December |
• |
Inspirational student has been a carer for both parents since childhood
A UK teenager who has been caring for both her parents for a decade has been nominated for a Women Of The Year Award. |
• |
High rates of Coeliac Disease in Fibromyalgia with IBS
New research shows that people who have both Fibromyalgia and Irritable Bowel Syndrome (IBS) are especially likely to have Coeliac Disease when compared to those with IBS alone. |
• |
Effects of sodium oxybate for Fibromyalgia maintained in long-term study
A study that looked at the long-term effectiveness and tolerability of sodium oxybate. |
• |
UK mum facing council at tribunal over son's education
A desperate mother has launched a fight for her sick son's chance to have an education after his ME/CFS forced him to leave school two years ago. |
• |
Medical Edge: Fibromyalgia study
Dr. Lesley Arnold is one of a handful of researchers in a US study trying to find out what's happening in the brain and the body when people experience symptoms from Fibromyalgia pain. |
• |
Learning for life: College has changed my life
A profile of UK ME/CFS sufferer Suaad Walker. |
• |
Merry Christmas
All of us here at ME/CFS Australia (SA) Inc wish you a very merry Christmas! |
• |
The importance of stress management in CFS
Newly published research from the journal Fatigue points to the importance of stress management to lower the symptom load in people with Chronic Fatigue Syndrome. |
• |
Recovery of upper limb muscle function in ME/CFS, with and without Fibromyalgia
A study that reveals, for the first time, delayed recovery of upper limb muscle function in Chronic Fatigue Syndrome and Fibromyalgia patients, but not in CFS-only patients. |
• |
A review of antiepileptic drugs for neuropathic pain and Fibromyalgia
A research paper entitled "Antiepileptic drugs for neuropathic pain and fibromyalgia - an overview of Cochrane reviews". |
• |
Study finds French oak wood extract beneficial for ME/CFS patients
A research paper entitled "Improved management of primary chronic fatigue syndrome with the supplement French oak wood extract (Robuvit®): a pilot, registry evaluation". |
• |
UK woman with ME/CFS begins 'Share A Star' charity
A UK woman who has spent years bed-ridden with ME/CFS has set up a charity to support children who spend life indoors due to illness. |
• |
Muscle fatigue in Fibromyalgia may originate in the brain
Recently published research suggests that what people with Fibromyalgia perceive as muscle fatigue is actually our brains misinterpreting signals – just as it does with signals from pain and other sensory stimuli. |
• |
Fibromyalgia patient discovers new talent after diagnosis
A profile of US singer-songwriter and Fibromyalgia sufferer Lisa Adrian. |
• |
Society office closed over Christmas holidays
The Society's office will be closed from Wednesday 18 December 2013 and open again on Wednesday 22 January 2014. |
• |
Comparing Fibromyalgia and Osteoarthritis in the brain
New research suggests that Fibromyalgia and Osteoarthritis may be more similar that has been thought. |
• |
Fibromyalgia patients take drug 'off-label' to help them sleep
Many Fibromyalgia patents have learned through sympathetic doctors and word of mouth that an 'off-label' drug can help them get that elusive good night’s sleep. |
• |
Treatment of 741 Italian patients with Chronic Fatigue Syndrome
An Italian study that compared different treatments for patients diagnosed with CFS (Fukuda criteria). |
• |
'Fibrofog' doesn't portend Alzheimer's
‘Fibrofog’ – the cognitive dysfunction experienced by up to 80% of Fibromyalgia patients – is not an early harbinger of Alzheimer’s disease, Dr. Robert S. Katz asserted at the annual meeting of the American College of Rheumatology. |
• |
Dr Richard Kwiatek facilitates more, important research: Can you help?
ME/CFS Australia (SA) Inc is pleased to support a new research program, to be facilitated by our highly regarded, local specialist, Dr Richard Kwiatek. |
• |
Prevalence of CFS in youth is focus of Chicago-based study
DePaul University psychologist Leonard A. Jason leads research funded by the U.S. National Institutes of Health. |
• |
Immune abnormalities in patients meeting new diagnostic criteria for ME/CFS
A study providing concrete evidence that CFS/ME, at least for a subset of patients, is the product of an immune system disorder. |
• |
Vibration massage by deep oscillations for Fibromyalgia
The results of a study in which German researchers assessed the safety and effectiveness of treatment with vibration massage using a deep oscillation device for Fibromyalgia. |
• |
Alcohol as treatment for Fibromyalgia?
A contentious new paper from Tufts University asks the question of whether alcohol could be an alternative treatment for Fibromyalgia sufferers. |
• |
David and Goliath, or, the Sick and the Bureaucracy
White House Chronicle columnist Llewelyn King writes about ME/CFS sufferer Susan Kreutzer and her difficulties in being heard by the Department of Health and Human Services. |
• |
New facility searches for Chronic Fatigue cure
A radio interview with Sonya Marshall-Gradisnik, one of the team members of Griffith University's new National Centre for Neuroimmunology and Emerging Diseases. |
• |
Raising kids when you're bedridden with Fibromyalgia or Chronic Fatigue Syndrome
Tips from About.com's Adrienne Dellwo. |
• |
Exciting news for Islanders with Fibromyalgia as research project gets underway
A brand new neuroscience research project is about to get underway on the Isle of Wight that will focus its attention on the debilitating chronic pain condition, Fibromyalgia. |
• |
Creatine supplements help patients' Fibromyalgia
Creatine supplementation helps patients with Fibromyalgia, according to a randomized, double-blind, placebo-controlled trial recently reported in Arthritis Care and Research. |
• |
People with CFS to benefit from Griffith University's NCNED
People living with ME/CFS are set to benefit with the opening of the National Centre for Neuroimmunology and Emerging Diseases at Griffith University. |
• |
IOM accused of bias: Burmeister calls for investigation
An open letter to the US Department of Health and Human Services' Inspecdtor General from ME/CFS sufferer and patient advocate Jeanette Burmeister. |
November |
• |
Unsuspected primary hyperparathyroidism common in Fibromyalgia patients
The prevalence of unsuspected primary hyperparathyroidism among patients diagnosed with Fibromyalgia was 11% in a small exploratory study. |
• |
Coverage of CFS within U.S. medical schools lacking, study finds
The results of a survey sent to personnel at 132 accredited U.S. medical schools. |
• |
The electric 'onesie' that promises to beat the aches and pains dogging your health
A high-tech suit that fires mild electric currents into the body could banish severe muscle pain. |
• |
Comparing Osteoarthritis and Fibromyalgia in the brain
New research suggests that Fibromyalgia and Osteoarthritis may be more similar that has been thought. |
• |
Learning from bed: How online learning made a difference in my life
An article by CJ Brennan about how a world of opportunity opened up for her when she discovered online unviersty courses. |
• |
A genetic test for ME/CFS?
A study that makes the claim that 28 specific genetic profiles can identify patients with ME/CFS patients with 76% accuracy. |
• |
Chemically sensitive find sanctuary in fragrance-free churches
A church in Washington has adopted a fragrance-free policy that has proven very popular with parishioners. |
• |
Incorrect government information could be hurting CFS patients, new research finds
A reminder that the Society's Annual General Meeting will be held tomorrow (Saturday 23 November 2013). |
• |
Society AGM reminder
A reminder that the Society's Annual General Meeting will be held tomorrow (Saturday 23 November 2013). |
• |
ME/CFS and palpitations
As part of an ongoing series of ME/CFS video seminars sponsored by the Dutch ME/CFS Association, Dr. Frans C. Visser, cardiologist, speaks about heart symptoms in Chronic Fatigue Syndrome and ME. |
• |
Survey finds Fibromyalgia hurts love life
A new survey of Fibromyalgia patients has found that well over half believe that chronic pain has significantly harmed their romantic relationships. |
• |
Misleading coverage of Fibromyalgia and Chronic Fatigue Syndrome research
About.com's Adrienne Dellwo discusses inaccuracy in the reporting of ME/CFS/Fibromyalgia research. |
• |
Society AGM reminder
The Society's Annual General Meeting will be held this Saturday (23 November 2013). |
• |
Neurocognitive impairment in childhood Chronic Fatigue Syndrome
Research published in Frontiers in Physiology. |
• |
Earlier symptoms symptoms predicted Fibromyalgia in elderly women
The number and severity of symptoms measured 17 years before diagnoses were predictive of Fibromyalgia in elderly women, according to research presented at the American College of Rheumatology annual meeting. |
• |
Study evaluates use of anticonvulsants to treat Fibromyalgia
Researchers in The Cochrane Collaboration conducted a review of research about the effects of anticonvulsants (antiepileptic drugs) on Fibromyalgia. |
• |
Brain scans show Fibromyalgia patients process pain differently
Brain scans reveal that people with Fibromyalgia are not as able to prepare for pain as healthy people, and they are less likely to respond to the promise of pain relief. |
• |
US insurance company wrongfully denies CFS sufferer
Despite the fact that disability insurance is supposed to protect US policyholders in the event they become disabled prior to retirement, some insurance companies still practice bad faith insurance by wrongly denying disability claims for chronic fatigue syndrome. |
• |
Barrow beauty queen floored by ME speaks of her battle
A profile of British woman Aimee Shields. |
• |
U.S. Fibromyalgia registry developed
A research paper published in Clinical and Translational Science entitled "Construction of a US Fibromyalgia Registry Using the Fibromyalgia Research Survey Criteria". |
• |
New service for ME is 'godsend'
A pilot service involving a UK team, helping chronic fatigue syndrome patients with care closer to home, has been hailed as "a godsend". |
• |
Pleasure and pain brain signals disrupted in Fibromyalgia patients
New research indicates that a disruption of brain signals for reward and punishment contributes to increased pain sensitivity, known as hyperalgesia, in Fibromyalgia patients. |
• |
How Fibromyalgia & Chronic Fatigue Syndrome should be diagnosed
An article from About.com's Adrienne Dellwo about potentially more accurate tests for Fibromyalgia and ME/CFS. |
• |
A blood test for Fibromyalgia?
