December |
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Dr Ros Vallings Report On The 2016 International Association CFS/ME Conference
A presentation by Dr Rosamund Vallings that was held at the ANZMES Annual General Meeting in Auckland on the 26th November 2016. |
• |
'There's Never A Minute In The Day I Don't Feel Pain'
A profile of Irish Fibromyalgia sufferer Eleanor O'Farrell. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
The People Who Give Us Gifts All Year – The Overcomers
US journalist Llewellyn King talks about his favourite people who have become successful despite adversity, one of whom is author and ME/CFS sufferer Laura Hillenbrand. |
• |
Neural Signature For Fibromyalgia May Aid Diagnosis, Treatment
University of Colorado Boulder researchers have discovered a brain signature that identifies Fibromyalgia sufferers with 93 percent accuracy, a potential breakthrough for future clinical diagnosis and treatment of the highly prevalent condition. |
• |
Severe ME Left Me In A World Of Pain And Darkness. 26 Years On, Why Is It Still So Poorly Understood?
An article by Naomi Whittington about living with ME/CFS. |
• |
London Public Transport Introduces 'Please Offer Me A Seat' Badges For People With 'Invisible' Disabilities
Badges for people with invisible disabilities or conditions will be introduced permanently on London's public transport network, following a successful trial. |
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Merry Christmas
All of us here at ME/CFS Australia (SA) Inc wish you a very merry Christmas! |
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Presentations From The Third UK CFS/ME Research Collaborative Conference 2016
A 33-page PDF of presentations from the third UK CFS/ME Research Collaborative conference, 28-29 September 2016. |
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Gifts For Unsung Heroes
A UK store has handed out goodie bags packed with Christmas treats to a trio of deserving customers, one of which is ME/CFS sufferer Helen Green. |
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South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Fibromyalgia Patient Shaves Head For Charity Which Supported Her
A UK woman who has suffered from Fibromyalgia since she was a teenager has shaved her head to raise money for the charity which supported her. |
• |
The Residents Of This Arizona Community Are Allergic To Modern Life
Chemically sensitive residents of a tiny, off-the-grid village in Arizona called Snowflake find relief from a world that makes them sick. |
• |
A Study Of Chronic Fatigue Syndrome Therapies Is Debunked (Again)
A new reanalysis of data from the so-called PACE trial has concluded that its recommendations – cognitive behaviour therapy and graded exercise therapy – provide no benefit to ME/CFS patients. |
• |
After Being Diagnosed With ME Viki Now Offers An Alternative Therapy To Other Sufferers
A profile of UK ME/CFS and Fibromyalgia sufferer Viki Clarke. |
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2016 Fibromyalgia Gift Guide
Donna Gregory Burch has some Christmas gift ideas for Fibromyalgia sufferers. |
• |
Far Too Many Stories Like This!
An article by ME/CFS sufferer Simone about her experiences with graded exercise therapy. |
• |
Can Patients With ME/CFS Really Recover After Graded Exercise Or Cognitive Behavioural Therapy?
A research paper that evaluates whether the recovery claims made by the authors of the PACE trial are justified by the evidence. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Office Closed Over Christmas
The Society's office will be closed over the Christmas break, from Thursday 15 December 2016 to Wednesday 1 February 2017. |
• |
Suit Still Pending In Local Case Pitting Roadwork Vs. Health
The 21st Century Cures Act has been passed in the US, giving hope to many ME/CFS advocates. |
• |
Carol Head Named 2017 Health Hero By O, The Oprah Magazine
Solve ME/CFS Intitiative President Carol Head has been honored by O, The Oprah Magazine as a 2017 "Health Hero," one of fourteen "visionaries who are healing bodies, minds, and communities." |
• |
IBD Patients With IBS May Have Higher Risk For Chronic Fatigue
Patients with inflammatory bowel disease who also have irritable bowel syndrome, especially women, may have an increased risk for chronic fatigue, according to a poster presented at AIBD 2016. |
• |
Astragalus And Red Sage Significantly Decreased Fatigue In Chronic Fatigue Syndrome
A pilot study has found that Myelophil, an extract mix of Astragali Radix and Salviae Radix, ameliorates chronic fatigue. |
• |
Tired Of Chronic Fatigue?
A short news item on Chronic Fatigue Syndrome from US TV news station KSAT 12. |
• |
Chronic Conditions Course
The Chronic Conditions Course is a new free, online and internet-delivered education program designed to provide good information and teach practical skills for managing the impact of chronic health conditions on day-to-day activities and emotional wellbeing. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Office Closure Over Christmas
The Society's office will be closed over the Christmas break, from Thursday 15 December 2016 to Wednesday 1 February 2017. |
• |
US 21st Century Cures Act Passes House With Overwhelming Bipartisan Support
The 21st Century Cures Act has been passed in the US, giving hope to many ME/CFS advocates. |
• |
Shelleen Turned Her Faith Into Music During Trying Times
A profile of US musician and ME/CFS sufferer Shelleen Weaver. |
• |
Higher Probability Of Hearing Loss In Fibromyalgia Patients, Study Shows
A group of Norwegian researchers has learned that patients with Fibromyalgia or widespread pain have an increased probability for hearing loss. |
• |
ME/CFS Documentary "Unrest" Will Premiere At Sundance
Jennifer Brea has announced that her ME/CFS documentary Unrest will have its debut screening at the Sundance Film Festival in the US in January 2017. |
• |
"Canary In A Coal Mine" Is Now UNREST
Jennifer Brea explains why she has changed the name of her ME/CFS documentary from Canary In A Coalmine to Unrest. |
• |
Gold Coast Team Getting Closer To Discovering Test For Chronic Fatigue Syndrome
A team of Gold Coast scientists is behind world-first research that will enable doctors to diagnose Chronic Fatigue Syndrome in a matter of days rather than years. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Newcastle University Experts In Hunt For "Smoking Gun" Of Chronic Fatigue Syndrome ME
A profile of New Zealander Malcolm Law, who until recently was an ultra runner. |
November |
• |
Ultra Runner Broke Down From Too Much Running
A profile of New Zealander Malcolm Law, who until recently was an ultra runner. |
• |
Woman Sleeps For Up To 22 HOURS A Day - But Rare Condition Means She STILL Feels Tired
A profile of Heather Reed, a Canadian with ME/CFS and Kleine-Levin Syndrome, a condition also known as Sleeping Beauty Syndrome. |
• |
Petition: Australian Disability Support Pension Difficulties
A petition by the South Australian Labor Party calling on the current Federal Government to relax its current regulations for the Disability Support Pension. |
• |
What It's Like To Have Chronic Fatigue Syndrome, An Illness That Makes You Feel Exhausted All The Time
An article by Alison Millington about her ME/CFS. |
• |
Lyme In Iceland Too?
An article about an ME/CFS sufferer in Iceland who has symptoms remarkably similar to that of Lyme Disease. |
• |
In Melbourne, Progress On Chronic Fatigue
Inside Story's Peter Clarke talks to Bio21 Institute researcher Chris Armstrong about new research that challenges popular views of ME/CFS. |
• |
Chronic Christmas: Surviving The Holidays With A Chronic Illness
Author Lene Adnersen has published a book called Chronic Christmas. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Life-Changing Illness For Port Broughton's Judy Rhodes
A profile of South Australian ME/CFS sufferer and Society member Judy Rhodes. |
• |
UK Author Uses Writing To Escape The Realities Of Chronic Pain Diagnosis
A profile of UK author and Fibromyalgia sufferer Kristy Nicolle. |
• |
Medscape Rocks The IACFS/ME Conference
A report on Miriam Tucker's talk at the 2016 IACFS/ME Conference. |
• |
Scientists Find Link Between DNA And Chronic Widespread Joint Pain, A Fibromyalgia Symptom
Scientists at King's College London have discovered a link between specific alterations in DNA (called epigenetics) and chronic widespread joint pain, one of fibromyalgia’s main symptoms. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
Growing Support For Legal Cannabis In US Spurs Development, Creates Hope For New Chronic Pain Therapies
The legal cannabis industry scored landmark victories in concurrent ballot measures in several US states, raising hope for those who support developing new cannabis-based therapies for unmet medical needs, especially in the management of chronic pain. |
• |
UK Woman's 'Kindness Advent Calendar' Has Been Downloaded 3,500 Times
A profile of Helen Green, a UK ME/CFS sufferer who has created a 'kindness advent calendar'. |
• |
Award-Winning Canadian Artist Uses Creativity As Therapy
An interview with Canadian artist and ME/CFS sufferer Leonora Husveti-Frenette. |
• |
Dr. Anthony Komaroff's Responses To Follow-Up Webinar Questions
An interview with US ME/CFS researcher Dr. Anthony Komaroff. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
NIH Program Director Talks Team Work to Tackle ME/CFS
An interview with Vicky Whittemore, PhD, program director of epilepsy at the US NIH's National Institute of Neurological Disorders and Stroke. |
• |
Research Report: Functioning With Fibromyalgia
A study that aimed to investigate the relationship between various ways of responding to or coping with pain and levels of functioning with Fibromyalgia. |
• |
A Friendly Reminder Of Our Seminar On POTS
You are invited to our seminar this Saturday, 19 November from 1:30 to 3:30pm, at Sophia House, Cabra Dominican College. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
For Chronic Fatigue Syndrome, A 'Shifting Tide' At NIH
ME/CFS isn't typically considered within the purview of oncology, but a chance finding in 2004 led two Norwegian oncologists on a career-consuming mission to shed light on the condition. |
• |
Immune-Modulating Agents Eyed For Chronic Fatigue Syndrome
ME/CFS isn't typically considered within the purview of oncology, but a chance finding in 2004 led two Norwegian oncologists on a career-consuming mission to shed light on the condition. |
• |
Ros Reaps Reward For 50 Years Of Chronic Fatigue Research And Treatment
Dr. Rosamund Vallings, an Auckland GP who has dedicated her career to studying and treating Chronic Fatigue Syndrome, says she is stunned to receive an international award. |
• |
12th IACFSME Conference Report
A report by Dr. Rosamund Vallings of the 12th IACFSME conference, held at Fort Lauderdale in the US on 27-30 October 2016. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Biomarker Research Advances In Chronic Fatigue Syndrome
New research adds to growing evidence that the illness commonly known as Chronic Fatigue Syndrome is biologically based, researchers report here at the IACFSME research and clinical conference. |
• |
NIH Stumbles: Asks ME/CFS Denier to Speak on Chronic Fatigue Syndrome
An article in Health Rising about the decision by the US National Institutes of Health to invite ME/CFS skeptic Dr. Edward Shorter to speak to their ME/CFS Special Interest Group. |
• |
New CBD Patches Combat Nerve Pain And Fibromyalgia
Cannabis Science, Inc., a company in the US, has developed two new pain relief patches that are specifically for patients with Diabetic Neuropathy nerve pain and Fibromyalgia. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
The PACE Trial: Recovery? What Recovery?
