Society Logo
ME/CFS Australia Ltd
Please click here to donate ME/CFS Australia (SA) Inc
 
 
Facebook
 
ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Become a Member
DOCX Application Form (PDF, 156KB)
Why become a member?

Two surveys from Research1st

Saturday 13 October 2012

 

From the CFIDS Association of America's Research1st (via email):

 

Research1stTwo opportunities to share input!

This is a special edition of Research1st News seeking your input on two research-related topics. Watch for our regular update on research, policy and events in the coming days.

survey graphicSURVEY #1
There's no doubt that electronic devices - especially cell phones - have changed our culture. Now mobile phone applications ("apps") are being developed to aid research and help individuals track and understand symptom patterns that may be tools for better self-care. We are working with trusted partners to explore how cell phones might be used in CFS and chronic pain research. Will you take a moment to share your thoughts with us? All responses are anonymous and will help inform our exploration. Take the cell phone survey.

survey graphicSURVEY #2
Our biobanking partner, Genetic Alliance is conducting a short, anonymous survey about biobanks. (We are defining biobank as a collection of human biological samples, such as blood or tissue samples and the information associated with these samples, such as health information, that are stored for future use and managed according to professional standards.) Help Genetic Alliance take the community's "pulse" on biobanking. This survey has been approved by the Genetic Alliance Institutional Review Board #IORG0003358. Take the biobanking survey.

Thank you for sharing your input and experience! Between issues of Research1st News, keep up with the latest community news on our Facebook page and our Research1stwebsite.

 


 

blog comments powered by Disqus
Previous Previous Page