Research recently presented at the annual meeting of the American College of Rheumatology suggested a new blood test may be able to predict Fibromyalgia. |
• |
Open letter to the US Secretary of Health and Human Services
An open letter, by dozens of signatories, calling for the US Secretary of Health and Human Services to use the Canadian Consensus Criteria for ME/CFS. |
• |
Low-dose naltrexone decreases anxiety, pain, in patients with Fibromyalgia
Low-dose naltrexone may be an effective, highly tolerable, and inexpensive treatment for patients with fibromyalgia, according to results of a prospective, open-label study presented at the 2013 ACR/ARHP Annual Meeting. |
• |
More evidence for immune-system test to diagnose Fibromyalgia
According to research just presented at the American College of Rheumatology annual meeting, a diagnostic laboratory test for Fibromyalgia may come from an immune system profile. |
• |
Young people report worse Fibromyalgia than older patients
Young and middle-aged Fibromyalgia patients report worse symptoms and a poorer quality of life than older patients, according to a new Mayo Clinic study that suggests the disorder plays out differently among different age groups. |
• |
Implanted occipital nerve stimulator proves beneficial for Fibromyalgia
The results of a study that evaluated the effectiveness of occipital nerve stimulation as a surgical treatment for Fibromyalgia. |
• |
Woman felled by 'devastating disease doctors have never heard of'
A profile of ME/CFS sufferer Jennifer Brea and her documentary film project, Canary in A Coalmine. |
October |
• |
ME/CFS questionnaire at Griffith University's NCNED
In addition to their ongoing research into finding a biomarker for ME/CFS, Griffith University's National Centre for Neuroimmunology and Emerging Diseases also has an ME/CFS questionnaire. |
• |
Lyrica may ease pain for depressed Fibromyalgia patients
Fibromyalgia and depression often go hand in hand, and a new study finds that the drug Lyrica helps ease pain in patients being treated for both conditions. |
• |
Participants needed for ME/CFS research in Queensland
Griffith University's National Centre for Neuroimmunology and Emerging Diseases is asking for people to participate in a study using their blood samples to help find an immunological biomarker for ME/CFS. |
• |
Magnesium: An essential supplement for ME/CFS
Erica Verrillo discusses the importance of magnesium for people with ME/CFS. |
• |
Canary In A Coalmine: Kickstarter campaign
A Kickstarter "crowdfunding" campaign to help finalise the publication of the ME/CS documentary, Canary In A Coalmine. |
• |
ME Research UK's Breakthrough magazine now available online
The Autumn 2013 issue of ME Research UK's Breakthrough magazine is now available online. |
• |
ProHealth survey: Antidepressants for ME/CFS and Fibromyalgia
ProHealth is asking readers to participate in a survey to help better understand the effects antidepressants have on patients with ME/CFS and/or FM. |
• |
Readers sound off on FDA's Fibromyalgia hearing
A report of the US's Food and Drug Administration's recent open forum on Fibromyalgia. |
• |
Brainstem involvement in Fibromyalgia
New research suggests brainstem dysfunction in people with Fibromyalgia, providing new clues as what may cause the condition's many symptoms and dysfunctions. |
• |
Post-exertion malaise in Chronic Fatigue Syndrome: symptoms and gene expression
Research that examined "the link between gene expression for metabolite, adrenergic, immune, and glucocorticoid receptors on leukocytes and symptoms (pain, fatigue, and mood) following a maximal exercise test". |
• |
Study finds Fibromyalgia patients are candidates for CoQ10 treatment
Research published in the journal Nutrition entitled "Effect of coenzyme Q10 evaluated by 1990 and 2010 ACR Diagnostic Criteria for Fibromyalgia and SCL-90-R: Four case reports and literature review". |
• |
Noted British composer John Rutter talks about his battle with ME/CFS
British composer of choral music, John Rutter, was recently interviewed by BBC 3 Radio about his new piece of music for the Royal Wedding of Prince William/Catherine Middleton, and his battle with ME/CFS. |
• |
Minimally invasive sinus surgery may help Chronic Fatigue Syndrome
An advanced, minimally-invasive procedure called Balloon Sinuplasty that not only treats Sinusitis but may help reduce the symptoms of Chronic Fatigue Syndrome. |
• |
Fibromyalgia sufferers get significent pain relief from IV lidocaine
Patients with Fibromyalgia who are resistant to more routine therapies have a new pain relief treatment available, according to a study presented at the American Society of Anesthesiologists' Anesthesiology 2013 annual meeting. |
• |
Inflammatory chemokines – a diagnostic biomarker for Fibromyalgia?
A study that looked at the altered profile of chemokines in Fibromyalgia patients. |
• |
Evidence of brainstem dysfunction in Fibromyalgia patients
A research paper entitled "Alterations in excitatory and inhibitory brainstem interneuronal circuits in fibromyalgia: Evidence of brainstem dysfunction". |
• |
Increased levels of IL-17A found in patients with Fibromyalgia
A study that aimed to evaluate the plasma levels of IL-17A in Fibromyalgia patients, and to look for any correlations between this data and the concentrations of some pro- and anti-inflammatory cytokines. |
• |
FDA to hold public teleconference on ME/CFS drug development
PANDORA Org and many ME/CFS patients will participate in the FDA's upcoming Chronic Fatigue Syndrome and Myalgic Encephalomyelitis Stakeholder Teleconference, and their goal is to motivate the FDA to bring pharmaceutical and biotech companies to the table in a second workshop. |
• |
Identifying Fibromyalgia subgroups
New research may help with the goal of establishing subgroups of Fibromyalgia for the purposes of research and treatment. |
• |
Fibromyalgia Support Group raises funds and awareness
Volunteers from a UK Fibromyalgia Support Group have been busy raising money to support their work. |
• |
Epigenetic alterations in women with Fibromyalgia
A study entitled "Epigenetic alterations and an increased frequency of micronuclei in women with Fibromyalgia", published in the journal Nursing Research and Practice. |
• |
HPV jabs: No link with ME/CFS
A study has found no evidence that the cervical cancer vaccine Cervarix causes Chronic Fatigue Syndrome. |
• |
Living with Fibromyalgia: Education, research helps
A profile of Illinois Fibromyalgia sufferer Shari Ferbert. |
• |
FDA's Voice Of The Patient report on CFS reveals disease impact and areas for progress
PANDORA Org and other patient organizations say a recent report from the US Food and Drug Administration shows the agency must take further action to open up opportunities for ME/CFS drug development. |
• |
Advocates pressure Oregon to cover Fibromyalgia treatments
Oregon is the only US state whose Medicaid program doesn’t cover treatment for Fibromyalgia. |
• |
Inflammation: What's its role in Fibromyalgia?
