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ME/CFS AUSTRALIA (SA) INC

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ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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New book about long misunderstood illness

Wednesday 11 July 2012

 

From South Australian newspaper The Bunyip:

 

Fibromyalgia Well-BeingNew book about long misunderstood illness

By Elizabeth Henson
elizabeth@bunyippress.com.au

It is an often misunderstood syndrome, but a new book on fibromyalgia hopes to shed light on the condition and give local sufferers fresh hope.

Fibromyalgia is a chronic multi-system illness with numerous symptoms including widespread pain, stiffness, extreme fatigue/exhaustion, neurological issues, immune dysfunction, increased allergies, sleep disorders, hormonal dysfunction and adrenal dysfunction.

It is estimated that 65,000 people in South Australia live with fibromyalgia.

At a pre-launch event in Gawler recently, local people with the chronic condition gathered at the Gawler Baptist Church to meet the author of Fibromyalgia Well-Being, Dee Campbell.

The book documents Dee's own experiences with fibromyalgia, including her declining health over numerous years, diagnosis, acceptance and management.

"It's a personal journey of learning, adjusting, changing and growing," she said.

"It is a non-clinical account of my experiences which will be shared and common to many people."

Dee was officially diagnosed with fibromyalgia in 2007, following several years of poor health.

Her journey inspired her to write Fibromyalgia Well-Being.

"Whilst travelling through challenging and confusing times (during pre and early diagnosis) I searched for a book like this, to help me adjust to my new 'reality' with chronic health issues," she said.

"This book recognises the importance of adopting a wider view – to include a combination of approaches and interventions that embrace a physical, psychological, spiritual balance.

"The book provides validation and reassurance, therefore helps one to keep perspective through difficult times."

Dee said she hopes the book will enlighten and reassure people with the condition and those around them.

"I have a background of over 20 years, working in community services, doing volunteer work and am passionate about building community and creating networks for those who feel alone and/or isolated due to illness, disability or other life challenges," she said.

"I hope this book may assist others who are facing challenging times.

"I have also written this book as I hope it will become a tool for other health professionals and the community, to increase their awareness and understanding, and encourage them to reach out and support those who need their understanding and validation, as part of long-term management."

Fibromyalgia Well-Being will be officially launched at the Walkerville Library Saturday, 14th July at 10am.

Meanwhile, Gawler has its own fibromyalgia support group.

Established earlier this year, the group meets monthly at the Gawler Women's Health Centre.

For more information call Claire Randall (0407 778 996).

 

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