A video by MEAnalysis that looks at the PACE Trial. |
• |
Postexertion 'Crash,' Not Fatigue Per Se, Marks Syndrome
New research focused on the phenomenon of postexertional malaise is shedding light on the etiology of the illness that has been known as chronic fatigue syndrome, but is now increasingly termed myalgic encephalomyelitis/chronic fatigue syndrome. |
• |
'We Are Going To Tell Our Stories To Give People A Bit Of Hope'
A Scottish woman who recovered from chronic fatigue has created a support group in her area to help others plagued by long-term health conditions. |
• |
Bateman Horne Center Live Stream
A video of Dr Lucinda Bateman giving an overview of the recent IACFS/ME conference in the US. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
PACE Part II? Esther Crawley And FITNET
An article about the new FITNET trial in the UK. |
• |
Woman Forced To Leave Home Because of Chemical Sensitivity Disorder
A profile of Canadian MCS sufferer Marie LeBlanc. |
• |
CBT Won't Cure My Chronic Fatigue, Any More Than It Would Cancer – It's A Physical Illness
The announcement of a new initiative to offer online Cognitive Behavioural Therapy to teenage suffers of ME, also known as Chronic Fatigue Syndrome, has re-opened debate about whether ME is a mental illness. |
• |
Ironwoman Emma Dick Winning Her 18-Month Battle With Chronic Fatigue Syndrome
A profile of Australian athlete Emma Dick. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
October |
• |
Lyme Disease Doesn't Exist in Australia: Report
A new report insists Lyme disease can't be contracted in Australia, despite thousands of Australians claiming to suffer the illness. |
• |
Marriage Breakdown, CFS And Depression - But Art Has Turned My Life Around
A profile of UK artist Sharon White. |
• |
Common Cough Remedy To Be Tested As Potential Fibromyalgia Treatment
Dextromethorphan, an ingredient commonly found in cough syrup, will be tried as a potential treatment for Fibromyalgia. |
• |
Karina Hansen Home
Karina Hansen, a teenage Danish ME/CFS sufferer, has come home after being detained in a psychiatric facility for 44 months. |
• |
Worse Than The Disease
A profile of ME/CFS sufferer Nita Thatcher. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Linzi Talks About Living With ME
A profile of UK ME/CFS/Fibromyalgia sufferer Linzi Sutton. |
• |
"It Will Take Me About An Hour And A Half For A 10 Minute Walk": Woman With Fibromyalgia Is Shaving Her Hair For Charity
A woman who has suffered with Fibromyalgia since she was a teenager is fundraising for the charity that supported her. |
• |
US Woman Sues Hospital Claiming It Discriminated Against Her Because Of Her Fibromyalgia
A physician diagnosed with fibromyalgia has sued Memorial Hospital in Colorado Springs claiming a doctor discriminated against her because of her disability. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
Me Vs. Fibromyalgia: Founder Of "Spoon Theory" Needs Your Help
A call to help Christine Miserandino, founder of "The Spoon Theory". |
• |
HPA Hypofunction In ME/CFS As A Consequence Of Activated Immune-Inflammatory And Oxidative And Nitrosative Pathways
Research published in the medical journal Molecular Neurobiology. |
• |
MRI Could Help Diagnose Fibromyalgia: Study
A study published in the journal Pain has, for the first time, identified a different brain response to pain and non-pain stimuli in people suffering from Fibromyalgia. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Photos From The Society Office Opening
Here are a few photos from the official opening of the Society's new offices on Saturday 15 October 2016. |
• |
My Final Year At Oxford, When I Felt Punished For Having ME
A profile of ME/CFS sufferer Nathalie Wright. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
Honeymooners Sue Over Bed Bug-Ridden Cruise Cabin
A couple are suing TUI UK Ltd after they claim they experienced bed bugs, were left vomiting, and one of the couple developed ME/CFS after a honeymoon cruise. |
• |
Podcast: A Flawed Study on Chronic Fatigue Syndrome; Patients Fight Back
A podcast from Dr. Ronald Hoffman about the controversy surrounding the PACE trial. |
• |
Personality Traits May Impact Severity Of Fibromyalgia Symptoms
Research entitled "Distinctive personality profiles of fibromyalgia and chronic fatigue syndrome patients", published in PeerJ. |
• |
Society Office Opening
The Society's new offices receive their official opening today. |
• |
UK CMRC Conference 2016
A set of videos from the CMRC Conference 2016 in the UK. |
• |
Society Office Opening Update
The Society invites you to the grand opening of its new office on Saturday 15 October 2016. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Society Office Opening Update
The Society invites you to the grand opening of its new office on Saturday 15 October 2016. |
• |
Rocking For M.E. Raises Hundreds
The UK's annual Rocking for M.E. concert raised money for the ME and Fibro North West Cumbria Support Group. |
• |
NCNED Asking For Study Participants In Western Australia
The National Centre for Neuroimmunology and Emerging Diseases at Griffith University, Queensland, is recruiting study participants for blood samples. |
• |
What's Your M.E. Marathon?
Action for M.E. has a new "What’s your M.E. marathon?" campaign, which celebrates people with M.E. who take on personal fundraising challenges that, to them, feel like a marathon – even if no running is involved. |
• |
Society AGM/Seminar Report
A report of the Society's 27 August Annual General Meeting/Seminar, by Society member Penelope Del Fante. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
Millions Of Americans Suffer From Chronic Fatigue Syndrome
Medical professionals, patients, residents and advocates gathered in front of Northampton City Hall in the US to raise awareness for ME/CFS. |
• |
On The Hunt For World Record After Tom's Staggering Feat
UK teenager Tom Hunt is waiting to hear if he will secure a place in the Guinness Book of World Records after running from Land's End to John O'Groats for charity. |
• |
Where Is Chronic Illness Represented In Popular Culture?
The UK TV presenters have both struggled with illness and realised they needed to put their own wellbeing above their careers. |
• |
Martine McCutcheon And Ruth Langsford Open Up About Their Battle With Chronic Fatigue Syndrome
The UK TV presenters have both struggled with illness and realised they needed to put their own wellbeing above their careers. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Invitation To Society Office Opening
The Society invites you to the grand opening of its new office on Saturday 15 October 2016. |
• |
Review Finds Nondrug, Complementary Health Approaches Effective For Pain Relief In Fibromyalgia, Other Conditions
Results from a review of US-based clinical trials indicate that some popular complementary health techniques – such as yoga, tai chi, and acupuncture – are effective in helping to manage common pain conditions, including Fibromyalgia. |
• |
Life-Draining Disease Needs Research
Bonnie Vastag talks about her ME/CFS-suffering son, Brian. |
• |
Inspirational Student Turns Negatives Into Positives
A profile of US Fibromyalgia sufferer Kiley Reitano. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
UK Benefit Payments: Re-Tests Axed For Chronically Ill Claimants
Tens of thousands of people in the UK claiming the main benefit for long-term sickness will no longer face repeated medical assessments to keep their payments. |
• |
Book Review: Lighting Up A Hidden World
A review of a book called Lighting Up A Hidden World: CFS And ME, by Valerie Free. |
• |
Chronic Fatigue Syndrome: GPs Discuss Worrying Condition Which Causes SEVERE Exhaustion
A worried mother in the UK has sought a second opinion from GPs after her daughter, who suffers from Chronic Fatigue Syndrome, started fainting. |
• |
Independent Investigation Reveals NICE Approved Treatment Only A Fraction As Effective As Experts Claim It Is
The discovery that exercise plus psychotherapy are effectively useless for ME/CFS was the result of a remarkable and very unexpected legal victory last month. |
September |
• |
MillionsMissing: A Hidden Epidemic And A Day Of Action
An article by Rivka Solomon about the worldwide movement called #MillionsMissing. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
100 Pairs Of Shoes Used To Make Poignant Protest On ME Research In Bristol City Centre
A hundred pairs of shoes were laid out on Bristol's College Green in a poignant silent protest against the lack of funding for research into the causes of ME/CFS. |
• |
Invisible – Fibromyalgia Film Closer To The Screen
An article about a new documentary, due to be released in 2017, which focuses on people with Fibromyalgia. |
• |
Phenome-Wide Association Study Of Rheumatoid Arthritis Subgroups Identifies Association Between Seronegative Disease And Fibromyalgia
A study published in Arthritis & Rheumatology. |
• |
ME Affects Four Times As Many Women As Men. Is That Why We're Still Disbelieved?
More than a hundred pairs of shoes will be lined up outside the Radcliffe Camera in Oxford in the UK to represent sufferers unable to attend a demonstration to raise awareness for ME/CFS. |
• |
Rows Of Empty Shoes Will Represent Chronic Fatigue Syndrome Sufferers At Millions Missing
More than a hundred pairs of shoes will be lined up outside the Radcliffe Camera in Oxford in the UK to represent sufferers unable to attend a demonstration to raise awareness for ME/CFS. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
Insurance Firm Stops Making Payments To Retired School Teacher Suffering From Chronic Fatigue Syndrome, Court Hears
An insurance company stopped making payments to a retired secondary school teacher in Ireland, who suffers from Chronic Fatigue Syndrome, because she refused to undergo a test it had requested. |
• |
Is Your Gut Bacteria Wearing You Out?
According to a press release issued by Cornell University, researchers have identified biological markers for ME/CFS in gut bacteria and inflammatory microbial agents in the blood. |
• |
Son Taken On Fitness Challenge For Mum's Fibromyalgia Battle
A UK man is taking part in a series of fitness challenges in support of his mum who suffers from Fibromyalgia. |
• |
Chronic Fatigue Sufferers Getting The Wrong Treatment – Thanks To A Falsified Study
Sufferers of ME/CFS are not getting the proper treatment, due to incorrect recommendations that came out of the PACE trial. |
• |
Trial By Error, Continued: The Real Data
An article by David Tuller, DrPH, about the PACE trial. |
• |
Fibromyalgia Finally Recognised As A Long-Term Condition In Northern Ireland
Fibromyalgia has finally been recognised as a long-term condition in Northern Ireland. |
• |
"Froggy Frog And The Pain Gang" Book Launch
Foggy Frog and the Pain Gang, a book for children by author Megan Schartner, will be launched at the Burnside Library on 24 September 2016. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Bad Science Misled Millions With Chronic Fatigue Syndrome. Here's How We Fought Back
An article about the saga of the PACE trial. |
• |
Patients' Reanalysis Sinks PACE's "Recovery" Claims
Patients and statisticians have used the recently released data from the PACE trial to show that cognitive behavioural therapy and graded exercise therapy did not help patients in the study to recover. |
• |
US ME/CFS Advocates Obtain Congressional Support For Strengthened Research At NIH
After years of neglect by the US National Institutes of Health, patients suffering from ME/CFS created a win as members of Congress came together urging the NIH to strengthen ME/CFS research. |
• |
People With Chronic Fatigue May Be Fighting 'Hibernation'
New research suggests that the bodies of those with ME/CFS have gone into a hibernation of sorts. |
• |
Genetic Testing May Provide Faster Path To The Right Fibromyalgia Medication
An article by Genevra Lipton, MD, about pharmacogenetics, a form of testing for a person’s gene-drug interactions. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
My Personal Story Of Chronic Fatigue Syndrome
A profile of UK ME/CFS sufferer Laura Pugh. |
• |
GoFundMe Campaign For CFS/ME Awareness Film
UK ME/CFS sufferer Wayne Thompson is asking for help in funding a film about life with the disease. |
• |
Diagnosing Fibromyalgia May Be Possible Using Noninvasive Eye Examination
In a study titled "Fibromyalgia Is Correlated with Retinal Nerve Fiber Layer Thinning," published in the journal PloS One, researchers revealed that a noninvasive eye examination can aid in diagnosing Fibromyalgia. |
• |
Comment: How Anti-Social Media Sentiment Hurts The Disabled
Naomi Chainey shares her experience with Chronic Fatigue Syndrome and how social media is connecting those living with disabilities like never before. |
• |
I Would Wake Up More Tired Than When I Went To Bed
A profile of UK ME/CFS sufferer Les Gubbins. |
• |
UK Teenager With ME Who Lost Her Memory: My School No Longer Wants Me
A UK teenager who lost her memory due to ME is fuming after a school stopped her joining its sixth form. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Chronic Fatigue Sufferers Getting The Wrong Treatment – Thanks To A Falsified Study
The standard approach to treating ME/CFS these days is Cognitive Behavioural Therapy (CBT) – known as the 'talking therapy', which implies the problem is mainly in the sufferer’s head – but this is based on a landmark study whose results were falsified, it has been revealed this week. |
• |
Stigmatized Chronic Fatigue Syndrome Sufferers Seek Recognition
According to a Canadian review, ME/CFS is all in the sufferers' minds. |
• |
Chronic Fatigue Syndrome May Be A Human Version Of 'Hibernation'
A new study raises the extraordinary possibility that humans may be able to put themselves into a kind of hibernation state as well – but in a way that hurts us rather than helps us. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
UK Woman Set To Cycle Across Cuba In Aid Of Charity
A profile of UK ME/CFS sufferer Catherine Hancox, who will be cycling across Cuba for charity. |
• |
Fibromyalgia: No One Believed Me When I Was Living In Constant Pain
For those who would like a more sensory friendly shopping experience, Foodland Frewville has a special hour on Tuesdays 6:30pm-7:30pm. |
• |
Foodland Frewville Introduces "Quiet Hour Shopping"
For those who would like a more sensory friendly shopping experience, Foodland Frewville has a special hour on Tuesdays 6:30pm-7:30pm. |
• |
Australian Trial Of Mitochondrial Treatments For Chronic Fatigue Syndrome
Melbourne scientists are testing a combination of mitochondrial supplements on 8 or 9 patients with Chronic Fatigue Syndrome (Fukuda criteria). |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
New Research: Distinct Biological Differences In M.E.