Several aspects of Fibromyalgia are still up for debate, including the cause(s), the underlying mechanism(s), etc – including the role of inflammation. |
• |
Complex chronic diseases clinic opens in Canadian hospital
The Complex Chronic Disease Clinic, which recently opened at British Columbia's BC Women's Hospital & Health Clinic, is designed specifically for patients suffering from diseases such as Chronic Fatigue Syndrome, Fibromyalgia, and Lyme disease. |
• |
£864,000 funding for Bath doctor's child health research
A doctor at the UK's Royal National Hospital for Rheumatic Diseases has been given £864,000 of research funding for a new child health project. |
• |
The importance of getting a place at the table
Washington journalist Llewelyn King discusses the importance of lobbying. |
• |
The emerging role of autoimmunity in ME/CFS
There is abundant evidence that many patients with ME/CFS (up to around 60%) may suffer from autoimmune responses. |
• |
Valganciclovir for Chronic Fatigue Syndrome
A new study suggests that the antiviral drug valganciclovir may be an effective treatment for certain subgroups of ME/CFS. |
September |
• |
'Opioid refugees' keynote topic at PAINWeek
The stories are widespread and persistent: pain patients being denied opioid medications by pharmacies or being left untreated by doctors. |
• |
ABC radio interview with Dr. Nicole Phillips
A radio interview with psychiatrist, medical advisor, and educator, Dr Nicole Phillips about ME/CFS in Australia. |
• |
Hypothalamic-pituitary disorders increased risk for Fibromyalgia-associated symptoms
Patients with hypothalamic-pituitary disorders appeared to be at increased risk for Fibromyalgia-associated symptoms, according to recent study results. |
• |
Predictors for improvement in Fibromyalgia patients
A paper published in the medical journal Clinical Rheumatology. |
• |
ME/CFS explained by activated immuno-inflammatory, oxidative, and nitrosative stress pathways
A research paper that reviews mitochondrial dysfunctions in ME/CFS. |
• |
Spine treatments little help in Fibromyalgia
Individuals seeking care for back pain whose symptom pattern was typical of Fibromyalgia derived little benefit from minimally invasive spine therapies such as epidural steroid injections, researchers found. |
• |
Study shows no association between early cognitive ability and ME/CFS
A recent psychosocial study that found no connection between cognitive development and ME/CFS, which the psychiatric community considers a "functional disorder" (i.e., psychosomatic). |
• |
'Life felt like hell every day'
A profile of British actress and ME/CFS sufferer Martine McCutcheon. |
• |
Chronic Fatigue Syndrome patients feel increasingly isolated
Sufferers of Chronic Fatigue Syndrome are feeling increasingly isolated due to their family and friends’ lack of understanding of their condition, a study has revealed. |
• |
Everton defender Leighton Baines signs up to arts
Madelaina Murthwaite, owner of the UK's Madelainartz art gallery and Fibromyalgia sufferer, was thrilled when Everton soccer player Leighton Baines signed an original portrait of himself, adding to her collection of celebrity-signed portraits. |
• |
Personality does not distinguish people with Fibromyalgia but identifies subgroups of patients
Research published in the medical journal General Hospital Psychiatry. |
• |
'Fibromyalgia is unfair, inhumane and it ruins lives' says sufferer Jackie Mustoe
A profile of UK mother-of-one Jackie Mustoe, who was diagnosed with Fibromyalgia eight years ago. |
• |
Chemicals in foods may worsen Fibromyalgia symptoms
According to one medical study, some chemicals found in everyday foods may exacerbate Fibromyalgia symptoms. |
• |
£1.2 million for Chronic Fatigue Syndrome research
Two new research projects that aim to advance treatment for people with ME/CFS, which affects an estimated 600,000 adults and children in the UK, have been awarded funding totalling nearly £1.2 million from the National Institute for Health Research. |
• |
Goat's milk and God helping people
Lynette “Nettie” Patterson, who started her own business out of her barn in Troup, Texas in 2012, says God and goat's milk has helped her. |
• |
A mother and her two daughters are battling chronic fatigue
A profile of Victorian woman Kathy Sinnott and her daughters Alice and Miriam who have Myalgic Encephalomyelitis, commonly known as Chronic Fatigue Syndrome. |
• |
Acupuncture and qigong for Chronic Fatigue Syndrome
A recent study suggests that antidepressants may not be effective in the long-term as a Fibromyalgia treatment. |
• |
Chronic pelvic pain syndrome patients prone to Fibromyalgia, chronic fatigue
The likelihood of developing Fibromyalgia and Chronic Fatigue Syndrome increases over time in patients with urologic chronic pelvic pain syndromes, but only men seem to experience worsening of their urologic symptoms the longer the symptoms exist. |
• |
Research suggests yoga can counteract Fibromyalgia
According to new research conducted at Oregon Health & Science University, yoga exercises may have the power to combat Fibromyalgia. |
• |
Quality of life for Fibromyalgia patients worsens after taking antidepressants for a year
A research paper entitled "The Use of Antidepressants in the Long-Term Treatment Should not Improve the Impact of Fibromyalgia on Quality of Life". |
• |
Bone mass and vitamin D levels in women with Fibromyalgia
A research paper published in Osteoporosis International. |
• |
Welsh mother battles Fibromyalgia and starts business
A devoted mother struck down by Fibromyalgia has vowed to fight on by starting her own business. |
• |
Teen Fibromyalgia can become an adult problem
A recent study explored whether teens with Fibromyalgia still had symptoms as adults, and the results showed that most did. |
• |
Antidepressants for Fibromyalgia: do they work long-term?
A recent study suggests that antidepressants may not be effective in the long-term as a Fibromyalgia treatment. |
• |
Chronic Fatigue Syndrome treatment breakthrough
A team of Norwegian researchers have had their first Chronic Fatigue Syndrome breakthrough treatment using the anti-cancer agent rituximab. |
• |
Using mobility aids with Fibromyalgia and Chronic Fatigue Syndrome
An article by About.com's Adrienne Dellwo about using mobility aids. |
• |
Creatine no help for Fibromyalgia
Creatine supplementation improved several measures of muscle function in patients with Fibromyalgia in a small randomized trial, but most symptoms didn't improve. |
• |
Probiotic shown to reduce pro-inflammatory cytokines in ME/CFS patients
A study entitled "Bifidobacterium infantis 35624 modulates host inflammatory processes beyond the gut". |
• |
Amber Sweetin beats ME to be Miss Teen Edinburgh
A teenager battling ME which forced her to quit school has made it to the finals of a national modelling competition. |
• |
Stand up for cheaper medicines
Activism from the Consumers Health Forum of Australia, Choice, and ACOSS on behalf of Australia purchasers of prescription medicines. |
August |
• |
Society seminar reminder
A reminder that the Society's next seminar will be held today from 1pm - 3pm. |
• |
Characterising eye movement dysfunction in ME/CFS
A paper that presents the first experimental research to objectively examine eye movements in those suffering from ME/CFS. |
• |
Society seminar
The Society's next seminar will be held this Saturday, 31 August 2013, from 1pm - 3pm. |
• |
Chronic Fatigue Syndrome or inherited HHV-6?
New research suggests that some diagnosed cases of chronic fatigue syndrome (ME/CFS) may be more accurately categorized as inherited human herpesvirus-6 (HHV-6.). |
• |
Topamax for Fibromyalgia
A number of clinical studies suggest that using epilepsy drug Topamax for Fibromyalgia treatment is effective. |
• |
Fibromyalgia patients who stopped long-term milnacipran therapy exhibited greater response loss
Patients with Fibromyalgia who had received milnacipran therapy for an average of three years had a greater loss of therapeutic response when switched to placebo compared with those who continued treatment, according to recent study results. |
• |
Study found CoQ10 supplementation improved Fibromyalgia symptoms
A study entitled "Can Coenzyme Q10 Improve Clinical and Molecular Parameters in Fibromyalgia?". |
• |
New questionnaire for measuring participation and social functioning in Fibromyalgia patients
A study entitled "Participation and social functioning in patients with fibromyalgia: development and testing of a new questionnaire". |
• |
A pilot registry of fatiguing illnesses and Chronic Fatigue Syndrome
Researchers "conducted a pilot registry of unexplained fatiguing illnesses and CFS to determine the feasibility of establishing and operating a registry and implementing an education outreach initiative". |
• |
Adolescent Fibromyalgia may persist into adulthood, study shows
The vast majority of patients diagnosed in adolescence with Juvenile-Onset Fibromyalgia (JFM) continue to endure the disease or its associated symptoms into young adulthood, according to a long-term follow-up study. |
• |
Fatigue's impact on cognitive, physical, and quality of life status in Fibromyalgia and RA patients
A research paper called "A comparison of impact of fatigue on cognitive, physical, and psychosocial status in patients with fibromyalgia and rheumatoid arthritis". |
• |
CDC study must include CPET, NK Cell and viral testing, advocates insist
Mark Berry invites readers to join 31 advocates and 11 organizations and write to the CDC, asking them to include appropriate medical tests in their multi-site study. |
• |
Allergic to the 21st century
A profile of Tasmanian Multiple Chemical Sensitivity sufferer Jody Watkins. |
• |
US softball coach Sally Whittaker-Kahan resigns
US softball coach Sally Whittaker-Kahan has resigned due to Fibromyalgia. |
• |
Support for CFS/ME/Fibromyalgia sufferers on Fraser Coast
An article about Queensland's newest CFS/ME/Fibromyalgia support group. |
• |
Heart rate variability in patients with Fibromyalgia and patients with CFS
Research published in Seminars in Arthritis and Rheumatism that reviewed the medical literature on heart rate variability in patients with Fibromyalgia and patients with Chronic Fatigue Syndrome. |
• |
WHAT ABOUT ME? documentary
Details about the upcoming documentary What About ME?. |
• |
Foodies learn about special diet at Arnold's Way Cafe
An article from the US about an event called "Raw-some Experience III" at Arnold’s Way Cafe, presented by Rachel Richter, a raw food advocate and recoverer from ME/CFS. |
• |
Treatment satisfaction varied for Fibromyalgia patients
Patients with Fibromyalgia reported varied levels of treatment satisfaction that were predicted by specific patient-related factors, according to study results. |
• |
Divorce risk: higher with Fibromyalgia and Chronic Fatigue Syndrome?
