ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
PO Box 28,
South Australia 5007
North Terrace House,
19 North Terrace,
Hackney, SA, 5069
1300 128 339
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Irish landmarks light up blue for ME
Tuesday 27 May 2014
District’s landmarks light up blue for ME
Local support group, run by Elaine Dickson and her husband Andrew, persuaded Banbridge Council to participate in the global initiative, with more than 16 landmarks in Northern Ireland being lit up, including Belfast City Hall.
Elaine was diagnosed with FMS (fibromyalgia syndrome) and ME (myalgic encephalitis) in 2011 and later set up the ‘FMS/ME Awareness Dromore and Banbridge’ group, to raise awareness and support others who suffer with these Chronic illnesses.
“Raising awareness is key, as people are very ignorant of what these illnesses are about,” said Elaine.
Elaine had not felt well since contracting a severe flu whilst working with a charity in the Ukraine in 1999. It would be another 12 years of living with symptoms such as chronic fatigue, headaches, and nausea, before doctors finally diagnosed her.
Whilst she was relieved to get a name for her illness, she said: “afterwards I felt I was just left there to manage it alone. There seemed to be little else they could do for me. It’s a very isolating and lonely illness and I felt like nobody understood me”.
For this reason Elaine felt a support group would benefit others.
Among other things, the group is working hard to overcome the many misconceptions surrounding ME.
Elaine said: “I want to make clear that sufferers are not seeking sympathy at all. What we want is that finally people will realise ME and Fibromyalgia are real physical illnesses. Understanding and acceptance is all we desire.”
Elaine would also dearly love to see a central service in Northern Ireland dedicated to these illnesses and is encouraging people to join the campaign - google ‘fully adopt ccc for ME in Northern Ireland’ to find out more.
The support group meets every second Thursday in the month at 7.30pm in the DUP offices in Dromore. For more information, contact Elaine on 07526 980154.
The above originally appeared here.
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