December |
• |
My Story: Chronic Pain And The Holidays – Yikes
An article by Rosemary Lee about coping with the holiday season. |
• |
Chronic Pain Patient To CDC: "I AM NOT AN ADDICT"
An article about the reaction to the US Centers for Disease Control and Prevention asking for comments on its opioid guidelines. |
• |
A Drug That Treats BOTH Insomnia And Pain?
A new drug being trialled in the US is promising to treat both insomnia and pain in Fibromyalgia sufferers. |
• |
The Politics Of Stigma With ME/CFS
An article by UK ME/CFS sufferer Catherine Hale on her Limited Capability blog. |
• |
Ian Lipkin: Three To Five Years To Solve ME/CFS
A profile of US ME/CFS researcher Dr Ian Lipkin. |
• |
Physiological Parameters As A Fibromyalgia Diagnosis Tool
A study entitled "Physiological parameters as a tool in the diagnosis of fibromyalgia syndrome in females: A preliminary study." |
• |
Fibromyalgia Study Focuses On Surprising Epsom Salt Benefits
A new study is focusing on the potential use of Epsom salt to help Fibromyalgia patients. |
• |
Acupuncture Alleviates Chronic Fatigue Syndrome
Research published in the Guangxi Medical Journal finds acupuncture effective for the relief of fatigue, depression, and other symptoms of ME/CFS. |
• |
Holidays: The Pain In With The Glitter
An article by White House correspondent Llewelyn King about the loneliness that can often accompany ME/CFS, especially in the holiday season. |
• |
Merry Christmas
All of us here at ME/CFS Australia (SA) Inc wish you a very merry Christmas! |
• |
To Keep Science Honest, Data Must Be Shared
An article about the difficulty that psychologist James C. Coyne is having in attempting to assess and analyse data from the PACE Trial. |
• |
Over Twenty US Organisations And Advocates Announce New ME/CFS Working Group
#ME Action has announced that it is joining over twenty organizations, bloggers, and independent advocates to form a US Action Working Group. |
• |
Community Support Moves Severely Ill ME/CFS Study Forward Rapidly
An article about the latest research developments in the Open Medicine Foundation's ME/CFS Severely Ill-BIG DATA Study. |
• |
UK Woman Left Housebound After Contracting Deadly Virus In Mexico Makes Desperate Plea For Wheelchair
A profile of UK Fibromyalgia sufferer Gemma Speht. |
• |
How To Use Medical Marijuana Without Getting High
An article by Donna Gregory Burch for National Pain Report. |
• |
Tug Of War: Epic Battle Over Data In Controversial Paper On Chronic Fatigue Syndrome
An article by statistician Andrew Gelman about data in the PACE Trial. |
• |
Release Of Individual Patient Data From The PACE Trial
A response from King's College London regarding the release of data in the PACE Trial. |
• |
Direct Evidence For Viral Infection Of Neurons
The first direct evidence that viruses can infect neuronal cells has been reported, giving more weight to the idea that viral infections may contribute to certain neurologic diseases. |
• |
PLOS ONE Issues Editor's Note Over Controversial Chronic Fatigue Syndrome Research
After a request for the original data was denied, PLOS ONE editors have flagged a 2012 sub analysis of a controversial clinical trial on Chronic Fatigue Syndrome with an editor's note. |
• |
Changes In Gut And Plasma Microbiome Following Exercise Challenge In ME/CFS
Evidence suggests that intestinal dysbiosis and systemic responses to gut microorganisms may play a role in the symptomology of ME/CFS. |
• |
A Request For Data From The PACE Trial
An open letter from a number of scientists to the Queen Mary University of London about data from the UK's PACE Trial. |
• |
CDC Funding For Chronic Fatigue Syndrome Restored
An article by Cort Johnson about next year's US funding for ME/CFS. |
• |
Family Donates $224,000 To Open Medicine Foundation's "End ME/CFS Project"
An anonymous family has made a $224,000 donation to the Open Medicine Foundation's "End ME/CFS Project". |
• |
Humankind: An Australian Resource For The Chronically Ill
Humankind is an initiative of Relationships Australia to provide relationship information, support, and resources for people living with chronic illness and their loved ones. |
• |
Nick Brown On The PACE Trial
An article from Nick Brown. |
• |
My Life With Fibromyalgia: An Open Letter To The CDC
An open letter by US Fibromyalgia sufferer Emma Christensen. |
• |
Can Billionaire John Caudwell's Lyme Disease Theory Be Right?
An interview with John Caudwell, founder of UK company Phones4U, about how most of his family has Lyme Disease. |
• |
Close To Collapse: Survey Finds "Shocking" Lack Of Services For UK ME/CFS Patients
Close to Collapse, a report based on findings from a survey carried out by the UK charity Action for ME, shows a shocking lack of social care for adults in the UK with ME/CFS. |
• |
ME/CFS Vagus Nerve Link
An interview with Professor Michael Van ElZakker about his recently published paper, "Chronic Fatigue from Vagus Nerve Infection: A Psychoneuroimmunological Hypothesis". |
• |
Encouraging Fibromyalgia Study Results Now Available At ClinicalTrials.gov
US company AVACEN Medical has announced that ClinicalTrials.gov, a service of the U.S. National Institutes of Health, has published the results of the company's Fibromyalgia clinical trials. |
• |
One Man With A Rucksack
A profile of Paul Haines, a man who had ME/CFS for 19 years, and is now embarking on Peacewalk 2015, walking from Rome to Jerusalem. |
• |
UK Lyme Disease Sufferer's Symptoms Could Not Be Explained By Doctors
A woman from the UK has tested positive for Lyme disease after suffering with symptoms doctors could not explain for almost 20 years. |
• |
The Debilitating Truth About Chronic Fatigue Syndrome
An article from the International Business Times about ME/CFS in the UK. |
• |
Maker Of Pain-Relieving Copper Clothing Slammed With $1.35 Million Settlement
US company Tommie Copper Inc. is in big trouble with the Federal Trade Commission (FTC) for claiming that its copper clothing can relieve the pain associated with multiple conditions, including Arthritis, Fibromyalgia, and Multiple Sclerosis. |
• |
It's Time For Doctors To Apologise To Their ME Patients
An article by Dr Charles Shepherd, medical adviser to the UK's ME Association. |
• |
Study Proposes New Name, Definition, Biomarkers
Researchers from Australia's Deakin University have suggested a new case definition and biomarkers for ME/CFS, as well as a proposed new name: "Neuro-Inflammatory and Oxidative Fatigue". |
• |
UK Woman Creates Kindness Advent Calendar To Spread Festive Joy
Despite having ME/CFS, a UK woman who is dedicating her life to bringing kindness to the local community has produced an advent calendar which she says will "really bring a smile to people's lives". |
• |
Centrelink Worker With ME/CFS Wins Compensation
A public servant at Centrelink who contracted a phobia of her work after changing duties has won compensation. |
• |
New Zealand Woman Completes Double Degree From Bed
A New Zealand woman with a severe case of Chronic Fatigue Syndrome has graduated with a double degree after more than a decade of study. |
• |
Cough Medicine Drug Comes From Herb That Helps Pain, Possibly Fibromyalgia
An article about the potential benefits of guaifenesin. |
• |
What It Takes For The Queen Mary University To Declare A Request For Scientific Data "Vexatious"
An article by James C Coyne about his attempts to access PACE Trial information from London's Queen Mary University. |
• |
What Doctors Are Finally Starting To Understand About Chronic Fatigue Syndrome
A profile of ME/CFS sufferer Ann Cavanagh Kramer. |
• |
Cheap New Device Brings Relief To Chronic Pain Sufferers
A small and cost-effective new device is providing much-needed relief for many Australians who suffer from intense chronic pain. |
• |
Nesta The Dog Is Woman's Best Friend For UK Mum Jill Who Suffers ME, Fibromyalgia And CFS
A UK woman who suffers with three debilitating health conditions has spoken about getting her life back thanks to a charity dedicated to improving people's lives through specially trained dogs. |
• |
Society Seminars For 2016
A list of Society seminars for 2016. |
November |
• |
No Dissing! NHS Choices 'Behind The Headlines' Needs To Repair Relationship With Its Readers
An editorial by James C Coyne about the UK's NHS Choices "Behind the Headlines" coverage of a PLOS Medicine article concerning the PACE Trial. |
• |
FDA Says Some Lyme Disease Tests Are Dangerous
Last November the US Food and Drug Administration (FDA) stated it was going to start regulating what it calls "Laboratory Developed Tests". |
• |
Medical Marijuana Great For Migraine, Fibromyalgia And Irritable Bowel Syndrome, Survey Finds
One-hundred percent (100%) of people with migraine headache, Fibromyalgia or Irritable Bowel Syndrome who use medical marijuana for a minimum of 30 days report a reduction in pain and discomfort, a survey found. |
• |
Queen Mary University Of London To Appeal Information Commissioner's Decision On Disclosure Of PACE Trial Data
An article from UK laywer and ME/CFS sufferer Valerie Eliot Smith. |
• |
Carl-Gerhard Gottfries: A Swedish Chronic Fatigue Syndrome Story
A profile of Swedish psychiatrist and ME/CFS researcher Carl-Gerhard Gottfries. |
• |
Visual Stress Could Be A Symptom Of Chronic Fatigue Syndrome, Research Suggests
People suffering from Chronic Fatigue Syndrome could experience higher levels of visual stress than those without the condition, according to new research from the UK's University of Leicester. |
• |
'Nostalgia' Art Exhibit Brings To Life Visual Representations Of The Past
Canada's Summerside Art Club has an all-new show entitled “Nostalgia,” which brings to life memories and interpretations of artists in a dazzling display. |
• |
Sleep Improvement For Fibromyalgia Sufferers Possible, Study Shows
A new drug being tested in clinical trials to treat Fibromyalgia, called Tonmya, is showing promise for sleep improvement and pain reduction. |
• |
Professor James Coyne Declares "Moral Equivalent Of War" On PACE
In a recent public talk in Edinburgh, psychologist Professor James Coyne declared the “moral equivalent of war” on the practices and assumptions that, he said, have allowed the “bad science” of the PACE trial to go unchallenged by scientists and the media. |
• |
Support Medical Research While You Shop Online
Researchers have focused on a group of female Fibromyalgia patients who were able to decrease their pain by simply walking. |
• |
Fibromyalgia Patients Benefit From Surprisingly Simple Exercise
Researchers have focused on a group of female Fibromyalgia patients who were able to decrease their pain by simply walking. |
• |
Muscle Strength And Flexibility Linked To Pain For Women With Fibromyalgia
A study released earlier in the year found that Fibromyalgia patients who took more steps each day experienced less pain. |
• |
Interview With Online Entrepeneur and ME/CFS Sufferer Lizzy Goddard
An interview with UK online entrepeneur Lizzy Goddard. |
• |
Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped At 14,000 Words – Enough Was Enough
An article by journalist David Tuller about his work analysing the UK's PACE Trial. |
• |
ME Association Settles Differences With Daily Telegraph Over PACE Trial Reporting
The UK's ME Association and the Daily Telegraph have settled their differences about the paper’s coverage of the latest PACE Trial follow-up paper on October 28 – with both sides agreeing that stories that appeared that day contained inaccuracies that were not supported by the evidence. |
• |
New Approach To Fibromyalgia Tackles Poor-Quality Sleep
