ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Toolkit vs. toolkit: Chronic Fatigue Syndrome
Thursday 27 September 2012
Your average doctor pretty much has no clue how to treat chronic fatigue syndrome (ME/CFS). It's not something they're taught in medical school, and many of them have never had a patient who was diagnosed with it.
Sure, some doctors refuse to consider the diagnosis at all, but for those who do care enough to do some research, two toolkits are available.
The first toolkit came from the CDC and, really, it's pretty weak. As many of us have come to expect, it leans heavily on mental-health approaches, lifestyle changes, and maybe a little Tylenol (acetaminophen) for pain.
More recently, the IACFS/ME (International Association for CFS/ME) has published its own toolkit, with the help of many of the illnesses top researchers. It's more than double the length of the CDC's and has a lot more information on diagnostics, treatments and overlapping conditions.
Is the IACFS/ME toolkit perfect? No. But for a 42-page primer that doctors can use to become familiar with the issues surrounding ME/CFS, it's not bad.
ME/CFS writer and advocate Cort Johnson, at the website Phoenix Rising, has done a section-by-section comparison of the two toolkits that's well worth the read. You can find it here:
The toolkits themselves are here:
What do you think of the toolkits? What information would you like to see in them? Is your doctor familiar with either of them? Leave your comments here!
The above, with comments, originally appeared here.
blog comments powered by Disqus