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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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South Australian carnitine study: volunteers wanted

Thursday 18 October 2012

 

We mentioned this study from the University of South Australia's School of Pharmacy and Medical Sciences last month, but the researchers are still keen to hear from anyone with ME/CFS living in South Australia who can participate:

 

University of South Australia School of Pharmacy and Medical SciencesAssessment of Fatty Acid/Carnitine Homeostasis in Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)

Protocol Number: LC/12.8

Dear ME/CFS Society Member,

We are currently conducting a study with the assistance of the ME/CFS Society of South Australia and are in urgent need of volunteers. The study follows on from our previous research that has suggested that ME/CFS is associated with mitochondrial dysfunction and an impairment in the way that specific types of fats are processed for energy.

Our new study is being conducted to further investigate our previous findings and consists of two parts: Part A (a single blood sample) and Part B (breath testing). Volunteers can choose to take part in Part A only or both Part A and Part B of the study. Blood samples for Part A can be collected at your local IMVS collection centre (located throughout South Australia) at any time that is convenient for you. Part B of the study will be conducted at the University of South Australia, City East Campus after all of the blood samples in Part A have been collected (assessment days will try to be arranged for when is convenient for participants). Study participants will be reimbursed ($20 for Part A and $100 for Part B) for out-of-pocket expenses, inconvenience and time involved.

We are in desperate need of volunteers to take part in the study; we are looking for ME/CFS patients as well as volunteers without ME/CFS to act as controls. To be suitable, participants must be at least 18 years of age and not be taking any medications/have any medical conditions that would affect the levels we are measuring – note that most conditions and medications are fine.

A detailed description of the study is contained within the enclosed Participant Information Sheet & Consent Form. Of course, you are under no obligation to take part; however, if you are interested or would like more information, please feel free to contact Dr Stephanie Reuter Lange via email (stephanie.reuterlange@unisa.edu.au) or call (08) 8302 1872. You are also welcome to pass this information on to any friends and family members (with or without ME/CFS) who may be interested.

Kind Regards,

Stephanie Reuter Lange
School of Pharmacy & Medical Sciences
University of South Australia

James Hackett
President: ME/CFS Australia (SA) Inc

 

Download:

PDF Participant Letter (as above) (PDF, 47 KB)
 
PDF Participant Information Sheet And Consent Form (PDF, 147 KB)

 

 


 

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