About.com's Adrienne Dellwo discusses divorce rates in couples where one of the partners suffers from a chronic illness. |
• |
Couple perceptions of Fibromyalgia symptoms: the role of communication
Research published in the Pain journal. |
• |
New research shows sleep disorders apparent in Chronic Fatigue Syndrome
New research has uncovered that sleep problems in Chronic Fatigue Syndrome patients are more identifiable. |
• |
Increased glutamate and lactate concentrations in Fibromyalgia patients
A research paper entitled "Chronic Widespread Pain: Increased Glutamate and Lactate Concentrations in the Trapezius Muscle and Plasma". |
• |
Fearless trio wearing beard beanies tackles Mongol Rally for charity
Decked out in Beard Head Beanies, Australian "Machiniacs" team embarks on 35,000km drive from London to Mongolia – all to raise money for ME/CFS. |
• |
Case of the week: Effect, not cause, of condition is the key when considering disability
A legal case from the UK involving a woman's treatment in the workplace due to her Chronic Fatigue Syndrome. |
• |
Revised Italian version of FIQ showed reliability, validity for Fibromyalgia patients
The Italian Fibromyalgia Impact Questionnaire Revised version displayed reliability, internal validity, and 2-D structure for patients with Fibromyalgia, according to study results. |
• |
Tender-point acupuncture for Fibromyalgia
A new study suggests that acupuncture at Fibromyalgia tender points may be an effective treatment option. |
• |
Prevalence of Fibromyalgia
Research that sought to estimate and compare the prevalence of Fibromyalgia by two different methods in Olmsted County, Minnesota. |
• |
Newport woman's Fibromyalgia and Chronic Fatigue Syndrome awareness day big success
A fundraising and awareness day organised by a Welsh woman to raise money for Fibromyalgia and Chronic Fatigue Syndrome charities, brought in just over £800. |
• |
Study finds evidence of nerve damage in around half of Fibromyalgia patients
About half of a small group of patients with Fibromyalgia was found to have damage to nerve fibers in their skin and other evidence of a disease called small-fiber polyneuropathy. |
• |
Busted! Exercise study finds energy production system is broken in Chronic Fatigue Syndrome
An article by Cort Johnson about the problems associated with oxygen in people with Chronic Fatigeu Syndrome. |
July |
• |
CoQ10 reduces inflammasome activation in Fibromyalgia patients
Research entitled "NLRP3 Inflammasome is activated in Fibromyalgia: the effect of Coenzyme Q10". |
• |
"It's hard not being in control of my body"
A woman so addicted to plastic surgery that she's had 59 procedures has told how she still struggles with her obsession with beauty, especially after a recent weight gain due to Fibromyalgia. |
• |
Researchers redefine ME/CFS and Fibromyalgia as a "mental disorder"
A research paper entitled "One single diagnosis, bodily distress syndrome, succeeded to capture 10 diagnostic categories of functional somatic syndromes and somatoform disorders". |
• |
Inherited virus can cause cognitive dysfunction and fatigue
Scientists at the University of South Florida's Morsani College of Medicine, along with the help of several collaborating scientists and clinicians, have published an article in the Journal of Medical Virology suggesting that a common virus, Human Herpesvirus 6 (HHV-6), is the possible cause of some CFS cases. |
• |
Society seminar reminder
A reminder that the Society's seminar is today (Saturday 27 July 2013), from 1pm - 3pm. |
• |
A blood-spot diagnostic test for Fibromyalgia
Researchers have developed a reliable way to use a finger-stick blood sample to detect Fibromyalgia. |
• |
Society seminar
The Society's next seminar will be held this Saturday, 27 July 2013, from 1pm - 3pm. |
• |
Marine who fought Taliban, illness, and depression releases record
A British Royal Marines bugler who battled with physical and mental health problems has released an album to support forces charities. |
• |
Combining milnacipran and pregabalin in Fibromyalgia treatment
Research entitled "Milnacipran combined with pregabalin in fibromyalgia: a randomized, open-label study evaluating the safety and efficacy of adding milnacipran in patients with incomplete response to pregabalin". |
• |
Philippines senator to miss opening of Congress due to ME/CFS
Senator Miriam Defensor Santiago will miss the opening of the 16th Congress because of her Chronic Fatigue Syndrome – a debilitating condition that she says has kept her most of the time at home for almost six months. |
• |
A doctor's view of patients with chronic disease
As a companion piece to yesterday's article about doctor-patient relationships from the patient's point of view, this article is from a doctor's perspective. |
• |
Don't be intimidated in the doctor's office: six strategies
Learn how not to be intimidated in the doctor's office. |
• |
Measuring workload in Chronic Fatigue Syndrome
New research supports the need for a second test of function when trying to measure the workload – and delayed recovery rate – of people with Chronic Fatigue Syndrome. |
• |
Canadian recommendations for rational care of persons with Fibromyalgia
A report issued by the Canadian Pain Society and Canadian Rheumatology Association. |
• |
Hepatitis B vaccine has been ruled to cause Chronic Fatigue Syndrome
The vaccine known as hepatitis B has been ruled by a United States Court of Federal Claims that “a dose of the hepatitis B vaccination caused [a patient] to develop chronic fatigue syndrome.” |
• |
Whole-body vibration training improved balance in Fibromyalgia patients
The results of research to determine whether an 8-week exercise programme supplemented with whole-body vibration improved body balance and dynamic strength in women with Fibromyalgia. |
• |
Trowbride charity worker is a Community Hero
Fibromyalgia sufferer Lesley Tapp is UK newspaper the Wiltshire Times’ Community Hero for July, thanks to her work setting up a local support group for those who share her condition. |
• |
Two-day exercise test provides objective evidence for post-exertional malaise in ME/CFS
A research paper entitled "Discriminative Validity of Metabolic and Workload Measurements to Identify Individuals With Chronic Fatigue Syndrome". |
• |
Book Review: 'Love and Fatigue in America' by Roger King
Blogger Erica Verrillo reviews a novel by Roger King about love, life, and ME/CFS. |
• |
Vagus nerve infection in Chronic Fatigue Syndrome
A new hypothesis suggests that the ongoing immune response of ME/CFS may be the result of infection of the vagus nerve. |
• |
Harvard student begins new ME/CFS documentary project
Harvard student and ME/CFS sufferer Jennifer Brea is making a documentary on the disease. |
• |
Maltese strategy on Fibromyalgia and ME to be developed
A working party in Malta will be set up to develop a local strategy focusing on Fibromyalgia, Chronic Fatigue Syndrome and Myalgic Encephalomyelitis, Malta's Ministry for Health announced today. |
• |
UK ME/CFS Biobank project awarded £1 million grant
A pioneering biobank project aimed at the study of ME/CFS has been awarded a grant totalling £1,029,411 ($1,588,225) over three years by the US National Institutes of Health. |
• |
Small nerve fibers impaired in people with Fibromyalgia
A study that compared the small nerve fibers of Fibromyalgia patients with those of people with depression who don't have Fibromyalgia and with healthy controls. |
• |
Author Beckie Butcher chronicles her battle with Chronic Fatigue Syndrome
In Beckie Butcher's new book, “My Battle with Chronic Fatigue Syndrome”, the ME/CFS sufferer gives an intimate and inspiring account of having this physically and emotionally taxing disorder. |
• |
Gran's constant pain is eased by doctor's help
A great-grandmother who says she had "suicidal thoughts" because of chronic pain has praised her doctor for giving her a "new lease of life". |
• |
Overlapping syndromes, post-polio and ME/CFS: An open letter from Mia Farrow
A letter written by the actress Mia Farrow, who was stricken by polio at age nine, and her son, Thaddeus, who was paralyzed by polio at age twelve, about the overlap between post-polio and ME/CFS. |
• |
Downing Street reception for charity supporters
Supporters of Bristol-based charity Action for ME were invited to a reception at 10 Downing Street. |
• |
PatientsLikeMe: Chronic Fatigue Syndrome Community
Data on aspects of having ME/CFS, such as lists of symptoms, drugs taken and their effectiveness, etc. |
• |
Shrewsbury man turns adversity into aid for the library
An article about Massachusetts library volunteer and ME/CFS sufferer Dean Gillam. |
• |
One woman's battle with chronic fatigue
An article about Tasmania ME/CFS sufferer Georgia Eastley. |
June |
• |
Bassaleg woman in constant pain with Fibromyalgia and ME
An article about Welsh ME/CFS/Fibromyalgia sufferer Natasha Trew-Burns. |
• |
Why I hope Morgan Freeman becomes a Fibromyalgia spokesman
An article by About.com's Adrienne Dellwo about her hope that actor and Fibromyalgia sufferer Morgan Freeman becomes a spokesman for the disease. |
• |
Cough suppressant may ease Fibromyalgia pain
A medication normally used to quiet a stubborn cough may also help ease the chronic pain of Fibromyalgia, a small study suggests. |
• |
A young man, a big disease, and a big idea
The White House Chronicle's Llewellyn King highlights the achievements of ME/CFS sufferer Ryan Prior. |
• |
Does spa therapy help improve Fibromyalgia symptoms?