For patients with Fibromyalgia, directing treatment toward nonrestorative sleep, a key feature of the syndrome, leads to improvements in other symptoms of the disease, including pain, according to two analyses of data from the phase 2b placebo-controlled BESTFIT study. |
• |
Determining Biomarkers For A Diagnostic Test Of ME/CFS
Research from New Zealand's University of Otago. |
• |
Australian Senator Questions Government On Lack Of Action On ME/CFS
West Australian Senator and deputy leader of the Greens party, Scott Ludlam, has asked the Australian Government what they are doing for people with myalgic encephalomyelitis. |
• |
MitoQ Trial For Chronic Fatigue Syndrome, Fibromyalgia And Mitchondrial Disorders Begins
Charles Moore asks "Could mitochondrial problems be key to explaining CFS/FM symptoms?". |
• |
Fibromyalgia: Milnacipran Outcomes, Potential Biomarker For Treatment
A new study analyzed multiple areas of Fibromyalgia including pain, brain characteristics, and medication efficacy, which resulted in some very telling conclusions. |
• |
Claire Fabb's Battle With Chronic Fatigue Syndrome
A profile of Australian fashion stylist and ME/CFS sufferer Claire Fabb. |
• |
No Sound Evidence To Support Use of Cannibinoids
There is "no sound evidence" for clinicians to recommend that patients with rheumatic diseases take cannabinoid treatments, according to a review published online November 9 in Arthritis Care & Research. |
• |
An Open Letter To Dr. Richard Horton And The Lancet
An open letter from six leading ME/CFS researchers in response to the medical journal The Lancet publishing the PACE Trial results. |
• |
The PACE Trial: A Time For Reflection – A Time For Retraction
An editorial from UK website Invest in ME. |
• |
ME Isn't Just 'Exercise Phobia': It's A Physical Illness
An article by Tanya Marlow about ME/CFS in the UK. |
• |
Hope For Chronic Fatigue Syndrome
An article by US journalist Julie Rehmeyer about the latest developments in ME/CFS research. |
• |
Society Annual General Meeting
The society's Annual General Meeting is today, Saturday 14 November at 1:30 pm in Sophia House, Cumberland Park. |
• |
Francis Collins Gets It About Chronic Fatigue Syndrome On Charlie Rose Show
A video of Francis Collins, director of the US National Institutes of Health, in which he talks about the need for more funding for ME/CFS. |
• |
More Is Better: Rituximab Trial Boosts Hopes For Chronic Fatigue Syndrome
An in-depth article by Cort Johnson about Rituximab, an anti-cancer drug that may prove helpful for people with ME/CFS. |
• |
Time To Swot Up On Chronic Fatigue
Future general practitioners need to be made aware that “psychosomatic” should not be the default suspicion when presented with ME/CFS. |
• |
US Family Battles With Son's Mysterious Chronic Fatigue Syndrome
A world-famous Stanford scientist is working to unravel a mysterious disease that is hard to diagnose and even harder to treat, and the patient is his son. |
• |
Society News: New Volunteers
A message from the society's management committee about a new surge in volunteers. |
• |
Society Annual General Meeting Reminder
A reminder that the society's Annual General Meeting will be held this Saturday, 14 November at 1:30 pm in Sophia House, Cumberland Park. |
• |
Fighting Over Fatigue
Virginia Gewin investigates how people can do medical research on Chronic Fatigue Syndrome when divisions between patients, doctors and researchers are almost as chronic and painful as the disease itself. |
• |
Chronic Fatigue Syndrome Recognized At Last
After 30 years of neglect, the US federal government has promised to bolster research on ME/CFS – the equivalent of promising to help multiple sclerosis or Parkinson’s, two other important neurological diseases with no known cause or cure. |
• |
Save The Gottfries Clinic
A petition from #MEAction to help stop the closure of the Gottfries clinic in Sweden, which specialises in the treatment of ME/CFS patients. |
• |
UK Teen With Chronic Fatigue Syndrome Awarded Funding To Battle Illness
A UK teenager who has been fighting for treatment after being diagnosed with ME/CFS more than a year ago says his life has been turned around after finally been awarded funding. |
• |
Not Just Tired! Oprah Features Chronic Fatigue Syndrome In "O"
Cort Johnson highlights a feature article about ME/CFS in Oprah Winfrey's O magazine. |
• |
Trial By Error, Continued: Why has the PACE Study’s "Sister Trial" been "Disappeared" and Forgotten?
An investigation by David Tuller. |
• |
Doctor's Diary: It's Too Good To Be True That Exercise Can Help Chronic Fatigue Syndrome Sufferers
An article published in UK newspaper The Telegraph. |
• |
Missing Link Found Between Brain, Immune System – With Profound Disease Implications
In a stunning discovery that overturns decades of textbook teaching, researchers at the University of Virginia's School of Medicine have discovered that the brain is directly connected to the immune system by vessels previously thought not to exist. |
• |
"Walk" In My Shoes
Australian disability advocate Di Lyons is asking people to "put a politician in a wheelchair for a day", for International Day of People with Disability on 3 December 2015. |
• |
European Union Agency Finds Syndromes Not Caused By HPV Vaccine
The European Union's Pharmacovigilance Risk Assessment Committee has found that available evidence does not support the view that Complex Regional Pain Syndrome and Postural Orthostatic Tachycardia Syndrome are caused by HPV vaccines. |
• |
UK Government Orders Release Of PACE Trial Data
The UK's Information Commissioner's Office (ICO) has ordered the Queen Mary University of London to release anonymized PACE trial data to an unnamed complainant. |
• |
You Aren't Entitled To An Opinion On My Chronic Illness
An op-ed piece by UK journalist, broadcaster, and disability activist Rosie Fletcher. |
• |
ME/CFS Webinar: Gene Expression And Exercise
A video in which Dr. Lucinda Bateman talks about gene-expression and exercise in people with ME/CFS. |
• |
Exhibit Showcases Health Care Obstacles For Chronic Pain Sufferers
An article from Canadian news outlet the Waterloo Region Record. |
• |
Analysing Biological Rhythms In Fibromyalgia
Research published in the West Indian Medical Journal. |
• |
Planning My Life Around Chronic Fatigue Syndrome
An article by New Zealand ME/CFS sufferer Emma Williamson about her life with the disease. |
• |
Research Highlights Altered CNS Processing For Fibromyalgia Patients
A new German study in BMC Neurology, using functional near-infrared spectroscopy on the brain, has discovered altered central nervous processing in patients with Fibromyalgia, as well as a distinction between Fibromyalgia and major depression. |
• |
Eight-Year-Old Girl With ME/CFS Battles Both Illness And Ignorance
A profile of eight-year-old UK ME/CFS sufferer Kaylah Davies. |
• |
The Tragic Neglect Of Chronic Fatigue Syndrome
An article in The Atlantic about the state of funding for ME/CFS. |
• |
Solving The Mysteries Of Fibromyalgia Could Help Patients Break Free
The latest research into Fibromyalgia from the University of Alabama. |
• |
Sleep Quality And The Treatment Of Intestinal Microbiota Imbalance In Chronic Fatigue Syndrome: A Pilot Study
Research published in the medical journal Sleep Science. |
• |
Influenza Vaccination Is Safe And Effective In Patients Suffering From Fibromyalgia Syndrome
Research published in the medical journal Reumatismo. |
• |
Painful Reminder: "Fibromyalgia Strips Away Your Self Esteem"
A profile of Irish Fibromyalgia sufferer Claire Jackson. |
• |
Uninterpretable: Fatal Flaws In PACE Chronic Fatigue Syndrome Follow-Up Study
An article by James Coyne in The Seattle Star about the controversy surrounding the UK's PACE Trial recommendations. |
• |
Often Bedridden For 25 Years, Advocate Welcomes NIH Move On Fatigue Syndrome
An article by Rivka Solomon about the state of ME/CFS research in the US. |
• |
UK Newspaper The Spectator Argues With Itself
Two conflicting articles from The Spectator about the PACE Trial. |
• |
Unique NHS Service Launched To Combat Long-Term Fatigue
A new fatigue clinic in UK city Newcastle will treat fatigue patients and carry out research. |
• |
Chronic Fatigue Sufferers Need Help And More Research – Not Misleading Headlines
An article from The Guardian that discusses the fallout from the PACE Trial. |
• |
Chronic Fatigue Linked To Abnormal Brain Connectivity At Rest
A recent study has shown that patients with chronic fatigue have decreased signaling and communication between specific brain regions when the brain is at rest. |
• |
Serum Immune Proteins In Moderate And Severe ME/CFS Patients
Research from the National Centre for Neuroimmunology and Emerging Diseases at Griffith University in Queensland. |
• |
The Last Great Medical Cover Up
A 36-minute documentary about ME/CFS in the UK, featuring interviews with six sufferers. |
• |
"No One Chooses To Have ME – Everything Changed When I Became Ill"
As a new UK study suggests that ME can be beaten through therapy and exercise, long-term sufferer Tom Kindlon says it's not that simple. |
October |
• |
A Boost For Chronic Fatigue Syndrome Research
The US National Institutes of Health has announced that it will strengthen its efforts to find the roots of ME/CFS. |
• |
You Can't Just Wish Chronic Fatigue Syndrome Away. I'm The Terrible Proof
An article by UK ME/CFS sufferer Jill Stratton about her life with the disease. |
• |
Capsaicin For Fibromyalgia And Chronic Fatigue Syndrome
An article about the potential benefits of using capsaicin topical cream for the relief of Fibromyalgia and ME/CFS symptoms. |
• |
PACE Trial Controversy Grows
The UK's #MEAction Network covers the growing controversy regarding the publication of the PACE Trial. |
• |
Karina Hansen Spends Third Birthday Institutionalized
An article about the current situation regarding Danish ME/CFS sufferer Karina Hansen. |
• |
UK News Article About ME/CFS Ignores Reality, Evidence
UK newspaper The Telegraph says the Oxford University has found Chronic Fatigue Syndrome is not actually a chronic illness and sufferers can overcome symptoms by increasing exercise and thinking positively. |
• |
US ME/CFS Researcher Nancy Klimas Receives Award
Nova Southeastern University Executive Vice President and Provost Ralph V. Rogers Jr., Ph.D., recently presented Nancy Klimas, M.D., with the 5th Annual Provost’s Research and Scholarship Award. |
• |
No, It Isn't All In Your Head
An article by Steve Lubet in US law blog The Faculty Lounge. |
• |
Singapore Cyclist Dinah Chan Recovering From Chronic Fatigue Syndrome
Cyclist Dinah Chan was diagnosed with chronic fatigue syndrome in July, which caused her to experience prolonged periods of exhaustion, but says she is now 75 per cent fit. |
• |
Foundation of Fibromyalgia Is Altered Central Nervous System, New Study Validates
A new study validates the recent finding that Fibromyalgia appears to originate from the central nervous system. |
• |
Investigative Reporter Shreds PACE CBT/GET Trial
Health Rising's Cort Johnson discusses the recent in-depth analysis of the UK PACE trial by journalist David Tuller. |
• |
Interview With Stuart Murdoch
An interview with Stuart Murdoch, the lead singer and chief songwriter of Scottish pop band Belle and Sebastian, who suffers from ME/CFS. |
• |
A Mother Daughter Team Fights Fibro, RA, CRPS, And More
A profile of Elaine Gomez and her daughter, Michelle DeMont, who suffers from Fibromyalgia and other diseases. |
• |
Chronic Illness Doesn't Define Me
An article by Lucy Brown about her life with Fibromyalgia. |
• |
Can ME/CFS Be Caused By Lyme Disease?
