ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
PO Box 28,
South Australia 5007
North Terrace House,
19 North Terrace,
Hackney, SA, 5069
1300 128 339
Closed over Christmas
(reopened 1 February 2017)
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
When Fibromyalgia Is More Than Pain
Sunday 10 January 2016
When Fibromyalgia Is More than Pain
The body-wide pain of fibromyalgia is usually the symptom that leads us to seek medical advice. Other complaints such as non-restorative sleep, fatigue, and thought processing difficulties have also become predominant diagnostic criteria.
However, other symptoms do cluster with what Dr. Frederick Wolfe calls “fibromyalgianess” (1), a label that is often interpreted as “these symptoms are all in your head.” This poly-symptomatology is mentioned in the American College of Rheumatology (ACR) Preliminary Diagnostic Criteria for Fibromyalgia. (2) Interestingly, the ACR assured me in writing that they did not — and will not — approve any diagnostic criteria, preliminary or otherwise. I am equally appalled when lead investigator Dr. Frederick Wolfe says, “There is a lot invested in what I would call a psycho-cultural illness.” (3)
Following is the list of what Dr. Wolfe calls poly-somatic complaints. I have categorized them by disorders that have been recognized to occur with FM by various health organizations such as the American College of Rheumatology, the Centers for Disease Control, and The National Institutes of Health. It ONLY includes symptoms included or alluded to in the Wolfe criteria. It is not complete and not meant to be a self-diagnostic tool.
Irritable bowel syndrome
Temporomandibular Dysfunction (TMD/TMJ)
Myofascial Pain Syndrome
Painful Bladder Syndrome (Interstitial Cystitis)
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
If your symptoms are bothersome or ignored because your physician aligns with the opinions of Dr. Wolfe, they need to be investigated. A secondary condition that is properly diagnosed and treated will improve your overall outcome.
I am a proponent of the research and alternate criteria (4) led by Dr. Robert Bennett, who has been kind enough to answer questions here on ProHealth.
Celeste Cooper, RN, is an advocate, writer and published author, and she is a person living with chronic pain. She is lead author of Integrative Therapies for Fibromyalgia, Chronic Fatigue Syndrome, and Myofascial Pain and Broken Body, Wounded Spirit, Balancing the See Saw of Chronic Pain (a four book series). She spends her time enjoying her family and the rewards she receives from interacting with nature through her writing and photography. You can learn more about Celeste’s writing, advocacy work, helpful tips, and social network connections at http://CelesteCooper.com.
The above originally appeared here.
blog comments powered by Disqus