A study entitled "Clinical researches on the efficacy of spa therapy in fibromyalgia. A systematic review". |
• |
Some cases of Fibromyalgia may actually be small-fiber polyneuropathy
Research published in Pain provides evidence that small-fiber polyneuropathy underlies some illnesses currently labeled as fibromyalgia. |
• |
Blood in the brain and Fibromyalgia pain processing
New research provides additional evidence of a hyperactive brain response to pain in Fibromyalgia, including the emotional and cognitive aspects of the illness. |
• |
Cognitive impairments associated with CFS and POTS
Medical literature suggesting that both ME/CFS and Postural Orthostatic Tachycardia Syndrome may share features that may contribute to "brain fog". |
• |
Fibromyalgia is not all in the head, it's in skin, paper concludes
Researchers at Integrated Tissue Dynamics LLC say they made have found a biological rationale – a peripheral neurovascular pathology consistently present in the skin of female Fibromyalgia patients which may be a driving source of the reported symptoms. |
• |
CoQ10 depletion implicated in Fibromyalgia, ME/CFS, and Parkinson's
A paper that examines the potential repercussions of CoQ10 depletion in illnesses such as Parkinson's disease, depression, ME/CFS, and Fibromyalgia. |
• |
Full results of PACE trial withheld from public scrutiny
An article about Robert Courtney's unsuccessful attempt to gain access to the complete results from the PACE trial. |
• |
Readers sound off on Fibromyalgia study
Many readers of the National Pain Report had strong objections to a recent story it reported on a Dutch study that found weather conditions had no impact on Fibromyalgia pain and fatigue in women. |
• |
ME/CFS and blood circulation
An article by Cort Johnson, with an accompanying video featuring Dr. Kenny De Meirleir, that discusses blood circulation in ME/CFS patients. |
• |
Cognitive performance is unrelated to pain severity in women with CFS
A study that suggest cognitive dysfunction in Chronic Fatigue Syndrome originates in the central nervous system, rather than being caused by the distraction of pain. |
• |
Illness sufferers ask MP for help
Fibromyalgia suffers in the UK raised concerns about the support they receive at a meeting with Warminster MP Andrew Murrison last Friday. |
• |
Lanesborough Elementary School's Jane Shiyah to retire
A profile of US school counselor Jane Shiyah and her therapy dog, Inky. |
• |
Controversial advice on chemicals in pregnancy
A discussion on the possible dangers of various chemicals during pregnancy. |
• |
Research uses lasers, resistance training to zap Fibromyalgia pain
Details of a research project involving low-powered laser therapy and resistance exercise training to alleviate Fibromyalgia symptoms. |
• |
Nerve stimulation might ease Fibromyalgia pain
An implanted device that zaps the nerves at the nape of the neck – shown to be effective in treating some people with migraines – may also help ease Fibromyalgia. |
• |
"Pain buttons" in Fibromyalgia
An article by About.com's Adrienne Dellwo about tender points in Fibromyalgia. |
• |
Cure for painful malady is closer
New York company Integrated Tissue Dynamics has published peer-reviewed research that found Fibromyalgia is caused by excessive, abnormal nerve activity that disrupts blood flow to and from the hands and feet. |
• |
Pain association for arthritis and Fibromyalgia compared
A Perth study has found that pain at rest is associated with depression scores in patients with rheumatoid arthritis, and is associated with stress in patients with Fibromyalgia. |
• |
Sustained exercise improved Fibromyalgia patients’ well-being without worsening pain
Patients with Fibromyalgia who participated in moderate-to-vigorous physical activity for at least 12 weeks improved their physical function and overall well-being, according to study results. |
• |
Thyroid and blood sugar issues in Fibromyalgia
Fibromyalgia isn't confined to one organ or system. It's all over, and it can impact just about anything in your body – including your thyroid. |
• |
Rain and pain in Fibromyalgia
A study has found that Fibromyalgia pain and fatigue are not affected by weather conditions. |
• |
Fibromyalgia pain and premature aging
A new study suggests that a structure called a telomere, which is part of a chromosome, and considered a measure of biological aging, is shorter than it should be. |
• |
High-dose thiamin improves Fibromyalgia symptoms
A study involving administering high doses of thiamin to Fibromyalgia patients. |
• |
Diagnosis and management of ME/CFS in black and minority ethnic people
A study from the Institute of Population Health at the University of Manchester in the UK. |
• |
Internet-based therapy led to long-term chronic fatigue recovery in adolescents
Adolescent chronic fatigue treated with Internet-based cognitive-behavioral therapy effectiveness was maintained at long-term follow-up, according to recent study results published in Pediatrics. |
• |
Fibromyalgia and ear-related symptoms
Research published in Clinical Rheumatology that investigates why many patients with Fibromyalgia complain of ear-related symptoms. |
May |
• |
Pacing for big projects with Fibromyalgia and Chronic Fatigue Syndrome
Have you found yourself needing to take on a big project, but not sure you'd be able to get it done? With Fibromyalgia and Chronic Fatigue Syndrome, that is always a concern. |
• |
Doctors offer hyperbaric therapy to ease pain
In the US, more doctors are now offering hyperbaric therapy in their offices. |
• |
Looking forward to something with Fibromyalgia and Chronic Fatigue Syndrome
About.com's Adrienne Dellwo discusses the value of anticipating doing something you enjoy. |
• |
Providence woman campaigning for more Fibromyalgia research
Patients should take more responsibility for their overall health according to Jan Chambers, founder and president of the National Fibromyalgia and Chronic Pain Association. |
• |
Doctors help princess find Fibromyalgia pea
After running medical tests in four hospitals and talking to nine doctors in five years, a female pediatric doctor surnamed Yu has finally been diagnosed with Fibromyalgia, also known as “Princess and the Pea syndrome.” |
• |
Women with Fibromyalgia are still met with distrust
A new doctoral thesis shows that women with Fibromyalgia are met with distrust and lack of understanding from healthcare, at work, and also among friends and family. |
• |
Autoimmunity to serotonin in Chronic Fatigue Syndrome
A new study on Chronic Fatigue Syndrome suggests that an autoimmune reaction to the neurotransmitter serotonin damages serotonin-sensitive brain cells. |
• |
Are B-cells to blame for Chronic Fatigue Syndrome?