An article by American ME/CFS specialist Dr David S Bell. |
• |
Perth Researchers Examine Whether Local Ticks Cause Lyme Disease In Australia
A national study led by a Perth-based researcher could be one step closer to ending the Lyme disease debate in Australia for good. |
• |
A New Case Definition Of Neuro-Inflammatory And Oxidative Fatigue
A study entitled "A new case definition of Neuro-Inflammatory and Oxidative Fatigue (NIOF), a neuroprogressive disorder, formerly known as chronic fatigue syndrome or Myalgic Encephalomyelitis: results of multivariate pattern recognition methods and external validation by neuro-immune biomarkers". |
• |
Abnormal Resting-State Functional Connectivity In Patients With ME/CFS
A study that investigated the association between fatigue and altered resting-state functional connectivity in ME/CFS. |
• |
Passion And Pain: Photographer Trains Human Trafficking Survivors
A profile of US photographer and Fibromyalgia sufferer Brooke Shaden. |
• |
Scottish Mum Tells Of Son's ME Diagnosis Battle
A look at the state of healthcare for ME/CFS sufferers in Scotland through the eyes of Laura McHard, the mother of 19-year-old ME/CFS sufferer, Sam Boyd. |
• |
Voices: What It's Like To Live With An Invisible Disability
A look at how schools in the US accommodate students with invisible disabilities such as Fibromyalgia. |
• |
Aerobic Energy Production And Lactic Acid Excretion Impeded In ME/CFS
A study published in the Journal of Neurology and Neurobiology. |
• |
Combination Of Strategies Reduces Fibromyalgia Symptoms In Adolescents
Intensive physical therapy and occupational therapy coupled with psychotherapy can significantly improve pain and function among youth with Fibromyalgia, according to a study of teenagers who participated in a program designed to treat the condition without the use of drugs. |
• |
Institute Of Medicine Diagnostic Criteria Redeemed?
Health Rising's Cort Johnson discusses ME/CFS researchers Nancy Klimas and Leonard A Jason's response to the US Institute of Medicine's report, Beyond Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: Redefining an Illness. |
• |
Chronic Fatigue Syndrome: What Is It Really Like?
An article by Athena Hobson. |
• |
Study Finds Medical Marijuana Safe And Effective For Chronic Pain Relief
A research team led by Dr. Mark Ware from the McGill University Health Centre in Montréal, Canada has found that chronic pain patients who used cannabis daily for one year, when carefully monitored, had no increase in serious adverse events compared to pain patients who did not use cannabis. |
• |
Fibromyalgia Aggravates Pain And Cognitive Capabilities Of Chronic Fatigue Syndrome Patients
A team of researchers from Vrije Universiteit Brussel and the University of Antwerp, in Belgium, found that Fibromyalgia increases the disability of Chronic Fatigue Syndrome patients. |
• |
UK Mum Is Learning To Live With An Incurable Condition
A profile of UK ME/CFS sufferer Julie Cushion. |
• |
"I'm 27 And Sleep 20 Hours A Day – This Illness Has Affected Everything In My Life"
A profile of Scottish ME/CFS sufferer Kevin McKinlay. |
• |
With His Son Terribly Ill, A Top Scientist Takes On Chronic Fatigue Syndrome
A profile of Ronald W. Davis, a US genetic scientist trying to solve the mystery of ME/CFS. |
• |
An Interview With Jon Kaiser – Supporting Mitochondrial Function In ME/CFS
An interview with US doctor Jon Kaiser, MD, about the formation of his company, K-PAX Pharmaceuticals, and its latest products, specificall designed to support mitochondrial function in ME/CFS patients. |
• |
Forgotten Plague: A Must See Documentary
An article that takes a look at the documentary Forgotten Plague: M.E. and the Future of Medicine. |
• |
The US Health Care Industry Finally Recognises Fibromyalgia
On October 1, 2015, Fibromyalgia will finally be recognized as an official diagnosis in the new ICD-10 list of codes being adopted across the US. |
• |
6 Reasons Why Trigger Point Injections Aren't Helping Your Fibromyalgia
An article by registered nurse Celeste Cooper about the difference between a tender point and a trigger point, and how injections in one might not help the other. |
• |
Fibromyalgia Linked To Deficiencies In RBC Magnesium, IGF-1
Patients with Fibromyalgia show deficiencies in red blood cell (RBC) magnesium and insulin-like growth factor 1 (IGF-1), a small study shows, suggesting potential clues to underpinnings of the condition and avenues for treatment. |
September |
• |
Irish Woman To Run For Fibromyalgia Awareness
Fibromyalgia sufferer Dawn McEvoy will tackle her very first 5km run when she takes part in Belfast Telegraph Titanic Runher. |
• |
Natural Killer Cells In ME/CFS and Multiple Sclerosis
Research published in the Scandinavian Journal of Immunology. |
• |
ME/CFS: Characteristics Of Responders To Rintatolimod (Ampligen)
Research published in Sci Forschen: Journal of Drug Research and Development. |
• |
Not Just Any Road Project
The frustrations of residents living on a dusty road in the US filled with washboard ruts and potholes are being pitted against a husband and wife’s concerns about her chemical sensitivity, and what they say could be a life-threatening reaction to asphalt work. |
• |
Ultrasound For Pain Therapy Discussed At PAINWeek Conference
Ultrasound technology has been used for decades in medical imaging of soft-tissue structures and bony surfaces, but its potential for use in managing pain — particularly chronic pain — is being less than fully exploited, according to some pain experts. |
• |
Vitamin D Levels Linked To Fibromyalgia Pain
Low levels of serum vitamin D were associated positively with patients with Fibromyalgia who had chronic, widespread pain, according to the results of a recently published meta-analysis. |
• |
The New Technique That Finds All Known Viruses In Your Blood
An article about the latest developments in virus detection, developed by ME/CFS specialist Ian Lipkin at Columbia University in the US. |
• |
Phones 4U Founder John Caudwell 'Devastated' After Family Is Diagnosed With Lyme Disease
John Caudwell, founder of the UK company Phones 4U, has spoken of his devastation after his ex-wife and children were all diagnosed with Lyme disease, a rare and debilitating bacterial infection. |
• |
Chronic Fatigue Treatment Inadequate, Says Doctor
Prominent British doctor, Dr Charles Shepherd, has spoken about the lack of treatment options for Chronic Fatigue Syndrome sufferers on the Isle of Man. |
• |
Fibromyalgia Tied To Hysterectomy, Gynecologic Disease
A study published in mid-2015 shores up the link between gynecologic surgery and Fibromyalgia onset. |
• |
No Unusual Activity With Lactic Acid Seen In Patients With Fibromyalgia, Migraine
According to a recently published study, patients with Fibromyalgia, migraine or both did not exhibit any differences in the metabolism of lactic acid before, during or after aerobic or anaerobic exercise compared to healthy volunteers. |
• |
Study Shows Immune Differences In Moderate And Severe CFS/ME
Griffith University researchers have looked at the immune systems of patients with moderate and severe CFS/ME once, then again six months later, and the study has been published in the Journal of Translational Medicine. |
• |
Ultrasonography Useful In Deciding Treatment For FM/RA Patients
Ultrasonograph research suggests that disease activity scores in patients with Rheumatoid Arthritis and concomitant Fibromyalgia may be artificially inflated due to pain and patient distress. |
• |
Female Pain: Living With An Illness That No One Believes In
An essay on the social effects of Fibromyalgia. |
• |
Hemispherx Biopharma Reports Low NK Cell Activity In Chronic Fatigue Syndrome
US drug company Hemispherx Biopharma has announced the publication of an article entitled "Low NK Cell Activity in Chronic Fatigue Syndrome (CFS) and Relationship to Symptom Severity" in which 17 studies were reviewed that evaluated NK cell cytotoxicity (NKCC) data and the relationship to CFS. |
• |
Chiropractic Foundation And National Fibromyalgia Association Collaborate At Chronic Pain Conference
The National Fibromyalgia & Chronic Pain Association and the International Myopain Society have collaborated to create the Inaugural Treating and Preventing Chronic Pain Conference to be held in October 2015 in the US. |
• |
Mayor Of Reading Raising Fibromyalgia Awareness
A UK mayor is hosting an evening reception in support of National Fibromyalgia Awareness Week. |
• |
Battling Chronic Fatigue
A feature article on ME/CFS published in The Australian Women's Weekly magazine. |
• |
Chronic Fatigue: A Call For Real Answers To A Real Disease
An article by Shannon Firth of MedPage Today about the state of ME/CFS in the US. |
• |
People's Campaign For Preventing Chronic Pain
The International Myopain Society and the National Fibromyalgia and Chronic Pain Association have initiated the People’s Campaign for Preventing Chronic Pain to support helping every person who has or will have chronic pain. |
• |
Over 30% Of Patients With Primary Sjögren's Syndrome May Have Fibromyalgia
Overlapping Fibromyalgia may be present in 30% or more of patients with primary Sjögren’s syndrome based on the American College of Rheumatology 2010 criteria, but only 19% of the same patients met 1990 criteria, according to the results of a study. |
• |
The Impact Of Chronic Fatigue Syndrome On Cognitive Functioning In Adolescents
Research published in the European Journal of Pediatrics. |
• |
Fibromyalgia In Children: No Medication Required
An article by Dr David Sherry, director of the Amplified Pain Program at The Children's Hospital of Philadelphia. |
• |
UniSA Seeking Participants For Adelaide ME/CFS Research
The University of South Australia is about to conduct ME/CFS research and is calling for participants. |
• |
Hormonal Changes May Affect Fibromyalgia Onset
To determine if the clinical features and timing of hormonal changes have a relationship in a cohort of ethnically diverse individuals, a group of US researchers conducted a year-long review of Fibromyalgia patients. |
• |
Otago University Locals Programme Raises Funds For Fibromyalgia Foundation In Bake Sale
A New Zealand university's "Locals" programme raised over $700 for Fibromyalgia Foundation as part of their fundraising campaign for the charity. |
• |
Multidisciplinary Treatment Versus CBT For Patients With ME/CFS
The results of a study entitled "Multidisciplinary rehabilitation treatment versus cognitive behavioural therapy for patients with chronic fatigue syndrome: a randomized controlled trial". |
• |
Daytime Napping Associated With Increased Symptom Severity In Fibromyalgia Syndrome
A study that explored how people use daytime naps and to determine the links between daytime napping and symptom severity in Fibromyalgia. |
• |
Stage Your Screening Of Forgotten Plague
The ME/CFS documentary, Forgotten Plague, can be screened in a variety of places depending on demand. |
• |
New Research Gives Insight Into Chronic Fatigue Syndrome
Researchers have discovered that critical cell receptors are damaged in people who suffer from ME/CFS. |
• |
Bestselling Author's Latest Novel Features Girl With ME/CFS
The latest novel by Irish crime fiction author John Connolly features a character with ME/CFS. |
• |
New Business In The UK Says Floating Therapy Can Help
UK MP Alok Sharma visited a new business in Pangbourne which could help people with Fibromyalgia. |
• |
Ian Lipkin Gets ME/CFS Grant – And So Do Others: The NIH Grants Of 2015
A report by Cort Johnson on the state of funding for ME/CFS research by the US National Institutes of Health. |
• |
New Book From Dr Rosamund Vallings
New Zealand ME/CFS specialist Dr Rosamund Vallings has published a book entitled Managing ME/CFS: A Guide for Young People. |
• |
Megan Schartner's Foggy Frog And The Pain Gang Helps To Explain Chronic Fatigue And Constant Pain
A profile of South Australian ME/CFS sufferer, and now children's author, Megan Schartner. |
• |
Interview With Australian ME/CFS Researcher Professor Don Staines
An interview with Professor Don Staines on Australian radio station 612 ABC Brisbane. |
August |
• |
The ME/CFS Severely Ill Big Data Study – Update
The latest in the Open Medicine Foundation's ME/CFS Severely Ill Big Data Study, as part of the End ME/CFS Project. |
• |
New Potential Therapeutic Strategy For Severe Pain Based On Nanorods
Researchers at Kyoto University’s Institute for Integrated Cell-Material Sciences in Japan recently reported a novel technique with potential therapeutic relevance for the management of pain. |
• |
Juvenile Fibromyalgia: Intensive Therapy Relieves Pain
Children with Fibromyalgia experienced significant improvements in pain and function without medications after an intensive program of physical therapy, occupational therapy, and psychosocial services, according to a new study. |
• |
A Doctor Treating Fibromyalgia Who Also Has Fibromyalgia
An interview with US Fibromyalgia specialist and sufferer Ginevra Liptan, MD. |
• |
Duloxetine Effective For Fibromyalgia Patients In Japan
A study recently published in the journal Arthritis Research & Therapy revealed new data from a phase III clinical trial showing that duloxetine (Cymbalta) is a safe and effective therapy for Fibromyalgia patients. |
• |
Fibromyalgia – Does Melatonin Help?
