Well
An article by Fibromyalgia sufferer Robin Dix. |
January |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Society Seminars For 2017
Dates for the ME/CFS Australia (SA) Inc 2017 seminars. |
• |
How Great Human Beings Find Their Purpose
A profile of US ME/CFS sufferer and documentary filmmaker Jennifer Brea. |
• |
Jen Brea's Outrageously Successful Chronic Fatigue Syndrome (ME) TED Talk
An article by Health Rising's Cort Johnson about US ME/CFS sufferer Jennifer Brea's recent TED Talk. |
• |
Prevalence Of Fibromyalgia Increases With Age, Linked To Poor Quality Of Life, Study Says
The prevalence of Fibromyalgia may increase with age, according to results obtained in a study with Turkish patients. |
• |
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Summary
An update from Solve CFS Initiative president Carol Head. |
• |
Controversial GP Receives Australia Gong
A controversial Sydney GP who treats patients who "fall through the cracks of old paradigms of medicine" has been granted a Medal of the Order of Australia. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Wearables - Hope For Chronic Fatigue Syndrome And Fibromyalgia?
Health Rising's Cort Johnson discusses the potential of wearable technology for use in ME/CFS and Fibromyalgia. |
• |
Unrest Movie Reviews
Two reviews of the feature-length documentary Unrest, a film by Jennifer Brea about ME/CFS. |
• |
Australian Netballer Returns To The Game After ME/CFS
A profile of Australian netballer Kate Yensch. |
• |
Brookin Johnson, 30, Defies The Odds After Nearly Dying Three Times
A profile of UK Fibromyalgia sufferer Brookin Johnson. |
• |
Professional Tennis Player Mona Barthel Suffered From ME/CFS In 2016
German tennis player Mona Barthel was unable to play throughout 2016 due to Chronic Fatigue Syndrome. |
• |
Fibromyalgia Patient Outcomes Can Be Improved, 2-Year Prospective Study Reveals
A two-year study that assessed clinician and patient-reported outcomes among Fibromyalgia patients reveals this patient population can experience certain health improvements. |
• |
A Psychosomatic Diagnosis Is A Doctor's Way Of Saying, "I Don't Have A Clue"
An article by ME/CFS sufferer Jamison Hill. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
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Heartbreaking Letter From A UK Woman With Fibromyalgia
UK Fibromyalgia sufferer Peyton Connor has penned a letter to those closest to her. |
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Jennifer Brea's TED Talk
A talk that US ME/CFS sufferer Jennifer Brea gave at last summer's TED Summit has just gone live on TED.com. |
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Possible Mechanism Identified For Chronic Fatigue Syndrome
Protesters crashed Canadian health minister Jane Philpott's meet-and-greet event in Markham on Saturday 14 January. |
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ME/CFS Protester Interrupts Canadian Health Minister's Event
Protesters crashed Canadian health minister Jane Philpott's meet-and-greet event in Markham on Saturday 14 January. |
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Differing Case Definitions Point To The Need For An Accurate Diagnosis Of ME/CFS
A research article published in the medical journal Fatigue: Biomedicine, Health & Behaviour. |
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Panel Recommends Medical Pot For Four More Diseases
A US panel has recommended that people in Connecticut suffering from Muscular Dystrophy, Rheumatoid Arthritis, the pain of Fibromyalgia and shingles should be allowed to join that state's medical marijuana program. |
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'I Went From Being A Salsa Dancer To Someone Who Couldn't Put On My Own Socks'
An article by Irish Fibromyalgia sufferer Deirdre Ryan about her experience with the disease. |
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South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
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Cognitive Dysfunction In Chronic Fatigue Syndrome, Molecular Pattern Discovered
A molecular pattern has been discovered with regards to cognitive dysfunction in chronic fatigue syndrome, giving hope for improved diagnosis and treatment. |
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Chronic Fatigue Syndrome A Kick In The Guts
An article about recent studies that associate metabolites and microbiota in faeces, blood and urine with ME/CFS. |
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A Year In Review: 2016's Top Fibromyalgia Stories
An article by Donna Gregory Burch about developments in Fibromyalgia research in 2016. |
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Fuel Shortage: Norwegian Study Expands On Energy Problem In Chronic Fatigue Syndrome (ME/CFS)
An article about the work of Norwegian ME/CFS researchers Dr. Øystein Fluge and Professor Olav Mella. |
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How Alem Matthees' Letter Helped Solve Chronic Fatigue Syndrome Mystery
An article about the determination of Australian ME/CFS sufferer Alem Mathees to discover the truth of the PACE trial data. |
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Happy Birthday? Another Year With Fibromyalgia
An article by Fibromyalgia sufferer Lori Galpeer. |
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Study: Grey Matter Abnormalities Associated With Fibromyalgia
A research article entitled "Gray matter abnormalities associated with fibromyalgia: A meta-analysis of voxel-based morphometric studies." |
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South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
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It's Time For Doctors To Apologise To Their ME Patients
An article by UK ME/CFS specialist Dr Charles Shepherd. |
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1 Million Americans Suffer With Chronic Fatigue Syndrome
A video from US TV station KRISTV.com about Chronic Fatigue Syndrome. |
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What You Should – And Should Not – Say To Someone With Fibromyalgia
An article by US Fibromyalgia sufferer Robin Dix. |
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Arthritis Society Of Canada Funds Medical Marijuana Research For Fibromyalgia Pain
The Arthritis Society of Canada is awarding a three-year research grant to Dr. Mark Ware to study the use of medical marijuana (cannabis) for Fibromyalgia pain. |
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Happy New Year
All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year. |
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)