ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
PO Box 28,
South Australia 5007
North Terrace House,
19 North Terrace,
Hackney, SA, 5069
1300 128 339
Closed over Christmas
(reopened 1 February 2017)
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Understanding the pain response of Fibromyalgia
Wednesday 27 June 2012
When you're trying to understand how pain works in someone with fibromyalgia, it can help to step away from all the medical jargon and compare it to something most of us are all ready familiar with. To me, it really helps to think about a computer network. (Don't worry - you don't have to understand a lot about computers to get this!)
Computer Network Malfunction
Picture the computer network at a large company, with a bunch of computers all connected to a server, and an IT department full of guys who keep it all running.
Problem #1: Now imagine there's a glitch in the system and things just aren't running right. The computers start popping up with erroneous warning messages, so everyone starts emailing IT about them.
Problem #2: The glitch causes all of those emails to be sent in triplicate.
Problem #3: The IT department is woefully under staffed today, with 2 guys present instead of the usual 6. They were already working hard to keep the system running when suddenly they were swamped with emails and there's no way they can keep up on them. Now the email system is on the verge of crashing because of the sudden spike.
You can imagine the chaos and confusion that would result, as well as the drop in everyone's ability to actually get their jobs done.
Nervous System Malfunction
Now let's look at how this applies to what's going on in your body.
The computer network is your nervous system. The server is your brain, and the computers represent cells. The IT guys? They're playing the role of the neurotransmitter serotonin, which helps your brain process pain signals.
In Problem #1: The cells inaccurately interpret different kinds of stimuli as pain (erroneous warning messages.)
In Problem #2: They send pain signals to your brain (emails,) but because they have high levels of an enzyme called substance P, they send up to triple the number of signals theyshould send.
In Problem #3: Your brain is working hard to keep your body running, when suddenly it's bombarded by pain signals emails. It doesn't have enough serotonin to process the messages that are coming in, and the pain distracts resources from other areas.
Just as in a company, this dysfunction causes myriad problems in your body and your life and makes it hard for you to function.
The Tip of the Iceberg
This is really only a portion of what's going on - and going wrong - in your pain-response system. Fibromyalgia pain is extremely complicated, and decades of research are just beginning to reveal the full picture.
To understand our pain better, see:
Many people with fibromyalgia also have one or more additional pain conditions. Seems pretty unfair, doesn't it?
In my case, fibromyalgia is secondary to myofascial pain syndrome. I've probably had that since I was 10, but it was undiagnosed until I was in my 30s. It's likely that the constant pain I was in lead to the changes in my nervous system that triggered the fibromyalgia.
However, I've acquired a few other pain conditions since then, including autoimmune thyroid disease and TMJ, which are both common in us.
Each condition needs to be diagnosed and treated differently, so it's important for us to recognize when something new is going on that's not "just" the same old fibromyalgia pains. To help you with that, I've put together:
What pain conditions do you have? Are they well managed? Which one is hardest to deal with? Leave your comments here!
The above, with comments, originally appeared here.
blog comments powered by Disqus