An article about the use of melatonin to help alleviate sleep problems in people with Fibromyalgia. |
• |
Southern Research Receives $4.5M NIH Grant To Develop Opioids With Milder Side Effects
US drug research company Southern Research was recently awarded a grant from the National Institute on Drug Abuse of the National Institutes of Health to fund the development of opioid drugs for chronic pain. |
• |
NeuroMetrix Reports Positive Preliminary Results On Quell Wearable Pain Relief Device For Chronic Pain
Healthcare company and wearable medical device developer, NeuroMetrix, Inc., has just announced it arrived at positive preliminary clinical trial results with Quell Wearable Pain Relief, an easy-to-use, over-the-counter device for chronic pain. |
• |
How Poetry Can Empower People Living With Chronic Illness
For Camisha Jones, the managing director of US-based poetry organization Split This Rock, poetry helped give voice to the experience of chronic illness. |
• |
Researchers Find Potential Targets To Improve Sleep In Patients With Fibromyalgia
In a new study published in the Journal of Neurophysiology, researchers constructed a computational model that recreated the sleep patterns observed in patients with Fibromyalgia to understand how the abnormal patterns arose. |
• |
Primary Health Care Review – Online Survey
Painaustralia is asking people to complete an online survey about pain management. |
• |
Suffering In Silence
A profile of Canadian Fibromyalgia sufferer Leah, who will participate in the "Just One More Step" Fibromyalgia awareness walk. |
• |
Lobbyists Seek New Funds For Chronic Fatigue Syndrome Research
Patient advocates and scientists have joined forces in a new campaign to boost research funding for the mysterious and debilitating disease ME/CFS. |
• |
For Disabled Music Writer, A Note Of Hope
An article about a concert being held to help US music journalist and ME/CFS sufferer, Kevin Ransom. |
• |
How This Couple Fought Through Illness To Find A New Destiny
A profile of chronically ill couple Randy Ordonio and Franky Dolan. |
• |
Melatonin Helps Fibromyalgia Pain: A Double-Blind Study
Melatonin is popularly used as a sleeping pill, but several double blind studies suggest that Melatonin might also help in combating Fibromyalgia pain. |
• |
Lack Of Sleep May Exacerbate Chronic Illnesses
Getting a good night's sleep can be difficult for the average person, but for those living with chronic illness the struggle can be much worse. |
• |
Gender Differences In Chronic Fatigue Syndrome
A study from Spain that aimed to assess whether there are gender-related differences in CFS, and to define a clinical phenotype in men. |
• |
Time To Recognise Chronic Pain With Effective Health Policy
People living with chronic pain, and the health professionals working to help them, have a one-off chance to tell their stories and make recommendations to a federal parliamentary inquiry into the management of chronic disease in Australia. |
• |
Latest Non-Invasive Medical Treatment Stimulates Neurons To Reduce Symptoms Of Fibromyalgia
In a unique double-blind study, the Monash Alfred Psychiatry Research Centre (the Research Centre) is investigating the clinical potential of repetitive Transcranial Magnetic Stimulation (rTMS), a non-invasive treatment that uses magnetic fields to stimulate neurons in the brain, for the treatment of Fbromyalgia. |
• |
Myofascial Pain Syndrome And Fibromyalgia: Similar Symptoms, Distinct Diseases
An article on the similarities and differences between myofascial pain syndrome and Fibromyalgia. |
• |
Fibromyalgia Symptoms May Mimic High Disease Activity In Patients With RA
Symptoms of Fibromyalgia may mimic high disease activity in patients with rheumatoid arthritis, according to recently presented data. |
• |
Jade Plans To Fight Through The Pain On 200-Mile Walk
An aricle about Jade Pierce, a Welsh woman with Fibromyalgia who plans to walk 150 miles (241 km) across England for charity. |
• |
How Social Media Inspired A Chronic Fatigue Sufferer
A profile of 19-year-old ME/CFS sufferer Felicity Fernandez. |
• |
Humans Of ME/CFS: Share Your Story
The Solve ME/CFS Initiative is launching a campaign to help increase awareness of – and ultimately research funding for – ME/CFS. |
• |
Society Seminar Today
One more reminder that the society's next seminar is today (Saturday), 8 August at 1:30 pm in Sophia House, Cumberland Park. |
• |
Fibromyalgia: Battling An Invisible Internal Enemy
Australian photographer Desiree Robinson was diagnosed with Fibromyalgia in 2009, and has made a video about the disease. |
• |
Fibromyalgia Drinking Therapy Concerns Doctors
A new study reveals that drinking therapy may help reduce the symptoms of chronic pain and Fibromyalgia, but doctors are concerned that encouraging patients to drink more alcohol will lead to serious consequences and make their health worse. |
• |
Can Car Crashes Cause Fibromyalgia?
A new study has found that people with Fibromyalgia had more than double the risk of being in a serious automobile accident, landing them in an emergency room, compared to others. |
• |
US Rapper With ME/CFS Releases Music Video
An interview with US rapper and ME/CFS sufferer Trip Lee about his latest music video and book, both of which were made to promote his latest album, Rise. |
• |
One More Step For Fibromyalgia
An article about Cheryl Young, a Canadian woman with Fibromyalgia who has created a charity walk called Just One More Step. |
• |
Society Seminar Reminder
A reminder that the society's next seminar will be held this Saturday, 8 August at 1:30 pm in Sophia House, Cumberland Park. |
• |
Tramadol/Paracetamol Improves Quality of Life in Chronic Pain Patients
A study entitled "Impact of Fibromyalgia Pain on Health-Related Quality of Life Before and After Treatment With Tramadol/Acetaminophen" that was published in the journal Arthritis & Rheumatism. |
• |
Chronic Fatigue Syndrome Causes Early Menopause, Other Gynecological Problems
A new study assessed whether gynecologic conditions are associated with CFS, and the findings published in the August edition of the journal Menopause. |
• |
Ex-Squaddie Given £8,000 Of Free Dentistry So He Can Smile At His Wedding
An ex-soldier from Scotland who completed three tours during his military service with the Royal Scots is receiving the ultimate wedding gift – having his smile rebuilt by a team of dental experts. |
• |
Aquatic Aerobic Exercise Offers Therapeutic Benefits To Fibromyalgia Patients
Researchers at Cukurova University in Turkey recently revealed that aquatic aerobic exercise offers clinical benefits to patients with Fibromyalgia. |
July |
• |
The Next Lyrica?