Findings of research facilitated by the Open Medicine Foundation could be set to rock the world of medicine. |
• |
Hanson's Metabolomics ME/CFS Study Validates Naviaux's Core Finding
A profile of US ME/CFS researcher Professor Maureen Hanson and her latest findings. |
• |
'My Life Got Taken Away From Me' - What It's Really Like To Suffer From Chronic Fatigue Syndrome
A profile of UK ME/CFS sufferer Hannah Radenkova. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
President's Report
Society President Emma Wing's report, presented at the Annual General Meeting held on Saturday 27 August 2016. |
• |
Society Response To Advertiser Article
The Society wrote a Letter to the Editor in response to an article entitled "'Yuppie flu' is real, say researchers" which was published in South Australian newspaper The Advertiser. |
• |
Can Fibromyalgia Be Hereditary?
An article by Robin Dix about the possibility of Fibromyalgia occurring more frequently in families than in the general population. |
• |
How Chronic Fatigue Syndrome Affects Your Metabolism
A new study links ME/CFS to depressed levels of metabolites, the waste products of ordinary cell function. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
New Genetics Testing Could Improve Fibromyalgia Diagnosis, Treatment
Proove Biosciences, a California-based firm specializing in pain medicine, has developed a new tool to help physicians better diagnose and treat fibromyalgia. |
August |
• |
Signature Of Chronic Fatigue Syndrome In Blood Suggests Disease Is The Body Going Into Hibernation
A chemical signature of Chronic Fatigue Syndrome suggests the disease may be caused by the body going into a semi-hibernation state, a study has said. |
• |
Do You Suffer From Chronic Fatigue Syndrome? There's Some Good News For You
The international community of people with ME/CFS is celebrating a long awaited victory this week. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
Canada: Officials Turn Down Grant Application Because CFS "Isn't Real"
The Canadian Institutes of Health Research has rejected a grant application on the basis that it considers ME/CFS not a real disease. |
• |
Tribunal Was Right To Order Release Of Chronic Fatigue Trial Data
An article about the release of data from the PACE Trial after months of resistance from the Queen Mary University of London. |
• |
Stressful Events In The Onset Of Chronic Fatigue Syndrome
A research paper investigating the causes of ME/CFS. |
• |
Society AGM Reminder
A reminder that the Society's Annual General Meeting for this year will be held today (Saturday 27 August 2016). |
• |
The Society's New Office
The new office for ME/CFS Australia (SA) Inc is now open on Wednesdays between 11 am and 3 pm in Suite 506, 19 North Terrace, Hackney. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Society AGM Reminder
A reminder that the Society's Annual General Meeting for this year will be held this Saturday (27 August 2016). |
• |
UK High School A-Level Student Over The Moon With An A* And Two As Despite Suffering From Chronic Fatigue
A profile of UK student and ME/CFS sufferer Jessica Bragg. |
• |
Researchers Who Claimed Chronic Fatigue Is "All In The Mind" Forced To Disclose Data
Researchers of a controversial study, which had effectively implied that Chronic Fatigue Syndrome is 'all in the mind', have been forced by a tribunal to release their data so that independent researchers can assess their findings. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
International ME/CFS Conference Airs Exciting Research Prospects
New Zealand ME/CFS specialist Dr Rosamund Vallings recently attended the 2016 International ME/CFS Conference in London. |
• |
When Sick People Don't Look Sick Enough They Must Be Faking It
Comedians Sara and Erin Foster decided to publicly weigh in on the health legitimacy and personal choices of television personality and Lyme Disease sufferer Yolanda Hadid. |
• |
Party Time To Honour Blenheim's Boomtown Rapper
A party is being held in honour of a New Zealand YouTube star who is battling ME/CFS. |
• |
Baked Bean Bath Brings In Charity Funds
A UK woman had more than 11.5kg of baked beans poured over her at The Farmhouse pub in Kesgrave on Sunday 7 August 2016 in aid of Fibromyalgia Action UK. |
• |
What Not To Say To Someone Who's In Chronic Pain
A video from ABC's Radio National. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Radio Interview With Author Laura Hillenbrand
An interview with US author and ME/CFS sufferer Laura Hillenbrand. |
• |
Tribunal Orders Release Of PACE Data
A tribunal panel has ordered Queen Mary University of London to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient who requested it. |
• |
Medicinal Cannabis Scheme Will Make 'Life Worth Living' For Canberra Resident
A profile of Australian ME/CFS sufferer Sue Curry. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
Recovering From Chronic Fatigue Syndrome And Fibromyalgia – The Lerner Way
A profile of ME/CFS specialist Dr Martin Lerner. |
• |
Experience What It's Like To Suffer From Chronic Fatigue Syndrome In This Free Video Game 'Robin'
A new video game offers an interactive experience that may help players better understand the debilitating nature of ME/CFS. |
• |
Rethinking Chronic Fatigue Syndrome
A profile of Australian ME/CFS sufferer Anna Kennedy. |
• |
Online Survey: Fibromyalgia – Coping And Functioning
An online survey from The University of Adelaide's Heather Trainor. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Fibromyalgia Patients Seen In Brain Scans To Have 'Different Response' To Hypnosis
New research published in Psychosomatic Medicine. |
• |
"But You Don't Look Sick": What Does "Sick" Look Like in Fibromyalgia?
An article by Robin Dix for Fibromyalgia News Today. |
• |
New Office Announcement
The Society has a new office. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
Stanford University Leads Fight Against Chronic Fatigue
A profile of US ME/CFS sufferer Kelsey Vischer. |
• |
UK Man Wades Through Water To Support ME Sufferers Like Wife Sarah
Euan Rintoul waded through water for seven hours to raise awareness for ME/CFS sufferers. |
• |
Online Survey: Fibromyalgia – Coping And Functioning
An online survey from The University of Adelaide's Heather Trainor. |
• |
Lyrica Trial For Adolescent Fibromyalgia Fails, But Offers Other Positive Findings
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
New Understanding Of Chronic Fatigue Can Pave Way To Better Treatment
The latest term for ME/CFS – Systemic Exertion Intolerance Disease (SEID) – strives to be more accurate and inclusive. |
• |
Behind The Wall: Chronic Fatigue Syndrome Sparks A New Street Art Venture
A profile of Melbourne artist and ME/CFS sufferer Kirrily Anderson. |
• |
UK ME/CFS Sufferer Has Benefits Cut
UK ME/CFS sufferer Karen is livid that her benefits have been cut after she was deemed fit to work. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
Doubling Up To Fight Fibromyalgia Pain
Combining two drugs used to treat Fibromyalgia safely improves patient outcomes, according to research at Canada's Queen's University. |
July |
• |
Neuromuscular Strain Increases Symptom Intensity In Chronic Fatigue Syndrome
A study published in PLOS ONE. |
• |
Online Survey: Fibromyalgia – Coping And Functioning
An online survey from The University of Adelaide's Heather Trainor. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Model Annalise Braakensiek Reveals How She Overcame Her Chronic Fatigue Through Alternative 'Biophysical Holistic Therapy'
A profile of Australian model Annalise Braakensiek. |
• |
#ME Action Policy Change: ME, Not ME/CFS
The staff of #MEAction have decided to adopt [the names] "ME" or "myalgic encephalomyelitis" for future communications about the disease. |
• |
ME/Chronic Fatigue Syndrome Clinic And Research Fund
A new ME/CFS research fund from South Australia's Bridges and Pathways Institute Inc. |
• |
Volunteers Wanted For UniSA Research
Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. |
• |
Living With Chronic Fatigue Syndrome: Woman Struggles With The 'Invisible Disease'
A profile of US ME/CFS sufferer Mary Gelpi. |
• |
The Fatigue And Pain Hormone? Leptin Shows Up Again – In Fibromyalgia
An article about the hormone leptin being implicated in the symptoms of Fibromyalgia. |
• |
Coming Soon… Foggy Frog And The Pain Gang Picture Book
South Australian author Megan Schartner has produced Foggy Frog and the Pain Gang, a children's picture book that explains ME/CFS. |
• |
Online Survey: Fibromyalgia – Coping And Functioning
An online survey from The University of Adelaide's Heather Trainor. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Helen's Woolen Buddies Helping Out
Two lambs have given Lyndoch woman Helen Hales a breath of fresh air in her life, and the energy to get up in the morning after suffering from Chronic Fatigue Syndrome for more than half of her life. |
• |
UK Group Dedicated To Helping People With 'Invisible Illnesses' Celebrates First Anniversary
A group with the aim of bringing people with ‘invisible illnesses’ together celebrated its first year in the UK town of Cam. |
• |
Putting Best Foot Forward For Charity
Pooraka Primary School students headed to class on Friday 8 July in pyjamas and crazy socks to "sock it to" ME/CFS. |
• |
Concordia College Students Collecting For ME/CFS!
Students from Concordia College recently raised funds for ME/CFS Australia (SA) Inc. |
• |
Fibromyalgia Associated With Coronary Heart Disease And Stroke Risk: Study
Fibromyalgia is associated with the risk of coronary heart disease and stroke, according to research. |
• |
Six Year Study Of Abnormal Brain Changes In Chronic Fatigue Syndrome Patients
An Australian six year study evaluating progressive brain changes associated with ME/CFS shows patients’ brains deteriorate at an abnormal rate. |
• |
New Facebook Page: "Tom Kindlon's ME CFS & Related Page: News, Research And More"
Irish ME/CFS sufferer Tom Kindlon has set up a new Facebook page. |
• |
£300,000 Award For UK Charity Supporting People With ME/CFS
Linda Jones is celebrating after the Salus Fatigue Foundation, the charity she started from her living room, was awarded over £300,000 through the Big Lottery Fund. |
• |
UK ME Sufferer Jessica Taylor Determined To Walk For Wedding
A profile of UK ME/CFS sufferer Jessica Taylor. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Pooraka Primary Students #SockItToME in Crazy Sock/Pyjama Day
The Society thanks the students and staff at Pooraka Primary School for their recent Crazy Sock/Pyjama Day to raise awareness of ME/CFS. |
• |
Indicator Of Chronic Fatigue Syndrome Found In Gut Bacteria
For the first time, Cornell University researchers report they have identified biological markers of the disease in gut bacteria and inflammatory microbial agents in the blood of patients with Chronic Fatigue Syndrome. |
• |
Giving Patients Some Choice May Boost Drugs' Effectiveness
Allowing patients to choose among different medications that do the same thing may increase the effectiveness of the selected drug and reduce possible side effects, according to a study in Annals of Behavioral Medicine. |
• |
Quiet Hour Shopping At Frewville Foodland
Frewville Foodland on 177 Glen Osmond Rd, Frewville, will be holding a trial of Quiet Hours on Tuesdays throughout July and August. |
• |
Gut Bacteria Are Different In People With Chronic Fatigue Syndrome
A new study has identified a bacterial blueprint for Chronic Fatigue Syndrome, offering further evidence that it is a physical disease with biological causes and not a psychological condition. |
• |
Chronic Fatigue Physical Not Psychological
A new study suggests Chronic Fatigue Syndrome is a physical illness instead of a psychological condition. |
• |
ME/CFS Australia Website Back Online
ME/CFS Australia's website is now back online, and with a new design. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Jackson Laboratory Researchers Looking Into Chronic Fatigue Syndrome
Chronic Fatigue Syndrome, which afflicts as many as 1 million Americans, is going under the microscope at the Jackson Laboratory as researchers look for molecular clues to the little-understood illness. |
• |
Circus Oz Strongwoman Spenser Inwood's Wrestle With Chronic Fatigue Syndrome
An article from ABC News. |
• |
What Causes Chronic Fatigue Syndrome? This Study Sheds Light On A New Direction Of Research
New research from Cornell University just bolstered the argument that the causes of CFS are physical. |
• |
New Research Unlocking Mysteries Behind Chronic Fatigue Syndrome
New research is providing legitimacy to ME/CFS, while shedding light on what’s actually happening inside the bodies of people with the condition. |
• |
ANZCTR Trials
The Australian New Zealand Clinical Trials Registry is currently recruiting for two trials. |
• |
Will A Gluten-Free Diet "Fix" Fibromyalgia?