The ravages of Chronic Fatigue Syndrome may be the result of an overlooked but essential part of the body's own immune system. |
• |
Telomere length linked to Fibromyalgia pain
Considered a marker for biological aging linked to increased risk for morbidity and mortality, shortened leukocyte telomere length now has been associated with pain in Fibromyalgia, researchers at the University of Michigan have found. |
• |
Bloodspot-based diagnostic test for Fibromyalgia
A study that investigates a potential diagnostic blood test for Fibromyalgia. |
• |
Pain patients speak out at public forum
Arlene Grau, who has rheumatoid arthritis, migraines, fibromyalgia and lupus, was part of a panel sponsored by KPCC Southern California Public Radio for a forum on pain called "Invisible Suffering." |
• |
Floored by ME – the condition that defies diagnosis
A profile of Irish ME/CFS sufferer Des Doherty. |
• |
Interview with Professor Julia Newton
An interview with Professor Julia Newton, one of the founding members of the recently launched UK CFS/ME Research Collaborative. |
• |
New Canadian guidelines for treating Fibromyalgia
Physicians from the McGill University Health Centre, McGill University and the University of Calgary have published a review article in the CMAJ (Canadian Medical Association Journal) to help family doctors diagnose and treat Fibromyalgia, which represents the first time researchers have published Canadian guidelines to help manage the condition. |
• |
Research team in bid to solve chronic fatigue riddle
A Gold Coast research team is making world-leading progress that could change the lives of people with Chronic Fatigue Syndrome. |
• |
City of Portland sued over workplace fragrances
The city of Portland was served with a lawsuit that accuses Bureau of Maintenance managers of failing to accommodate an employee who suffers from Multiple Chemical Sensitivity. |
• |
Genetics of Fibromyalgia: studying families
In a new study, scientists found evidence suggesting a strong genetic component of Fibromyalgia by genotyping members of multiple families in which several members have the condition. |
• |
Lyme: a four letter word
Australian GPs reveal why they are risking their reputations by diagnosing patients with Lyme disease – from bacteria that are not even supposed to be in Australia. |
• |
Fear of activity with Fibromyalgia and Chronic Fatigue Syndrome
Because Fibromyalgia and Chronic Fatigue Syndrome symptoms can get a whole lot worse after physical activity, it's pretty natural for sufferers to be afraid of the consequences, and therefore avoid activity. |
• |
International Awareness Day
May 12th is International Awareness Day for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). |
• |
FREE: Chronic Fatigue Syndrome – A Treatment Guide, 2nd Edition
In honor of May 12th, International FM and CFS/ME Awareness Day, the eBook of Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition will be available as a free download on May 10-12 [May 11-13 in the Southern Hemisphere] on Amazon.com. |
• |
Open Medicine Institute ME/CFS research
The Open Medicine Institute announced that it has received over $1 Million in contributions to undertake novel research into ME/CFS. |
• |
Joan hopes to go gold
A profile of UK ME/CFS sufferer and successful gardener Joan Mulvenna. |
• |
Calgary doctor helps write guidelines for treatment of Fibromyalgia
Researchers have released the first set of Canadian guidelines to help doctors diagnose and manage Fibromyalgia. |
• |
Radio interview with Dr David Mitchell
Adelaide radio station 5RPH recently broadcast an interview with Dr. David Mitchell, a South Australian GP with expertise in ME/CFS. |
• |
Pain tolerance and Fibromyalgia
About.com's Adrienne Dellwo discusses the difference between pain tolerance and pain threshold with Fibromyalgia. |
• |
Radio interview with Dr Rosamund Vallings
Dr Rosamund Vallings spoke to Belinda Heggen on South Australian radio station 5AA about Chronic Fatigue Syndrome. |
• |
Depression in paediatric Chronic Fatigue Syndrome
UK research that describes the prevalence of depression in children with ME/CFS, and investigates the relationship between depression in ME/CFS and clinical symptoms such as fatigue, disability, pain and school attendance. |
• |
Patients with chronic fatigue use additional areas of brain when using memory
Scientists studying the brain scans of chronic fatigue patients have found they use additional brain regions to do simple tasks requiring attention. |
• |
Results of switching to milnacipran in Fibromyalgia patients
Research published in the Journal of Pain Research entitled "Results of switching to milnacipran in fibromyalgia patients with an inadequate response to duloxetine: a phase IV pilot study". |
• |
You and ME: working together to discover causes of CFS/ME
Three new studies in the UK examining the biological causes of ME/CFS are being showcased at the launch of a new collaboration to improve understanding and treatment of the condition. |
April |
• |
Breakthrough research reveals pathway of Fibromyalgia
Studies at the University of Illinois College of Medicine at Chicago, comparing Fibromyalgia patients to healthy people, confirm that Fibromyalgia is an immune system disorder. |
• |
Could mitochondrial dysfunction be a marker to distinguish FM from ME/CFS?
Research published in Antioxidants & Redox Signaling that investigated the possible association between mitochondrial biogenesis and oxidative stress in patients with Chronic Fatigue Syndrome and Fibromyalgia. |
• |
Dry eye signs and symptoms found in patients with Fibromyalgia
Fibromyalgia patients present with signs and symptoms of evaporative and aqueous deficient dry eye disease, according to a physician in San Francisco. |
• |
New research body to look at Chronic Fatigue Syndrome
A UK consortium called the Chronic Fatigue Syndrome/Myalgic Encephalitis Research Collaborative has been set up to help research into ME/CFS. |
• |
More evidence for acupuncture as Fibromyalgia treatment
A new study published in Rheumatology International suggests that dry needling (another name for acupuncture) is an effective treatment for Fibromyalgia. |
• |
Panax ginseng compared to Amitriptyline and placebo for Fibromyalgia
Research entitled "Effects of Panax ginseng extract in patients with fibromyalgia: a 12-week, randomized, double-blind, placebo-controlled trial". |
• |
Video: Mind the Abyss (part 1)
Mind the Abyss - Prodrome is the first part of a video series called Mind the Abyss, which is based on the ME/CFS experience of the filmmaker. |
• |
Grant boosts hopes of finding biomarkers for CFS
New Zealand Lottery Health Research grants totalling $126,200 have boosted University of Otago researchers Angus Mackay and Prof Warren Tate's hopes of finding a diagnostic blood test for Chronic Fatigue Syndrome, once called Tapanui flu. |
• |
Young vs. old: different type of Chronic Fatigue Syndrome?
New research suggests that cases of Chronic Fatigue Syndrome beginning after age 50 are different from those that start earlier in life. |
• |
FREE: Chronic Fatigue Syndrome – A Treatment Guide, 2nd Edition
Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition will be free on Saturday, April 20th and Sunday, April 21st [Sunday and Monday in the Southern Hemisphere], and again on May 10-12, on Amazon.com. |
• |
Report shows devastating impact of dispersant used in "cleanup"
The Government Accountability Project has released a report that details the devastating long-term effects on human health and the Gulf of Mexico ecosystem stemming from BP and the US federal government's widespread use of the dispersant Corexit, in response to the 2010 Deepwater Horizon oil spill. |
• |
Identifying Fibromyalgia
A profile of Queensland Fibromyalgia sufferer Brett Dean. |
• |
For a sick friend: first, do no harm
Advice for people who who may not say the most appropriate thing to their sick friend. |
• |
Study suggests Fibromyalgia might be an immunologic disorder
New research into the immune system suggests that Fibromyalgia may be a neuroimmune syndrome in nature, rather than a neurological one. |
• |
Antiviral drug effective in treating herpesvirus-infected CFS patients
At the 2013 HHV6 Conference in Paris, France, Dr. Dan Peterson reported on the results of a retrospective study following 65 severely ill Chronic Fatigue Syndrome patients given a course of Vistide from 2005-2012 for HHV6 and/or HCMV infections. |
• |
Two TENS devices are better than one for Fibromyalgia pain
Research results published Rheumatology International entitled "Efficacy of the use of two simultaneously TENS devices for fibromyalgia pain". |
• |
New psych disorder could mislabel sick as mentally ill
A newly-labeled psychiatric disorder has fueled a debate among patients and advocacy groups who fear that broader and "looser" criteria may make it easier for doctors to dismiss patients as mentally ill when in fact they have a physical illness. |
• |
Two Fibromyalgia medications don't stand out when compared to placebo
According to a review published in The Cochrane Library, two medications commonly prescribed to relieve Fibromyalgia pain – Cymbalta (duloxetine) and Savella (milnacipran) – help some patients, but cause problems for others. |
• |
Scientists nut out how to predict pain
Scientists have figured out how to recognise pain in brain scans, possibly paving the way for future tests that could accurately gauge its severity. |
• |
Symptom vs. comorbid condition in Fibromyalgia & Chronic Fatigue Syndrome
With Fibromyalgia and Chronic Fatigue Syndrome it is fairly common to have a few dozen symptoms and half a dozen (or more) comorbid conditions, and it can be hard to tell which is which. |
• |
Cognitive deficits in Chronic Fatigue Syndrome
Recently published research that examined cognitive deficits in people with Chronic Fatigue Syndrome and their relationship to psychological status, symptoms, and everyday functioning. |
• |
Parents' fury as Harlow schoolboy with Chronic Fatigue Syndrome is denied home tuition
The parents of a British schoolboy suffering from Chronic Fatigue Syndrome claim their son is being "denied an education" because of his illness. |
• |
IBS, Meet CFS: The link between Irritable Bowel and Chronic Fatigue Syndrome
It's unclear why IBS and CFS often go together, but researchers are working to unravel the mystery to help patients manage both conditions. |
• |
Contrasting CFS versus ME/CFS
Research conduced by Leonard A. Jason et al and published in the journal Fatigue: Biomedicine, Health & Behavior. |
• |
Chronic Fatigue Syndrome: A patient-centred approach to management
A feature article in The Royal Australian College of General Practitioners' April 2013 issue of Australian Family Physician. |
• |
Radio interview with Jessica Philby
Adelaide radio station 5RPH recently broadcast an interview with Jessica Philby, an ME/CFS sufferer who is studying a Bachelor of Interior Architecture at the University of South Australia and is the recipient of a Sir Charles Bright Scholarship. |
• |
Chronic Fatigue Syndrome: hidden in plain sight
White House correspondent Llewellyn King highlights the plight of Chronic Fatigue Syndrome sufferers in his articles. |
• |
CFS & ADHD: what's the link?