A Japanese drug company, Daiichi Sankyo, is making a huge bet on a new drug called mirogabalin for Fibromyalgia and other diseases. |
• |
New HOPE For You And ME
An article by Rich Carson, the founder of ProHealth, a website specialising in ME/CFS/Fibromyalgia news. |
• |
Reflections On The Institute Of Medicine's Systemic Exertion Intolerance Disease
An article by Dr Leonard A Jason about the US Institute of Medicine's recent recommendation to change the name of Chronic Fatigue Syndrome to Systemic Exertion Intolerance Disease. |
• |
Watching "Cake" A Painful, But Validating Experience
An article by Jennelle Janci about her reaction to the movie, Cake, starring Jennifer Aniston as a chronic pain sufferer. |
• |
Oral Colostrum For ME/CFS
A study entitled "Oral Colostrum Macrophage-activating Factor for Serious Infection and Chronic Fatigue Syndrome: Three Case Reports". |
• |
Canadian Drivers With Fibromyalgia More Likely To Be Involved In Serious Traffic Accidents: Study
Canadian drivers who have been diagnosed with Fibromyalgia appear to have an elevated risk of being involved in motor vehicle crashes, even years after their initial diagnosis, research suggests. |
• |
New Syndrome Links Anxiety And Physical Disorders
Patients with anxiety disorder may suffer from a range of comorbid physical conditions that constitute a novel syndrome, say US researchers, who claim that the syndrome has been overlooked by physicians who have previously dismissed the connections as simply somatic disorders. |
• |
Fibromyalgia Sleep Study
A US doctor has published a sleep study that simplifies the diagnosis for Fibromyalgia, could improve pain and stress, as well as address the lack of sleep in patients affected by the syndrome. |
• |
Kayla's Recovery Story
Reseachers found that people with chronic widespread pain who drank the equivalent of two pints of beer a day were better off than those who did not touch a drop. |
• |
Alcohol And Fibromyalgia
Reseachers found that people with chronic widespread pain who drank the equivalent of two pints of beer a day were better off than those who did not touch a drop. |
• |
The 50/10 Guide For Fibromyalgia Mobility
An article about strategies to counter stress in people with Fibromyalgia. |
• |
Canadian ME/CFS/FM Group In The Running For Good Karma Contest
Canada's National ME/FM Action Network has been nominated to win $2000 for research in the Karma Wellness Water contest. |
• |
Online Tools Help Ease Chronic Pain
Washington State University researchers have found that people can manage chronic pain and reduce their reliance on opioids through an Internet-based program that teaches non-medical alternatives like increased physical activity, thinking more positively, and dealing with emotions. |
• |
US Couple Uses Mustang Week To Raise Fibromyalgia Awareness
A couple in South Carolina is using Myrtle Beach Mustang Week to raise fibromyalgia awareness by introducing the first "Fibromyalgia Awareness Mustang." |
• |
How Persona 3 Helped Me Overcome Chronic Fatigue Syndrome
An article by Alex O'Neill about how a video game helped him overcome ME/CFS. |
• |
Fibromyalgia Common In Sleep Apnea
Researchers in Italy recently reported that Fibromyalgia is common among patients with obstructive sleep apnea. |
• |
Vitamin D Levels Associated With Fatigue, Musculoskeletal Pain In Patients With Fibromyalgia
Researchers from South Korea have presented study results on vitamin D deficiency in patients with rheumatic diseases such as Fibromyalgia. |
• |
Virus Hunters Turn To Social Media – And Chili Peppers
Why were two of the world's most eminent scientific researchers sitting down to munch their way through a plate of chili peppers, flavored with Tabasco sauce, setting their mouths on fire? |
• |
Heart Abnormalities In Chronic Fatigue Syndrome
Research is suggesting that ME/CFS is asociated with several irregularities in the heart. |
• |
BBC Broadcaster John Darvall on ME/CFS
BBC broadcaster John Darvall discusses his reaction to speaking with ME/CFS sufferer Naomi. |
• |
Nancy Klimas: This Illness Is Wicked – Myalgic Encephalomyelitis
A video featuring Nancy Klimas talking about ME/CFS. |
• |
When Fibromyalgia Strikes
An article about the difficulties of life for people with Fibromyalgia in Malta. |
• |
The Kaplan Center: Understanding And Treating ME/CFS
Three videos of Dr Gary Kaplan, from The Kaplan Center for Integrative Medicine, talking about ME/CFS. |
• |
Neurodynamic Mobilization Alleviates Symptoms Of Fibromyalgia
According to a new study, a form of exercise called neurodynamic mobilization may be able to help with reducing Fibromyalgia pain and other ailments associated with Fibromyalgia. |
• |
B Cell Depletion Benefits ME/CFS Patients
ME/CFS patients showed clinical improvement after extended treatment with the anti-B-cell monoclonal antibody rituximab. |
• |
Cholecalciferol Injection May Help Fibromyalgia
Patients with Fibromyalgia may have improvements in fatigue and musculoskeletal pain by increasing vitamin D levels through monthly, intramuscular cholecalciferol injection, according to recently presented research. |
• |
Chronic Fatigue Syndrome Saps Its Victims, But New Research May Find The Cause
In this article from California newspaper, Palo Alto Weekly, ME/CFS patients offer first-hand accounts of their illness. |
• |
Validity Of Chronic Fatigue Bolstered By Research
An article about the scientific inroads being made with ME/CFS research. |
• |
Canadian Resident's Home To Be Rebuilt By Habitat
A Canadian woman suffering from Multiple Chemical Sensititivies is having her home rebuilt by Habitat for Humanity. |
• |
Fibromyalgia: UK MP Suggests Soap Operas Could Raise Awareness
A UK Member of Parliament is urging writers of hospital soap operas to consider storylines about Fibromyalgia. |
• |
How Multiple Chronic Illnesses Shaped One Woman Into A Patient Advocate
A profile of ME/CFS/Fibromyalgia and patient advocate Michele Krisko. |
• |
UK Petition Acknowledging Those Suffering From Chronic Illnesses
A petition on Change.org that seeks to alert the UK Government to the plight of the chronically ill. |
• |
UK Cracking Down On The Sick And Defenceless
An article on the potential ramifications of the UK Government's current stance on those with disabilities. |
• |
Alternative Lab Tests May Not Reliably Diagnose Lyme Disease
Detailed clinical and laboratory evaluation cannot distinguish alternatively diagnosed chronic Lyme syndrome diagnosed by alternative laboratory methods from ME/CFS, according to a case-control study. |
• |
The Big Joy Of Small Villages
An item from the BBC about the art of making model villages. |
• |
The Advertiser Family Forum
A question about ME/CFS in the Family Forum section of the Saturday edition of Adelaide newspaper The Advertiser. |
• |
A Pathway To Progress: The Final P2P Report On ME/CFS Highlights Needs
An analysis by Cort Johnson of the US National Institutes of Health's "Pathways to Prevention" program which focused on ME/CFS. |
• |
Ambrosia Movie
A new Australian film that deals with the psychological impact of chronic pain in a young woman's life. |
• |
UK Snooker Players And Their Battles Off The Baize
A profile of UK snooker player Jason Weston who suffers from ME/CFS. |
• |
Unintended Consequences Of Not Specifying Exclusionary Illnesses For Systemic Exertion Intolerance Disease
A study that investigated the Institute of Medicine's recent proposal for a new case definition for ME/CFS, as well as a new name, Systemic Exertion Intolerance Disease (SEID). |
• |
Antibody Wipeout Found To Relieve Chronic Fatigue Syndrome
There have been promising results in a trial of the drug rituximab for ME/CFS patients. |
• |
UK ME/CFS Teenager's Support Dog To Have Vital Hip Operation
A UK teenager with Chronic Fatigue Syndrome who launched a campaign to raise cash for her beloved German Shepherd to have vital hip surgery is over the moon after vets offered to carry out the operation. |
June |
• |
Fibromyalgia Considered Lifelong Central Nervous System Disorder
Fibromyalgia is now considered to be a central nervous system disorder, according to University of Michigan professor of anesthesiology, Daniel J Clauw, MD. |
• |
Researchers Compare Twins' DNA To Discover Fibromyalgia Diagnosis
Researchers from King's College London are trying to develop an effective strategy to diagnose Fibromyalgia by comparing the DNA of twins in which one has the disease and the other one does not. |
• |
Thieves Steal Mobility Scooter, Walking Stick
Australian ME/CFS sufferer Geoffrey Brown, 73, says he has lost his independence after thieves stole his mobility scooter and walking stick from outside his home. |
• |
UK ME Sufferers Want To Set Up New Support Group
A new row is erupting over claims ME – or Chronic Fatigue Syndrome – is all in the head. |
• |
New Focus On Chronic Fatigue in Australia
A renewed focus on improving the diagnosis and management of patients with chronic fatigue has been welcomed, but an Australian expert says there is a long way to go before this complex illness is well understood. |
• |
Conflicts Of Interests Affect Fibromyalgia Drug Development
Studies have demonstrated that industry-funded research into Fibromyalgia is linked to an increased probability of pro-industry results. |
• |
The Fractured Self: Poetry Of Chronic Illness And Pain
A proposed anthology of Australia poetry that aims to further the discussion of living with chronic illness or pain. |
• |
Diagnostic Methods For ME/CFS – A Systematic Review
A research paper that reviewed methods to diagnose ME/CFS in adults and identify research gaps and needs for future research. |
• |
Extended-Release Gabapentin May Hold Promise For Treatment Of Fibromyalgia
A new study has revealed that gabapentin, a drug originally developed to treat epilepsy, may hold promise for treating Fibromyalgia as well. |
• |
Norwegian Prime Minister Gives Opening Speech At Awareness Event
The Norwegian Prime Minister, Erna Solberg, opened an arts and crafts exhibition entitled "Creating my freedom", which was organised by the Oslo & Akershus branch of the Norwegian Myalgic Encephalopathy Association and supported by the Norwegian government. |
• |
Chronic Fatigue Syndrome And Increased susceptibility To Upper Respiratory Tract Infections And Illnesses
Research that investigates if people with Chronic Fatigue Syndrome are more likely to suffer from upper respiratory tract illnesses than others. |
• |
Conscious Crafties
Conscious Crafties is a craft buying and selling website for anyone living with chronic illness, disability or caring for those affected. |
• |
Chronic Fatigue Syndrome Versus Systemic Exertion Intolerance Disease
A US study paper headed by Dr Leonard A Jason. |
• |
Study Assesses Economic Burden Of Fibromyalgia In The US
A team of scientists recently conducted research to assess the economic burden of those suffering with Fibromyalgia and chronic widespread pain in the United States. |
• |
About-To-Be-Dismissed Lawsuit Reveals Details Of Chronic Fatigue Syndrome-XMRV Research Fiasco
A case filed by Chronic Fatigue Syndrome researcher Judy Mikovits — and about to be dismissed on technical grounds — reveals that Mikovits believes her firing from a research institute was in retaliation for blowing the whistle on activities there. |
• |
'She Always Gave Me The Option To Walk Away': Life As A Young Carer For 24-Year-Old Paul Davies
A profile of UK carer Paul Davies, and his wife, ME/CFS sufferer Kate. |
• |
Recovery Rates For Children With ME/CFS
A study from the US that describes how recovery from paediatric CFS/ME is defined, how many children recover, and how long it takes. |
• |
US Football Star Dominique Easley Helps Raise Awareness Of Treatment For Fibromyalgia
US footballer, New England Patriot star Dominique Easley has partnered with the Centers for Integrative Medicine and Healing to educate and generate awareness on Fibromyalgia and an all-natural treatment of Fibromyalgia. |
• |
Online Publisher Battles Fibromyalgia Symptoms
A profile of Fibromyalgia sufferer, Joe Steck, who is the publisher of online newspaper, MankatoTimes.com. |
• |
Society Seminar Reminder
A reminder that the society's next seminar will be held this Saturday, 13 June at 1:30 pm in Sophia House, Cumberland Park. |
• |
A Simple Bacteria May To Be Blame For Unexplained Inflammatory Conditions
The National Treatment Centers for Environmental Disease has made a discovery about a condition called endotoxemia, which may help in the diagnosis and/or treatment of a variety of inflammatory syndromes such as ME/CFS, Irritable Bowel Syndrome, Crohn’s Disease etc. |
• |
Nelly Battles Chronic Fatigue To Become A Published Author
A profile of UK ME/CFS sufferer Nelly Harper, who has published her first book. |
• |
New Blood Test Can Identify Every Virus You've Ever Had
Researchers say a new blood test can pinpoint all the viruses in your body and may help explain the causes of complex diseases like type 1 diabetes and chronic fatigue syndrome. |
• |
ME/CFS And Fibromyalgia As Functionally Impairing As Major Diseases In Medical World
An in-depth look by Cort Johnson at ME/CFS, Fibromyalgia, and other diseases classified as "functionally somatic syndromes", meaning that they have an unexplained pathology. |
• |
Report Finds Graded Exercise Therapy Worsens Symptoms Of ME/CFS
An extensive article from the UK on why Cognitive Behavoural Therapy, Graded Exercise Therapy, and pacing are harmful to ME/CFS patients. |
• |
US Biotech Firm Agrees To Pay $2.75M Settlement
A Philadelphia biotechnology company has tentatively agreed to pay $2.75 million to resolve a lawsuit brought by its shareholders, who allege the company made “material misrepresentations and omissions” regarding the status of a new drug application for its lead new drug candidate, Ampligen. |
• |
Hyperbaric Hope For Fibromyalgia Sufferers
Women who suffer from Fibromyalgia benefit from a treatment regimen in a hyperbaric oxygen chamber, according to researchers at Rice University and institutes in Israel. |
• |
UK ME/CFS Teenager Sophie Perkins In Desperate Bid To Raise Money For Beloved Pet Hunter
A UK teenager who suffers from ME/CFS is desperately trying to raise £9,000 for her beloved German Shepherd dog who needs two hip operations. |
• |
Tai Chi Practice Can Help Fibromyalgia Patients
A study published in the journal Cell Transplantation demonstrated the benefits of Tai Chi in terms of aging and in Fibromyalgia patients. |
• |
'Fibromyalgia Falsehoods, Fakers, And Facts': Author's Interview
An interview with Dr. Kenneth Muhich, the author of his book, Fibromyalgia Falsehoods, Fakers, and Facts. |
May |
• |
A Father Responds: Riding Hard For ME/CFS Research
Peter Spearing, father of ME/CFS sufferer Stephanie, will be riding 100 kilometers in Tour de l'Île de Montréal cycling event to raise funds for the Simmaron Research Foundation. |
• |
Misdiagnosis On A Grand Scale?
