ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
PO Box 28,
South Australia 5007
North Terrace House,
19 North Terrace,
Hackney, SA, 5069
1300 128 339
Closed over Christmas
(reopened 1 February 2017)
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Know someone chronically ill this holiday season? You can help
Saturday 20 December 2014
Know Someone Chronically Ill This Holiday Season? You Can Help
Living with a chronic illness is hard all year round. During the holiday season it causes unique extra challenges.
I knew nothing about this before I became chronically ill myself. I have had many years now living with ME/CFS, some holiday seasons moderately affected and some ruined.
ME stands for myalgic encephalomyelitis. CFS stands for the ludicrous name of chronic fatigue syndrome. But that's another story.
Chances are someone you love is saddled with a chronic illness. There are lots of these illnesses. Arthritis, Lyme disease, multiple sclerosis, many cancers, fibromyalgia, diabetes, IBS, celiac disease, heart conditions, lupus, neurological disorders, are just a few.
It would be great to have someone who offers to drive, to navigate through the stores, to keep track of the list, and to stand in line. It can be a lifesaver to have a champion who will make sure their sick loved one has a chance to rest, in the car, in a quiet restaurant, or on a bench.
Many people who are chronically ill can't work. Some are well enough to be able to work part time but that uses up all their energy. In either case, money is often in very short supply all the time, and especially during the holiday season.
It would be great to have someone who gives financial help or eases holiday obligations. For instance, if you can hand over some cash to your friend or family member, they will be touched and their burdens and anxiety will be eased.
Taking over a meal, some baked goods, or coming up with any other excuse to provide in some way would make their holiday experience better.
What you bring may be all they have to eat. And on top of that, knowing someone cares enough to do something practical like this will help to keep the fear of being invisible and alone at bay.
If you can let them know that gifts are not that important, that their presence is what matters most, you will be given a gift in return of gratitude and appreciation.
An invitation to a dinner or party may be turned down by someone who is chronically ill. But getting the invitation can often mean a lot, especially when their regretful refusal is met with a gracious smile and understanding.
If your chronically ill loved one is able to come out after all, if you can create a gentle atmosphere, you will make a lot of difference for them.
Keep the music turned down, and no flashing lights on the tree, please! A quiet room with a door they can close, where they can retreat to if they need to rest, is a treasure.
Letting them know beforehand that there will be such a room for them will promote a sense of reassurance that maybe they can make it through, and that someone understands.
Don't worry about trying to use my list of suggestions. It's only a partial list at best anyway.
The main thing to keep in mind? Keep it simple, keep it gentle.
Be vocal about your love and acceptance. Let them know they are important to you.
A holiday season where love is actively expressed will be one to remember with gratitude for all of you.
The above originally appeared here.
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