When it comes to looking at gluten as the ONLY problem rather than part of the problem, Sue Ingebretson offers five points to consider. |
• |
New Study Shows Chronic Fatigue Isn't Just In Your Head. It May Have To Do With Your Gut
Scientists have finally shed some light on the condition, finding that your gut bacteria and inflammatory agents in the blood may have something to do with it. |
• |
New Study Shows Chronic Fatigue Syndrome May Have To Do With Gut Microbes
In a study published this month in the journal Microbiome, Cornell University researchers looked at stool and blood samples of 48 people diagnosed with Chronic Fatigue Syndrome (or more formally, Myalgic Encephalomyelitis) and at 39 healthy volunteers. |
• |
Fibromyalgia, Chronic Pain Study Records Disease 'Ebb and Flow' Over 2 Years
A two-year study of Fibromyalgia and chronic pain by an international team of investigators concluded that fibromyalgia patients experience symptom ebbs and flows that affect diagnosis and treatment. |
• |
Despite Chronic Illness Marian's Life Continues To Expand
A profile of US ME/CFS sufferer Marian Smartt. |
• |
Chronic Fatigue Is Not All In The Mind After All; It's In The Gut
Researchers from Cornell University have identified biological markers of the disease in gut bacteria and inflammatory microbial agents in the blood of patients with Chronic Fatigue Syndrome, a condition where normal levels of physical exertion often lead to debilitating fatigue that can't be alleviated by rest. |
• |
The Crucial Role CoQ10 Plays In Fibromyalgia And ME/CFS
Multiple studies have suggested that mitochondrial dysfunction may play a significant role in both Fibromyalgia and ME/CFS, which would explain much of the energy deficit experienced by patients. |
• |
Researchers Just Linked Chronic Fatigue To Changes In Gut Bacteria
Researchers have identified biological markers in both gut bacteria and blood that can be used to diagnose Chronic Fatigue Syndrome - also known as myalgic encephalomyelitis, or ME/CFS - in more than 80 percent of patients tested. |
• |
Researchers Find Possible Chronic Fatigue Syndrome Markers in Gut Bacteria
US researchers have reported for the first time the identification of biological markers of Chronic Fatigue Syndrome in gut bacteria and inflammatory microbial agents in the blood. |
• |
Obstacles To Exercise With ME/CFS: Normal Rules Do Not Apply
Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) can respond very negatively to even mild exercise. |
• |
Chronic Fatigue Syndrome, It’s All In Your Gut
Researchers at Cornell University have discovered the first biological markers for chronic fatigue in gut bacteria and inflammatory microbial agents in the blood. |
• |
Chronic Fatigue Syndrome Is Not In Your Head, It's In Your Gut
Researchers have identified biomarkers for Chronic Fatigue Syndrome in gut bacteria and in inflammatory microbial agents in the blood. |
• |
New Book: Dear Stranger
A new book about ME/CFS from author Anastasia Palmer. |
• |
Online Survey
An online survey. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
June |
• |
Using Public Money To Keep Publicly Funded Data From The Public
Four studies suggest that people with ME/CFS have smaller hearts. |
• |
Chronic Fatigue Syndrome: The Small Heart Disease
Four studies suggest that people with ME/CFS have smaller hearts. |
• |
Forgotten Plague now available on iTunes
The ME/CFS documentary Forgotten Plague is now available on iTunes. |
• |
Diseasemaps
Diseasemaps is a website featuring world maps of chronic and rare diseases and other syndromes and conditions. |
• |
In Fibromyalgia Patients, Going Gluten-Free May Be A Potential Dietary Intervention: Study
Research has shown that for Fibromyalgia patients, going gluten-free may be a potential dietary intervention. |
• |
Getting To The Heart Of Chronic Fatigue Syndrome
By better understanding daily activity levels and heart rate patterns of those who suffer from ME/CFS, scientists hope to discover more about the disease. |
• |
Online Survey: Fibromyalgia – Coping And Functioning
An online survey from The University of Adelaide's Heather Trainor. |
• |
Disability Support Pension: Successful Claims 'Plummeting' After Government Rule Change
It has never been tougher to make a successful claim for the Disability Support Pension, new Government figures suggest. |
• |
Society Seminar Reminder
A reminder that the society's next seminar will be held tomorrow (Saturday, 25 June 2016). |
• |
National Pharmacies Information About ME/CFS
A fact sheet about ME/CFS from National Pharmacies' Vital Health. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Morisaki Battles Chronic Fatigue To Play 400th Game
A profile of Japanese footballer Kazuyuki Morisaki. |
• |
Half The UK Is Living With Chronic Pain, Study Finds
According to a new study, nearly half of the UK population, or 28 million adults, is living and coping with chronic pain. |
• |
Killer Cell Immunoglobulin-like Receptor Genotype And Haplotype Investigation Of Natural Killer Cells From An Australian Population Of ME/CFS Patients
Australian research published in Gene Regulation and Systems Biology. |
• |
Researchers Call For More In-Depth Mitochondrial Testing In ME/CFS
An article by Cort Johnson. |
• |
Fibromyalgia, Chronic Fatigue Syndrome Can Be Improved With Vitamin B12 And Folic Acid: Study
New research suggests that Fibromyalgia and ME/CFS can be improved through therapy based on vitamin B12 and folic acid. |
• |
Society Seminar Reminder
A reminder that the society's next seminar will be held this Saturday, 25 June 2016. |
• |
Jodi Bassett Online Guest Book
The West Australian newspaper has a Guest Book for people to leave their condolences for the late Jodi Bassett. |
• |
International ME Conference 2016 Report
A report by Dr Rosamund Vallings of Invest In ME's International ME Conference 2016 held on 3 June 2016. |
• |
Gluten-Free Diet Impact On Comorbid Celiac Disease, Fibromyalgia, And IBS Patients
Recent studies show that a gluten–free diet can impact fibromyalgia, IBS, and celiac disease occurring simultaneously in people. |
• |
Online Survey: Fibromyalgia – Coping And Functioning
An online survey from The University of Adelaide's Heather Trainor. |
• |
Woman With Invisible Illnesses's Disability Claim Was Denied Because Of Photos She Posted Online
A profile of US comedian and ME/CFS/Fibromyalgia sufferer Kayla Barry. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
No, It Isn't All In Your Head
An article by law professor Steve Lubet about the physical nature of ME/CFS. |
• |
Symptom Fluctuations In Fibromyalgia Patients May Affect Diagnosis And Treatment, Study Finds
A study has found that patients with Fibromyalgia may experience fluctuations in symptoms over time, which may affect diagnosis and treatment. |
• |
Circulatory Impairment In Myalgic Encephalomyelitis: A Preliminary Thesis
The US National Institutes of Health announced an effort—prompted by an Institute of Medicine report—to reinvigorate research on ME/CFS. |
• |
NIH Tackles Neglected Mystery Illness
The US National Institutes of Health announced an effort—prompted by an Institute of Medicine report—to reinvigorate research on ME/CFS. |
• |
Jodi Bassett
ME/CFS sufferer Jodi Bassett, founder of A Hummingbird's Guide, has died. |
• |
In Fibromyalgia Patients, Influenza Vaccination Is Safe And Effective
A study has found that influenza vaccination is safe and effective for Fibromyalgia patients. |
• |
Fibromyalgia Teens Have Worse Symptoms Than Adults, Pain And Fatigue Continue In Adulthood
Research shows that Fibromyalgia in teens leads to pain and fatigue in adulthood, and teens experience worse symptoms than adults. |
• |
Immune Cell Defect Linked To Chronic Fatigue Syndrome
Scientists in Australia believe they've figured out a potential cause of Chronic Fatigue Syndrome. |
• |
Fibromyalgia Symptoms: Does Menopause Make Them Worse?
Research has shown that Fibromyalgia symptoms worsen post-menopause. |
• |
A New Form Of Magnesium: Can It Help Brain Fog And Fibromyalgia Pain?
A new form of magnesium, known as magnesium-L-threonate, may be helpful for people with Fibromyalgia. |
• |
Online Survey: Fibromyalgia – Coping And Functioning
An online survey from The University of Adelaide's Heather Trainor. |
• |
Fibromyalgia Pain Eased With Lidocaine Painkiller Injection And Lyrica Drug
Fibromyalgia pain can be eased with lidocaine painkiller injection and Lyrica drug, according to research. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
People With ME/CFS Have Long Been Told It's All In Their Head – These Scientists Disagree
A conference bringing together the brightest minds in ME/CFS research, presented results that promise to bring a new dawn in understanding this debilitating disease. |
• |
Have Doctors Gone Too Far On Exercise For Fibromyalgia?
An article by Cort Johnson. |
• |
A Role For The Intestinal Microbiota And Virome In ME/CFS?
Research published in the Journal of Clinical Medicine. |
• |
Why Was York Left In The Dark Over Illness Awareness Day? ME Sufferer's Dismay
An article about UK ME/CFS sufferer Bill Clayton who was disappointed that the city of York did not participate in ME Awareness Day. |
• |
NIAID Funding To Jackson Laboratory Researcher To Investigate Chronic Fatigue Syndrome
Professor Derya Unutmaz, MD, of The Jackson Laboratory for Genomic Medicine in the US, will receive five years of funding to find better ways to diagnose and treat ME/CFS. |
• |
New Study: Investigating The Effectiveness And Cost Effectiveness Of Using FITNET To Treat Paediatric CFS/ME In The UK
Details of a new study from the UK. |
• |
When Even The Smell Of Perfume Can Make You Ill
A profile of Maltese ME/CFS and Multiple Chemical Sensitivity sufferer Johanna Galea. |
• |
PLOS ONE Republishes Removed Chronic Fatigue Syndrome Data
Medical journal PLOS ONE has republished data that were abruptly removed two weeks ago after the authors expressed concerns they did not have permission to release them. |
• |
Rubble And Rebuild: Our People - Kerry Donnelly
A profile of New Zealand ME/CFS sufferer Kerry Donnelly. |
• |
Fibromyalgia And Rheumatoid Arthritis Cause A Negative Body Image Perception In Women: Research
Fibromyalgia and Rheumatoid Arthritis cause a negative body image perception in women, according to research from the National Institutes of Health, the University of North Carolina at Chapel Hill, and National Heart, Lung and Blood Institute. |
• |
Fibromyalgia Patient Survey Shows Diversity In Approach
An article by Donna Gregory Burch. |
• |
Online Survey: Fibromyalgia – Coping And Functioning
An online survey from The University of Adelaide's Heather Trainor. |
• |
ME/CFS, IBS, And Anorexia Nervosa May Have A Common Origin: Study
The findings from the study uncovered that Irritable Bowel syndrome, Chronic Fatigue Syndrome, and Anorexia Nervosa may be caused by antibodies to the body's nerve cells mistaken for an infection. |
• |
Fibromyalgia Onset Has High Impact On Work Ability In Australians
Research published in PubMed. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Radio Interview with Dr Sinclair Bode
Dr Sinclair Bode, the South Australian GP who spoke at the society's 2013 AGM, was interviewed on 891 ABC Adelaide on Tuesday 31 May. |
• |
Lasers Work For Fibromyalgia, But Why So Pricey?
