ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
PO Box 28,
South Australia 5007
Closed while relocating
1300 128 339
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Sunsuper Dreams: vote to win $5,000 grant
Tuesday 12 February 2013
Got a dream to help an Aussie cause?
Each month, the dream with the most votes will be awarded a $5,000 grant to help make it come true.
JOHN HOLDING'S DREAM
Help Save lives. Myalgic Encephalomyelitis
My dream is to help ME/CFS Australia (VicTasNT) continue to their mission with support, awareness, education and lobbying to help save the lives of people with Myalgic Encephalomyelitis (M.E.). Just recently in Victoria two young people in their early 20's died due to M.E... 20% of the 180,000 children and adults in Australia affected by M.E. (RACP) have severe M.E.. They remain bed bound or highly housebound for many years sometimes the rest of their lives; often described as a 'living death'. Imagine being so severely affected you can't leave your bedroom to see your daughter's wedding, can't tolerate sunlight, can only talk for 2 minutes to a friend or can no longer understand writing in a book. Imagine then being ostracized by your family and friends, even your doctor. Imagine being told it is in your head and then even denied government home supports.
In 1969, M.E. was classified by the WHO as a neurological disease. Incredibly, still today it is met with disbelief and trivialized by many. Many are misdiagnosed with a mental illness; others take years to receive a correct diagnosis. Proper biomedical treatment and specialist doctors are completely lacking with only a handful across Australia. Whilst 10% with M.E. will experience a full return to pre-illness health; many remain vulnerable to relapses. M.E. causes absenteeism from work and school for months and years. Many cannot maintain fulltime employment, 20-40 % unable to work at all, 20% estimated to be risk of food insecurity. Governments deny that M.E. is a serious health issue with the provision of funding to specialist support services and research being puny when compared to other similar chronic illness, despite a cost to the Australian economy almost $4 billion. Winning this competition will help ME/CFS Australia (VicTasNT) save lives.
The above originally appeared here.
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