An article from the UK about two research papers that back up claims of misdiagnosis with ME/CFS. |
• |
Australian Study Pinpoints Possible Gene Issues In Chronic Fatigue Syndrome
An article on the work being done at Griffith University's National Centre for Neuroimmunology and Emerging Diseases. |
• |
Beckie Butcher's 2012 Book To Be Presented At 2015 LA Pitchfest Event
My Battle with Chronic Fatigue Syndrome, a book by US ME/CFS sufferer Beckie Butcher, will be featured at the Book-to-Screen Pitchfest Los Angeles 2015 event. |
• |
New Group Intervention Program Improves Self-Management Of Fibromyalgia
A study recently published in the journal PLoS One showed that a group intervention program called PASSAGE was effective in helping patients with Fibromyalgia cope with the disease. |
• |
Examination Of Single Nucleotide Polymorphisms In Transient Receptor Potential Ion Channels
Research headed by Professor Sonya Marshall-Gradisnik at Griffith University's National Centre for Neuroimmunology and Emerging Diseases. |
• |
Isabel's Story Of A Life Worth Living
A profile of UK ME/CFS sufferer Isabel Walter. |
• |
Old Acquaintances Catch Up, Discover Shared Rare Disease At Support Meeting
A profile of two New Zealand friends, Graham Cozens and Paul Clegg, who reunited after 20 years at an ME/CFS support group meeting. |
• |
ME/CFS Sufferer Rachel To Participate In HBF Run For A Reason
Australian ME/CFS sufferer Rachel Goodsell will raise funds for the ME/CFS and Lyme Association of WA by participating in the 2015 HBF Run For A Reason. |
• |
Doctors Urged To Take Chronic Fatigue Syndrome More Seriously
ME/CFS sufferers like Christine Lisio hope the US Institute of Medicine's recent report, which states that chronic fatigue syndrome is a legitimate and serious disease, will get doctors to pay closer attention to their concerns. |
• |
Strong Correlation Discovered Between Fibromyalgia Pain And Quality Of Sleep
Research has found that not only does poor sleep result in more pain for Fibromyalgia patients, but it is also linked to a lower pain threshold. |
• |
Post-Exertional Malaise Questionnaire
DePaul University is conducting a research study to try and learn more about what occurs before and during post-exertional malaise for individuals with ME/CFS, as well as how these individuals define the term post-exertional malaise. |
• |
Australian National Register Of Environmental Sensitivities
The formation of the Australian National Register of Environmental Sensitivities aims to provide the background evidence to highlight the need for recognition and assistance for affected people. |
• |
Fibromyalgia Origins Found In Central Nervous System
Research suggests that Fibromyalgia is a lifelong central nervous disorder, which causes chronic pain. |
• |
UK Charity Fundraiser Gets Mr T Haircut For Chronic Fatigue Charity
A charity fundraiser with ME/CFS took on an unusual challenge – subjecting himself to a 'Mr T' haircut. |
• |
New Research Could Lead To A Blood Test For Fibromyalgia
Scientists at King's College London are hoping their latest research into Fibromyalgia will lead to a reliable blood test to enable doctors to make a proper diagnosis. |
• |
Struck Down With Chronic Fatigue
A profile of New Zealander ME/CFS sufferer Marie Dent. |
• |
Definitive Tests For Irritable Bowel Syndrome Developed
Millions of people afflicted by irritable bowel syndrome can now be diagnosed quickly and accurately with two simple blood tests developed by a Cedars-Sinai Hospital gastroenterologist. |
• |
ME/CFS Severely Ill Big Data Study Crowdfund Campaign
A "ME/CFS Crowdfunding Campaign" Facebook page has been created to promote the ME/CFS Severely Ill Big Data Study. |
• |
Mother And Daughter Fight Chronic Fatigue
A profile of New Zealand ME/CFS sufferers Wendy and Sophie Matthews. |
• |
Griffith Research Sheds New Light On Cause Of CFS
New research findings from Queensland's Griffith University may shed new light on the potential cause of ME/CFS. |
• |
Video: ME/CFS is Not An Invisible Disease
A video from Josefine Rausand that shows ME/CFS sufferers at their best and at their worst. |
• |
Illnesses No Laughing Matter
A profile of ME/CFS sufferer Kerri Stephenson and her parents John and Winsome. |
• |
Mini-Documentary: Mom Needs To Lie Down
"Mom Needs To Lie Down: The years and live slept away by ME/CFS" is an informational video about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. |
• |
Adelaide Oval Will Light Up Blue For International ME/CFS Awareness Day
Today Adelaide Oval will be lighting up blue to commemorate International ME/CFS Day. |
• |
Canadian Clock Tower To Light Up For International Fibromyalgia Day
In order to bring attention to the often misunderstood condition of Fibromyalgia, the City of Mississauga will be joining various places across the globe that will be lit up in purple, blue or green to mark International Fibromyalgia Day on Tuesday (May 12). |
• |
Kate Mincher Shares Her Reflections On Being Diagnosed With ME
A profile of UK ME/CFS sufferer Kate Mincher. |
• |
Distinct Plasma Immune Signatures In ME/CFS
A study published in Science Advances entitled "Distinct plasma immune signatures in ME/CFS are present early in the course of illness". |
• |
UK Fibromyalgia Sufferer Receives Insulting Note In Parking Lot
A mum who battles chronic pain and used a disabled parking space in Tesco found a note on her car saying "being fat and ugly doesn't count as disabled - park elsewhere". |
• |
UK Wellbeing Fair To Aid Research And Awareness Into ME And Related Illnesses
Integrated holistic health therapies will be on offer at a special Spring Wellbeing Fair in the UK that aims to raise funds and awareness into ME/CFS and other related disease such as Fibromyalgia. |
• |
UK ME Sufferer Rachel Ephgrave To Embark On Unique Challenge
While her friends are embarking on a 100km trek, ME sufferer Rachel Ephgrave is taking on a challenge of her own to raise awareness for the illness. |
• |
Martine McCutcheon's Gig For ME
UK actress Martine McCutcheon is returning to singing with an intimate gig in support of Action for M.E.. |
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Kelly Organises Sponsored Walk To Raise Money For Invest In ME
UK woman Kelly Meadows has organised a charity walk for her husband, ME/CFS sufferer Richard. |
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Wearable Device For Fibromyalgia, Back Pain, And Diabetic Nerve Pain Comes With iOS App
A new wearable device for chronic pain uses electrical stimulation to help people with Fibromyalgia, back pain and diabetic nerve pain gain relief, and it comes with its own iOS app to work the device. |
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Shining A Light: The End ME/CFS Project's Severely Ill Patient Study
An article about the Open Medicine Foundation's ME/CFS Severely Ill Big Data Study. |
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All Fired Up For Latest Awareness Challenge
A profile of Irish ME/CFS sufferer Nicola Lavin, a Galway woman spearheading the worldwide Chilli ME Challenge. |
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When Physical Trauma And Infection Trigger Fibromyalgia
A study entitled "Physical Trauma and Infection as Precipitating Factors in Patients with Fibromyalgia". |
April |
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Interview: New UK Support Group For Others With ME/CFS
An interview with UK ME/CFS sufferer Hannah Thompson who is hoping to set up a support group in her local area. |
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US Students To March To White House in Support Of ME Patients
ME sufferers and students carrying photographs of bed-bound ME patients will march to the White House in a bid to raise awareness of the disease and urge the US Department of Health and Human Services to take urgent action. |
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New Broadway Extravaganza Raises Funds For ME/CFS/FM Awareness Week
Multi-award-winning young performers from Vancouver's Opera Mariposa raise voices for Awareness Week by performing hit songs from 'Wicked,' 'Spamalot,' 'Sweeney Todd' and more in support of the National ME/FM Action Network. |
• |
Brain-Derived Neurotrophic Factor Concentration May Not Be Depressed In ME/CFS
A study published in the medical journal Fatigue: Biomedicine, Health & Behavior. |
• |
A Biological Basis For Chronic Fatigue Syndrome
New research shows that ME/CFS sufferers have differences in their immune systems, a finding the authors hope will lend some legitimacy to the still-mysterious condition. |
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Canadian MCS Sufferer Fights Eviction Notice
A Canadian woman with a severe case of Multiple Chemical Sensitivity is fighting an eviction notice from her local housing authority, taking her case to the Nova Scotia Supreme Court. |
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Fibromyalgia Sufferer Shares Experience In Theatre Performance
Nathan Barone details his life as a male with Fibromyalgia in a spoken-word piece of theatre in the US. |
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ME & My CFS Documentary
UK ME/CFS sufferer Andrew Love is hoping to make a documentary. |
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Hoping For A Cure
A mother talks about how her family copes with their daughter who has ME/CFS. |
• |
Patients With Fibromyalgia Have Eye Differences
Women with Fibromyalgia had a thinner average stromal nerve thickness in their eyes, as well as decreased corneal sub-basal plexus nerve density per square millimeter compared with healthy control participants, and corneal confocal microscopy could be a useful tool to identify patients with FM, according to the results of recently published research. |
• |
Abnormalities Of AMPK Activation And Glucose Uptake In Cultured Skeletal Muscle Cells From Individuals With ME/CFS
The results of a study entitled "Abnormalities of AMPK Activation and Glucose Uptake in Cultured Skeletal Muscle Cells from Individuals with Chronic Fatigue Syndrome". |
• |
Debilitating Fatigue Reported By Patients With Autoimmune Diseases
Fatigue was reported by 98% of patients with autoimmune disorders polled, and fatigue that prevented completion of everyday tasks was reported by 68% of the patients, according to a press release from the American Autoimmune Disease Related Diseases Association. |
• |
Mercy Of The Wind By Naomi Flanagan
Australian musician and ME/CFS sufferer Naomi Flanagan has released an EP called Mercy of the Wind. |
• |
"I Didn't Know What Fibromyalgia Was – I Had To Google It To Find Out"
A profile of Irish author and Fibromyalgia sufferer Sinead Cox. |
• |
Being Me With ME
ABC contributor "chicken_bits" talks about her life with ME/CFS. |
• |
IOM's Chronic Fatigue Syndrome Report Released; Includes Westat Statistical Expertise
An article from statistics company Westat about its involvement in the recent US Institute of Medicine's report on ME/CFS/SEID. |
• |
Tiny Terrors: Deer Tick Bites Can Lead To Lyme Disease
An article from the US about Lyme Disease. |
• |
Chronic Fatigue Syndrome: Features Of A Population Of Patients From Northern Italy
A study from Italy that found autoimmune disease was more prevalent in the study's CFS subjects than in the general population. |
• |
Inverse Correlation Seen Between Symptoms, Fitness Level In Women With FM
In a study of women with Fibromyalgia in southern Spain, physical fitness was inversely correlated with symptom severity, according to data from the al-Ándalus project. |
• |
A Safe Space: Support Group A Refuge For Fibromyalgia Sufferers
A profile of Canada's Sudbury Fibromyalgia Support Group. |
• |
The Role Of Cytokines In Muscle Fatigue In Patients With Chronic Fatigue Syndrome
Research published in The FASEB Journal (the journal of the Federation of American Societies for Experimental Biology). |
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You Know You Have Chronic Fatigue Syndrome When...