An article by Ryan Baker. |
• |
Chronic Fatigue Patients Take To The Streets
The Chronic Fatigue Syndrome community demanded stronger investment in scientific research, and greater accountability from public agencies to address their illness, at the recent "Millions Missing: A Global Day of Protest for ME/CFS." |
• |
ME Sufferer Coming To The End Of Her Step-By-Step Charity Challenge
A profile of UK ME/CFS sufferer Alison Woodland. |
• |
Tisha Bratt Tells Of 'Exhausting' Struggle With Chronic Fatigue Syndrome
A profile of UK ME/CFS sufferer Tisha Bratt. |
• |
Fibromyalgia Treatment Often Depends On Physician's Specialty
Nikki Albert discusses allodynia, a type of pain associated with Fibromyalgia. |
• |
Raising Awareness One Step At A Time
Members of Canada's Fibromyalgia Well Spring Foundation are raising awareness for invisible illnesses one step at a time across British Columbia. |
May |
• |
Allodynia And Fibromyalgia
Nikki Albert discusses allodynia, a type of pain associated with Fibromyalgia. |
• |
Why Are Fibromyalgia Researchers Wasting Time And Money On The Obvious?
An article by Donna Gregory Burch about research into Fibromyalgia. |
• |
Song For #MillionsMissing: "One Voice" By Jularah
A song written for #MillionsMissing. |
• |
Dr Ron Davis Interview In San Francisco For #MillionsMissing
An interview with ME/CFS researcher Dr Ron Davis. |
• |
UK Christian Set For Long-Term Tanzanian Mission
An article by Joy McCann about the ME/CFS she suffered for 13 years, and her plans for missionary work in Tanzania. |
• |
South African Woman Home-Bound By Invisible Disease
A profile of South African ME/CFS sufferer Leigh-Ann Horn. |
• |
Ron Davis On Possibly Explaining (Almost) Everything In ME/CFS: The #MissingMillions Talk
An article by Health Rising's Cort Johnson. |
• |
Online Survey: Fibromyalgia – Coping And Functioning
An online survey from The University of Adelaide's Heather Trainor. |
• |
#MillionsMissing: Elderly UK ME/CFS Sufferer Raises Awareness Of Devastating Effects Of Illness Through Virtual Protest
Martin Arber, a 76-year-old UK man who has suffered from ME/CFS for 30 years, is calling on people to take part in a worldwide demonstration to improve awareness of the disease. |
• |
#MillionsMissing: Sea Of Empty Shoes Left Outside UK's Department Of Health In Global ME Protest
A sea of empty shoes filled the pavement in the Whitehall today as part of a silent demonstration by sufferers of ME/CFS. |
• |
Allergies Keep Auckland Woman Living In Isolation
A profile of New Zealand MCS sufferer Sabrina Paige. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Why We Shouldn't Call It 'Chronic Fatigue Syndrome'
An article by Rivka Solomon. |
• |
Be Aware And Beware: Chronic Fatigue Syndrome Is An Equal Opportunity Disease
An article by Maureen Hanson. |
• |
PLOS Editors Discussing Authors' Decision To Remove Chronic Fatigue Syndrome Data
An update from Retraction Watch. |
• |
17 Texts People With Chronic Illnesses Would Love To Get After Canceling Plans
An article by Melissa McGlensey. |
• |
Supporting A Loved One Through Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
An article by society member Melissa Searle. |
• |
Highlighting ME/CFS On The Global Health Agenda
Action for M.E. Chief Executive Sonya Chowdhury is in Geneva attending the 69th World Health Assembly at the United Nations. |
• |
Dairy Contributes Significantly To Symptoms In Chronic Fatigue Syndrome Adolescents
Cow's milk protein intolerance is a common problem in young people with ME/CFS. |
• |
Disabled Former Teacher Campaigns For Disease Research
A mother and former high school teacher is rallying support in the Florida this week as part of a national campaign calling for more US government research for ME/CFS. |
• |
Melbournians Join Global Protest #MillionsMissing Melbourne
#MillionsMissing Melbourne will join protests in the US, UK and Canada on May 25th 2016 from 12–2 pm, on the lawn of the Victorian State Library. |
• |
'My Illness Felt Like Someone Was Beating Me With A Baseball Bat...'
A profile of two UK ME/CFS sufferers, Steven Kidd and Josh Durham. |
• |
ME/CFS Support Auckland Seeks More Support For Sufferers
A profile of two New Zealand ME/CFS sufferers, Wendy Matthews and Bronwyn-Leigh McInroy. |
• |
Chronic Fatigue Patients More Likely To Suppress Emotions
According to the King's College London, Chronic Fatigue Syndrome patients report they are more anxious and distressed than people who don't have the condition, and they are also more likely to suppress those emotions. |
• |
Irritable Bowel Syndrome And Fibromyalgia
About 70% of patients with Fibromyalgia also have Irritiable Bowel Syndrome, which affects over 25 million people in the US. |
• |
Ties That Heal: Stanford Medicine Magazine Examines Relationships
Scientist Ron Davis and his severely affected ME/CFS sufferer son Whitney Dafoe feature in the latest issue of Stanford Medicine's Scope magazine. |
• |
REMODDELLED: A Pre-Loved Clothing Fashion Show
The BIG A Op-Shop run by Colonel Light Gardens Church of Christ is hosting a pre-loved clothing fashion show to raise money for ME/CFS Australia (SA) Inc. |
• |
Medical Marijuana News Update: Marijuana Is Said To Effectively Treat Fibromyalgia
Researchers are now pushing the benefits of medical marijuana as the leading cure for Fibromyalgia relief. |
• |
Lyrica Linked To Slight Risk Of Birth Defects
The widely prescribed drug pregabalin (Lyrica) may slightly increase the risk for birth defects, a new study suggests. |
• |
Martine McCutcheon Forced To Use Wheelchair In ME Battle
A profile of UK actress and ME/CFS sufferer Martine McCutcheon. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Epidemiological Characteristics Of ME/CFS In Australian Patients
Research from the National Centre for Neuroimmunology and Emerging Diseases, and Griffith University's School of Medical Sciences. |
• |
Michael Turner's Not Lazy: He's Just Been 'Tired My Whole Life'
A profile of New Zealand Fibromyalgia sufferer Michael Turner. |
• |
Dating While Disabled: From Day One With Someone New, I Feel Vulnerable
An article by Litsa Dremousis. |
• |
Protest Aims To Secure Better Diagnosis And Treatment Of Lyme Disease
Scottish Lyme Disease sufferers are to stage a national protest in a bid to secure better diagnosis and treatment. |
• |
Why Not Date Someone With ME? We're Tough Survivors
An article by "Anonymous" about having a partner with ME/CFS. |
• |
UK ME/CFS Sufferer Says GPs Ignored Her Condition
A profile of UK ME/CFS sufferer Jo Hardstaff. |
• |
The Hidden Battle For The Rights Of Chronic Fatigue Syndrome Sufferers
An article by Naomi Chainey. |
• |
Beth Urmston's Lifelong Battle With Fibromyalgia Inspires Warrington Town Hall To Be Lit Up
Warrington Town Hall in the UK was lit up in purple, blue and green on 12 May, inspired by a woman who has battled Fibromyalgia for nearly all her life. |
• |
Chronic Fatigue Is Tough When You Are A Teen
A profile of New Zealand ME/CFS sufferer Michael Miles. |
• |
Sydney Teen With Chronic Fatigue Syndrome Instagrams Her Journey
A young Sydneysider diagnosed with ME/CFS has turned to Instagram to share her experience in the hopes of raising awareness about the rare and debilitating neuro-immune condition. |
• |
Dapto Woman Raising Awareness Of Chronic Fatigue
A profile of Australian ME/CFS sufferer Elle Veitch. |
• |
Further Clues In The Fight Against Chronic Fatigue Syndrome
New findings regarding the pathology of Chronic Fatigue Syndrome are bringing Griffith University researchers closer to identifying the cause of this disabling illness. |
• |
Judge Awards Ex-Lilly Manager $500,000 After Lawsuit
A US federal judge has awarded more than $500,000 to a former manager at Indianapolis-based Eli Lilly and Co. who quit as a result of ME/CFS and severe depression and was later dropped from the company’s extended disability plan. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Living With Chronic Fatigue: "We're Not Lazy Or Bored. We're Actually Very Sick."
Australian ME/CFS sufferer Susan Mackenzie talks about her illness. |
• |
The Federal Election – Postal Voting
If you are eligible to vote in the Federal Election on 2 July but unable to attend a polling booth due to ill-health, you can offer a postal vote. |
• |
May 12 International Awareness Day
Today is ME/CFS International Awareness Day. |
• |
Support The Silent ME/CFS Sufferers
A profile of Australian ME/CFS sufferer Kerri Stephenson. |
• |
"I Used To Love Going To The Gym...But My Struggle With ME Has Zapped All My Energy"
A profile of UK ME/CFS sufferer Rachel West. |
• |
UK Research Team Launches Clinical Trial Aimed At Fibromyalgia And Chronic Widespread Pain Onset Prevention
A UK research group has launched what they say is the first ever randomized clinical trial conducted with the objective of preventing the onset of chronic widespread pain (CWP — the characteristic feature of Fibromyalgia). |
• |
Altered Neuroendocrine Control And Association To Clinical Symptoms In Adolescent Chronic Fatigue Syndrome: A Cross-Sectional Study
Research published in BioMed Central. |
• |
Committee Member Penelope McMillan On The Radio
On Wednesday 11 May at 9:15am committee member Penelope McMillan will be live on South Australian radio station 891 ABC Adelaide, Mornings with Ali Clarke. |
• |
Petition: Change Dutch Health Council Committee And Adhere To The Advisory Report Assignment
A petition from The Netherlands. |
• |
Low-to-Moderate Alcohol Consumption Is Associated With Hippocampal Volume In Fibromyalgia And Insomnia
Research published in the journal Behavioral Sleep Medicine. |
• |
Resignation Notice
ME/CFS Australia (SA) Inc president James Hackett has resigned. |
• |
Irish ME/CFS and Fibromyalgia Group Campaign
Irish charity Hope 4 ME & Fibro Northern Ireland has said it offered to pay for the Health Minister Simon Hamilton MLA to attend the Invest in ME conference taking place next month in London. |
• |
Creating Awareness Of A Debilitating Disease
ME/CFS sufferers are urging residents of South African city Sandton and residents all over the country to come forward and create awareness of this debilitating condition. |
• |
Thurrock Residents Walked 188 Kilometres In Aid Of Fibromyalgia Charity
Four friends have walked 188 kilometres from Winchester to Eastbourne over 6 days and raised over £2,600 in aid of Fibromyalgia Action UK. |
• |
Spinnaker Tower Lights Up To Increase Awareness Of Illnesses
Portsmouth's Spinnaker Tower will be lit in blue on 12 May to raise awareness for ME/CFS. |
• |
Study Shows Hyperbaric Oxygen Therapy As Reliable Treatment For Fibromyalgia
According to researchers of Rice University and some institutes in Israel, Hyperbaric Oxygen Therapy may be helpful for women suffering from Fibromyalgia. |
• |
Coming Soon – A Happy Seven: An Experimental Short Film About Fibromyalgia
An interview with Sophie Meath, director of A Happy Seven: An Experimental Short Film About Fibromyalgia. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Autumn Songs: Fundraising Concert
South Australian harpist and soprano Emma Horwood will be performing a recital to raise funds for ME/CFS sufferer Tanya Vallejo. |
• |
Canadian ME/CFS Petition
Ainslie Eccleston is wearing her undies on the outside for ME/CFS awareness. |
• |
NSW Event On May 12 To Raise ME/CFS Awareness
Ainslie Eccleston is wearing her undies on the outside for ME/CFS awareness. |
• |
Antiviral Combo May Be Next Blockbuster Fibromyalgia Drug
A profile of Dr William "Skip" Pridgen, who is having success with ME/CFS patients trialling a combination therapy involving the pairing of famciclovir (Famvir), a common antiviral, with celecoxib (Celebrex), an anti-inflammatory arthritis drug. |
• |
Fibromyalgia May Affect Sensory Perception And Blunt Touch Perception, Studies Show
The findings of a study reveal that there is abnormal processing of signals in C-type skin nerves (associated with the perception of touch) in Fibromyalgia. |
• |
Spain Continues To Take Steps For Multiple Chemical Sensitivity
A press release from Spain's Multiple Chemical Sensitivity and Environmental Health Information Service. |
• |
Chronic Fatigue And Suicide: An Alarming Trend
A King's College London study has found that suicide rates among those with chronic fatigue syndrome could increase six-fold. |
• |
The Grim Reality Of Being A 15-Year-Old Girl And Living With Chronic Fatigue Syndrome
A profile of Welsh ME/CFS sufferer Sarah Griffith. |
• |
Underwear Goes On The Outside For Charity
White House correspondent Llewellyn King talks about the "Undies on the Outside" charity. |
• |
Bridges & Pathways: ME/CFS Multidisciplinary Clinical and Research Centre
The results of research from a team of Australian scientists and doctors. |
• |
Hyperactive Parathyroid May Trouble Women With Fibromyalgia, Study Reports
Women with Fibromyalgia have a high incidence of hyperparathyroidism, a disease caused by an overactive parathyroid, according to a new study. |
April |
• |
Progressive Brain Changes In Patients With Chronic Fatigue Syndrome: A Longitudinal MRI Study
The results of research from a team of Australian scientists and doctors. |
• |
DiseaseMaps: Put Yourself On The Map!
