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'Managing to walk down the aisle without collapsing made it my dream wedding'

Thursday 6 March 2014


From Wales Online:


Tamsin and Jonathan Morgan
Tamsin Morgan, who suffers from Fibromyalgia,
on her wedding day with husband, Jonathan.
The couple were married in Heronston Hotel
in Bridgend, 22 June 2013.
(Photo: Julie Eden)

'Managing to walk down the aisle without collapsing made it my dream wedding'

2 March 2014 06:00

Bride Tamsin Morgan says her big day was made all the more perfect because she was able to walk

For a bride-to-be, planning a wedding day can be stressful enough at the best of times. Getting the dress, the flowers and the colour scheme just right are usually the most pressing concerns leading up to the big day. But for Tamsin Morgan, her biggest worry was walking up the aisle without her legs collapsing, sending her crashing down to the ground.

The beautiful 21-year-old from Pencoed suffers from fibromyalgia syndrome – an incurable neurological condition that causes pain all over the body, muscle spasms and chronic fatigue.

“The one thing that was worrying me building up to the wedding was how will I be on the day? Will my legs give way as I walk up the aisle?” Tamsin said.

“As I walked into the room I stood by the door and I felt my legs start to shake. I thought I would collapse. I had my walking stick and wheelchair prepared.

“And when we got called up for the first dance I was terrified, just thinking, am I going to be able to do this?”

Tamsin was able to last through the dance, but since the wedding last summer, her health has rapidly deteriorated. A few months later her hands became stuck in a claw-like position and she lost all feeling in her legs at all from her knees down.

“There are days when I am lying down crying my eyes out, thinking why am I in so much pain?

“It gets so bad, I can’t walk, I am stuck in bed and have to be helped to the bathroom, getting dressed, cutting up food, and driking with a straw.

“Even though my legs are numb I can still feel horrendous pain all the way down them. I get so depressed every time I think I want to give up.”

Tamsin said she felt “crushed” when she was first diagnosed, age 12, with chronic fatigue syndrome, which is also known as myalgic encephalomyelitis (ME).

“When I was younger I was always massively into sport – I did football, tap dance, ballet and gymnastics. I was always on the go,” she said.

“But I had problems with fatigue, memory and concentration, leg problems and severe pain. It was a relief to find out what was wrong but at the same time it really crushed me.

“I missed out on 90% of being a teenager and got severe depression from it. I couldn’t go out partying, or go out with friends. It still does really gets me down, knowing I am 21 now and haven’t really had my teenage years.”

Tamsin met her husband Jonathan, who is now her full time carer, when she was 18. “The first time we met up I came straight from college and I hid my walking stick in my bag,” she recalled.

But after she and Jonny started dating, Tamsin was dealt yet another devastating blow. In January 2012, she was referred to an adult clinic, and was re-diagnosed with fibromyalgia syndrome.

“It may sound daft but I had only just started to get used to having ME. To hear it was something else with more symptoms and that I could have it for life, it really hit me. I got really depressed.”

The exact cause of fibromyalgia is unknown, but it is thought to be related to abnormal levels of chemicals in the brain and the way the central nervous system processes pain messages.

Tamsin explained how about a month after the wedding, her health took a turn for the worse.

“My body decided to crash. The nerves in my legs from my knees down have died. It started in August, quite soon after wedding.

“Then in September, I was at some friend’s wedding and my vision went. Everything was blurred and I problems with my hands too.

“It got to a point where I couldn’t call them hands any more – they were more like claws. I couldn’t move them at all and the doctors couldn’t figure out what was wrong.”

But Tamsin said that no matter how down she is feeling, Jonathan always ends up cheering her up.

“When we first got together I was living with my parents so he didn’t need to do as much. He said he was prepared to held in any way and since getting really ill after the wedding he has been fantastic.”

Tamsin said she would love “the normal life”.

“Ever since I started secondary school I wanted to do uni. But I’ve been told by the doctors and everyone that it’s not a good idea.”

Tamsin said she and Jonny have already talked about starting a family. “We’d love to have children – three or four. But only when my health is loads and loads better. We have a hamster at the minute and that is enough.”


The above originally appeared here.



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