Researchers exploring a possible link between Chronic Fatigue Syndrome (ME/CFS) and attention deficit/hyperactivity disorder (ADHD) say fatigue may be an important symptom of adult ADHD, and that people with ME/CFS or other types of persistent fatigue should be looked at for ADHD. |
• |
Disability LinkUp
Disability LinkUp is an Australian website that brings together all things related to disability – buying or selling your second-hand equipment, exchanging information, sharing experiences. |
• |
Low-dose naltrexone linked to reduction in pain in Fibromyalgia
Low-dose naltrexone treatment is associated with significant reductions in pain in patients with Fibromyalgia, according to a study published in the February issue of Arthritis & Rheumatism. |
March |
• |
Daze of their lives
An article about the incidence of Fibromyalgia in Hong Kong. |
• |
What the trauma leaves behind
A profile of Fibromyalgia sufferer Sahar. |
• |
UniSA's Ride for Pain
The University of South Australia's Ride for Pain is a community cycling event that aims to raise awareness of the frequently overlooked issues of chronic pain. |
• |
Chronic Fatigue Syndrome: A Treatment Guide now available online free
The full text of the 1998 edition of Chronic Fatigue Syndrome: A Treatment Guide is available free at the On Through the Fog website. |
• |
Differentiating between Chronic Fatigue Syndrome, CF, & ME
About.com's Adrienne Dellwo discusses a new study where the researchers are trying to draw lines between three diagnoses: chronic fatigue (CF); Chronic Fatigue Syndrome (CFS); and myalgic encephalomyelitis (ME). |
• |
Fibromyalgia patients reported more sensory, nonsensory symptoms than RA, OA patients
Patients with Fibromyalgia reported more sensory and nonsensory symptoms compared with patients with rheumatoid arthritis or osteoarthritis, according to study results. |
• |
Trapezius activity of Fibromyalgia patients
A research paper entitled "Trapezius activity of fibromyalgia patients is enhanced in stressful situations, but is similar to healthy controls in a quiet naturalistic setting: a case-control study". |
• |
Medical community divided over 'chemical sensitivity' ailment
Debbie Lose-Kelly is a woman with severe Multiple Chemical Sensitivity, an illness that most in the medical community aren't convinced is an actual disease. |
• |
Society seminar reminder
A reminder that the Society's seminar is today (Saturday 23 March 2013) from 1pm - 3pm. |
• |
Public meeting in the US to focus on regulatory issues associated with Chronic Fatigue Syndrome
The US Food and Drug Administration is set to hold a workshop on the development of therapies for ME/CFS, a poorly-understood and often controversial syndrome identified by both the agency and patient advocates as an area in significant need of treatment options. |
• |
Tonix readies for pivotal Fibromyalgia program
A trial of a new drug for the treatment of Fibromyalgia enters its latest phase. |
• |
Keeping house with Fibromyalgia and Chronic Fatigue Syndrome
About.com's Adrienne Dellwo talks about helpful cleaning products for people with Fibromyalgia and ME/CFS. |
• |
MEandYou asking for donations to help fund Rituxan trial in Norway
Norwegian ME/CFS organisation MEandYou is calling donations to help fund a trial of the drug Rituxan. |
• |
Society seminar
The Society's next seminar will be held this Saturday, 23 March 2013, from 1 - 3pm. |
• |
Call for volunteers
The Society is calling for volunteers who are needed for a few hours each week or month. |
• |
Alcohol, Fibromyalgia, and quality of life
A study published in Arthritis Research & Therapy found that low and moderate drinkers of alcohol reported lower severity of symptoms of Fibromyalgia than teetotallers, but too much alcohol reversed the effect. |
• |
New Fibromyalgia diagnostic blood test – for real?
ProHealth's Karen Lee Richards discusses a new blood test to diagnose Fibromyalgia. |
• |
Professor Kenny De Meirleir ME/CFS seminars on video
A series of videos on YouTube featuring Professor Kenny De Meirleir discussing ME/CFS. |
• |
Chronic Fatigue and Immune Dysfunction: Who took the "ID" out of CFIDS?
An article by Erica Verrillo about Chronic Fatigue Syndrome's evolving nomenclature. |
• |
NIH awards nearly $2 million to 3 NYC institutions for CFS research
Weill Cornell Medical College, Icahn School of Medicine at Mount Sinai and Beth Israel Medical Center join forces to discover novel biomarkers and therapeutic treatments for patients with the debilitating condition. |
• |
Researchers launch study on dual Fibromyalgia treatment
The Fibromyalgia Research Program at the Univsersity of Washington is conducting a study to determine if combining two types of treatment can benefit patients who have been diagnosed with Fibromyalgia. |
• |
µ-opioid receptors impaired in Fibromyalgia patients, study shows
Impaired functioning of the brain’s ability to process pain stimuli may negatively affect how people with Fibromyalgia experience pain, according to new research. |
• |
Research suggests mild electrical pulses may aid Fibromyalgia sufferers
Initial findings by a University of Virginia School of Nursing research team suggest that mild cranial electrical stimulation helps lessen Fibromyalgia pain. |
• |
The neuropsychiatric and neuropsychological features of CFS
An article that aims to provide a comprehensive and updated review of the key neuropsychiatric and neuropsychological complaints associated with Chronic Fatigue Syndrome. |
• |
Canada's "Share the Bounty" competition
A competition involving voting for Canadian charities. |
• |
Bad sleep 'dramatically' alters body
A run of poor sleep can have a potentially profound effect on the internal workings of the human body, say UK researchers. |
• |
Not keeping PACE
An article by Cort Johnson about the fallout from the PACE trial. |
• |
Hillary Johnson article: "Chasing The Shadow Virus"
The March issue of Discovery magazine includes an article by author Hillary Johnson about XMRV. |
• |
The GI microbiome and its role in Chronic Fatigue Syndrome
Research published in the Journal of the Australasian College of Nutritional and Environmental Medicine. |
• |
TV & screenwriter gives a voice to Fibromyalgia patient in new book
Television series screenwriter Suzanne Fitzpatrick came down from "7th Heaven" – the longest-running family drama in television history – and shared a down-to-earth, yet remarkably inspiring, true story of Patricia Jacobson, a woman plagued with Fibromyalgia. |
• |
Young vs. old: different type of Chronic Fatigue Syndrome?