We have put ME/CFS Australia (SA) Inc. on this world map of disease prevalence and would love you to join us in this endeavour to help spread the word and assist the push for more research funding. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Fibromyalgia Pain Levels Can Be Predicted By Leptin, Study
Fibromyalgia pain levels can be predicted by leptin, according to research. |
• |
Avindra Nath Digs Deeper Into Big NIH ME/CFS Study: Warns Of Push Back
A profile of US ME/CFS researcher Avindra Nath, MD. |
• |
Undies On The Outside
Undies On The Outside is an organisation designed to raise awareness of ME/CFS. |
• |
Anorexia May Be Caused By Bacterial Infection, Say Scientists
Anorexia may be caused by bacteria which confuse the immune system, leading it to attack the brain and trigger feelings of personal disgust, scientists have suggested. |
• |
PACE Trial: Probing An Untrustworthy Cochrane Review Of Exercise For "Chronic Fatigue Syndrome"
An article from researcher James C Coyne abuot the Cochrance review of the PACE trial. |
• |
Taiwanese Singer Ken Chu Suffering From Fibromyalgia
A profile of Taiwanese boy band member and Fibromyalgia sufferer Ken Chu. |
• |
Fibromyalgia Vs Lyme Disease: Differences In Symptoms, Causes, And Treatment Options
An article about the similarities and differences between Fribromyalgia and Lyme Disease. |
• |
ME Forms
A website from British ME/CFS sufferer Sue to provide assistance with managing the illness via useful forms, charts, and diary templates. |
• |
Music Therapy Can Reduce Pain, Depression, Anxiety, And Improve Sleep In Fibromyalgia Patients
Research from the University of Granada shows that music therapy combined with relaxation techniques can help improve many areas in the lives of Fibromyalgia patients. |
• |
Individualized Acupuncture Protocols For Fibromyalgia Reduce Pain Up To A Year
Research has shown that individualized acupuncture treatment of Fibromyalgia in primary care relieved patients' pain and enhanced their quality of life for up to a year compared with placebo treatment of sham acupuncture. |
• |
Migraine Worsens Fibromyalgia Symptoms, Study Reports
High frequency and chronic migraine increase the sensitivity to pain in Fibromyalgia patients, according to a study published in The Journal of Headache and Pain. |
• |
Opera Mariposa & Mariposa Theatre Wing To Stage New Broadway Revue For Neuro-Immune Disease Awareness
In May 2016, the acclaimed young artists of Opera Mariposa and the Mariposa Theatre Wing are staging a new Broadway revue to raise awareness for chronic neuro-immune diseases. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Fibromyalgia Vs Multiple Sclerosis: Comparing Symptoms, Diagnosis, And Treatment
An article outlining the differences between Fibromyalgia and Multiple Sclerosis. |
• |
Life With ME/CFS – New Zealand Rugby League Captain Richie Barnett
A video of New Zealand Rugby League captain and ME/CFS sufferer Richie Barnett talking about his illness. |
• |
Exam Stress Worsened By Chronic Illness
An article about how teenage students cope with exams when they are chronically ill. |
• |
Researchers Map Full-Length Protein Involved In Chronic Pain, With Hopes For Future Therapies
Researchers have discovered the full-length structure of a protein named Transient Receptor Potential Vanilloid subtype 2 (TRPV2), with implications for the development of new treatments for chronic pain and cancer. |
• |
Uncovering Biomarkers – Fcg Receptors In ME/CFS
Dr Isabel Barao explains the research she is doing to uncover potential immune system dysfunction in ME/CFS as a potential biomarker. |
• |
Pair Of Canadian Women In Running For YWCA Award
Cheryl Young, founder of the Canadian Fibromyalgia Well Spring Foundation, is one of two women nominated for a YWCA Women of Distinction award. |
• |
Canberra Doctor Challenges Growing Lobby On Lyme Disease
A Canberra infectious diseases expert has decided to directly challenge the growing power of advocates who say Lyme disease has come to Australia. |
• |
What I'm Really Thinking: The Person With ME
An article in UK newspaper The Guardian from "Anonymous" about living with ME/CFS. |
• |
Misleading Medical Research Underpins Disability Cuts In The UK
A new report from the UK's Centre for Welfare Reform explains how a current scientific controversy relates to the debate surrounding welfare reform and cuts to disability benefits. |
• |
If You Think Comfortable Families Don't Get Sucked Into Poverty, Think Again
A profile of the Hemingford family, affected by the UK's austerity cuts to welfare. |
• |
Millions Missing
Millions Missing is advocacy dedicated to the millions of ME/CFS patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
New Zealand Support Group Gives Hope To Sufferers Of Illness With No Cure
New Zealanders Wendy Groves and Deb Cane have established an ME/CFS support group in their area. |
• |
Landmark Study Should Show Way To Better Care For Chronically Ill
A landmark study of the fragmented primary health care system comes at a pivotal time for millions of chronically ill Australians, the Consumers Health Forum says. |
• |
Meet The Scientists: Dr Sarah Knight
A profile of Dr Sarah Knight from the Murdoch Childrens Research Institute at The Royal Children's Hospital in the University of Melbourne. |
• |
Researchers Aiming To Shorten Fibromyalgia Diagnostic Time Find That Certain Enzyme And Hormone Don't Need Testing
Researchers from the Netherlands recently released study results that aim to increase the diagnostic capabilities of healthcare providers in an effort to shorten the length of time from the onset of symptoms to clinical diagnosis of Fibromyalgia. |
• |
Scottish Woman's Drumming Career Saved After Devastating Illness
A UK musician who trained with Beyonce's drummer has told of her joy after she was "cured" of her Fibromyalgia. |
• |
Supermarket Apology To UK Woman Over Evacuation 'Distress'
A UK woman with Fibromyalgia, a condition that leaves her in constant pain, is unhappy at the way a supermarket handled an evacuation after the smoke alarm activated. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Leptin Tied To Bodily Pain, Predicts Fibromyalgia Pain Levels, Researchers Say
Leptin – a factor well-known for its role in controlling appetite – might be a driver of bodily pain, according to a new report. |
• |
The PACE Trial Invalidates The Use Of CBT And GET In ME/CFS: A Review
A review of the PACE trial by doctor and ME/CFS sufferer Mark Vink. |
• |
More US Insurance Companies Now Paying For Fibromyalgia Blood Test
An article from Donna Gregory Burch. |
• |
Fatigue Illness Inspires Documentary By Filmmakers From The US
An article about the ME/CFS documentary Forgotten Plague. |
• |
Autonomic Correlations With MRI Are Abnormal In The Brainstem Vasomotor Centre In Chronic Fatigue Syndrome
Medical research conducted in South Australia and published in ScienceDirect. |
• |
Does The Lancet Care About Patients?
The For Better Science blog takes a look at medical journal The Lancet. |
• |
Help Canary Crowdsource Archival Research
US ME/CFS sufferer and activist Jennifer Brea is asking for help to complete her documentary Canary in a Coal Mine. |
• |
Letter From ME/CFS Australia (SA) Inc To The Queen Mary University Of London
A letter from the society to the Queen Mary University London regarding PACE trial data that still has not been released for dissemination. |
• |
Society Seminar Reminder
A reminder that the society's next seminar will be held on Saturday 9 April at Sophia House. |
• |
Is Chronic Fatigue Syndrome Finally Being Taken Seriously?
An article in The Guardian. |
• |
This Could Be Big: Intravenous Ketamine For Fibromyalgia
An article by Ginevra Liptan, MD, about the potential benefits of ketamine for Fibromyalgia. |
• |
My 'Invisible Illness' - And How I Coped
A profile of UK ME/CFS sufferer Skye Wheeler. |
• |
Fibromyalgia Patients Have Blunted Touch Perception, Study Finds
A study has found that Fibromyalgia patients perceive touch differently compared to healthy individuals, suggesting that there is abnormal processing of signals in C-type skin nerve fibers in those with Fibromyalgia. |
• |
New CBT And GET Threat For Australian CFS Patients
The University of New South Wales has registered a trial to "investigate the efficacy of online continuing education for health professionals to improve the management of chronic fatigue syndrome" involving graded exercise therapy (GET) and cognitive behaviour therapy (CBT). |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Help Required With Year 12 Project Questioning Efficacy Of CBT And GET
A short survey, designed by a year 12 student at an Adelaide school for a school project, that is aimed at those who have received one of two types of treatment for their ME/CFS: Cognitive Behavioural Therapy and/or Graded Exercise Therapy – or anything approximating gradually increasing amounts and intensity of exercise. |
• |
Plan Revealed To Revolutionise Australian Healthcare
The Federal Government today is promising to revolutionise care offered to the more than four million Australians with multiple chronic diseases. |
• |
Understanding Brain Immune Interactions In Fibromyalgia May Lead To Better Treatments
New brain research may prove the notion that Fibromyalgia is in the head – just not in the way of condescending criticism. |
March |
• |
Disability Status In Fibromyalgia Patients Related To Occupation, Severity Of Symptoms, Study Shows
A study published in The Journal of Rheumatology. |
• |
UK Student Is Housebound After Chronic Illness Diagnosis At 21
A profile of UK university student and ME/CFS sufferer Alice Turner. |
• |
Roger Cicero: Germany's Jazz Talent
A profile of German musician and ME/CFS sufferer Roger Cicero. |
• |
The One Lesson I've Learned From Life: Author Shirley Conran On Surviving ME
UK author and ME/CFS sufferer Shirley Conran writes about her life with the disease. |
• |
'Chronic Fatigue Syndrome Isn't What You Think It Is, It's Much Worse'
An article by Stephanie Land about her friend, severe ME/CFS sufferer Whitney Dafoe. |
• |
Sense About Statistics Says: PACE Trial Doomed By Flaws
Dr Rebecca Goldin, blogging for Sense About Statistics, has said that flaws in the design of the PACE trial "were enough to doom its results from the start". |
• |
'We Don’t Share Data.' Why Peter White's Wall Street Journal Letter Can Be Ignored
An article by James C Coyne about the PACE Trial. |
• |
How Many Teens Suffer From Chronic Fatigue?
The results of a UK study into the prevalence of adolescents with ME/CFS. |
• |
PACE Trial Gets Most Devastating Critique Yet
An article by ME/CFS advocate Cort Johnson about journalist David Tuller's thorough analysis of the UK's PACE Trial. |
• |
Hannah Price: University And ME
A profile of UK ME/CFS sufferer Hannah Price. |
• |
Patients With Fibromyalgia Struggle To Stay Asleep
Newly published research suggests that sleep in patients with Fibromyalgia is characterized by an inability to maintain continuous sleep. |
• |
UK Student's Fibromyalgia Causes Three-Day Hangovers
A profile of UK Fibromyalgia sufferer Shannon Birse. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
Help Required With Year 12 Project Questioning Efficacy Of CBT And GET
A short survey, designed by a year 12 student at an Adelaide school for a school project, that is aimed at those who have received one of two types of treatment for their ME/CFS: Cognitive Behavioural Therapy and/or Graded Exercise Therapy – or anything approximating gradually increasing amounts and intensity of exercise. |
• |
ME & Fatigue - Dr. Neil Harrison
An interview with UK fatigue researcher Dr Neil Harrison. |
• |
Disability In Fibromyalgia Patients Linked To Symptom Severity, Physically Demanding Jobs
About one-third of Canadian patients with fibromyalgia had disability status, which was associated with symptom severity, increased use of medications and more physically demanding occupations, according to recently published research. |
• |
The Air Around Aliso Canyon Is Declared Safe. So Why Are Families Still Suffering?
