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ME/CFS Australia Ltd
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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

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Multi-site clinical assessment of CFS

Monday 3 December 2012

 

From the US's Centers for Disease Control and Prevention:

 

CDCMulti-site Clinical Assessment of CFS

November 28, 2012

CDC has begun a multi-site clinical assessment of chronic fatigue syndrome (CFS) to characterize patients with CFS or myalgic encephalomyelitis (ME) in clinical practices of clinicians with expertise in CFS/ME.

The study will examine the differences and similarities between CFS/ME patients in the clinical practices of experienced CFS clinicians. We are using a standardized approach for data collection, meaning that all clinic sites will use the same type of forms or instruments to gather information. This will help us to describe the differences and similarities among CFS patients. The data collected using a standardized approach from expert clinical practices will be used to address the CFS case definition. Ultimately, this study aims to improve how we measure illness domains of CFS. This may allow patients to be sub-grouped to improve therapy and allow the underlying biology to be discovered.

The study started in 2012 and aims to enroll 450 patients. Any patient (aged 18 70 years) that is managed or diagnosed with CFS, post-infective fatigue (PIF) or myalgic encephalomyelitis (ME) at any of seven participating clinical sites is eligible for participating in this study. Study exclusions include illness onset at age older than 62 years, HIV infection, current pregnancy, or dementia.

 

The above originally appeared here.

 


 

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