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ME/CFS Australia Ltd
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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Vitamin B12 and folate study funded

Wednesday 26 February 2014

 

From the Open Medicine Foundation (via email):

 

Tablets
 

Vitamin B12 and folate study funded

We are very excited to announce that the MTHFR, B12, and Folate placebo-controlled clinical trial is moving ahead thanks to the generosity of our many donors. Thank you all for making this possible!

This study will show if ME/CFS patients benefit significantly when taking B12 & Folate, shown anecdotally to reduce fatigue and cognitive issues in many ME/CFS patients that have a MTHFR gene mutation.

This is the first-ever placebo-controlled clinical trial to be done on B12 and Folate for ME/CFS patients and we hope to be able to do the same for Autism, Lyme, and Fibromyalgia patients in the future.

Dr. Andreas Kogelnik and Dr. David Kaufman of the Open Medicine Institute will lead the study.

 

Exciting Research Continues at Open Medicine Institute (OMI)

  1. Multi-Site Clinical Assessment of ME/CFS – now in year 3

Open Medicine Institute is the coordinator for 5 of the 7 sites of the CDC’s clinical assessment project of ME/CFS.

  1. OpenMedNet, OMI's Enhanced Data Platform to collect BIG DATA from thousands of patients has completed its enhancementproject and is on track for release any day now.
     
  2. DNA ME/CFS Genetics study – This study includes whole genome sequencing andanalysis, DNA methylation investigation and HLA testing on approximately 1000 patients; it will be completed within the next few months.
     
  3. In-depth study of 20 ME/CFS patients has begun:
     
    • Whole genome sequencing
    • A virome survey of oral viral flora
    • A gene expression study
    • Proteomic/metabolomic pilot studies
    • Study of Natural killer cells, B-cells, and T-cells
    • Single cell measurements, acetylation and other cellular parameters
    • Breath testing for GI flora
    • Mitochondrial and related pathways that play a role in oxidative stress and energy production
    • Brain/Cognitive Data - uniqueon-line measurement program
    • Quantified-Self (self measurement)projects using wearable devices

 

 


 

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