ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
PO Box 28,
South Australia 5007
North Terrace House,
19 North Terrace,
Hackney, SA, 5069
1300 128 339
Closed over Christmas
(reopened 1 February 2017)
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Jade Plans To Fight Through The Pain On 200-Mile Walk
Tuesday 11 August 2015
Jade plans to fight through the pain on 200-mile walk
Jade Pierce, 35, has suffered with fibromyalgia for most of her adult life, but has decided to rediscover her love of the outdoors by tackling the challenging route across two countries — walking approximately 200 miles by herself in just two weeks.
Very little is known about the enervating disease other than it is a long-term condition that causes pain all over the body.
As well as widespread discomfort, people with fibromyalgia may also suffer extreme fatigue, headaches, muscle stiffness and ‘fibro-fog’ — a flu-like mugginess which causes problems with memory and concentration.
Naturally, she is a little nervous about the endeavour.
“It’s roughly 150 miles from Bristol to Dolgellau but I’ll be zig-zagging all over the place to find suitable hotels and campsites so I’ll be travelling a little further,” she told the Cambrian News.
“This is a mega challenge for anyone let alone for me who suffers with this awful invisible illness.
“I’m fortunate though, I’m in recovery through nutrition, herbal medicine, exercise and meditation.
“However, I am terrified and excited by this trip — I may have a flare up along the way or migraines may strike, please forgive me if I am forced to stop.”
Jade first started suffering from the symptoms of fibromyalgia when she was 20 and has battled the crippling condition with little or no support from medical staff.
“It’s very difficult. Doctors, the government and employers were very unsupportive at the start, often turning me away when I desperately needed help.
“I even had health professionals telling me to go away and stop wasting their time. For eight years I was ignored until diagnosed by a locum doctor.
“Awareness of fibromyalgia desperately needs to be raised amongst health professionals for early diagnosis and support.
“It’s not really the doctors fault though; there’s not much they can do so, sometimes they just prescribe medication because they feel at a loss.
“It has an immediate affect but in the long term it makes everything much more difficult — it’s better to adapt your lifestyle to be healthier and to try and cut as many chemicals from your diet as possible.
“Hopefully the money raised will help towards a better understanding of this gruelling condition.”
Jade is hoping to complete her challenge this September.
For more information or to donate to her cause, visit www.justgiving.com/JadeJakooky/.
The above originally appeared here.
blog comments powered by Disqus