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ME/CFS AUSTRALIA (SA) INC

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ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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Online Survey: Fibromyalgia – Coping And Functioning

Saturday 28 May 2016

 

From The University of Adelaide's Heather Trainor:

 

The University of Adelaide
 

Fibromyalgia: Coping and Functioning study

Dear Participant,

You are invited to participate in the research project described below.

 

What is the project about?

The project aims to explore how ways of coping with pain and other symptoms of fibromyalgia are related to functioning in people with fibromyalgia. It is hoped that results may assist psychologists in targeting treatment for improved functioning, however no causal links will be able to be identified in this study.

 

Who is undertaking the project?

This project is being conducted by Heather Trainor. This research is part of the degree of Master of Psychology (Health) at The University of Adelaide, under the supervision of Professor Helen Winefield, Miriam Henke, and Dr John Baranoff.

 

Who is invited to participate?

Participation in this study is open to people who:

  • Have received a diagnosis of Fibromyalgia from a medical practitioner
  • Are Australian residents
  • Are over the age of 18
  • Are proficient in English (no translation services available)

 

What will I be asked to do?

Participants are asked to complete an online survey using Survey Monkey. Questions relate to demographics, coping with pain, psychological flexibility, self-efficacy and functioning, and are largely check-box responses.

 

How much time will the project take?

The survey takes approximately 15 minutes to complete.

 

Are there any risks associated with participating in this project?

Some participants may experience some physical discomfort in using a computer for 15 minutes. Please be aware that Survey Monkey allows for you to have a break and return to the survey at a later time if required. If the content of questions cause psychological discomfort or distress, please contact Lifeline on 13 11 14 for a free and confidential counselling service, or contact your GP for further support options.

 

What are the benefits of the research project?

There are no immediate benefits from participating in this study. However your participation may contribute to a greater understanding of the factors that contribute to better functioning in people with fibromyalgia and this information may be useful for psychologists in providing treatment.

 

Can I withdraw from the project?

Participation in this project is completely voluntary. If you agree to participate, you can withdraw from the study at any time. Please be aware that once the Survey Monkey questionnaire has been submitted, it will not be possible to withdraw your data from the study, as responses to the questionnaire are anonymous.

 

What will happen to my information?

Information obtained from this study will be stored confidentially and securely at the University of Adelaide School of Psychology for 7 years. Only the researchers undertaking the project will have access to the information. The results of this project will be reported in a Master’s thesis, and may be published as a journal article. No individual results will be reported. A summary of results can be obtained once the study is complete. Please email heather.trainor@student.adelaide.edu.au to request a summary.

 

Who do I contact if I have questions about the project?

If you have questions about the project, please contact:

 

What if I have a complaint or any concerns?

The study has been approved by the Human Research Ethics Subcommittee in the School of Psychology at the University of Adelaide (approval number H-2015-16157). If you have questions or problems associated with the practical aspects of your participation in the project, or wish to raise a concern or complaint about the project, then you should consult the Principal Investigator. Contact the Human Research Ethics School of Psychology Subcommittee’s Convenor on phone +61 8 8313 4936 or by email to paul.defabbro@adelaide.edu.au if you wish to speak with an independent person regarding concerns or a complaint, the University’s policy on research involving human participants, or your rights as a participant. Any complaint or concern will be treated in confidence and fully investigated. You will be informed of the outcome.

 

If I want to participate, what do I do?

To participate in this study please click the ‘next’ button on your screen to proceed to consent information.

 

Yours sincerely,

Heather Trainor, Master of Psychology (Health) student
Professor Helen Winefield, Supervisor, The University of Adelaide
Miriam Henke, Supervisor, Miriam Henke Consulting
Dr John Baranoff, Supervisor, SA Health

 

PDFFMS Participant_Information_Sheet (PDF, 70 KB)

PDFFunctioning in Fibromyalgia flyer (PDF, 342 KB)

 

Begin the Survey…

 


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