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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Email:
sacfs@sacfs.asn.au
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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CFIDS Association research fundraiser launches with Jennifer's Story
Saturday 19 May 2012
From the CFIDS Association of America's Research1st:
 "One month, I was running and training for marathons. The next month, I couldn't walk." Jennifer E. Wright |
Catalyst Fund Spring Campaign Launches
Together, We Can Shape a Brighter Future
Every person afflicted with chronic fatigue syndrome or CFS, and every family touched by this debilitating illness, has a powerful story to share. Always poignant, frequently heartbreaking, these stories — our stories — remind us why it’s so important that we shape a new, brighter future, together.
For Jennifer E. Wright and millions of others afflicted with CFS, the stakes have never been higher, and the breakthrough approach to research embodied in the new Research Institute Without Walls (RIWW) has never been more important.
Here is Jennifer’s story:
In the summer and fall of 2009, Jennifer got married, celebrated her 24th birthday, started a new job, pursued graduate studies in industrial organizational psychology at Salem State University … and started to feel very sick.
“I would collapse to the floor because my stomach was in such severe pain,” she says. “I would lie in bed screaming because I had unbearable headaches that persisted for hours. I also developed severe swallowing problems that led to substantial weight loss.”
Following months of repeated emergency room visits, a full week of hospitalization in October, and week after week in excruciating pain and agony, Jennifer was diagnosed with CFS in February 2010.
Today, Jennifer is housebound, confined to her bed 90 percent of the time. Despite taking many medications, she continues to struggle with severe muscle pain, headaches, breathing difficulties, dizziness and nausea, as well as severe sensitivity to chemicals, light, odors, sounds and motion.
“Prayer, faith, and the support of my wonderful husband and family help me get through the days,” Jennifer says. Still, “one of the hardest things to deal with is the unknown. We need answers.”
After years of conducting research in traditional ways, “the RIWW is like a reboot – a new beginning,” Jennifer continues. “Every branch of the RIWW is working collaboratively for the common goals of CFS research, and I think that every dollar contributed is being utilized to its maximum benefit. That’s why donating money to The Catalyst Fund is so important… to keep hope alive for CFS sufferers.”
The Catalyst Fund spring fundraising drive is now underway. All contributions help power the RIWW, which puts people at the very heart of the search for better diagnostics and treatment. As CFIDS Association of America scientific director Dr. Suzanne Vernon explains: “We’re giving people with CFS back a stake in the future — and a role in the research that, ultimately, will impact their daily lives.”
Please watch your mail and email for campaign updates, research progress reports and more personal stories about the people who inspire all of us to be Catalysts for hope and change.
Your gift will go a long way toward accelerating the pace of discovery for effective treatment. Help Jennifer and millions of other people afflicted with CFS reclaim their lives. Make the most generous gift you can today at http://bit.ly/RIWW-fund. Thank you for your generosity.
The above, and more, originally appeared here.
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