A video from YouTube user "CFS Hope". |
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Canadian Tribunal: Province Doesn't Have To Pay For Fibromyalgia Diet
In a decision handed down March 12, Adjudicator Jo-Anne Pickel of the Human Rights Tribunal of Ontario rejected an appeal from a Toronto man who launched a human rights complaint in an attempt to force the province to pay for a high-protein diet he says eases his fibromyalgia symptoms. |
• |
National ME/CFS Conference In Queensland
Details of the first Zing Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Conference that will take place in Cairns, Australia in August 2015. |
• |
Public Servant Says She Was Allergic To Her Workplace At Australian Taxation Office
The Australian Taxation Office has been drawn into a three-year compensation case after a former worker said she suffered from "sick building syndrome" when working for the public service. |
• |
Volunteers Wanted For Griffith University Chronic Pain Research Questionnaire
Griffith University is asking for people who have developed chronic pain in the last 12 months to complete a questionnaire about their experience. |
• |
Interview With Belle & Sebastian's Stuart Murdoch
An interview with Scottish musician and ME/CFS sufferer, Belle and Sebastian's Stuart Murdoch. |
• |
Nerve Pathways In Exhaustion Disorder Discovered At University Of Florida
The mechanism that causes high-performance athletes to “feel the burn” turns out to be the culprit in what makes people with ME/CFS feel exhausted by the most common daily activities, new University of Florida Health research shows. |
• |
Study Helps Explain 'Brain Fog' In Chronic Fatigue Syndrome
A new study shows abnormal immune proteins in the spinal fluid of people with Chronic Fatigue Syndrome. |
• |
Does Whiplash Really Trigger Fibromyalgia?
A Canadian researcher reports in RMD Open that whiplash injury most likely does not lead to Fibromyalgia. |
March |
• |
The Experience of Sleep in Chronic Fatigue Syndrome
A study that explored the specific role of sleep in ME/CFS patients' experience of their illness. |
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Fibromyalgia Patients Have Higher Risk For IBS
The risk for developing Irritable Bowel Syndrome was 1.54-times higher in patients with Fibromyalgia, according to recently published data. |
• |
New Research Validates Chronic Fatigue Sufferers
A profile of US ME/CFS Esther Siebert, and her welcoming of the Institute of Medicine's new report, Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. |
• |
US Mayor Proclaims May 12 Fibromyalgia Awareness Day
Newark, New Jersey, Mayor Ras Baraka and local citizens are joining communities around the US to raise awareness about Americans living with Fibromyalgia. |
• |
Disabled UK Woman Says: Scooters Give Us Freedom, So Please Show Tolerance
An article by UK ME/CFS/Fibromyalgia sufferer Janet Warner. |
• |
Canadian Woman's Sensitivies Confine Her To House
Canadian Multiple Chemical Sensitivity sufferer Wendy Kearly believes the only place she is safe is inside her home on Munroe Street in New Glasgow – and with some legitimate reasons. |
• |
US Vaccine Court's Tough Standards May Face Supreme Court Test
The US Supreme Court has been asked to assess the case of Ilya Dobrydnev, who has Chronic Fatigue Syndrome, which his family claims was caused by a Hepatitis B vaccination in 2001. |
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UK Fibromyalgia Sufferer To Complete Monumental Task
Rosina Thomas, who has severe Fibromyalgia among a range of health issues, is aiming to walk 10,000 steps a day for a week – the equivalent of many kilometres – to raise money and awareness for safer water points in African villages. |
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Interview: UK Author Lucy Saxon On How Chronic Fatigue Syndrome Gave Her Time To Write
An interview with UK author and ME/CFS sufferer, Lucy Saxon. |
• |
Pfizer's Lyrica Pain Drug Fails FDA Test For Fibromyalgia In Adolescents
Pfizer's Lyrica pain drug has failed to meet US Food and Drug Administration requirements in a post-marketing study testing the treatment of Fibromyalgia in adolescents. |
• |
Study Shows Why Exercise Magnifies Exhaustion For Chronic Fatigue Syndrome Patients
New research shows the mechanism that causes high-performance athletes to “feel the burn” turns out to be the culprit in what makes people with Chronic Fatigue Syndrome feel exhausted by the most common daily activities. |
• |
Chronic Fatigue Syndrome Gets New Name, Enhanced Recognition
A profile of ME/CFS sufferer Tasha Kelemen, and news about the proposed new name for ME/CFS, Systemic Exertion Intolerance Disease. |
• |
Changing The Name Of A Medical Condition May Seem Pointless, But It Matters A Lot
An article by Serena Gainda about the proposed new name for ME/CFS, Systemic Exertion Intolerance Disease. |
• |
Using Wearable Tech To Relieve Chronic Pain
An advertisement for a new wearable device that can administer pain relief on a regular basis. |
• |
Welsh Teenager's Auction Will Help Battle Fibromyalgia
A Welsh student is hoping to raise £400 for charity over the next few weeks by organising a charity event in the city of Newport. |
• |
Dr Lucinda Bateman: New Clinical Definitions For ME/CFS
Lucinda Bateman, MD, discusses the new diagnostic criteria and a new name for ME/CFS, in an OFFER Education Meeting held on March 4, 2015. |
• |
SEID Featured On The Dr Oz Show
Dr. Oz talks with Dr. Jennifer Caudle and Dr. W. Ian Lipkin about Systemic Exertion Intolerance Disease. |
• |
Poor Sleep Quality Linked To Increased Pain And Reduced Activity In Fibromyalgia
A study that tested whether pain, positive affect, and negative affect mediated the association between sleep quality and subsequent activity interference in Fibromyalgia. |
• |
US Woman Shares Fibromyalgia Story
A Fibromyalgia sufferer from South Dakota is sharing her story in book form with anyone who wants to read about it. |
• |
UK Yoga Project Receives Lottery Grant
A project supporting people who suffer from ME/CFS in Yorkshire and the Humber is amongst 108 schemes across the region to receive a share of £979,729 from the UK's Big Lottery Fund. |
• |
Dream Makers – Mark Craig
A profile of New Zealand cricketer and former ME/CFS sufferer Mark Craig. |
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Memory Problems In Patients With Fibromyalgia Not Linked To Risk For Alzheimer's
Patients with Fibromyalgia and severe episodes of memory problems or cognitive dysfunction, known as "fibrofog," were not at higher risk for the development of Alzheimer’s disease, which has a different profile of memory loss, according to new research in the US. |
• |
Distinct Stages To Chronic Fatigue Syndrome Identified
Scientists in the US say distinct changes in the immune systems of patients with ME or Chronic Fatigue Syndrome have been found. |
• |
US Fibromyalgia Patients Kicked Out Because Of Service Dogs
Two unrelated Fibromyalgia patients in the US recently encountered problems in public places because of their service dogs. |
• |
Scientists Discover Robust Evidence That Chronic Fatigue Syndrome Is A Biological Illness
Researchers at the Center for Infection and Immunity at Columbia University’s Mailman School of Public Health have identified distinct immune changes in patients diagnosed with chronic fatigue syndrome, known medically as Myalgic Encephalomyelitis (ME/CFS) or Systemic Exertion Intolerance Disease. |
February |
• |
A Disease Doctors Refuse To See
An op-ed piece by Julie Rehmeyer in The New York Times. |
• |
The Pain Brain: Hippocampal Atrophy Found In Fibromyalgia
Reduced volume in the brain's hippocampus is the latest of many brain findings in Fibromyalgia. |
• |
US Author Uses Marbles To Enlighten Children About Physical Limitations
A book by US author Melinda Malott, in which "A mom uses a jar and some marbles to show her son how she goes about making decisions about what she can and can’t do in terms of activities in a day". |
• |
Prefontal Myelination In Chronic Fatigue Syndrome
A research paper entitled "Evidence in chronic fatigue syndrome for severity-dependent upregulation of prefrontal myelination that is independent of anxiety and depression". |
• |
UK Physios And Philosophers Receive £1m Research Grant
Two physiotherapists are to play their part in a €1.3 (about £1 million) study that will explore what leads to improvements in people's health and wellbeing. |
• |
Fighting Back Against Fibromyalgia: US Woman Turns To The Arts To Cope With Her Chronic Illness
Fibromyalgia sufferer Kelly Kvenlog Wichlacz has discovered her artistic side, hand-sewing tote bags, crafting jewelry, writing an essay, setting it to her photography on YouTube, and now hoping to publish a book. |
• |
IOM Report – Dr Lucinda Bateman's response
A statement from Lucinda Bateman MD about controversy surrounding the Insitute of Medicine's report on ME/CFS, new diagnostic criteria, and the name Systemic Exertion Intolerance Disease. |
• |
UK Woman Puts Chronic Pain At The Top Of The Agenda
A profile of UK Fibromyalgia sufferer Ella Vine, chief executive of national charity FibroAction, who took the need to improve diagnosis and care of people living with chronic pain directly to UK parliamentarians. |
• |
'We're Not Lazy – Chronic Fatigue Syndrome Is A Real Disease After All'
A profile of UK ME/CFS sufferer Carolin Higson. |
• |
Music and Acupuncture For Fibromyalgia
A study that investigated the effect of music combined with vibration on acupuncture points for the treatment of Fibromyalgia. |
• |
How Disease Names Can Stigmatize
An editorial by professor of clinical and community psychology, Leonard A. Jason. |
• |
Retired US Police Offer Will Get Enhanced Disability Pension
A retired US police officer who developed Fibromyalgia after being exposed to toxins after the 2001 World Trade Center attack has won a five-year legal battle for an enhanced disability pension. |
• |
SEID Report Release Video
A video of the Institute of Medicine's press conference for the release of their report, "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness". |
• |
Beyond The Roll-Out
An analysis of the Institute of Medicine's report, "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness". |
• |
The New Science Of Exhaustion
A US radio program featuring ME/CFS experts discussing the Institute of Medicine's proposed new name, Systemic Exertion Intolerance Disease. |
• |
Goodbye Chronic Fatigue Syndrome, Hello SEID
A committee convened by the Institute of Medicine has proposed a new name for a condition known variously as Chronic Fatigue Syndrome or Myalgic Encephalomyelitis. |
• |