An article about the aftermath of the Aliso Canyon Gas Leak in the US. |
• |
Are Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia Immune Exhaustion Disorders?
An article by Cort Johnson about the Lipkin/Hornig research into the immune system's involvement in ME/CFS. |
• |
Fibromyalgia – Can We Crack The Code And Put The Patient First?
A profile of US ME/CFS researcher Dr Jarred Younger. |
• |
CFS Online Web Service
CFS Online (BETA) is a digital service that provides a platform to record daily activities and symptoms for those with a ME/CFS condition. |
• |
Pain And Fatigue Linked To Perception Of Function In Women With Fibromyalgia
In a recently published study of women with Fibromyalgia, investigators found pain and fatigue explained at least one-third of the variance in patients' perceived physical performance and function. |
• |
Fibromyalgia Not Linked To Vitamin B12 Deficiency, Study Shows
A study published in Rheumatology International. |
• |
IACFS/ME Cover Art Contest
The IACFS/ME has put out a call for young artists to submit their artwork for their cover art contest related to a new Primer for pediatric ME/CFS. |
• |
Fibromyalgia Predictors Can Range From Headaches To Sleeping Problems
Researchers in Finland suggest that Fibromyalgia could be predicted through symptoms related to regional pain, frequent headache, persistent back/neck pain, sleeping problems, and excess weight. |
• |
This Woman Joined Little Mix On Stage After Learning To Walk On Crutches Especially For The Concert
A profile of Welsh Fibromyalgia sufferer Hayley Strong. |
• |
Chronic Fatigue Syndrome Documentary Film "Forgotten Plague" Released
Emmy Award-winning producer Nicole Castillo and co-director Ryan Prior are pleased to announce the release of their feature-length documentary film, Forgotten Plague. |
• |
The Great Australian Lyme Conspiracy
Dr Brad McKay discusses Lyme disease in Australia. |
• |
Dr Steven Hatch Investigates The 'Spectrum Of Certainty' In 'Snowball In A Blizzard'
In his new book, "Snowball in a Blizzard: A Physician’s Notes on Uncertainty in Medicine," infectious disease specialist Dr Steven Hatch explores several questions for which definitive answers are not available. |
• |
Queensland's Griffith University Calling For Study Participants
Griffith University's National Centre for Neuroimmunology and Emerging Diseases is asking for participants in three studies. |
• |
NIH ME/CFS Advocacy Call
A video conference call from the US National Institutes of Health, in which the participants discuss the state of ME/CFS advocacy. |
• |
Low Vitamin D Appears Linked To Chronic Widespread Pain In Men, But Other Factors Play A Role
A recent study performed between several European institutions proposes a possible association between a deficiency in vitamin D and male chronic widespread pain. |
• |
Female Fibromyalgia Patients Experience Sexual Dysfunction And Mood, Anxiety Disorders, According To Study
A collaborative research study between several institutions in Turkey found that female patients with fibromyalgia often suffer from sexual dysfunction, mood, and anxiety disorders. |
• |
ME/CFS Is 'Poor Relation' Of Other Neurological Conditions Say UK Campaigners
A debilitating condition which feels like 'permanent flu' is being treated as 'the poor relation' of other neurological conditions say frustrated sufferers in the UK county of Worcestershire. |
• |
Chronic Fatigue Syndrome: New Diagnostic Tool To Speed Up Treatment And Reduce Stigma
A new diagnostic tool for Chronic Fatigue Syndrome could reduce stigma and help people with the disorder access treatment faster. |
• |
Illness Progression In Chronic Fatigue Syndrome: A Shifting Immune Baseline
Research published in BMC Immunology proposing the existence of a biomarker for ME/CFS. |
• |
Pregabalin Effective In Reducing Pain, Improving Sleep In Patients With Fibromyalgia
Pregabalin was effective in reducing pain and improving sleep quality among patients with fibromyalgia through 12 weeks, according to data published in Current Medical Research and Opinion. |
• |
Fibromyalgia Awareness – Short Film
Filmmaker Sophie Meath is planning on making a short film about Fibromyalgia, and is asking for financial help. |
• |
A Screening Test For Chronic Fatigue Syndrome Is Ready For The Public
Australian scientists have identified new biomarkers that can be used to diagnose Chronic Fatigue Syndrome in a screening test that they say is now ready for public use. |
• |
Younger Adult Fibromyalgia Patients At Increased Risk Of Stroke, According To Study
Fibromyalgia is likely associated with an increased risk for stroke, according to the results of a new study from China, “Increased Risk of Stroke in Patients With Fibromyalgia,” published in the journal Medicine. |
• |
Letters: Chronic Fatigue Syndrome A Serious Illness
A letter to the editor published in Canadian newspaper Saanich News in response to an article about ME/CFS among other things. |
• |
Student Living With Unpredictable Pains
A profile of Kenyan Fibromyalgia sufferer Makau Mulli. |
• |
Patients, Scientists Fight Over Research-Data Access
A controversy surrounding a study of Chronic Fatigue Syndrome is prompting some scientists to push back against demands that they make medical research data more widely available to other researchers and patients. |
• |
CDC Study Finds CFS Is Physical, Not Mental
Despite decades of suggesting otherwise, the Centers for Disease Control and Prevention (CDC) has just determined that CFS patients have normal mental health function and severe physical impairments. |
• |
Fibromyalgia Distinguished From Lupus With 100% Specificity Using New Test
California researchers found that analyzing cell-bound complement activation products (CB-CAPs) ably distinguishes between Systemic Lupus Erythematosus and Fibromyalgia, and complements current test methods. |
• |
GPs' Management Of Chronic Pain Conditions Costing Australia Millions: Report
A new Grattan Institute report claims GPs are not properly managing chronic health conditions, suggesting changes are needed to how chronic pain is funded. |
• |
UK Christian Realises African Vision
Joy McCann, a Christian from Norwich, will visit a Christian organisation in East Africa and realise a vision that God gave her during her 13 years of ill health with Chronic Fatigue Syndrome. |
• |
Fibromyalgia Pain May Also Result From Neurogenic Inflammation Of Peripheral Nerves
A review study by Monash University researcher Geoffrey Littlejohn points out that peripheral neurogenic inflammation of the nerves likely contributes to Fibromyalgia symptoms. |
• |
No Joke For Chronic Fatigue Sufferers
A letter of complaint about a recent "Blondie" comic strip in The Washington Post. |
• |
Australian Government Pins Its Hopes On NIH ME/CFS Research
An article about the Australian Government's funding of ME/CFS research. |
• |
Extraordinary NIH ME/CFS Study May Be Most Comprehensive And In-Depth Ever
A survey from DePaul University in the US. |
• |
"You're Not Disabled": Woman Snubbed By Manchester Arena
A UK Adele fan with long-term illness and mobility problems was told she 'didn’t have a disability' when booking tickets for the singer’s world tour at the Manchester Arena. |
• |
Online Patient Survey On The Name And Criteria For ME Or CFS
A survey from DePaul University in the US. |
• |
Lactate – Is It Everywhere In Fibromyalgia And Chronic Fatigue Syndrome (ME/CFS)?
An article about the abnormal presence of lactate in ME/CFS/Fibromyalgia. |
• |
I've Gone From A Super-Fit Party Girl To Being Almost Bedridden At 33
A profile of UK ME/CFS sufferer Faye Dempsey. |
• |
Australian Scientists Make Breakthrough In Chronic Fatigue Syndrome Testing
Australian scientists say they could soon produce a diagnosis for Chronic Fatigue Syndrome that could be as simple as having a blood test. |
February |
• |
Acupuncture Can Relieve Fibromyalgia Pain, If It's Tailored Per Patient
A new analysis by researchers in Spain found that although standard acupuncture does not reduce pain in women with Fibromyalgia, the therapy does alleviate pain when it is individualized for each patient. |
• |
Restoring Sleep Patterns Could Bring Relief To Fibromyalgia Patients
American researchers have identified sleep-related treatment as a possible means of relief from Fibromyalgia. |
• |
Severe Fatigue May Be Prevalent Among Patients With Inflammatory Rheumatic Diseases
Patients with inflammatory rheumatic diseases were more likely than patients with osteoarthritis to experience severe fatigue, which was prevalent among patients, according to allied researchers from Europe and the United States. |
• |
Fibromyalgia Study Finds Paroxetine Best Of Newer Antidepressants To Combine With Drug Treatment
The combined use of pregabalin and the antidepressant paroxetine is more effective in reducing somatic symptoms and depression in fibromyalgia patients than pregabalin with other relatively new antidepressants, according to a new study. |
• |
Getting By With "Bugger All": The Invisible Suffering Of Australians With Chronic Fatigue Syndrome
An article by Naomi Chainey about ME/CFS. |
• |
Medical Cannabis Bill Passes Australian Parliament
Australia has passed a medical marijuana bill to allow the cultivation of the drug, but the Greens say medical cannabis remains an illegal substance. |
• |
Chronic Fatigue Syndrome Chronically Underfunded
An audio presentation by Australian independent current affairs community radio station The Wire. |
• |
Surfer Thrilled To Be With The Boys
A profile of New Zealand surfer and ME/CFS sufferer Marguerite Vujcich. |
• |
My Kitchen Rules Contestant Hazel Reveals 12-Year Battle With Fibromyalgia
A profile of TV program My Kitchen Rules contestant and Fibromyalgia sufferer Hazel. |
• |
What It's Like...To Perpetually Forget
A profile of ME/CFS sufferer Kylie-Anne Deigratia Leske. |
• |
Acupuncture May Help Ease Fibromyalgia Pain, Study Finds
Acupuncture may help ease pain and improve quality of life for people with Fibromyalgia, a new study suggests. |
• |
$142K Received For Open Medicine Foundation's "End ME/CFS Project"
The Open Medicine Foundation has received $142,000 for its continuing OMF End ME/CFS Project, which is the second generous donation from an anonymous donor. |
• |
Irish Fibromyalgia Sufferer Left Penniless After Welfare Cuts
An Irish man who relies on Employment and Support Allowance after being diagnosed with Fibromyalgia, was left penniless last Christmas after having his benefit cut. |
• |
Fibromyalgia Pain May Be Linked To Spinal Cord Dysfunction, Researchers Say
Dysfunction in spinal cord processing may be responsible for pain in Fibromyalgia patients, according to a study published in the journal PLOS One. |
• |
Chronic Fatigue Syndrome: Advancing Research And Clinical Education
A video from the US Centers for Disease Control and Prevention (CDC). |
• |
Are Opiates Really That Bad for Fibromyalgia?
Ginevra Lipton MD discusses opiate use in people with Fibromyalgia. |
• |
Emerge Australia Media Release Following Senate Estimates
A response from Emerge Australia about the Australian Government's Senate Estimates hearings on health. |
• |
PACE Trial's Forbidden Fruits: The Fruit Of Your Labour
An article by Clark Ellis about the PACE Trial. |
• |
Brisbane Seminarian Fighting Chronic Fatigue Syndrome Returns To The Seminary After Four Years
A profile of Australian priest-to-be and ME/CFS sufferer Chris Ledwich. |
• |
Detecting Lyme Early
Two new methods could help researchers to diagnose Lyme disease earlier than with existing tests. |
• |
Microglia In Fibromyalgia & Chronic Fatigue Syndrome
Adrienne Dellwo describes microglia and discusses their importance in ME/CFS/Fibromyalgia. |
• |
Society Seminar Reminder
The society's first seminar for 2016 will be held on Saturday 20 February at Sophia House. |
• |
Court Dismisses Lawsuit By XMRV-Chronic Fatigue Syndrome Researcher
A California court has dismissed virologist Judy Mikovits's lawsuit against fourteen people and two Nevada corporations, in part because she failed to submit necessary documents on time. |
• |
Comment On ME/CFS Article In The Guardian
A comment in response to an article published in The Guardian. |
• |
Helen Spreads Kindness On Valentine's Day As She Fights Fatigue Condition
Kindness, as well as love, was in the air as a 43-year-old woman with Chronic Fatigue Syndrome handed out goodie bags at a UK hospital to spread a little happiness. |
• |
Fibromyalgia And Chocolate: What New Research Says About Health Benefits
Sue Ingebretson discusses the health benefits of chocolate for people with chronic illnesses such as Fibromyalgia. |
• |
18 People Describe What Chronic Fatigue Syndrome Feels Like
Online news outlet The Mighty asked its readers as well as the ProHealth community to describe what chronic fatigue really feels like. |
• |
Professor Coyne How Can We Thank You Enough?
