Society Logo
ME/CFS Australia Ltd
Please click here to donate ME/CFS Australia (SA) Inc
 
 
Facebook
 
ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Become a Member
PDF Application Form (PDF, 242KB)
Why become a member?

Doctors help princess find Fibromyalgia pea

Monday 27 May 2013

 

From Taiwan's The China Post:

 

Princess and pea

Doctors help princess find fybromyalgia pea

By Lauly Li, The China Post
May 24, 2013, 12:06 am TWN

TAIPEI, Taiwan -- After running medical tests in four hospitals and talking to nine doctors in five years, a female pediatric doctor surnamed Yu has finally been diagnosed with fibromyalgia, also known as “Princess and the Pea syndrome.”

While the exact cause of fibromyalgia, which is characterized by chronic widespread pain, is still unknown, it is believed to be triggered by psychological, genetic, neurobiological and environmental factors.

The Taiwan Fibromyalgia Advisory Committee (台灣纖維肌痛症諮詢委員會) conducted research on fibromyalgia sufferers in Taiwan recently, and discovered that it took more than a year for over 60 percent of patients to have their condition correctly diagnosed by a physician.

The patient said she never thought she would have to battle the syndrome for so many years.

Adding insult to injury, over 70 percent of the patients reported that they were dismissed by friends as playing up their symptoms, moaning and groaning without being ill, the committee said.

Sun Wei-zen (孫維仁), the committee whip, also a doctor of National Taiwan University Hospital, said most of the patients are females aged between 30 to 50 years old, noting that fibromyalgia is difficult to diagnose as most of the medical test results indicate a healthy patient.

Sun said Taiwan has developed a standard to identify fibromyalgia. Symptoms of the disease include constant aching in the upper and lower abdomen, as well as the left and right sides of the body for over three months. Sufferers also report fatigue and insomnia.

Patients can seek medical assistance at Division of Neurology, Division of Rheumatology or Division of Pain Management.

In light of the difficulties in confirming the diagnosis, the committee produced a short film as public service announcement.

For more information visit www.byebyeprincess.com.tw.

 

The above originally appeared here.

 


Arrow right

More Fibromyalgia News

 


 

blog comments powered by Disqus
Previous Previous Page