Health Care Use Remains High in Patients With Fibromyalgia After Treatment
Utilization of the health care system remained high for patients with Fibromyalgia after initiating treatment with either amitriptyline, Cymbalta, Neurontin or Lyrica, according to researchers from Utah's Brigham and Women’s Hospital. |
• |
Canberra Autoimmune Self-Management Education Day, 7 March 2015
The Autoimmune Resource & Research Centre will be hosting a self-management education workshop in Canberra for people living with autoimmune illness. |
• |
Utah Doctor Helps To Legitimize Chronic Fatigue As An Actual Disease
National health experts, including one Utah doctor, released the results of a year of study on Tuesday [February 10] legitimizing the symptoms of chronic fatigue and giving the disorder a new name. |
• |
UK Mum Cleared Of Poisoning Daughter By Taking Her Abroad For Treatment Fights To Get Her Back
A UK mother who took her daughter abroad to treat her chronic fatigue with different drugs – and then ended up in court accused of 'poisoning' her – said she is determined to win her back after being cleared by a judge. |
• |
US Panel Redefines Chronic Fatigue Syndrome
A panel commissioned by the US Department of Health and Human Services has produced what is sure to be an influential report on how the disease should be diagnosed, by offering guidelines for a new moniker: Systemic Exertion Intolerance Disease (SEID). |
• |
Fibromyalgia Imaging Study Shows Unique Brain Connectivity
A new brain imaging study reveals that patients with Fibromyalgia show unique brain activity in response to pain. |
• |
Panel Says Chronic Fatigue Syndrome Is A Disease, And Renames It
The mysterious and complicated illness that has been called chronic fatigue syndrome has a new definition and a new name: systemic exertion intolerance disease, or SEID for short. |
• |
Society Seminar Reminder
A reminder that the society's first seminar for 2015 is tomorrow, Saturday 14 February at 1:30 pm in Sophia House, Cumberland Park. |
• |
Chronic Fatigue Syndrome Gets A(nother) New Name
The Institute of Medicine has proposed a new name and new diagnostic criteria for the condition that many still call Chronic Fatigue Syndrome. |
• |
Tips On How To Live A Normal Life With Fibromyalgia
The cause of Fibromyalgia is unknown, but a WDSU News New Orleans video featuring Dr Corey J. Hebert, MD, shows there is treatment to help a person cope with the physical and psychological symptoms. |
• |
Locklear Fighting To Play
A profile of US teenage basketballer and ME/CFS sufferer, Elayna Locklear, and her basketball team. |
• |
New Criteria Would Double Fibromyalgia Cases
More than 5% of the general population fulfill the modified 2010 criteria for Fibromyalgia, compared with less than 2% who fulfilled the 1990 and the proposed 2010 criteria, report researchers in Arthritis and Rheumatology. |
• |
ME/CFS Linked To Early Menopause
A new study suggests there's a link between early menopause and Chronic Fatigue Syndrome. |
• |
Patients With Fibromyalgia More Likely To Experience Anxiety
Patients with Fibromyalgia were more likely to show symptoms of anxiety than patients with other rheumatic diseases, according to findings by Robert S. Katz, MD, and Frank Leavitt, PhD. |
• |
ME/CFS Sufferer's Claim Of Contamination Rejected By Tribunal
A CSIRO media manager who says she contracted a virus after drinking water contaminated with faeces at a conference has lost her bid for compensation. |
• |
Altered Gait, Biomechanics Seen In Patients With Juvenile Fibromyalgia
Patients with juvenile Fibromyalgia showed alterations in walking patterns, greater knee weakness, lower bilateral hip abduction strength, reduced ankle dorsiflexion and other physical and psychosocial alterations compared with a group of healthy controls, according to researchers. |
• |
'I Was So Grateful For My Body': Jennifer Aniston Portrays Chronic Pain
Jennifer Aniston plays a woman who suffers from chronic pain in the independent film Cake. |
• |
New Debate Over Lyme Disease As 16-Yr-Old Girl Bitten By Tick Heads To Germany For Radical Treatment
The controversy over whether Lyme disease exists in Australia is set to be inflamed by new research that has found no evidence of the bacteria responsible for it around Sydney. |
• |
Society Seminar
Our first seminar for 2015 is on St Valentine's Day, Saturday 14 February at 1:30 pm. |
• |
BBC Documentary Series Features ME/CFS And Fibromyalgia Sufferers
A recent episode of the BBC One documentary series about loneliness, Operation Meet the Street, featured ME/CFS sufferer Kate, and Fibromyalgia sufferer Simon. |
January |
• |
A Life Of Helping Women
South Australian Fibromyalgia sufferer Effy Kleanthi has been awarded an Order of Australia Medal on Australia Day. |
• |
Patients With RA, Fibromyalgia Less Likely To Achieve Remission, Low Disease Activity
Patients with both Rheumatoid Arthritis and Fbromyalgia were less likely to achieve remission or low disease activity scores, according to finding presented recently at the American College of Rheumatology Annual Meeting. |
• |
Knowing M.E., Knowing You
A profile of British ME/CFS sufferer Stephen Tudor. |
• |
IACFS/ME Chides NIH For Inadequate Funding
An open letter from the International Association of CFS/ME to US National Institutes of Health about funding for its Pathways to Prevention report. |
• |
New US Public Transport Ads Focus On Fibromyalgia And Other Invisible Disabilities
The Washington Metropolitan Area Transit Authority is focusing on people with health problems and disabilities that may not be visible to others, such as Fibromyalgia. |
• |
Fibromyalgia Flares: A Qualitative Analysis
A research paper that aimed to describe Fibromyalgia flares in a sample of patients with Fibromyalgia. |
• |
Gut Infection Could Underlie Symptoms In Chronic Fatigue Syndrome
Over the past couple of years the Whittemore-Peterson Institute has been quietly digging into the human gut. |
• |
Plasma Cytokine Expression In Adolescent Chronic Fatigue Syndrome
A research paper published in the journal Brain, Behavior, and Immunity. |
• |
"I'd Rather Have Cancer Than Chronic Fatigue Syndrome"
A former cancer patient says she would rather still have the deadly disease than the Chronic Fatigue Syndrome that has plagued the last decade of her life. |
• |
US Neuroscientist Says Exercise Worsens ME/CFS Symptoms
A highly regarded American neuroscientist who has researched ME/CFS for more than a decade, has decried media reports based on The Lancet Psychiatry’s recent scientific article that claims graded exercise therapy is an effective treatment for ME/CFS. |
• |
Unexplained Medical Symptoms – A Radio National Panel Discussion
A panel of experts looks into complicated issues surrounding unexplained medical symptoms in this special event for the Ultimo Science Festival in Sydney. |
• |
Australian Disability Advocates Say Federal Government Employment Policies Not Working
Advocates say despite years of Federal Government policies to designed to boost employment, it is as hard as ever for people with a disability to enter the workforce. |
• |
Life Is Hard For Us ME Sufferers – And Simplistic News Reports Don't Help
Chronic Fatigue Syndrome is misunderstood by the public, and the media must take some of the blame for that. |
• |
ME/CFS Research UK Slams Lancet Psychiatry Report Advocating Exercise For Chronic Fatigue Syndrome Sufferers
ME Research UK has slammed an analytical report published in the latest The Lancet Psychiatry that claims ME/CFS patients have “fear avoidance beliefs” that exercise will exacerbate their symptoms. |
• |
Fear Of Exercise Exacerbates Chronic Fatigue Syndrome, Say Researchers
The comments for this article from the UK's Telegraph shows the debate about exercise and ME/CFS is still well and truly alive. |
• |
Meet The 29-Year-Old Woman Who's Allergic To The World
A profile of Multiple Chemical Sensitivity Sufferer Crystal Goodwin. |
• |
ME Sufferer Will Go The Extra Mile In Nepal For Charity
A UK pub manager will trek through the Himalayas for Macmillan Cancer Support, despite suffering from Chronic Fatigue Syndrome. |
• |
Chronic Fatigue Syndrome Researcher Turns Pilot Study Into Major Grant
An article about Patrick McGowan's epigenetic research in the US funded by the SolveCFS Initiative. |
• |
Society seminars for 2015
Details for all society seminars for 2015. |
• |
Chronic Fatigue Syndrome: Wrong Name, Real Illness
An in-depth article about ME/CFS. |
• |
Fibromyalgia Sufferer Shares Pain Of Ignorance
Shelly Van Winkle' Fibromyalgia tale is playing out across the globe as other patients face similar problems. |
• |
UK Prime Minister's Award For Woman Who Set Up ME/CFS Charity
A retired teacher in the UK has been hailed by the Prime Minister for setting up the UK’s largest charity for children and young people with Chronic Fatigue Syndrome. |
• |
Slow Access To The Mental Lexicon In Fibromyalgia
A study that looked at lexical access speed (i.e., the time needed for the brain to access the catalogue of words in long-term memory) in Fibromyalgia patients. |
• |
"Passing" Is Not A Privilege
Having an invisible disability can mean you're able to choose whether or not to disclose your disability status, but being able to "pass" as a non-disabled person can also mean your access needs are often ignored completely. |
• |
A Fibromyalgia Patient's Ten Strategies For Healing
A post on Cort Johnson's Health Rising blog in which Fibromyalgia sufferer Darden Burns outlines her strategies for dealing with the disease. |
• |
'The Chronic Fatigue Changed Everything': House Rules Host Johanna Griggs Opens Up
A profile of Australian media personality Johanna Griggs. |
• |
AVACEN Medical Launches $2M Campaign In Response To Positive Outcomes Of Fibromyalgia Study
US medical company AVACEN Medical announced that it has launched a $2 million campaign on Crowdfunder.com to support further company clinical trials and FDA applications. |
• |
New Studies Find Causes Of Fibromyalgia, Offer Hope Of Relief
Two new studies on Fibromyalgia focus the problem on the thyroid, pituitary and hypothalamus, and suggest new avenues of relief for sufferers. |
• |
Can A Vegan Diet Help Fibromyalgia Patients?
A study from researchers in the United States found that a vegan diet can help some Fibromyalgia patients. |
• |
First Of Many Homes For South Australians With Disability
The first eight of 135 new homes for South Australians with disability have been completed for the newly-established disability housing organisation, Access 2 Place Ltd. |
• |
Happy New Year
All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year. |
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)