ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
PO Box 28,
South Australia 5007
North Terrace House,
19 North Terrace,
Hackney, SA, 5069
1300 128 339
Closed over Christmas
(reopened 1 February 2017)
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Fibromyalgia Sufferer Shares Pain Of Ignorance
Sunday 11 January 2015
Fibromyalgia sufferer shares pain of ignorance
Many fibromyalgia sufferers have horror stories about visiting their doctors and attempting to get help for their chronic pain. Shelly Van Winkle recently shared her story as a fibromyalgia patient who spends an enormous amount of money on prescription drugs without finding relief. Her account echoes the problems often experienced by others with this condition.
Shelly Van Winkle used to be able to work as a nurse, but her life has been reduced to seeking new treatments to fight her fibromyalgia. The Quad-City Times reports that the mother of five suffers from chronic pain that affects her ability to work. Her invisible illness may be judged harshly by others, including doctors, but it has ruined the quality of her life.
The former nurse now spends an estimated $1200 a month on various prescription medications that do not seem to be providing relief. She admits that in her desperation she tried cannabis, but she is too scared to continue using it. She is worried about being seen as a drug addict, but she continues to take 25 pills per day from her doctor.
Shelly Van Winkle’s fibromyalgia tale is playing out across the globe as other patients face similar problems. One of the biggest myths is that people do not think the disorder is real and view patients as complainers. Although the American College of Rheumatology has a list of specific guidelines for diagnosing fibromyalgia, many doctors continue to ignore the recommendations, dismiss the patient and let the disease take over.
Many patients will agree that living with fibromyalgia should be a required class for physicians before they graduate. The lack of understanding and frequent misdiagnoses are leaving people in pain for years. Finding a solution that works for a patient requires time and effort, so a five-minute appointment jammed between a doctor’s lunch or golf game is not enough to provide proper care.
The above originally appeared here.
blog comments powered by Disqus