New research suggests that cases of Chronic Fatigue Syndrome beginning after age 50 are different from those that start earlier in life. |
February |
• |
Questions arise over new diagnostic test for Fibromyalgia
A new diagnostic test for patients with Fibromyalgia will soon be available, but some experts question its value. |
• |
Fibromyalgia drugs only effective for 22 percent
Research has revealed that Fibromyalgia drugs are only effective for 22 percent of patients. |
• |
The 1 in 4 Poll
People with a disability in Australia have the right to have their voice heard in the ongoing national debate that informs government policy, and the 1 in 4 Poll aims to strengthen the voice of people with a disability. |
• |
Fibromyalgia and chronic pain in danger of being labeled a mental disorder
There has been a great deal of concern over the addition of Somatic Symptom Disorder's addition to the Statistical Manual of Mental Disorders because of the potential for people with invisible disabilities to be misdiagnosed with this vague mental disorder. |
• |
13 ways Fibromyalgia is like Downton Abbey
An article by Sue Ingebretson. |
• |
Ending relationships with Fibromyalgia and Chronic Fatigue Syndrome
When you have Fibromyalgia or Chronic Fatigue Syndrome, you have to make sure you minimize the things in your life that can make your symptoms worse, and sometimes, as painful as it can be, that means eliminating people. |
• |
New institute seeks treatments for Chronic Fatigue Syndrome, Gulf War Illness
A new institute at Nova Southeastern University aims to develop commercial treatments for both Chronic Fatigue Syndrome and Gulf War Illness. |
• |
Fibromyalgia not one-size-fits-all disorder
Fibromyalgia should be considered a condition that exists across a continuum in the population, and is not a categorical disorder as it has often been considered, researchers concluded from a survey analysis in Germany. |
• |
Fibromyalgia prevalence at 2.1 percent of general German population
Researchers have determined that Fibromyalgia prevalence is 2.1% of the general population in Germany. |
• |
Morgan Freeman has Fibromyalgia
An excerpt from a feature article on Morgan Freeman in Esquire magazine in which Freeman mentions his Fibromyalgia. |
• |
Chronic fatigue patients frustrated with FDA
Society member Judy Rhodes will be helping the Leukemia Foundation by participating in the World's Greatest Shave. |
• |
World's Greatest Shave: please sponsor Judy Rhodes
Society member Judy Rhodes will be helping the Leukemia Foundation by participating in the World's Greatest Shave. |
• |
ME Association response to PACE trial recovery paper
A letter sent to Psychological Medicine in response to a paper the journal published on January 31 on "Recovery from Chronic Fatigue Syndrome after treatments given in the PACE trial". |
• |
Fibromyalgia hospitalization costs for 9 years estimated near $1 billion
Estimated hospitalization charges for Fibromyalgia during a 9-year period in the United States totaled almost $1 billion, according to study results. |
• |
Role of emotional trauma in Fibromyalgia questioned
A new study appears to poke holes in the belief that emotional trauma can lead to Fibromyalgia. |
• |
The underfinanced ME/CFS research field (part 1)
An article by Anne Ortegren on Cort Johnson's Health Rising blog about the disproportionately low amount of funding for ME/CFS. |
• |
Sunsuper Dreams: vote to win $5,000 grant
Each month, Sunsuper Dreams offers a $5,000 grant to a person whose dream of helping the community in a specific way garners the most votes. |
• |
Tight duo battles chronic fatigue
A profile of New Zealand ME/CFS sufferers, mother and daughter Wendy and Sophie Matthews. |
• |
More positive results: Low-dose naltrexone for Fibromyalgia
Stanford University researchers have again found that low-dose naltrexone (LDN) is a beneficial treatment for Fibromyalgia. |
• |
Sealed off from the world
A new photography collection documents the world of the hyper-allergic, those who wear gas masks, gloves, chemical suits, and even seal their homes in foil because they suffer violent reactions to common chemicals such as perfume and car exhausts. |
• |
Drug development for ME/CFS: questions and answers
The U.S. Food and Drug Administration responds to questions about its approval process for Ampligen. |
• |
Hunger striker continues after FDA rejects Hemispherx drug: Interview
Bob Miller has no intention of giving up his hunger strike to raise awareness for Chronic Fatigue Syndrome and Ampligen, the experimental treatment that Philadelphia-based Hemispherx Biopharma has had under development for more than three decades. |
• |
Cost-effectiveness of supported self-management for CFS/ME patients in primary care
A study published in BMC Family Practice that investigates the cost-effectiveness of nurse-led self-help treatments for people with CFS/ME. |
• |
Drugs to treat Fibromyalgia just as likely to harm as help
Among Fibromyalgia patients taking either of two commonly prescribed drugs to reduce pain, 22 percent report substantial improvement while 21 percent had to quit the regimen due to unpleasant side effects, according to a new review in The Cochrane Library. |
• |
Comparison of CFS/ME with other disorders: an observational study
Research published in The Royal Society of Medicine's JRSM Short Reports. |
• |
ME/CFS Alert Episode 40
The latest episode of Llewellyn King's video series ME/CFS Alert features an interview with ME/CFS researcher Dr. John Chia. |
• |
Society meeting reminder
A reminder that the Society's first meeting for 2013 will be held today (Saturday 2 February). |
• |
Ad-man highlights chronic fatigue with fundraiser
Chronic fatigue sufferer RJ Singh has organised an "epic event" to raise awareness for the condition that plagues many New Zealanders. |
January |
• |
Society meeting
The Society's first meeting for 2013 will be held this Saturday 2 February. |
• |
Costs, effectiveness associated with Fibromyalgia drugs questioned
New central acting drug use for treating patients with Fibromyalgia has quadrupled during the last decade, but researchers were not convinced about the costly drugs' clinical advantages, according to study results. |
• |
New medical journal: Fatigue
IACFS/ME, in association with publishers Routledge (Taylor & Francis) has created a new medical journal entitled Fatigue: Biomedicine, Health & Behavior. |
• |
CFS patients need an effective therapeutic, leading expert argues
Dr. Nancy Klimas, M.D., argues for the approval of Ampligen to be used in therapies for Chronic Fatigue Syndrome patients. |
• |
Welfare Rights Centre (SA) Inc
Welfare Rights (SA) Inc is a non-government agency that exists to assist people with disabilities in their dealings with Centrelink. |
• |
A CFS severity score based on case-designated criteria
Research published in the American Journal of Translational Research. |
• |
Multiple Chemical Sensitivity: Want to learn how to build a low-impact den?
An article from the UK's Permaculture magazine about building suitable accommodation for Multiple Chemical Sensitivity sufferer Gillian McCarthy. |
• |
Evidence of immune problem & possible diagnostic test for Fibromyalgia
New research adds evidence to the theory that Fibromyalgia involves significant immune-system dysfunction, and the testing methods used in the study may also have value as a diagnostic tool. |
• |
Reduced cardiac vagal modulation impacts on cognitive performance in Chronic Fatigue Syndrome
A study that examined the relationship between heart rate variability and cognitive performance in patients with CFS. |
• |
Video: Panel of women with ME/CFS who have experienced pregnancy
A presentation that provides a synopsis of expert opinion and the current scientific evidence, albeit scant, that addresses the experience of childbirth in women with CFS. |
• |
National US conference to discuss Chronic Fatigue Syndrome
Nova Southeastern University will be hosting a conference on Saturday, January 26 about the upcoming opening of the NSU College of Osteopathic Medicine’s Institute for Neuro Immune Medicine. |
• |
Flu shot "justified" for Chronic Fatigue Syndrome
About.com's Adrienne Dellwo discusses the contentious topic of flu shots. |
• |
Comparison of CFS/ME with other disorders: an observational study
A study published in The Royal Society of Medicine's JRSM Short Reports that examined the level of activity in online discussion forums for CFS/ME compared to other disorders. |
• |
Central Sensitivity Syndrome: Umbrella term for Fibromyalgia, Chronic Fatigue Syndrome
An article by About.com's Adrienne Dellwo about the usefulness of Central Sensitivity Syndrome, an umbrella term for Fibromyalgia, Chronic Fatigue Syndrome and several other related illnesses. |
• |
Chronic Fatigue Syndrome: how does it affect sleep?
An article by sleep specialist Dr. Michael J. Breus about a variety of sleep problems associated with ME/CFS. |
• |
Post-mononucleosis juvenile Chronic Fatigue Syndrome
A new study looks at the rate of ME/CFS in adolescents after mononucleosis (the "kissing disease") and reveals differences between the kids who fully recover and the ones who are left with ME/CFS. |
• |
Study finds gait disorder in men with Fibromyalgia
Research published in Rheumatology International that examines the differences in manner of walking between healthy men and men with Fibromyalgia. |
• |
MSG may worsen Fibromyalgia symptoms
An article entitled "The effect of dietary glutamate on fibromyalgia and irritable bowel symptoms", which was published in Clinical and Experimental Rheumatology. |
• |
2013 drug outlook for Fibromyalgia and Chronic Fatigue Syndrome
About.com's Adrienne Dellwo asks: "Will we see new drugs for either Fibromyalgia and Chronic Fatigue Syndrome in 2013?". |
• |
Until we have a cure: What CFS patients want well people to know
An article published in the Massachusetts CFIDS/ME & FM Association that shares the results of a deeply personal CFS/FM patient survey. |
• |
When tiredness stops your life
An article by Karla Dondio about her life with Chronic Fatigue Syndrome. |
• |
Rituximab for Chronic Fatigue Syndrome: Jumping the Gun
An editorial about ME/CFS sufferers experimenting with anti-cancer drug rituximab. |
• |
Chronic Fatigue virus vanishes on closer look
After years of debate, scientists finally agree that the disease is not linked to the XMRV virus. |
• |
Denied disability: US Social Security recognizes Fibromyalgia
An article from US website LawersandSettlements.com about the difficulties Cathy had with attempts to have her Fibromyalgia legally recognised in America. |
• |
Radio interview with New Zealand ME/CFS researcher Professor Warren Tate
Science communication student Brandon Gantt talks with Professor Warren Tate on Radio New Zealand's Our Changing World program. |
• |
Strong evidence of a genetic link in Fibromyalgia
Research published in Arthritis and Rheumatism entitled "The fibromyalgia family study: A genome-scan linkage study". |
• |
Working women with Fibromyalgia reported better health
Women with Fibromyalgia who worked reported better health than non-working women with Fibromyalgia, although each cohort was impaired equally in physical capacity, according to study results. |
• |
Fibromyalgia misconceptions
Connie A. Luedtke, R.N., the nursing supervisor of the Fibromyalgia and Chronic Fatigue Clinic at Mayo Clinic, Rochester, Minn., discusses some common misconceptions about Fibromyalgia. |
• |
A look back at ME/CFS in 2012
Cort Johnson reviews the year in ME/CFS research. |
• |
ME/CFS Australia (Vic/Tas/NT) is Australian Tupperware's Charity Choice
ME/CFS Australia (Vic/Tas/NT) is the Australian Tupperware Charity of Choice for the next 6 months. |
• |
Happy New Year
All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year. |
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)