A report from the Irish blog Just ME about James C Coyne's visit to Ireland. |
• |
Many Women With Fibromyalgia Suffer From Pelvic Pain
Researchers have found that Fibromyalgia patients were recently found to have more symptom burden from bothersome pelvic pain syndromes that women seeking care for pelvic floor disease at an urogynecology clinic. |
• |
South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. |
• |
An Open Letter To The Lancet, Again
Another request for data from the UK's PACE Trial. |
• |
Senator Scott Ludlam On ME/CFS Research Funding In Australia
Australian Greens Senator Scott Ludlam discusses the state of ME/CFS research funding in Australia. |
• |
Fibromyalgia Symptoms Often Go Undiagnosed In Men
Information on men and Fibromyalgia is far scarcer than on women and Fibromyalgia, and women are far more likely to receive a Fibromyalgia diagnosis, compared to men. |
• |
Dr Robert K Naviaux Joins The Open Medicine Foundation's ME/CFS Scientific Advisory Board
Dr. Robert K. Naviaux has joined the Open Medicine Foundation's ME/CFS Scientific Advisory Board. |
• |
Suicide Six Times More Likely In ME/CFS Patients Compared To General Population
Research from the Institute of Psychiatry, Psychology & Neuroscience at King's College London. |
• |
Medicinal Cannabis In Australia A Step Closer
Patients in Australia suffering chronic and painful illnesses are a step closer to accessing medicinal cannabis. |
• |
Obituary: Robert J Suhadolnik, ME/CFS and AIDS researcher
Dr. Robert J. Suhadolnik, 90, a US biochemist renowned for his research on AIDS and Chronic Fatigue Syndrome, has died. |
• |
Fibromyalgia Incidences Low In Acute Whiplash Injury: Study
A study has found that experiencing whiplash injury could result in some cases of Fibromyalgia. |
• |
US National Institutes Of Health Recruiting For Major ME/CFS Study
A major ME/CFS study is underway in the US. |
• |
Welsh Teenager's Skydive Inspired By "Hero" Mum's Condition
A daughter's love for her "hero" mum is to take her 10,000ft up in the air for charity. |
• |
Help! I'm Allergic To My New Audi
A UK doctor who paid nearly £20,000 [AUS$41,000] for a brand new car can only take it for a spin once a week, for 40 minutes at a time - because he is allergic to it. |
• |
5 "Do's" For A Better Relationship With A Fibromyalgia/ME/CFS Doctor
An article by Adrienne Dellwo about improving the relationship between patient and doctor. |
• |
Medical Whistleblower Dr Judy Mikovits Shares Her Story With Dr Rebecca Risk
Dr Judy Mikovits talks to Dr Rebecca Risk about her new book, "Plague: One Scientist's intrepid Search For the Truth about Human Retroviruses and Chronic Fatigue Syndrome, Autism, and Other Diseases". |
• |
Reexamining Chronic Fatigue Syndrome Research And Treatment Policy
An article by David Tuller. |
• |
Introducing Mary Dimmock's Summary: 'Thirty Years Of Disdain'
A review of a book focusing on the history of ME/CFS. |
• |
Specialised Services For Young People With CFS Needed Across Sussex
A new study into young people in the UK with Chronic Fatigue Syndrome highlights the need for more specialised services. |
• |
"I Burned The Candle At Both Ends - And Ended Up With Chronic Fatigue"
A profile of UK ME/CFS sufferer Angie Potter. |
• |
US Military Veterans Seek Access To Medical Marijuana
An article about military veterans and their success in treating various ailments, including Fibromyalgia, with medical marijuana. |
• |
Help Build A Seed Fund For "Impact"
A fundraising request from ME/CFS sufferer and activist Jennifer Brea. |
• |
David Conley Composes Score For ME/CFS Documentary "Forgotten Plague"
A profile of David Conley, composer of the soundtrack to the ME/CFS documentary Forgotten Plague. |
• |
How Lyrica Changes The Fibromyalgia Brain
New research may help explain how Lyrica works to combat pain in Fibromyalgia patients. |
• |
Trial By Error, Continued: A Few Words About "Harassment"
An op-ed piece by David Tuller about the UK's PACE Trial. |
• |
Chronic Fatigue Syndrome Finally Gets Its Due
A profile of US ME/CFS sufferer Ann Cavanagh Kramer. |
• |
Chronic Pain Doesn't Stop David's Plans For Charity Expansion
A charity founded by Irish man David Moore to support people suffering with Fibromyalgia continues to go from strength to strength. |
January |
• |
Melbourne Fibromyalgia Sufferers Wanted For Floatation Project
Inner Outer Health, a Melbourne-based floatation therapy private centre, is enrolling Australian fibromyalgia sufferers to further test the potential benefits of this partcular therapy. |
• |
Gut Bacteria Play Different Roles in Males And Females
Gut bacteria play vastly different roles in males and females even when the microbe balance of the gut looks exactly the same, Victoria University researchers have found. |
• |
Eight Thousand Young Australians Kicked Off Disability Support Pension
The Federal Government claims its crackdown on the Disability Support Pension is working, with 8,000 people kicked off the payment in the final half of 2015. |
• |
Acupuncture Does Not Reduce Pain For Women With Fibromyalgia
Research has found that acupuncture, along with two other pain relief methods, proved to be insufficient in providing the analgesia that patients with Fibromyalgia crave. |
• |
New Headgear Device Delivers Pain Relief For Fibromyalgia And Migraine
A new pain-relieving device, the brain-stimulating "PainX tDCS Therapy", has been approved for Fibromyalgia and migraine after 14 studies over the course of eight years. |
• |
Chronic Fatigue Syndrome On Rise Among 16-Year-Olds
Chronic Fatigue Syndrome is more common than previously thought, particularly among girls at the age of 16, research by the UK's University of Bristol suggests. |
• |
The Solve ME/CFS Initiative Grades The HHS Response To CFSAC Recommendations
The Solve ME/CFS Initiative has given a letter grade to the U.S. Department of Health & Human Services for each recommendation based on how well the agency responded, given last year's Institute of Medicine and Pathways to Prevention reports, which unequivocally called for federal agency focus on ME/CFS. |
• |
Fibromyalgia: Can Probiotics Ease Chronic Pain?
Research suggests that probiotics may help with decreasing the symptoms of Fibromyalgia and its chronic pain. |
• |
Patients With Fibromyalgia May Fit One Of Two Distinct Subclusters
Symptoms expressed by patients with Fibromyalgia may align with one of two distinct subclusters, and further study may lead to personalized treatments, according to a recently published analysis. |
• |
Carpal Tunnel Syndrome Has High Prevalence In Women With Fibromyalgia
Research has found that people with Fibromyalgia are four to six times more likely to develop Carpal Tunnel Syndrome compared to the general population. |
• |
Electricity To Treat Fibromyalgia? Not So Fast!
An op-ed piece by Rosemary Lee about a treatment for Fibromyalgia called High Definition trans cranial Direct Current Stimulation, a form of electric shock therapy. |
• |
Chronic Fatigue Syndrome: Rituximab Revisited
An article about the potential risks involved in taking ritxumab for ME/CFS. |
• |
Hyperbaric Oxygen Tanks Found To Treat And Cure Fibromyalgia
Researchers from Tel Aviv University have noted that women who have tried hyperbaric oxygen treatment were able to drastically reduce or entirely eliminate their need for pain medication. |
• |
Finding The Right Dose Of Electricity To Treat Fibromyalgia Pain
Researchers are narrowing in on defining the right dose of electrical current to treat chronic Fibromyalgia pain via high-definition transcranial direct current stimulation (HD-tDCS). |
• |
Cannabis And Fibromyalgia
An article about why medical marijuana can be effective for Fibromyalgia. |
• |
A Look At Glenn Hutchins' Philanthropy
A profile of US philanthropist Glenn Hutchins. |
• |
Support For The Microgenderome
Research that shows "gut microorganisms may play both protective and deleterious roles in symptom expression". |
• |
Laura Dundovic: 'I Got Every Possible Sickness'
A profile of Australian model Laura Dundovic. |
• |
Meet The Woman Who Has Been Battling Fatigue For Over 27 Years
A profile of two UK ME/CFS sufferers, Victoria Bartle and Deborah Hutton. |
• |
Fibromyalgia Foundation Is Latest Langley Charity To Be Hit By Thieves
A Canadian Fibromyalgia charity shop was broken into. |
• |
Chronic Widespread Pain: Some Societies Feel It More
A review of specific population studies showed the prevalence of chronic widespread pain ranged from 0% to 24%, depending on world region. |
• |
Australians With Lyme Disease 'Being Treated Worse Than A Dog Riddled With Mange'
Australian Independent Senator John Madigan has come out firing over the treatment of Australians suffering with Lyme disease by the health industry. |
• |
A Day In The Life With Chronic Illness
A blow-by-blow account of daily life with chronic pain and illness, from Toni Bernhard JD. |
• |
IV Ketamine For Fibromyalgia
An article about how ketamine is helping people with Fibromyalgia. |
• |
US Neuroscientist Says Exercise Is A Noxious Stimulus That Worsens Symptoms Of ME/CFS
A highly regarded American neuroscientist who has researched CFS for more than a decade, has decried media reports based on The Lancet Psychiatry's scientific article that claims Graded Exercise Therapy is an effective treatment for Chronic Fatigue Syndrome. |
• |
When Fibromyalgia Is More Than Pain
Celeste Cooper lists a number of disorders that can be associated with Fibromyalgia. |
• |
Severe Fibromyalgia Symptoms Linked To Obesity, Weight Gain
Research has found a link between severe Fibromyalgia symptoms and obesity, and also suggests that being obese increases a person's risk of Fibromyalgia. |
• |
Fibromyalgia Finally Has A Code Of Its Own
An article by Seth Lederman, MD. |
• |
Did The PACE Trial Really Prove That Graded Exercise Is Safe?
An article by Julie Rehmeyer and David Tuller, DrPH. |
• |
Episode Of BBC Drama "Doctors" Features Character With ME/CFS
A recent episode of the BBC drama Doctors featured an ME/CFS sufferer in one of its storylines. |
• |
Worst Things To Say To A Person Living With A Chronic Illness
A video by YouTube user The ME/CFS Ghost. |
• |
PACE Study And The Lancet: Journal Reputation Is A Two-Way Street
An article by Andrew Gelman on his Statistical Modeling, Causal Inference, and Social Science blog. |
• |
Undisclosed Conflicts Of Interest In A Systematic Review Protocol Of Interventions For Medically Unexplained Symptoms
An artcle by James C. Coyne's on his Quick Thoughts blog. |
• |
7 Famous Celebrities You Didn't Know Were Battling Chronic Illnesses
A list of noted celebrities who have various chronic illnesses. |
• |
PACE Trial: Questions For Dr. White And His PACE Colleagues
An article by David Tuller. |
• |
Strength Of Spirit Top Of Class
An article about the academic achivements of South Australian high school student and ME/CFS sufferer Elise Prior. |
• |
The Best, Least, Biggest And Strangest: An ME/CFS And FM Look Back At 2015
An article by Cort Johnson on his Health Rising blog. |
• |
Invisible Illness – Stories Of Chronic Fatigue Syndrome
A mini documentary that reveals three stories of people who have been impacted by ME/CFS. |
• |
17 Secrets of People Who Live With Chronic Fatigue Syndrome
The Mighty partnered with the Chronic Fatigue Syndrome & ME by ProHealth Facebook page to ask people who live with CFS what they wish others could understand about their condition. |
• |
Happy New Year
All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year. |
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)